Research output: Contribution to Journal/Magazine › Journal article › peer-review
Research output: Contribution to Journal/Magazine › Journal article › peer-review
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TY - JOUR
T1 - Exploring the transitional process from receiving a diagnosis to living with motor neurone disease
AU - Mistry, Kit
AU - Simpson, Jane
PY - 2013
Y1 - 2013
N2 - Motor neurone disease (MND) is a rapidly progressing neurodegenerative condition that results in a marked reduction in life expectancy. Currently, little is known about the experiences of people after they have received this diagnosis and the effect of this on their sense of self and identity. In this study, interpretative phenomenological analysis was used to explore both the personal and lived experiences of people with MND. Seven people diagnosed with MND within the previous six months were recruited. The three themes constructed from the participants’ accounts were ‘Then they dropped the bomb shell’; Receiving a diagnosis of MND; ‘Getting on with it’; Learning to live with MND; and ‘A lot of normal life is lost’; Experiencing progressive loss. Participants described receiving a diagnosis as a devastating experience but most participants were able to accept their diagnosis and employ adaptive strategies to cope with increasing levels of functional decline. However, in spite of this, the participants experienced functional changes that affected their identity, social status and social relationships.
AB - Motor neurone disease (MND) is a rapidly progressing neurodegenerative condition that results in a marked reduction in life expectancy. Currently, little is known about the experiences of people after they have received this diagnosis and the effect of this on their sense of self and identity. In this study, interpretative phenomenological analysis was used to explore both the personal and lived experiences of people with MND. Seven people diagnosed with MND within the previous six months were recruited. The three themes constructed from the participants’ accounts were ‘Then they dropped the bomb shell’; Receiving a diagnosis of MND; ‘Getting on with it’; Learning to live with MND; and ‘A lot of normal life is lost’; Experiencing progressive loss. Participants described receiving a diagnosis as a devastating experience but most participants were able to accept their diagnosis and employ adaptive strategies to cope with increasing levels of functional decline. However, in spite of this, the participants experienced functional changes that affected their identity, social status and social relationships.
KW - Activities of Daily Living
KW - Adaptation, Psychological
KW - Aged
KW - Female
KW - Humans
KW - Male
KW - Middle Aged
KW - Motor Neuron Disease
KW - Qualitative Research
KW - Self Concept
U2 - 10.1080/08870446.2013.770513
DO - 10.1080/08870446.2013.770513
M3 - Journal article
C2 - 23464923
VL - 28
SP - 939
EP - 953
JO - Psychology and Health
JF - Psychology and Health
SN - 0887-0446
IS - 8
ER -