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Do short break and respite services for families with a disabled child in England make a difference to siblings?: a qualitative analysis of sibling and parent responses

Research output: Contribution to journalJournal article

Published
<mark>Journal publication date</mark>02/2012
<mark>Journal</mark>Children and Youth Services Review
Issue number2
Volume34
Number of pages9
Pages (from-to)451-459
Publication statusPublished
Original languageEnglish

Abstract

Background: Previous research identifies positive and negative effects of being a sibling in a family which includes a disabled child. Short break services (also known as respite) provide families with a break from caring and offer disabled children the chance to participate in various activities. This paper investigates the effects that these short breaks have on siblings.

Methods: The research consists of a qualitative analysis of data collected as part of a survey of families using short break services. Data from 239 parent-carers (mostly biological parents) and 84 siblings are included in the analysis. Data are written responses to open questions about use of services and the effects they have.

Results: The effects of short breaks on siblings are described as being mostly positive. Short breaks have the potential to ameliorate some of the negative impacts of being a sibling in a family with a disabled child whilst also promoting the positive impacts of having a disabled brother or sister. However, some siblings also report some adverse effects of short breaks.

Conclusion: Short breaks have a significant role to play in promoting the wellbeing of siblings; however, their role currently seems to be largely unrecognised and consequently undervalued.