Research output: Contribution to Journal/Magazine › Journal article › peer-review
Research output: Contribution to Journal/Magazine › Journal article › peer-review
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TY - JOUR
T1 - Informal caregivers in early psychosis
T2 - evaluation of need for psychosocial intervention and unresolved grief
AU - Mulligan, John
AU - Sellwood, William
AU - Reid, Graeme S.
AU - Riddell, Suzanne
AU - Andy, Natasha
PY - 2013/8
Y1 - 2013/8
N2 - Aim: Relatives of service users involved with Early Intervention in Psychosis services often experience substantial distress and need associated with their role as caregivers. This study adapted versions of the Relatives Cardinal Needs Schedule and the Texas Inventory of Grief and tested their utility for use among relatives of service users experiencing a first episode of psychosis.Methods: Staff, service users and relatives were consulted and a pilot took place which facilitated the creation of the Relatives' Urgent Needs Schedule - Early Intervention version (RUNS-EI) and the Texas Inventory of Grief Early Intervention version (TIG-EI). Thirty service user-caregiver dyads were recruited for the evaluation of reliability and validity.Results: The level of 'urgent need' identified by the RUNS-EI demonstrated good concurrent validity with measures of service user social and global functioning as well as measures assessing relatives' distress, expressed emotion and grief. The measure demonstrated acceptable interrater and test-retest reliability. The profile of need is reported. The TIG-EI demonstrated 'excellent' internal consistency. It also demonstrated good concurrent validity with increased TIG-EI scores correlated with reduced service user social and global functioning as well as increased scores on measures assessing relatives' distress, expressed emotion and caregiving needs.Conclusions: Results appear to support these assessments' utility as measures of need for psychosocial intervention and grief among relatives supporting service users experiencing a first episode of psychosis.
AB - Aim: Relatives of service users involved with Early Intervention in Psychosis services often experience substantial distress and need associated with their role as caregivers. This study adapted versions of the Relatives Cardinal Needs Schedule and the Texas Inventory of Grief and tested their utility for use among relatives of service users experiencing a first episode of psychosis.Methods: Staff, service users and relatives were consulted and a pilot took place which facilitated the creation of the Relatives' Urgent Needs Schedule - Early Intervention version (RUNS-EI) and the Texas Inventory of Grief Early Intervention version (TIG-EI). Thirty service user-caregiver dyads were recruited for the evaluation of reliability and validity.Results: The level of 'urgent need' identified by the RUNS-EI demonstrated good concurrent validity with measures of service user social and global functioning as well as measures assessing relatives' distress, expressed emotion and grief. The measure demonstrated acceptable interrater and test-retest reliability. The profile of need is reported. The TIG-EI demonstrated 'excellent' internal consistency. It also demonstrated good concurrent validity with increased TIG-EI scores correlated with reduced service user social and global functioning as well as increased scores on measures assessing relatives' distress, expressed emotion and caregiving needs.Conclusions: Results appear to support these assessments' utility as measures of need for psychosocial intervention and grief among relatives supporting service users experiencing a first episode of psychosis.
KW - early intervention in psychosis
KW - informal caregiver
KW - need
KW - relative
KW - unresolved grief
KW - EXPRESSED EMOTION
KW - MENTAL-ILLNESS
KW - FAMILY INTERVENTION
KW - EVENT SCALE
KW - INTELLECTUAL DISABILITY
KW - SCHIZOPHRENIC DISORDERS
KW - PSYCHIATRIC-ILLNESS
KW - RELATIVES
KW - QUESTIONNAIRE
KW - 1ST-EPISODE
U2 - 10.1111/j.1751-7893.2012.00369.x
DO - 10.1111/j.1751-7893.2012.00369.x
M3 - Journal article
VL - 7
SP - 291
EP - 299
JO - Early Intervention in Psychiatry
JF - Early Intervention in Psychiatry
SN - 1751-7885
IS - 3
ER -