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    Rights statement: This is an Accepted Manuscript of an article published by Taylor & Francis in Aging & Mental Health on 02/11/2016, available online: http://www.tandfonline.com/10.1080/13607863.2016.1247414

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Experiences of caring for a family member with Parkinson’s disease: a meta-synthesis

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Experiences of caring for a family member with Parkinson’s disease : a meta-synthesis. / Theed, Rachael; Eccles, Fiona Juliet Rosalind; Simpson, Jane.

In: Aging and Mental Health, Vol. 21, No. 10, 10.2017, p. 1007-1016.

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@article{00260de87e11440fbf19d24c369a2ea8,
title = "Experiences of caring for a family member with Parkinson{\textquoteright}s disease: a meta-synthesis",
abstract = "Objective: The aim of this qualitative meta-synthesis was to search and then synthesise family caregivers{\textquoteright} experiences of providing care to individuals with Parkinson's disease (PD).Method: A systematic search resulted in the identification of 11 qualitative studies. Noblit and Hare's seven-stage approach was used to provide a higher-order interpretation of how family caregivers{\textquoteright} experienced the effects of taking on a caregiving role.Results: The process of reciprocal translation resulted in four overarching themes: (1) the need to carry on as usual – {\textquoteleft}the caregiver must continue with his life{\textquoteright}; (2) the importance of support in facilitating coping – {\textquoteleft}I'm still going back to the support group{\textquoteright}; (3) the difficult balancing act between caregiving and caregiver needs – {\textquoteleft}I cannot get sick because I'm a caregiver{\textquoteright}; (4) conflicts in seeking information and knowledge – {\textquoteleft}maybe better not to know{\textquoteright}.Conclusion: The themes reflected different aspects of family caregivers{\textquoteright} lives that were affected as a result of caring for a relative diagnosed with PD and these raise challenges for more simplistic theories of family caring and appropriate support structures. The findings also highlight several recommendations for clinical practice.",
keywords = "Parkinson's disease, caregiver, caregiving, family",
author = "Rachael Theed and Eccles, {Fiona Juliet Rosalind} and Jane Simpson",
note = "This is an Accepted Manuscript of an article published by Taylor & Francis in Aging & Mental Health on 02/11/2016, available online: http://www.tandfonline.com/10.1080/13607863.2016.1247414",
year = "2017",
month = oct,
doi = "10.1080/13607863.2016.1247414",
language = "English",
volume = "21",
pages = "1007--1016",
journal = "Aging and Mental Health",
issn = "1360-7863",
publisher = "Taylor and Francis Ltd.",
number = "10",

}

RIS

TY - JOUR

T1 - Experiences of caring for a family member with Parkinson’s disease

T2 - a meta-synthesis

AU - Theed, Rachael

AU - Eccles, Fiona Juliet Rosalind

AU - Simpson, Jane

N1 - This is an Accepted Manuscript of an article published by Taylor & Francis in Aging & Mental Health on 02/11/2016, available online: http://www.tandfonline.com/10.1080/13607863.2016.1247414

PY - 2017/10

Y1 - 2017/10

N2 - Objective: The aim of this qualitative meta-synthesis was to search and then synthesise family caregivers’ experiences of providing care to individuals with Parkinson's disease (PD).Method: A systematic search resulted in the identification of 11 qualitative studies. Noblit and Hare's seven-stage approach was used to provide a higher-order interpretation of how family caregivers’ experienced the effects of taking on a caregiving role.Results: The process of reciprocal translation resulted in four overarching themes: (1) the need to carry on as usual – ‘the caregiver must continue with his life’; (2) the importance of support in facilitating coping – ‘I'm still going back to the support group’; (3) the difficult balancing act between caregiving and caregiver needs – ‘I cannot get sick because I'm a caregiver’; (4) conflicts in seeking information and knowledge – ‘maybe better not to know’.Conclusion: The themes reflected different aspects of family caregivers’ lives that were affected as a result of caring for a relative diagnosed with PD and these raise challenges for more simplistic theories of family caring and appropriate support structures. The findings also highlight several recommendations for clinical practice.

AB - Objective: The aim of this qualitative meta-synthesis was to search and then synthesise family caregivers’ experiences of providing care to individuals with Parkinson's disease (PD).Method: A systematic search resulted in the identification of 11 qualitative studies. Noblit and Hare's seven-stage approach was used to provide a higher-order interpretation of how family caregivers’ experienced the effects of taking on a caregiving role.Results: The process of reciprocal translation resulted in four overarching themes: (1) the need to carry on as usual – ‘the caregiver must continue with his life’; (2) the importance of support in facilitating coping – ‘I'm still going back to the support group’; (3) the difficult balancing act between caregiving and caregiver needs – ‘I cannot get sick because I'm a caregiver’; (4) conflicts in seeking information and knowledge – ‘maybe better not to know’.Conclusion: The themes reflected different aspects of family caregivers’ lives that were affected as a result of caring for a relative diagnosed with PD and these raise challenges for more simplistic theories of family caring and appropriate support structures. The findings also highlight several recommendations for clinical practice.

KW - Parkinson's disease

KW - caregiver

KW - caregiving

KW - family

U2 - 10.1080/13607863.2016.1247414

DO - 10.1080/13607863.2016.1247414

M3 - Journal article

VL - 21

SP - 1007

EP - 1016

JO - Aging and Mental Health

JF - Aging and Mental Health

SN - 1360-7863

IS - 10

ER -