Family stories of end-of-life cancer care when unable to fulfil a loved one’s wish to die at home

Health Research

Research output: Contribution to Journal/Magazine › Journal article › peer-review

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Family stories of end-of-life cancer care when unable to fulfil a loved one’s wish to die at home. / Seal, Karen; Murray, Craig; Seddon, Lesley.
In: Palliative and Supportive Care, Vol. 13, No. 3, 06.2015, p. 473-483.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Harvard

Seal, K, Murray, C & Seddon, L 2015, 'Family stories of end-of-life cancer care when unable to fulfil a loved one’s wish to die at home', Palliative and Supportive Care, vol. 13, no. 3, pp. 473-483. https://doi.org/10.1017/S1478951514000017

APA

Seal, K., Murray, C., & Seddon, L. (2015). Family stories of end-of-life cancer care when unable to fulfil a loved one’s wish to die at home. Palliative and Supportive Care, 13(3), 473-483. https://doi.org/10.1017/S1478951514000017

Vancouver

Seal K, Murray C, Seddon L. Family stories of end-of-life cancer care when unable to fulfil a loved one’s wish to die at home. Palliative and Supportive Care. 2015 Jun;13(3):473-483. Epub 2014 Mar 13. doi: 10.1017/S1478951514000017

Author

Seal, Karen ; Murray, Craig ; Seddon, Lesley. / Family stories of end-of-life cancer care when unable to fulfil a loved one’s wish to die at home. In: Palliative and Supportive Care. 2015 ; Vol. 13, No. 3. pp. 473-483.

Bibtex

@article{788e36dec89f465eb7bf29318d5ac162,

title = "Family stories of end-of-life cancer care when unable to fulfil a loved one{\textquoteright}s wish to die at home",

abstract = "Objective: Control over place of death is deemed important, not only in providing a “good death,” but also in offering person-centered palliative care. Despite the wish to die at home being endorsed by many, few achieve it. The present study aimed to explore the reasons why this wish is not fulfilled by examining the stories of ten individuals who lost a loved one to cancer.Method: We adopted a narrative approach, with stories synthesized to create one metastory depicting plot similarities and differences.Results: Stories were divided into four chapters: (1) the cancer diagnosis, (2) the terminal stage and advancement of death, (3) death itself, and (4) reflections on the whole experience. Additionally, several reasons for cessation of home care were uncovered, including the need to consider children's welfare, exhaustion, and admission of the loved one by professionals due to a medical emergency. Some participants described adverse effects as a result of being unable to continue to support their loved one's wish to remain at home.Significance of Results: Reflections upon the accounts are provided with a discussion around potential clinical implications.",

keywords = "Cancer, Carer, Coping, Bereavement, Home death, Palliative care",

author = "Karen Seal and Craig Murray and Lesley Seddon",

year = "2015",

month = jun,

doi = "10.1017/S1478951514000017",

language = "English",

volume = "13",

pages = "473--483",

journal = "Palliative and Supportive Care",

issn = "1478-9523",

publisher = "Cambridge University Press",

number = "3",

}

RIS

TY - JOUR

T1 - Family stories of end-of-life cancer care when unable to fulfil a loved one’s wish to die at home

AU - Seal, Karen

AU - Murray, Craig

AU - Seddon, Lesley

PY - 2015/6

Y1 - 2015/6

N2 - Objective: Control over place of death is deemed important, not only in providing a “good death,” but also in offering person-centered palliative care. Despite the wish to die at home being endorsed by many, few achieve it. The present study aimed to explore the reasons why this wish is not fulfilled by examining the stories of ten individuals who lost a loved one to cancer.Method: We adopted a narrative approach, with stories synthesized to create one metastory depicting plot similarities and differences.Results: Stories were divided into four chapters: (1) the cancer diagnosis, (2) the terminal stage and advancement of death, (3) death itself, and (4) reflections on the whole experience. Additionally, several reasons for cessation of home care were uncovered, including the need to consider children's welfare, exhaustion, and admission of the loved one by professionals due to a medical emergency. Some participants described adverse effects as a result of being unable to continue to support their loved one's wish to remain at home.Significance of Results: Reflections upon the accounts are provided with a discussion around potential clinical implications.

AB - Objective: Control over place of death is deemed important, not only in providing a “good death,” but also in offering person-centered palliative care. Despite the wish to die at home being endorsed by many, few achieve it. The present study aimed to explore the reasons why this wish is not fulfilled by examining the stories of ten individuals who lost a loved one to cancer.Method: We adopted a narrative approach, with stories synthesized to create one metastory depicting plot similarities and differences.Results: Stories were divided into four chapters: (1) the cancer diagnosis, (2) the terminal stage and advancement of death, (3) death itself, and (4) reflections on the whole experience. Additionally, several reasons for cessation of home care were uncovered, including the need to consider children's welfare, exhaustion, and admission of the loved one by professionals due to a medical emergency. Some participants described adverse effects as a result of being unable to continue to support their loved one's wish to remain at home.Significance of Results: Reflections upon the accounts are provided with a discussion around potential clinical implications.

KW - Cancer

KW - Carer

KW - Coping

KW - Bereavement

KW - Home death

KW - Palliative care

U2 - 10.1017/S1478951514000017

DO - 10.1017/S1478951514000017

M3 - Journal article

VL - 13

SP - 473

EP - 483

JO - Palliative and Supportive Care

JF - Palliative and Supportive Care

SN - 1478-9523

IS - 3

ER -

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