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Integrating palliative care in long-term care facilities across Europe (PACE): Protocol of a cluster randomized controlled trial of the 'PACE Steps to Success' intervention in seven countries

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Integrating palliative care in long-term care facilities across Europe (PACE): Protocol of a cluster randomized controlled trial of the 'PACE Steps to Success' intervention in seven countries. / Smets, Tinne; Onwuteaka-Philipsen, Bregje D; Miranda, Rose et al.
In: BMC Palliative Care, Vol. 17, 47, 12.03.2018.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Harvard

Smets, T, Onwuteaka-Philipsen, BD, Miranda, R, Pivodic, L, Tanghe, M, van Hout, H, Pasman, HRW, Oosterveld-Vlug, M, Piers, R, Van Den Noortgate, N, B Wichmann, A, Engels, Y, Vernooij-Dassen, M, Hockley, J, Froggatt, KA, Payne, SA, Szczerbińska, K, Kylanen, M, Leppaaho, S, Baranska, I, Gambassi, G, Pautex, S, Bassal, C, Deliens, L & Van den Block, L 2018, 'Integrating palliative care in long-term care facilities across Europe (PACE): Protocol of a cluster randomized controlled trial of the 'PACE Steps to Success' intervention in seven countries', BMC Palliative Care, vol. 17, 47. https://doi.org/10.1186/s12904-018-0297-1

APA

Smets, T., Onwuteaka-Philipsen, B. D., Miranda, R., Pivodic, L., Tanghe, M., van Hout, H., Pasman, H. R. W., Oosterveld-Vlug, M., Piers, R., Van Den Noortgate, N., B Wichmann, A., Engels, Y., Vernooij-Dassen, M., Hockley, J., Froggatt, K. A., Payne, S. A., Szczerbińska, K., Kylanen, M., Leppaaho, S., ... Van den Block, L. (2018). Integrating palliative care in long-term care facilities across Europe (PACE): Protocol of a cluster randomized controlled trial of the 'PACE Steps to Success' intervention in seven countries. BMC Palliative Care, 17, Article 47. https://doi.org/10.1186/s12904-018-0297-1

Vancouver

Smets T, Onwuteaka-Philipsen BD, Miranda R, Pivodic L, Tanghe M, van Hout H et al. Integrating palliative care in long-term care facilities across Europe (PACE): Protocol of a cluster randomized controlled trial of the 'PACE Steps to Success' intervention in seven countries. BMC Palliative Care. 2018 Mar 12;17:47. doi: 10.1186/s12904-018-0297-1

Author

Smets, Tinne ; Onwuteaka-Philipsen, Bregje D ; Miranda, Rose et al. / Integrating palliative care in long-term care facilities across Europe (PACE) : Protocol of a cluster randomized controlled trial of the 'PACE Steps to Success' intervention in seven countries. In: BMC Palliative Care. 2018 ; Vol. 17.

Bibtex

@article{5a6341f7788848e48e2eab98e19ac141,
title = "Integrating palliative care in long-term care facilities across Europe (PACE): Protocol of a cluster randomized controlled trial of the 'PACE Steps to Success' intervention in seven countries",
abstract = "BackgroundSeveral studies have highlighted the need for improvement in palliative care delivered to older people long-term care facilities. However, the available evidence on how to improve palliative care in these settings is weak, especially in Europe. We describe the protocol of the PACE trial aimed to 1) evaluate the effectiveness and cost-effectiveness of the {\textquoteleft}PACE Steps to Success{\textquoteright} palliative care intervention for older people in long-term care facilities, and 2) assess the implementation process and identify facilitators and barriers for implementation in different countries.MethodsWe will conduct a multi-facility cluster randomised controlled trial in Belgium, Finland, Italy, the Netherlands, Poland, Switzerland and England. In total, 72 facilities will be randomized to receive the {\textquoteleft}Pace Steps to Success intervention{\textquoteright} or to {\textquoteleft}care as usual{\textquoteright}. Primary outcome at resident level: quality of dying (CAD-EOLD); and at staff level: staff knowledge of palliative care (Palliative Care Survey). Secondary outcomes: resident{\textquoteright}s quality of end-of-life care, staff self-efficacy, self-perceived educational needs, and opinions on palliative care. Economic outcomes: direct costs and quality-adjusted life years (QALYs).Measurements are performed at baseline and after the intervention. For the resident-level outcomes, facilities report all deaths of residents in and outside the facilities over a previous four-month period and structured questionnaires are sent to (1) the administrator, (2) staff member most involved in care (3) treating general practitioner, and (4) a relative. For the staff-level outcomes, all staff who are working in the facilities are asked to complete a structured questionnaire. A process evaluation will run alongside the effectiveness evaluation in the intervention group using the RE-AIM framework.DiscussionThe lack of high quality trials in palliative care has been recognized throughout the field of palliative care research. This cross-national cluster RCT designed to evaluate the impact of the palliative care intervention for long-term care facilities {\textquoteleft}PACE Steps to Success{\textquoteright} in seven countries, will provide important evidence concerning the effectiveness as well as the preconditions for optimal implementation of palliative care in nursing homes, and this within different health care systems.Trial registrationThe study is registered at www.isrctn.com – ISRCTN14741671 (FP7-HEALTH-2013-INNOVATION-1 603111) Registration date: July 30, 2015.",
keywords = "Nursing home, Care home, Palliative care, End-of-life care, Quality improvement",
author = "Tinne Smets and Onwuteaka-Philipsen, {Bregje D} and Rose Miranda and Lara Pivodic and Marc Tanghe and {van Hout}, Hein and Pasman, {H Roeline W} and Mariska Oosterveld-Vlug and Ruth Piers and {Van Den Noortgate}, Nele and {B Wichmann}, Anne and Yvonne Engels and Myrra Vernooij-Dassen and Jo Hockley and Froggatt, {Katherine Alison} and Payne, {Sheila Alison} and Katarzyna Szczerbi{\'n}ska and Marika Kylanen and Suvi Leppaaho and Ilona Baranska and Giovanni Gambassi and Sophie Pautex and Catherine Bassal and Luc Deliens and {Van den Block}, Lieve",
year = "2018",
month = mar,
day = "12",
doi = "10.1186/s12904-018-0297-1",
language = "English",
volume = "17",
journal = "BMC Palliative Care",
issn = "1472-684X",
publisher = "BIOMED CENTRAL LTD",

}

RIS

TY - JOUR

T1 - Integrating palliative care in long-term care facilities across Europe (PACE)

T2 - Protocol of a cluster randomized controlled trial of the 'PACE Steps to Success' intervention in seven countries

AU - Smets, Tinne

AU - Onwuteaka-Philipsen, Bregje D

AU - Miranda, Rose

AU - Pivodic, Lara

AU - Tanghe, Marc

AU - van Hout, Hein

AU - Pasman, H Roeline W

AU - Oosterveld-Vlug, Mariska

AU - Piers, Ruth

AU - Van Den Noortgate, Nele

AU - B Wichmann, Anne

AU - Engels, Yvonne

AU - Vernooij-Dassen, Myrra

AU - Hockley, Jo

AU - Froggatt, Katherine Alison

AU - Payne, Sheila Alison

AU - Szczerbińska, Katarzyna

AU - Kylanen, Marika

AU - Leppaaho, Suvi

AU - Baranska, Ilona

AU - Gambassi, Giovanni

AU - Pautex, Sophie

AU - Bassal, Catherine

AU - Deliens, Luc

AU - Van den Block, Lieve

PY - 2018/3/12

Y1 - 2018/3/12

N2 - BackgroundSeveral studies have highlighted the need for improvement in palliative care delivered to older people long-term care facilities. However, the available evidence on how to improve palliative care in these settings is weak, especially in Europe. We describe the protocol of the PACE trial aimed to 1) evaluate the effectiveness and cost-effectiveness of the ‘PACE Steps to Success’ palliative care intervention for older people in long-term care facilities, and 2) assess the implementation process and identify facilitators and barriers for implementation in different countries.MethodsWe will conduct a multi-facility cluster randomised controlled trial in Belgium, Finland, Italy, the Netherlands, Poland, Switzerland and England. In total, 72 facilities will be randomized to receive the ‘Pace Steps to Success intervention’ or to ‘care as usual’. Primary outcome at resident level: quality of dying (CAD-EOLD); and at staff level: staff knowledge of palliative care (Palliative Care Survey). Secondary outcomes: resident’s quality of end-of-life care, staff self-efficacy, self-perceived educational needs, and opinions on palliative care. Economic outcomes: direct costs and quality-adjusted life years (QALYs).Measurements are performed at baseline and after the intervention. For the resident-level outcomes, facilities report all deaths of residents in and outside the facilities over a previous four-month period and structured questionnaires are sent to (1) the administrator, (2) staff member most involved in care (3) treating general practitioner, and (4) a relative. For the staff-level outcomes, all staff who are working in the facilities are asked to complete a structured questionnaire. A process evaluation will run alongside the effectiveness evaluation in the intervention group using the RE-AIM framework.DiscussionThe lack of high quality trials in palliative care has been recognized throughout the field of palliative care research. This cross-national cluster RCT designed to evaluate the impact of the palliative care intervention for long-term care facilities ‘PACE Steps to Success’ in seven countries, will provide important evidence concerning the effectiveness as well as the preconditions for optimal implementation of palliative care in nursing homes, and this within different health care systems.Trial registrationThe study is registered at www.isrctn.com – ISRCTN14741671 (FP7-HEALTH-2013-INNOVATION-1 603111) Registration date: July 30, 2015.

AB - BackgroundSeveral studies have highlighted the need for improvement in palliative care delivered to older people long-term care facilities. However, the available evidence on how to improve palliative care in these settings is weak, especially in Europe. We describe the protocol of the PACE trial aimed to 1) evaluate the effectiveness and cost-effectiveness of the ‘PACE Steps to Success’ palliative care intervention for older people in long-term care facilities, and 2) assess the implementation process and identify facilitators and barriers for implementation in different countries.MethodsWe will conduct a multi-facility cluster randomised controlled trial in Belgium, Finland, Italy, the Netherlands, Poland, Switzerland and England. In total, 72 facilities will be randomized to receive the ‘Pace Steps to Success intervention’ or to ‘care as usual’. Primary outcome at resident level: quality of dying (CAD-EOLD); and at staff level: staff knowledge of palliative care (Palliative Care Survey). Secondary outcomes: resident’s quality of end-of-life care, staff self-efficacy, self-perceived educational needs, and opinions on palliative care. Economic outcomes: direct costs and quality-adjusted life years (QALYs).Measurements are performed at baseline and after the intervention. For the resident-level outcomes, facilities report all deaths of residents in and outside the facilities over a previous four-month period and structured questionnaires are sent to (1) the administrator, (2) staff member most involved in care (3) treating general practitioner, and (4) a relative. For the staff-level outcomes, all staff who are working in the facilities are asked to complete a structured questionnaire. A process evaluation will run alongside the effectiveness evaluation in the intervention group using the RE-AIM framework.DiscussionThe lack of high quality trials in palliative care has been recognized throughout the field of palliative care research. This cross-national cluster RCT designed to evaluate the impact of the palliative care intervention for long-term care facilities ‘PACE Steps to Success’ in seven countries, will provide important evidence concerning the effectiveness as well as the preconditions for optimal implementation of palliative care in nursing homes, and this within different health care systems.Trial registrationThe study is registered at www.isrctn.com – ISRCTN14741671 (FP7-HEALTH-2013-INNOVATION-1 603111) Registration date: July 30, 2015.

KW - Nursing home

KW - Care home

KW - Palliative care

KW - End-of-life care

KW - Quality improvement

U2 - 10.1186/s12904-018-0297-1

DO - 10.1186/s12904-018-0297-1

M3 - Journal article

VL - 17

JO - BMC Palliative Care

JF - BMC Palliative Care

SN - 1472-684X

M1 - 47

ER -