Improving shared decision-making about cancer treatment through design-based data-driven decision-support tools and redesigning care paths: an overview of the 4D PICTURE project

Rietjens, J. A. C., Griffioen, I., Sierra-Pérez, J., Sroczynski, G., Siebert, U., Buyx, A., Peric, B., Svane, I. M., Brands, J. B. P., Steffensen, K. D., Romero Piqueras, C., Hedayati, E., Karsten, M. M., Couespel, N., Akoglu, C., Pazo-Cid, R., Rayson, P., Lingsma, H. F., Schermer, M. H. N., Steyerberg, E. W., & 48 othersPayne, S. A., Korfage, I. J., Stiggelbout, A. M., Oliveira, C. C., Semino, E., Roobol, M., López-Forniés, I., Kunneman, M., Verberne, S., Kuld, A., van Mulligen, E. M., Knudsen, B. M., Kors, J. A., Venderbos, L. D. F., Donia, M., Koppert, L. B., Nwosu, A. C., Verheul, E. M., Sañudo, Y., Kremer, M., Gracia, J., Antón, A., Schreijer, M., Bangma, C., Hartman, L., van Klaveren, D., Valles, M. A., Pitarch, L., Hallsson, L. R., Wouters, M., Kapiteijn, E., de Glas, N., van Buchem, M., Doornkamp, F., Borštnar, S., Wee, L., Pross, T., Silva, M., Venegoni, E., Lorenzo, N., Wallberg, S., Dankl, K., de Jesús, T. P., Romera, J. L., Pons, P. G., Signerez, P. M., Secomandi, F. & Snelders, D., 31/01/2024, In: Palliative Care and Social Practice. 18, 15 p., 1-15.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Applying Digital Health in Cancer and Palliative Care in Europe: Policy Recommendations from an International Expert Workshop (MyPal Project)

Payne, S., Begovic, D., Salifu, Y., Nelson, A., Payne, C., Downing, J., Natsiavas, P. & Ling, J., 30/01/2024, In: Journal of Palliative Medicine. 27, 2, p. 216-223 8 p.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Social relationships and community end of life care in Hong Kong: a three-stage model of social capital development

Chan, W-S., Payne, S. & Funk, L., 2/01/2024, In: Mortality. 29, 1, p. 159-175 17 p.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Advance care planning - Family carer psychological distress and involvement in decision making: The ACTION trial

Vandenbogaerde, I., De Vleminck, A., Cohen, J., Verkissen, M. N., Lapeire, L., Ingravallo, F., Payne, S., Wilcock, A., Seymour, J., Kars, M., Grønvold, M., Lunder, U., Rietjens, J., Van Der Heide, A. & Deliens, L., 31/12/2023, In: BMJ Supportive and Palliative Care. 13, e3, p. e807–e811 5 p.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Breaching the stalemate on assisted dying: it’s time to move beyond a medicalised approach

Preston, N., Payne, S. & Ost, S., 30/08/2023, In: BMJ. 382, p. 1968 1 p.

Research output: Contribution to Journal/Magazine › Comment/debate

Adapting the Pillar Integration Process for Theory Development: The Theoretical Model of Healthcare Factors Influencing Quality of Life in Cancer Survivorship

Drury, A., Payne, S. & Anne-Marie, B., 31/07/2023, In: Journal of Mixed Methods Research. 17, 3, p. 264-287 24 p.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

P 17.016 Understanding Barriers and Facilitators to Palliative Care Research: Survey and Working Groups with Generalist and Specialist Health, Social Care and Research Professionals

Walshe, C., Dunleavy, L., Preston, N., Payne, S., Ellershaw, J., Taylor, V., Mason, S., Gadoud, A., Board, R., Swah, B., Partridge, A., Halvarson, J., Nwosu, A., Coyle, S., Dickman, A. & Hulbert-Williams, N., 7/06/2023, In: Palliative Medicine. 37, 1_suppl, p. 268

Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review

Exploring the Concept of Transitions in Advanced Cancer Care: The European Pal_Cycles Project

Payne, S. A. & Hasselaar, J., 1/06/2023, In: Journal of Palliative Medicine. 26, 6, p. 744-745 2 p.

Research output: Contribution to Journal/Magazine › Editorial › peer-review

Monitoring the clinical practice of palliative sedation (PALSED) in patients with advanced cancer: an international, multicentre, non-experimental prospective observational study protocol

Rijpstra, M., Vissers, K., Centeno, C., Menten, J., Radbruch, L., Mercadante, S., Van der Elst, M., Adile, C., Arantzamendi, M., Kuip, E., Payne, S., Preston, N. & Hasselaar, J., 28/01/2023, In: BMC Palliative Care. 22, 1, 9 p., 8.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Measuring relatives’ perceptions of end-of-life communication with physicians in five countries: a psychometric analysis

Koniewski, M., Barańska, I., Kijowska, V., van der Steen, J. T., Wichmann, A. B., Payne, S., Gambassi, G., Van Den Noortgate, N., Finne-Soveri, H., Smets, T., Van den Block, L., Szczerbińska, K. & project, PACE., 31/12/2022, In: European Journal of Ageing. 19, 4, p. 1561-1570 10 p.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

An analysis of the experiences of bereaved relatives and health care providers following palliative sedation: a study protocol for a qualitative international multicenter case study

Van der Elst, M., Payne, S., Arantzamendi, M., Preston, N., Hasselaar, J., Centeno, C., Belar, A., Jaspers, B., Brunsch, H., Surges, S., Adile, C. & Menten, J., 23/12/2022, In: BMC Palliative Care. 21, 1, 8 p., 227.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Regulations on palliative sedation: an international survey across eight European countries

Garralda, E., Busa, C., Pozsgai, É., Osztromok-Lukacs, V., Csikós, A., Radbruch, L., Hasselaar, J., Menten, J., Payne, S., Adile, C., Hurducas, F. & Centeno, C., 27/10/2022, In: European Journal of Public Health. 2022, 7 p., ckac153.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Review of European Guidelines on Palliative Sedation: A Foundation for the Updating of the European Association for Palliative Care Framework

Surges, S. M., Garralda, E., Jaspers, B., Brunsch, H., Rijpstra, M., Hasselaar, J., Van der Elst, M., Menten, J., Csikós, Á., Mercadante, S., Mosoiu, D., Payne, S., Centeno, C. & Radbruch, L., 27/10/2022, In: Journal of Palliative Medicine. 25, 11, p. 1721-1731 11 p.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Advance directives in European long-term care facilities: A cross-sectional survey

Andreasen, P., Finne-Soveri, U. H., Deliens, L., Van Den Block, L., Payne, S., Gambassi, G., Onwuteaka-Philipsen, B. D., Smets, T., Lilja, E., Kijowska, V. & Szczerbińska, K., 5/08/2022, In: BMJ Supportive and Palliative Care. 12, 3, p. 393-402 10 p.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Prevalence vs impact: a mixed methods study of survivorship issues in colorectal cancer

Drury, A., Payne, S. & Brady, A-M., 30/04/2022, In: Quality of Life Research. 31, 4, p. 1117-1134 18 p.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Revised recommendations on standards and norms for palliative care in Europe from the European Association for Palliative Care (EAPC): A Delphi study

Payne, S., Harding, A., Williams, T., Ling, J. & Ostgathe, C., 1/04/2022, In: Palliative Medicine. 36, 4, p. 680-697 18 p.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Ethical Principles in Digital Palliative Care for Children: The MyPal Project and Experiences Made in Designing a Trustworthy Approach

Garani-Papadatos, T., Natsiavas, P., Meyerheim, M., Hoffmann, S., Karamanidou, C. & Payne, S. A., 18/03/2022, In: Frontiers in Digital Health. 4, 10 p., 730430.

Research output: Contribution to Journal/Magazine › Review article › peer-review

The Decision-Making Process for Palliative Sedation for Patients with Advanced Cancer—Analysis from a Systematic Review of Prospective Studies

Belar, A., Arantzamendi, M., Menten, J., Payne, S., Hasselaar, J. & Centeno, C., 8/01/2022, In: Cancers. 14, 2, 301.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Undertaking Research Using Online Nominal Group Technique: Lessons from an International Study (RESPACC)

Mason, S., Ling, J., Mosoiu, D., Arantzamendi, M., Tserkezoglou, A. J., Predoiu, O. & Payne, S., 17/11/2021, In: Journal of Palliative Medicine. 24, 12, p. 1867-1871 5 p.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

MyPal ADULT study protocol: A randomised clinical trial of the MyPal ePRO-based early palliative care system in adult patients with haematological malignancies

Scarfò, L., Karamanidou, C., Doubek, M., Garani-Papadatos, T., Didi, J., Pontikoglou, C., Ling, J., Payne, C., Papadaki, H. A., Rosenquist, R., Stavroyianni, N., Payne, S., Ghia, P., Natsiavas, P., Maramis, C. & Stamatopoulos, K., 2/11/2021, In: BMJ Open. 11, 11, 10 p., e050256.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Hospitalisation in the last month of life and in-hospital death of nursing home residents: A cross-sectional analysis of six European countries

Honinx, E., Piers, R. D., Onwuteaka-Philipsen, B. D., Payne, S., Szczerbińska, K., Gambassi, G., Kylänen, M., Deliens, L., Van Den Block, L. & Smets, T., 31/08/2021, In: BMJ Open. 11, 8, 12 p., e047086.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Large differences in the organization of palliative care in nursing homes in six European countries: findings from the PACE cross-sectional study

PACE consortium, 25/08/2021, In: BMC Palliative Care. 20, 1, 131.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

MyPal: Designing and Evaluating Digital Patient-Reported Outcome Systems for Cancer Palliative Care in Europe

Payne, S. A., Moore, D. C. & Stamatopoulos, K., 31/07/2021, In: Journal of Palliative Medicine. 24, 7, p. 962-964 3 p.

Research output: Contribution to Journal/Magazine › Editorial › peer-review