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    Rights statement: This is an Accepted Manuscript of an article published by Taylor & Francis in Disability and Rehabilitation on 02/02/2019, available online: http://www.tandfonline.com/10.1080/09638288.2018.1543462

    Accepted author manuscript, 508 KB, PDF-document

    Embargo ends: 2/02/20

    Available under license: CC BY-NC: Creative Commons Attribution-NonCommercial 4.0 International License

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Being the parent of a child with limb difference who has been provided with an artificial limb: An interpretative phenomenological analysis

Research output: Contribution to journalJournal article

E-pub ahead of print
<mark>Journal publication date</mark>2/02/2019
<mark>Journal</mark>Disability and Rehabilitation
Publication statusE-pub ahead of print
Early online date2/02/19
Original languageEnglish

Abstract

Purpose: Rehabilitative care for children with limb difference often includes the provision and use of an artificial (or prosthetic) limb. Of key influence in this process is how parents experience and respond to their child’s limb difference and prosthesis use. However, research on this is lacking. Therefore, this study aimed to explore the experiences of parenting a child with limb difference who had been provided with an artificial limb.
Design: Semi-structured interviews took place with seven parents. Interview data was recorded, transcribed and analyzed using interpretative phenomenological analysis.
Results: The analysis identified four themes: (1) managing the initial emotional experience through the development of coping resources; (2) opportunities through prosthesis use and its relationship with “normality”; (3) managing and making sense of social reactions toward their child; (4) the intrinsic role of support: developing a collective connection and enabling shared knowledge.
Conclusions: The study highlighted salient aspects to parents’ experiences and sense-making that can inform clinical support. Emotional support, the management of social responses, and the holistic co-ordination of healthcare support with peer support networks are discussed. Healthcare professionals involved in the prosthetic rehabilitation process should look to explore these meanings to help support the management of the child’s prosthesis use.

Bibliographic note

This is an Accepted Manuscript of an article published by Taylor & Francis in Disability and Rehabilitation on 02/02/2019, available online: http://www.tandfonline.com/10.1080/09638288.2018.1543462