TY - JOUR

T1 - Balancing information needs : dilemmas in producing patient information leaflets.

AU - Payne, Sheila

PY - 2002/12

Y1 - 2002/12

N2 - The aim of this paper is to depict and debate current issues in the production and use of patient information leaflets. To achieve this, the paper explores a number of assumptions that underpin the production of written information in healthcare; namely that information is a commodity conveyed through the printed word or electronically, and that health professionals ‘have’ information which can be ‘given’ to patients. Drawing on research conducted in palliative care, these issues are considered from the perspectives of patients. Data collected using focus groups highlight the problematic nature of the presentation and content of written patient information. In particular, tensions are revealed in the wishes of patients for general advice versus specific information, tensions between the wish to have full accounts and the wish to limit accounts that display unpalatable and potentially threatening prognostic information. It is proposed that information is inherently value laden and written with the intention to persuade and influence others. The paper concludes with suggestions for using new methods of research which seek to deconstruct text and examine the discourses which underpin their production.

AB - The aim of this paper is to depict and debate current issues in the production and use of patient information leaflets. To achieve this, the paper explores a number of assumptions that underpin the production of written information in healthcare; namely that information is a commodity conveyed through the printed word or electronically, and that health professionals ‘have’ information which can be ‘given’ to patients. Drawing on research conducted in palliative care, these issues are considered from the perspectives of patients. Data collected using focus groups highlight the problematic nature of the presentation and content of written patient information. In particular, tensions are revealed in the wishes of patients for general advice versus specific information, tensions between the wish to have full accounts and the wish to limit accounts that display unpalatable and potentially threatening prognostic information. It is proposed that information is inherently value laden and written with the intention to persuade and influence others. The paper concludes with suggestions for using new methods of research which seek to deconstruct text and examine the discourses which underpin their production.

KW - Patient information leaflet • discourse • healthcare • patient views

U2 - 10.1177/146045820200800402

DO - 10.1177/146045820200800402

M3 - Journal article

VL - 8

SP - 174

EP - 179

JO - Health Informatics Journal

JF - Health Informatics Journal

SN - 1460-4582

IS - 4

ER -