168 KB, PDF document
Research output: Contribution to Journal/Magazine › Journal article
Research output: Contribution to Journal/Magazine › Journal article
}
TY - JOUR
T1 - Knowledge or understanding? Informed choice in the context of newborn bloodspot screening.
AU - Nicholls, Stuart G
PY - 2010/7
Y1 - 2010/7
N2 - The UK has a long established programme of newborn bloodspot screening. This operates under a model of informed choice. Understanding is central to the `informed' element of an informed choice yet it is rarely assessed. To date most research within the context of newborn bloodspot screening has focussed on parental recall of information. In this paper I argue that simplistic assessments of knowledge through recall fail to reflect more complex notions of understanding. In support of this contention I draw on qualitative interviews with parents of children who have undergone newborn bloodspot screening.
AB - The UK has a long established programme of newborn bloodspot screening. This operates under a model of informed choice. Understanding is central to the `informed' element of an informed choice yet it is rarely assessed. To date most research within the context of newborn bloodspot screening has focussed on parental recall of information. In this paper I argue that simplistic assessments of knowledge through recall fail to reflect more complex notions of understanding. In support of this contention I draw on qualitative interviews with parents of children who have undergone newborn bloodspot screening.
KW - consent
KW - informed choice
KW - recall
KW - interviews
KW - heel prick
U2 - 10.1093/phe/phq016
DO - 10.1093/phe/phq016
M3 - Journal article
VL - 3
SP - 128
EP - 136
JO - Public Health Ethics
JF - Public Health Ethics
SN - 1754-9973
IS - 2
ER -