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    Rights statement: https://www.cambridge.org/core/journals/ageing-and-society/article/bridging-the-divide-the-adjustment-and-decisionmaking-experiences-of-people-with-dementia-living-with-a-recent-diagnosis-of-cancer-and-its-impact-on-family-carers/247BCAF3BAF1DEDCBC99C78A0FF57201 The final, definitive version of this article has been published in the Journal, Ageing and Society, ? (?), pp ??-?? 2019, © 2019 Cambridge University Press.

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Bridging the Divide: The adjustment and decision-making experiences of people with dementia living with a recent diagnosis of cancer and its impact on family carers

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Bridging the Divide : The adjustment and decision-making experiences of people with dementia living with a recent diagnosis of cancer and its impact on family carers. / Mcwilliams, Lorna; Swarbrick, Caroline; Yorke, Janelle; Burgess, Lorraine; Farrell, Carole; Grande, Gunn; Bellhouse, Sarah; Keady, John.

In: Ageing and Society, 25.10.2018.

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Mcwilliams, Lorna ; Swarbrick, Caroline ; Yorke, Janelle ; Burgess, Lorraine ; Farrell, Carole ; Grande, Gunn ; Bellhouse, Sarah ; Keady, John. / Bridging the Divide : The adjustment and decision-making experiences of people with dementia living with a recent diagnosis of cancer and its impact on family carers. In: Ageing and Society. 2018.

Bibtex

@article{d16c7da1e6274721b88db6966e74c529,
title = "Bridging the Divide: The adjustment and decision-making experiences of people with dementia living with a recent diagnosis of cancer and its impact on family carers",
abstract = "The risk of living with dementia and, separately, cancer, increases exponentially with age. However, to date, there is a paucity of research investigating the experiences of people living with both these conditions. This study used semi-structured interviews to explore the decision-making and treatment options for people who live with both dementia and cancer. In total, ten people living with both dementia and cancer (aged 39–93 years) and nine family carers were interviewed. Braun and Clarke's approach to thematic analysis was used together with framework matrices to organise the data. In this article four sequential and descriptive themes are presented. ‘Reaching a diagnosis of cancer’ describes the vital role that family carers play in encouraging the person with dementia to seek an explanation for their presenting (undiagnosed cancer) symptoms to their general practitioner. ‘Adjusting to the cancer diagnosis when living with dementia’ outlines a variety of emotional and practical responses to receiving news of the diagnosis. ‘Weighing up the cancer treatment options’ highlights the different decisions and circumstances that family carers and people living with both dementia and cancer are faced with post-diagnosis. ‘Undergoing cancer treatment’ shares the finding that cancer treatment decision-making was not straightforward and that people living with both dementia and cancer would often forget about their cancer and what procedures they had been through.",
keywords = "dementia, cancer, adjustment, decision-making, qualitative, experience, information",
author = "Lorna Mcwilliams and Caroline Swarbrick and Janelle Yorke and Lorraine Burgess and Carole Farrell and Gunn Grande and Sarah Bellhouse and John Keady",
note = "https://www.cambridge.org/core/journals/ageing-and-society/article/bridging-the-divide-the-adjustment-and-decisionmaking-experiences-of-people-with-dementia-living-with-a-recent-diagnosis-of-cancer-and-its-impact-on-family-carers/247BCAF3BAF1DEDCBC99C78A0FF57201 The final, definitive version of this article has been published in the Journal, Ageing and Society, ? (?), pp ??-?? 2019, {\circledC} 2019 Cambridge University Press.",
year = "2018",
month = "10",
day = "25",
doi = "10.1017/S0144686X18001411",
language = "English",
journal = "Ageing and Society",
issn = "0144-686X",
publisher = "Cambridge University Press",

}

RIS

TY - JOUR

T1 - Bridging the Divide

T2 - The adjustment and decision-making experiences of people with dementia living with a recent diagnosis of cancer and its impact on family carers

AU - Mcwilliams, Lorna

AU - Swarbrick, Caroline

AU - Yorke, Janelle

AU - Burgess, Lorraine

AU - Farrell, Carole

AU - Grande, Gunn

AU - Bellhouse, Sarah

AU - Keady, John

N1 - https://www.cambridge.org/core/journals/ageing-and-society/article/bridging-the-divide-the-adjustment-and-decisionmaking-experiences-of-people-with-dementia-living-with-a-recent-diagnosis-of-cancer-and-its-impact-on-family-carers/247BCAF3BAF1DEDCBC99C78A0FF57201 The final, definitive version of this article has been published in the Journal, Ageing and Society, ? (?), pp ??-?? 2019, © 2019 Cambridge University Press.

PY - 2018/10/25

Y1 - 2018/10/25

N2 - The risk of living with dementia and, separately, cancer, increases exponentially with age. However, to date, there is a paucity of research investigating the experiences of people living with both these conditions. This study used semi-structured interviews to explore the decision-making and treatment options for people who live with both dementia and cancer. In total, ten people living with both dementia and cancer (aged 39–93 years) and nine family carers were interviewed. Braun and Clarke's approach to thematic analysis was used together with framework matrices to organise the data. In this article four sequential and descriptive themes are presented. ‘Reaching a diagnosis of cancer’ describes the vital role that family carers play in encouraging the person with dementia to seek an explanation for their presenting (undiagnosed cancer) symptoms to their general practitioner. ‘Adjusting to the cancer diagnosis when living with dementia’ outlines a variety of emotional and practical responses to receiving news of the diagnosis. ‘Weighing up the cancer treatment options’ highlights the different decisions and circumstances that family carers and people living with both dementia and cancer are faced with post-diagnosis. ‘Undergoing cancer treatment’ shares the finding that cancer treatment decision-making was not straightforward and that people living with both dementia and cancer would often forget about their cancer and what procedures they had been through.

AB - The risk of living with dementia and, separately, cancer, increases exponentially with age. However, to date, there is a paucity of research investigating the experiences of people living with both these conditions. This study used semi-structured interviews to explore the decision-making and treatment options for people who live with both dementia and cancer. In total, ten people living with both dementia and cancer (aged 39–93 years) and nine family carers were interviewed. Braun and Clarke's approach to thematic analysis was used together with framework matrices to organise the data. In this article four sequential and descriptive themes are presented. ‘Reaching a diagnosis of cancer’ describes the vital role that family carers play in encouraging the person with dementia to seek an explanation for their presenting (undiagnosed cancer) symptoms to their general practitioner. ‘Adjusting to the cancer diagnosis when living with dementia’ outlines a variety of emotional and practical responses to receiving news of the diagnosis. ‘Weighing up the cancer treatment options’ highlights the different decisions and circumstances that family carers and people living with both dementia and cancer are faced with post-diagnosis. ‘Undergoing cancer treatment’ shares the finding that cancer treatment decision-making was not straightforward and that people living with both dementia and cancer would often forget about their cancer and what procedures they had been through.

KW - dementia

KW - cancer

KW - adjustment

KW - decision-making

KW - qualitative

KW - experience

KW - information

U2 - 10.1017/S0144686X18001411

DO - 10.1017/S0144686X18001411

M3 - Journal article

JO - Ageing and Society

JF - Ageing and Society

SN - 0144-686X

ER -