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  • Chatzidamianos et al 2015

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A qualitative analysis of relatives’, health professionals’ and service users’ views on the involvement in care of relatives in Bipolar Disorder

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A qualitative analysis of relatives’, health professionals’ and service users’ views on the involvement in care of relatives in Bipolar Disorder. / Chatzidamianos, Gerasimos; Lobban, Fiona; Jones, Steven.

In: BMC Psychiatry, Vol. 15, No. 1, 228, 23.09.2015, p. 1-12.

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@article{db0eeed1ab324b02af88be2dc5976997,
title = "A qualitative analysis of relatives{\textquoteright}, health professionals{\textquoteright} and service users{\textquoteright} views on the involvement in care of relatives in Bipolar Disorder",
abstract = "BackgroundRelatives of people with bipolar disorder report that services do not meet their own needs, despite clinical recommendations for the development of care plans for relatives, provision of information regarding their statutory entitlements, and formal involvement in decision making meetings. Further, there is now conclusive evidence highlighting the benefits of relatives{\textquoteright} involvement in improving outcomes for service users, relatives, and the health system as a whole. This qualitative study explored the views of relatives of people with bipolar disorder, service users and healthcare professionals regarding the barriers and the facilitators to relatives{\textquoteright} involvement in care.MethodsThirty five people were interviewed (12 relatives, 11 service users and 12 healthcare professionals). Audio recordings were transcribed verbatim and common themes in participants{\textquoteright} narratives emerged using framework analysis.ResultsParticipants{\textquoteright} accounts confirmed the existence of opportunities for relatives to be involved. These, however, were limited and not always accessible. There were three factors identified that influenced accessibility namely: pre-existing worldviews, the quality of relationships and of communication between those involved, and specific structural impediments.DiscussionThese themes are understood as intertwined and dependent on one another. People{\textquoteright}s thoughts, beliefs, attitudes, cultural identifications and worldviews often underlie the ways by which they communicate and the quality of their relationship. These, however, need to be conceptualised within operational frameworks and policy agendas in health settings that often limit bipolar relatives{\textquoteright} accessibility to opportunities for being more formally involved.ConclusionsInvolving relatives leads to clear benefits for relatives, service users, healthcare professionals, and the health system as a whole. Successful involvement of relatives, however, depends on a complex network of processes and interactions among all those involved and requires strategic planning from policy makers, operational plans and allocation of resources.",
keywords = "Mental Health, Bipolar disorder, Carer, Qualitative, Policy Making, framework analysis, RELATIVES, relative involvement, Barriers",
author = "Gerasimos Chatzidamianos and Fiona Lobban and Steven Jones",
year = "2015",
month = sep,
day = "23",
doi = "10.1186/s12888-015-0611-x",
language = "English",
volume = "15",
pages = "1--12",
journal = "BMC Psychiatry",
issn = "1471-244X",
publisher = "NLM (Medline)",
number = "1",

}

RIS

TY - JOUR

T1 - A qualitative analysis of relatives’, health professionals’ and service users’ views on the involvement in care of relatives in Bipolar Disorder

AU - Chatzidamianos, Gerasimos

AU - Lobban, Fiona

AU - Jones, Steven

PY - 2015/9/23

Y1 - 2015/9/23

N2 - BackgroundRelatives of people with bipolar disorder report that services do not meet their own needs, despite clinical recommendations for the development of care plans for relatives, provision of information regarding their statutory entitlements, and formal involvement in decision making meetings. Further, there is now conclusive evidence highlighting the benefits of relatives’ involvement in improving outcomes for service users, relatives, and the health system as a whole. This qualitative study explored the views of relatives of people with bipolar disorder, service users and healthcare professionals regarding the barriers and the facilitators to relatives’ involvement in care.MethodsThirty five people were interviewed (12 relatives, 11 service users and 12 healthcare professionals). Audio recordings were transcribed verbatim and common themes in participants’ narratives emerged using framework analysis.ResultsParticipants’ accounts confirmed the existence of opportunities for relatives to be involved. These, however, were limited and not always accessible. There were three factors identified that influenced accessibility namely: pre-existing worldviews, the quality of relationships and of communication between those involved, and specific structural impediments.DiscussionThese themes are understood as intertwined and dependent on one another. People’s thoughts, beliefs, attitudes, cultural identifications and worldviews often underlie the ways by which they communicate and the quality of their relationship. These, however, need to be conceptualised within operational frameworks and policy agendas in health settings that often limit bipolar relatives’ accessibility to opportunities for being more formally involved.ConclusionsInvolving relatives leads to clear benefits for relatives, service users, healthcare professionals, and the health system as a whole. Successful involvement of relatives, however, depends on a complex network of processes and interactions among all those involved and requires strategic planning from policy makers, operational plans and allocation of resources.

AB - BackgroundRelatives of people with bipolar disorder report that services do not meet their own needs, despite clinical recommendations for the development of care plans for relatives, provision of information regarding their statutory entitlements, and formal involvement in decision making meetings. Further, there is now conclusive evidence highlighting the benefits of relatives’ involvement in improving outcomes for service users, relatives, and the health system as a whole. This qualitative study explored the views of relatives of people with bipolar disorder, service users and healthcare professionals regarding the barriers and the facilitators to relatives’ involvement in care.MethodsThirty five people were interviewed (12 relatives, 11 service users and 12 healthcare professionals). Audio recordings were transcribed verbatim and common themes in participants’ narratives emerged using framework analysis.ResultsParticipants’ accounts confirmed the existence of opportunities for relatives to be involved. These, however, were limited and not always accessible. There were three factors identified that influenced accessibility namely: pre-existing worldviews, the quality of relationships and of communication between those involved, and specific structural impediments.DiscussionThese themes are understood as intertwined and dependent on one another. People’s thoughts, beliefs, attitudes, cultural identifications and worldviews often underlie the ways by which they communicate and the quality of their relationship. These, however, need to be conceptualised within operational frameworks and policy agendas in health settings that often limit bipolar relatives’ accessibility to opportunities for being more formally involved.ConclusionsInvolving relatives leads to clear benefits for relatives, service users, healthcare professionals, and the health system as a whole. Successful involvement of relatives, however, depends on a complex network of processes and interactions among all those involved and requires strategic planning from policy makers, operational plans and allocation of resources.

KW - Mental Health

KW - Bipolar disorder

KW - Carer

KW - Qualitative

KW - Policy Making

KW - framework analysis

KW - RELATIVES

KW - relative involvement

KW - Barriers

U2 - 10.1186/s12888-015-0611-x

DO - 10.1186/s12888-015-0611-x

M3 - Journal article

VL - 15

SP - 1

EP - 12

JO - BMC Psychiatry

JF - BMC Psychiatry

SN - 1471-244X

IS - 1

M1 - 228

ER -