Rights statement: This is an Accepted Manuscript of an article published by Taylor & Francis in Aging & Mental Health on 02/11/2016, available online: http://www.tandfonline.com/10.1080/13607863.2016.1247414
Accepted author manuscript, 722 KB, PDF document
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Final published version
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Research output: Contribution to Journal/Magazine › Journal article › peer-review
}
TY - JOUR
T1 - Experiences of caring for a family member with Parkinson’s disease
T2 - a meta-synthesis
AU - Theed, Rachael
AU - Eccles, Fiona Juliet Rosalind
AU - Simpson, Jane
N1 - This is an Accepted Manuscript of an article published by Taylor & Francis in Aging & Mental Health on 02/11/2016, available online: http://www.tandfonline.com/10.1080/13607863.2016.1247414
PY - 2017/10
Y1 - 2017/10
N2 - Objective: The aim of this qualitative meta-synthesis was to search and then synthesise family caregivers’ experiences of providing care to individuals with Parkinson's disease (PD).Method: A systematic search resulted in the identification of 11 qualitative studies. Noblit and Hare's seven-stage approach was used to provide a higher-order interpretation of how family caregivers’ experienced the effects of taking on a caregiving role.Results: The process of reciprocal translation resulted in four overarching themes: (1) the need to carry on as usual – ‘the caregiver must continue with his life’; (2) the importance of support in facilitating coping – ‘I'm still going back to the support group’; (3) the difficult balancing act between caregiving and caregiver needs – ‘I cannot get sick because I'm a caregiver’; (4) conflicts in seeking information and knowledge – ‘maybe better not to know’.Conclusion: The themes reflected different aspects of family caregivers’ lives that were affected as a result of caring for a relative diagnosed with PD and these raise challenges for more simplistic theories of family caring and appropriate support structures. The findings also highlight several recommendations for clinical practice.
AB - Objective: The aim of this qualitative meta-synthesis was to search and then synthesise family caregivers’ experiences of providing care to individuals with Parkinson's disease (PD).Method: A systematic search resulted in the identification of 11 qualitative studies. Noblit and Hare's seven-stage approach was used to provide a higher-order interpretation of how family caregivers’ experienced the effects of taking on a caregiving role.Results: The process of reciprocal translation resulted in four overarching themes: (1) the need to carry on as usual – ‘the caregiver must continue with his life’; (2) the importance of support in facilitating coping – ‘I'm still going back to the support group’; (3) the difficult balancing act between caregiving and caregiver needs – ‘I cannot get sick because I'm a caregiver’; (4) conflicts in seeking information and knowledge – ‘maybe better not to know’.Conclusion: The themes reflected different aspects of family caregivers’ lives that were affected as a result of caring for a relative diagnosed with PD and these raise challenges for more simplistic theories of family caring and appropriate support structures. The findings also highlight several recommendations for clinical practice.
KW - Parkinson's disease
KW - caregiver
KW - caregiving
KW - family
U2 - 10.1080/13607863.2016.1247414
DO - 10.1080/13607863.2016.1247414
M3 - Journal article
VL - 21
SP - 1007
EP - 1016
JO - Aging and Mental Health
JF - Aging and Mental Health
SN - 1360-7863
IS - 10
ER -