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    Rights statement: This is an Accepted Manuscript of an article published by Taylor & Francis in Disability and Rehabilitation on 02/02/2019, available online: http://www.tandfonline.com/10.1080/09638288.2018.1543462

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Being the parent of a child with limb difference who has been provided with an artificial limb: An interpretative phenomenological analysis

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Being the parent of a child with limb difference who has been provided with an artificial limb: An interpretative phenomenological analysis. / Oliver, James; Dixon, Clare; Murray, Craig David.
In: Disability and Rehabilitation, Vol. 42, No. 14, 01.07.2020, p. 1979-1986.

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Oliver J, Dixon C, Murray CD. Being the parent of a child with limb difference who has been provided with an artificial limb: An interpretative phenomenological analysis. Disability and Rehabilitation. 2020 Jul 1;42(14):1979-1986. Epub 2019 Feb 2. doi: 10.1080/09638288.2018.1543462

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@article{1e0bb2e602684f8fa1b09770ea5cbb02,
title = "Being the parent of a child with limb difference who has been provided with an artificial limb: An interpretative phenomenological analysis",
abstract = "Purpose: Rehabilitative care for children with limb difference often includes the provision and use of an artificial (or prosthetic) limb. Of key influence in this process is how parents experience and respond to their child{\textquoteright}s limb difference and prosthesis use. However, research on this is lacking. Therefore, this study aimed to explore the experiences of parenting a child with limb difference who had been provided with an artificial limb. Design: Semi-structured interviews took place with seven parents. Interview data was recorded, transcribed and analyzed using interpretative phenomenological analysis. Results: The analysis identified four themes: (1) managing the initial emotional experience through the development of coping resources; (2) opportunities through prosthesis use and its relationship with “normality”; (3) managing and making sense of social reactions toward their child; (4) the intrinsic role of support: developing a collective connection and enabling shared knowledge. Conclusions: The study highlighted salient aspects to parents{\textquoteright} experiences and sense-making that can inform clinical support. Emotional support, the management of social responses, and the holistic co-ordination of healthcare support with peer support networks are discussed. Healthcare professionals involved in the prosthetic rehabilitation process should look to explore these meanings to help support the management of the child{\textquoteright}s prosthesis use.Implications for rehabilitation Understanding the sense-making of parents is important in effective service provision for children with limb difference. Service provision for children with limb difference should consider the support needs of parents. Working with limb difference charities and voluntary organizations could help services develop needed parent-to-parent support networks.",
keywords = "Artificial limb, child, limb difference, parenting, prosthesis",
author = "James Oliver and Clare Dixon and Murray, {Craig David}",
note = "This is an Accepted Manuscript of an article published by Taylor & Francis in Disability and Rehabilitation on 02/02/2019, available online: http://www.tandfonline.com/10.1080/09638288.2018.1543462",
year = "2020",
month = jul,
day = "1",
doi = "10.1080/09638288.2018.1543462",
language = "English",
volume = "42",
pages = "1979--1986",
journal = "Disability and Rehabilitation",
issn = "0963-8288",
publisher = "Taylor and Francis Ltd.",
number = "14",

}

RIS

TY - JOUR

T1 - Being the parent of a child with limb difference who has been provided with an artificial limb

T2 - An interpretative phenomenological analysis

AU - Oliver, James

AU - Dixon, Clare

AU - Murray, Craig David

N1 - This is an Accepted Manuscript of an article published by Taylor & Francis in Disability and Rehabilitation on 02/02/2019, available online: http://www.tandfonline.com/10.1080/09638288.2018.1543462

PY - 2020/7/1

Y1 - 2020/7/1

N2 - Purpose: Rehabilitative care for children with limb difference often includes the provision and use of an artificial (or prosthetic) limb. Of key influence in this process is how parents experience and respond to their child’s limb difference and prosthesis use. However, research on this is lacking. Therefore, this study aimed to explore the experiences of parenting a child with limb difference who had been provided with an artificial limb. Design: Semi-structured interviews took place with seven parents. Interview data was recorded, transcribed and analyzed using interpretative phenomenological analysis. Results: The analysis identified four themes: (1) managing the initial emotional experience through the development of coping resources; (2) opportunities through prosthesis use and its relationship with “normality”; (3) managing and making sense of social reactions toward their child; (4) the intrinsic role of support: developing a collective connection and enabling shared knowledge. Conclusions: The study highlighted salient aspects to parents’ experiences and sense-making that can inform clinical support. Emotional support, the management of social responses, and the holistic co-ordination of healthcare support with peer support networks are discussed. Healthcare professionals involved in the prosthetic rehabilitation process should look to explore these meanings to help support the management of the child’s prosthesis use.Implications for rehabilitation Understanding the sense-making of parents is important in effective service provision for children with limb difference. Service provision for children with limb difference should consider the support needs of parents. Working with limb difference charities and voluntary organizations could help services develop needed parent-to-parent support networks.

AB - Purpose: Rehabilitative care for children with limb difference often includes the provision and use of an artificial (or prosthetic) limb. Of key influence in this process is how parents experience and respond to their child’s limb difference and prosthesis use. However, research on this is lacking. Therefore, this study aimed to explore the experiences of parenting a child with limb difference who had been provided with an artificial limb. Design: Semi-structured interviews took place with seven parents. Interview data was recorded, transcribed and analyzed using interpretative phenomenological analysis. Results: The analysis identified four themes: (1) managing the initial emotional experience through the development of coping resources; (2) opportunities through prosthesis use and its relationship with “normality”; (3) managing and making sense of social reactions toward their child; (4) the intrinsic role of support: developing a collective connection and enabling shared knowledge. Conclusions: The study highlighted salient aspects to parents’ experiences and sense-making that can inform clinical support. Emotional support, the management of social responses, and the holistic co-ordination of healthcare support with peer support networks are discussed. Healthcare professionals involved in the prosthetic rehabilitation process should look to explore these meanings to help support the management of the child’s prosthesis use.Implications for rehabilitation Understanding the sense-making of parents is important in effective service provision for children with limb difference. Service provision for children with limb difference should consider the support needs of parents. Working with limb difference charities and voluntary organizations could help services develop needed parent-to-parent support networks.

KW - Artificial limb

KW - child

KW - limb difference

KW - parenting

KW - prosthesis

U2 - 10.1080/09638288.2018.1543462

DO - 10.1080/09638288.2018.1543462

M3 - Journal article

VL - 42

SP - 1979

EP - 1986

JO - Disability and Rehabilitation

JF - Disability and Rehabilitation

SN - 0963-8288

IS - 14

ER -