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    Rights statement: © 2012 Hanratty et al.; licensee BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative Commons Attribution License ( http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

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A comparison of strategies to recruit older patients and carers to end-of-life research in primary care

Research output: Contribution to journalJournal article

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A comparison of strategies to recruit older patients and carers to end-of-life research in primary care. / Hanratty, Barbara; Lowson, Elizabeth; Holmes, Louise; Addington-Hall, Julia; Arthur, T. Antony A.; Grande, Gunn; Payne, Sheila; Seymour, Jane.

In: BMC Health Services Research, Vol. 12, 342, 27.09.2012.

Research output: Contribution to journalJournal article

Harvard

Hanratty, B, Lowson, E, Holmes, L, Addington-Hall, J, Arthur, TAA, Grande, G, Payne, S & Seymour, J 2012, 'A comparison of strategies to recruit older patients and carers to end-of-life research in primary care' BMC Health Services Research, vol. 12, 342. https://doi.org/10.1186/1472-6963-12-342

APA

Hanratty, B., Lowson, E., Holmes, L., Addington-Hall, J., Arthur, T. A. A., Grande, G., ... Seymour, J. (2012). A comparison of strategies to recruit older patients and carers to end-of-life research in primary care. BMC Health Services Research, 12, [342]. https://doi.org/10.1186/1472-6963-12-342

Vancouver

Hanratty B, Lowson E, Holmes L, Addington-Hall J, Arthur TAA, Grande G et al. A comparison of strategies to recruit older patients and carers to end-of-life research in primary care. BMC Health Services Research. 2012 Sep 27;12. 342. https://doi.org/10.1186/1472-6963-12-342

Author

Hanratty, Barbara ; Lowson, Elizabeth ; Holmes, Louise ; Addington-Hall, Julia ; Arthur, T. Antony A. ; Grande, Gunn ; Payne, Sheila ; Seymour, Jane. / A comparison of strategies to recruit older patients and carers to end-of-life research in primary care. In: BMC Health Services Research. 2012 ; Vol. 12.

Bibtex

@article{0a8a59430f8345a6af38acbcace8a937,
title = "A comparison of strategies to recruit older patients and carers to end-of-life research in primary care",
abstract = "BackgroundOlder adults receive most of their end-of-life care in the community, but there are few published data to guide researchers on recruitment to studies in primary care. The aim of this study was to compare recruitment of patients and bereaved carers from general practices in areas with different research network support, and identify challenges in obtaining samples representative of those in need of end-of-life care.MethodsComparative analysis of recruitment from general practices to two face-to-face interview studies concerned with 1) carers’ perceptions of transitions between settings for decedents aged over 75 years and 2) the experiences of older patients living with cancer at the end-of-life.Results33 (15{\%} of invitees) patients and 118 (25{\%}) carers were interviewed. Carers from disadvantaged areas were under-represented. Recruitment was higher when researchers, rather than research network staff, were in direct contact with general practices. Most practices recruited no more than one carer, despite a seven fold difference in the number of registered patients. The proportion identified as eligible for patient interviews varied by a factor of 38 between practices. Forty-four Primary Care Trusts granted approval to interview carers; two refused. One gave no reason; a second did not believe that general practitioners would be able to identify carers.ConclusionObtaining a representative sample of patients or carers in end-of-life research is a resource intensive challenge. Review of the regulatory and organisational barriers to end-of-life researchers in primary care is required. Research support networks provide invaluable assistance, but researchers should ensure that they are alert to the ways in which they may influence study recruitment.",
keywords = "Patient selection, Primary health care, Caregivers, Palliative care, Aged, Recruitment to research , End-of-life care research, Research in primary care",
author = "Barbara Hanratty and Elizabeth Lowson and Louise Holmes and Julia Addington-Hall and Arthur, {T. Antony A.} and Gunn Grande and Sheila Payne and Jane Seymour",
note = "{\circledC} 2012 Hanratty et al.; licensee BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative Commons Attribution License ( http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.",
year = "2012",
month = "9",
day = "27",
doi = "10.1186/1472-6963-12-342",
language = "English",
volume = "12",
journal = "BMC Health Services Research",
issn = "1472-6963",
publisher = "BMC",

}

RIS

TY - JOUR

T1 - A comparison of strategies to recruit older patients and carers to end-of-life research in primary care

AU - Hanratty, Barbara

AU - Lowson, Elizabeth

AU - Holmes, Louise

AU - Addington-Hall, Julia

AU - Arthur, T. Antony A.

AU - Grande, Gunn

AU - Payne, Sheila

AU - Seymour, Jane

N1 - © 2012 Hanratty et al.; licensee BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative Commons Attribution License ( http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

PY - 2012/9/27

Y1 - 2012/9/27

N2 - BackgroundOlder adults receive most of their end-of-life care in the community, but there are few published data to guide researchers on recruitment to studies in primary care. The aim of this study was to compare recruitment of patients and bereaved carers from general practices in areas with different research network support, and identify challenges in obtaining samples representative of those in need of end-of-life care.MethodsComparative analysis of recruitment from general practices to two face-to-face interview studies concerned with 1) carers’ perceptions of transitions between settings for decedents aged over 75 years and 2) the experiences of older patients living with cancer at the end-of-life.Results33 (15% of invitees) patients and 118 (25%) carers were interviewed. Carers from disadvantaged areas were under-represented. Recruitment was higher when researchers, rather than research network staff, were in direct contact with general practices. Most practices recruited no more than one carer, despite a seven fold difference in the number of registered patients. The proportion identified as eligible for patient interviews varied by a factor of 38 between practices. Forty-four Primary Care Trusts granted approval to interview carers; two refused. One gave no reason; a second did not believe that general practitioners would be able to identify carers.ConclusionObtaining a representative sample of patients or carers in end-of-life research is a resource intensive challenge. Review of the regulatory and organisational barriers to end-of-life researchers in primary care is required. Research support networks provide invaluable assistance, but researchers should ensure that they are alert to the ways in which they may influence study recruitment.

AB - BackgroundOlder adults receive most of their end-of-life care in the community, but there are few published data to guide researchers on recruitment to studies in primary care. The aim of this study was to compare recruitment of patients and bereaved carers from general practices in areas with different research network support, and identify challenges in obtaining samples representative of those in need of end-of-life care.MethodsComparative analysis of recruitment from general practices to two face-to-face interview studies concerned with 1) carers’ perceptions of transitions between settings for decedents aged over 75 years and 2) the experiences of older patients living with cancer at the end-of-life.Results33 (15% of invitees) patients and 118 (25%) carers were interviewed. Carers from disadvantaged areas were under-represented. Recruitment was higher when researchers, rather than research network staff, were in direct contact with general practices. Most practices recruited no more than one carer, despite a seven fold difference in the number of registered patients. The proportion identified as eligible for patient interviews varied by a factor of 38 between practices. Forty-four Primary Care Trusts granted approval to interview carers; two refused. One gave no reason; a second did not believe that general practitioners would be able to identify carers.ConclusionObtaining a representative sample of patients or carers in end-of-life research is a resource intensive challenge. Review of the regulatory and organisational barriers to end-of-life researchers in primary care is required. Research support networks provide invaluable assistance, but researchers should ensure that they are alert to the ways in which they may influence study recruitment.

KW - Patient selection

KW - Primary health care

KW - Caregivers

KW - Palliative care

KW - Aged

KW - Recruitment to research

KW - End-of-life care research

KW - Research in primary care

U2 - 10.1186/1472-6963-12-342

DO - 10.1186/1472-6963-12-342

M3 - Journal article

VL - 12

JO - BMC Health Services Research

JF - BMC Health Services Research

SN - 1472-6963

M1 - 342

ER -