Research output: Contribution to Journal/Magazine › Journal article › peer-review
Research output: Contribution to Journal/Magazine › Journal article › peer-review
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TY - JOUR
T1 - Experiences of spouses of people with dementia in long-term care
AU - Mullin, Jennifer
AU - Simpson, Jane
AU - Froggatt, Katherine
PY - 2013/3
Y1 - 2013/3
N2 - The experiences of 10 spouses of people with dementia in long-term care were explored using semi-structured interviews. The data were analysed using interpretative phenomenological analysis (IPA) which resulted in four themes: ‘Identity: till death us do part’; ‘Making sense of change’; ‘Relationship with care provided: visiting as surveillance’; and ‘Relationship with the future: hope versus despair’. The findings highlighted the presence of conflicting feelings for the spouses, with positive feelings being voiced against a context of despair. Their perceptions of the care provided and the spousal relationship also highlighted the value of their views in supporting this group of people, improving dementia care and, hence, the importance of their involvement in implementing a ‘relationship-centred’ care approach.
AB - The experiences of 10 spouses of people with dementia in long-term care were explored using semi-structured interviews. The data were analysed using interpretative phenomenological analysis (IPA) which resulted in four themes: ‘Identity: till death us do part’; ‘Making sense of change’; ‘Relationship with care provided: visiting as surveillance’; and ‘Relationship with the future: hope versus despair’. The findings highlighted the presence of conflicting feelings for the spouses, with positive feelings being voiced against a context of despair. Their perceptions of the care provided and the spousal relationship also highlighted the value of their views in supporting this group of people, improving dementia care and, hence, the importance of their involvement in implementing a ‘relationship-centred’ care approach.
KW - dementia
KW - interpretative phenomenological analysis
KW - long-term care
KW - spouses
U2 - 10.1177/1471301211418096
DO - 10.1177/1471301211418096
M3 - Journal article
VL - 12
SP - 177
EP - 191
JO - Dementia
JF - Dementia
SN - 1471-3012
IS - 2
ER -