Home > Research > Publications & Outputs > Governing UK Biobank

Research

Associated organisational units

Links

Text available via DOI:

View graph of relations

Governing UK Biobank: the importance of ensuring public trust

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Published

Standard

Governing UK Biobank: the importance of ensuring public trust. / Tutton, Richard; Kaye, Jane; Hoeyer, Klaus.
In: Trends in Biotechnology, Vol. 22, No. 6, 06.2004, p. 284-285.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Harvard

Tutton, R, Kaye, J & Hoeyer, K 2004, 'Governing UK Biobank: the importance of ensuring public trust', Trends in Biotechnology, vol. 22, no. 6, pp. 284-285. https://doi.org/10.1016/j.tibtech.2004.04.007

APA

Tutton, R., Kaye, J., & Hoeyer, K. (2004). Governing UK Biobank: the importance of ensuring public trust. Trends in Biotechnology, 22(6), 284-285. https://doi.org/10.1016/j.tibtech.2004.04.007

Vancouver

Tutton R, Kaye J, Hoeyer K. Governing UK Biobank: the importance of ensuring public trust. Trends in Biotechnology. 2004 Jun;22(6):284-285. doi: 10.1016/j.tibtech.2004.04.007

Author

Tutton, Richard ; Kaye, Jane ; Hoeyer, Klaus. / Governing UK Biobank : the importance of ensuring public trust. In: Trends in Biotechnology. 2004 ; Vol. 22, No. 6. pp. 284-285.

Bibtex

@article{badba33e121445638952df13fc72ef32,
title = "Governing UK Biobank: the importance of ensuring public trust",
abstract = "In the autumn of 2003, UK Biobank published the first draft of its Ethics and Governance Framework. Subsequently, this document has been available for interested parties to comment on and the UK Biobank Board of Directors is expected to adopt the final version in 2004. Here, we aim to contribute to this process and highlight to a wider audience some of the inconsistencies in the issues of consent, governance and right of withdrawal that emerge from the draft of the Framework. These issues will have implications for securing the public trust and long-term support that the success of the project depends on. Therefore, they must be considered carefully because the UK Biobank will be the first ever genetic database of a general population of this size to become operational, and will be used as a model for other projects of this kind.",
author = "Richard Tutton and Jane Kaye and Klaus Hoeyer",
year = "2004",
month = jun,
doi = "10.1016/j.tibtech.2004.04.007",
language = "English",
volume = "22",
pages = "284--285",
journal = "Trends in Biotechnology",
issn = "1879-3096",
publisher = "Elsevier Limited",
number = "6",

}

RIS

TY - JOUR

T1 - Governing UK Biobank

T2 - the importance of ensuring public trust

AU - Tutton, Richard

AU - Kaye, Jane

AU - Hoeyer, Klaus

PY - 2004/6

Y1 - 2004/6

N2 - In the autumn of 2003, UK Biobank published the first draft of its Ethics and Governance Framework. Subsequently, this document has been available for interested parties to comment on and the UK Biobank Board of Directors is expected to adopt the final version in 2004. Here, we aim to contribute to this process and highlight to a wider audience some of the inconsistencies in the issues of consent, governance and right of withdrawal that emerge from the draft of the Framework. These issues will have implications for securing the public trust and long-term support that the success of the project depends on. Therefore, they must be considered carefully because the UK Biobank will be the first ever genetic database of a general population of this size to become operational, and will be used as a model for other projects of this kind.

AB - In the autumn of 2003, UK Biobank published the first draft of its Ethics and Governance Framework. Subsequently, this document has been available for interested parties to comment on and the UK Biobank Board of Directors is expected to adopt the final version in 2004. Here, we aim to contribute to this process and highlight to a wider audience some of the inconsistencies in the issues of consent, governance and right of withdrawal that emerge from the draft of the Framework. These issues will have implications for securing the public trust and long-term support that the success of the project depends on. Therefore, they must be considered carefully because the UK Biobank will be the first ever genetic database of a general population of this size to become operational, and will be used as a model for other projects of this kind.

U2 - 10.1016/j.tibtech.2004.04.007

DO - 10.1016/j.tibtech.2004.04.007

M3 - Journal article

VL - 22

SP - 284

EP - 285

JO - Trends in Biotechnology

JF - Trends in Biotechnology

SN - 1879-3096

IS - 6

ER -