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'It's quite hard to grasp the enormity of it': perceived needs of people upon diagnosis of rheumatoid arthritis

Research output: Contribution to Journal/Magazine › Journal article › peer-review

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'It's quite hard to grasp the enormity of it': perceived needs of people upon diagnosis of rheumatoid arthritis. / Radford, S; Carr, M; Hehir, M et al.
In: Musculoskeletal Care, Vol. 6, No. 3, 09.2008, p. 155-167.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Harvard

Radford, S, Carr, M, Hehir, M, Davis, B, Robertson, L, Cockshott, Z, Tipler, S & Hewlett, S 2008, ''It's quite hard to grasp the enormity of it': perceived needs of people upon diagnosis of rheumatoid arthritis', Musculoskeletal Care, vol. 6, no. 3, pp. 155-167. https://doi.org/10.1002/msc.132

APA

Radford, S., Carr, M., Hehir, M., Davis, B., Robertson, L., Cockshott, Z., Tipler, S., & Hewlett, S. (2008). 'It's quite hard to grasp the enormity of it': perceived needs of people upon diagnosis of rheumatoid arthritis. Musculoskeletal Care, 6(3), 155-167. https://doi.org/10.1002/msc.132

Vancouver

Radford S, Carr M, Hehir M, Davis B, Robertson L, Cockshott Z et al. 'It's quite hard to grasp the enormity of it': perceived needs of people upon diagnosis of rheumatoid arthritis. Musculoskeletal Care. 2008 Sept;6(3):155-167. Epub 2008 Jul 22. doi: 10.1002/msc.132

Author

Radford, S ; Carr, M ; Hehir, M et al. / 'It's quite hard to grasp the enormity of it' : perceived needs of people upon diagnosis of rheumatoid arthritis. In: Musculoskeletal Care. 2008 ; Vol. 6, No. 3. pp. 155-167.

Bibtex

@article{f75e51150a6d4d538c659e93ec7b9d4e,
title = "'It's quite hard to grasp the enormity of it': perceived needs of people upon diagnosis of rheumatoid arthritis",
abstract = "OBJECTIVES: The diagnosis of rheumatoid arthritis (RA) brings rapid pharmacological and multidisciplinary team interventions to address inflammatory processes and symptom management. However, people may also need support on the journey to self-management. The aim of this study was to explore what professional support patients feel they receive upon diagnosis, and what support they feel would be most helpful.METHODS: Two focus groups comprised patients with at least five years'; disease duration (n = 7), and patients more recently diagnosed (5-18 months, n = 5). The latter had attended at least two appointments in a rheumatology nurse specialist clinic during the previous year, aimed at providing support upon diagnosis. Transcripts were subjected to thematic analysis to identify common issues regarding support needs, which were then grouped into themes. Interviewing and analysis was performed by researchers not involved in clinical care.RESULTS: Four overarching themes emerged. 'Information' was needed about the symptoms of RA, its management and personal outcome, while 'Support' related to emotional needs ('It's quite hard to grasp the enormity of it'). Information and Support overlapped, in that patients wanted someone to talk to, and to be listened to. These two themes were underpinned by issues of service delivery: 'Choice' (patient or professional to talk to, groups, one-to-one) and 'Involvement' (holistic care, partnership), which overlapped in terms of the opportunity to decide when and which interventions to access.CONCLUSIONS: People with RA report not only informational, but also emotional support needs at diagnosis. The potential for delivering emotional support to patients around the time of diagnosis warrants further exploration.",
keywords = "Adult, Aged, Aged, 80 and over, Arthritis, Rheumatoid, Cohort Studies, Female, Focus Groups, Humans, Male, Middle Aged, Needs Assessment, Patient Education as Topic, Patient Participation, Patient Satisfaction, Social Support, Time Factors, Journal Article, Research Support, Non-U.S. Gov't",
author = "S Radford and M Carr and M Hehir and B Davis and L Robertson and Z Cockshott and S Tipler and S Hewlett",
note = "(c) 2008 John Wiley & Sons, Ltd.",
year = "2008",
month = sep,
doi = "10.1002/msc.132",
language = "English",
volume = "6",
pages = "155--167",
journal = "Musculoskeletal Care",
issn = "1478-2189",
publisher = "John Wiley and Sons Ltd",
number = "3",

}

RIS

TY - JOUR

T1 - 'It's quite hard to grasp the enormity of it'

T2 - perceived needs of people upon diagnosis of rheumatoid arthritis

AU - Radford, S

AU - Carr, M

AU - Hehir, M

AU - Davis, B

AU - Robertson, L

AU - Cockshott, Z

AU - Tipler, S

AU - Hewlett, S

N1 - (c) 2008 John Wiley & Sons, Ltd.

PY - 2008/9

Y1 - 2008/9

N2 - OBJECTIVES: The diagnosis of rheumatoid arthritis (RA) brings rapid pharmacological and multidisciplinary team interventions to address inflammatory processes and symptom management. However, people may also need support on the journey to self-management. The aim of this study was to explore what professional support patients feel they receive upon diagnosis, and what support they feel would be most helpful.METHODS: Two focus groups comprised patients with at least five years'; disease duration (n = 7), and patients more recently diagnosed (5-18 months, n = 5). The latter had attended at least two appointments in a rheumatology nurse specialist clinic during the previous year, aimed at providing support upon diagnosis. Transcripts were subjected to thematic analysis to identify common issues regarding support needs, which were then grouped into themes. Interviewing and analysis was performed by researchers not involved in clinical care.RESULTS: Four overarching themes emerged. 'Information' was needed about the symptoms of RA, its management and personal outcome, while 'Support' related to emotional needs ('It's quite hard to grasp the enormity of it'). Information and Support overlapped, in that patients wanted someone to talk to, and to be listened to. These two themes were underpinned by issues of service delivery: 'Choice' (patient or professional to talk to, groups, one-to-one) and 'Involvement' (holistic care, partnership), which overlapped in terms of the opportunity to decide when and which interventions to access.CONCLUSIONS: People with RA report not only informational, but also emotional support needs at diagnosis. The potential for delivering emotional support to patients around the time of diagnosis warrants further exploration.

AB - OBJECTIVES: The diagnosis of rheumatoid arthritis (RA) brings rapid pharmacological and multidisciplinary team interventions to address inflammatory processes and symptom management. However, people may also need support on the journey to self-management. The aim of this study was to explore what professional support patients feel they receive upon diagnosis, and what support they feel would be most helpful.METHODS: Two focus groups comprised patients with at least five years'; disease duration (n = 7), and patients more recently diagnosed (5-18 months, n = 5). The latter had attended at least two appointments in a rheumatology nurse specialist clinic during the previous year, aimed at providing support upon diagnosis. Transcripts were subjected to thematic analysis to identify common issues regarding support needs, which were then grouped into themes. Interviewing and analysis was performed by researchers not involved in clinical care.RESULTS: Four overarching themes emerged. 'Information' was needed about the symptoms of RA, its management and personal outcome, while 'Support' related to emotional needs ('It's quite hard to grasp the enormity of it'). Information and Support overlapped, in that patients wanted someone to talk to, and to be listened to. These two themes were underpinned by issues of service delivery: 'Choice' (patient or professional to talk to, groups, one-to-one) and 'Involvement' (holistic care, partnership), which overlapped in terms of the opportunity to decide when and which interventions to access.CONCLUSIONS: People with RA report not only informational, but also emotional support needs at diagnosis. The potential for delivering emotional support to patients around the time of diagnosis warrants further exploration.

KW - Adult

KW - Aged

KW - Aged, 80 and over

KW - Arthritis, Rheumatoid

KW - Cohort Studies

KW - Female

KW - Focus Groups

KW - Humans

KW - Male

KW - Middle Aged

KW - Needs Assessment

KW - Patient Education as Topic

KW - Patient Participation

KW - Patient Satisfaction

KW - Social Support

KW - Time Factors

KW - Journal Article

KW - Research Support, Non-U.S. Gov't

U2 - 10.1002/msc.132

DO - 10.1002/msc.132

M3 - Journal article

C2 - 18649347

VL - 6

SP - 155

EP - 167

JO - Musculoskeletal Care

JF - Musculoskeletal Care

SN - 1478-2189

IS - 3

ER -