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    Rights statement: The final publication is available at Springer via http://dx.doi.org/10.1007/s00520-018-4169-2

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    Embargo ends: 29/03/19

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'Being with' or 'doing for'?: How the role of an end-of-life volunteer befriender can impact patient wellbeing: interviews from a multiple qualitative case study (ELSA)

Research output: Contribution to journalJournal article

Published
<mark>Journal publication date</mark>09/2018
<mark>Journal</mark>Supportive Care in Cancer
Issue number9
Volume26
Number of pages10
Pages (from-to)3163-3172
StatePublished
Early online date29/03/18
Original languageEnglish

Abstract

Purpose
To explore the perspectives of people anticipated to be in their last year of life, family carers, volunteers and staff on the impacts of receiving a volunteer-provided befriending service. Patient participants received up to 12 weeks of a volunteer-provided befriending intervention. Typically, this involved one visit per week from a trained volunteer. Such services complement usual care and are hoped to enhance quality of life.

Methods
Multiple case study design (n = 8). Cases were end-of-life befriending services in home and community settings including UK-based hospices (n = 6), an acute hospital (n = 1) and a charity providing support to those with substance abuse issues (n = 1). Data collection incorporated qualitative thematic interviews, observation and documentary analysis. Framework analysis facilitated within and across case pattern matching.

Results
Eighty-four people participated across eight sites (cases), including patients (n = 23), carers (n = 3), volunteers (n = 24) and staff (n = 34). Interview data are reported here. Two main forms of input were described—‘being there’ and ‘doing for’. ‘Being there’ encapsulated the importance of companionship and the relational dynamic between volunteer and patient. ‘Doing for’ described the process of meeting social needs such as being able to leave the house with the volunteer. These had impacts on wellbeing with people describing feeling less lonely, isolated, depressed and/or anxious.

Conclusion
Impacts from volunteer befriending or neighbour services may be achieved through volunteers taking a more practical/goal-based orientation to their role and/or taking a more relational and emotional orientation. Training of volunteers must equip them to be aware of these differing elements of the role and sensitive to when they may create most impact.

Bibliographic note

The final publication is available at Springer via http://dx.doi.org/10.1007/s00520-018-4169-2