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Living with advanced chronic obstructive pulmonary disease : patients concerns regarding death and dying.

Research output: Contribution to Journal/MagazineJournal articlepeer-review

Published

Standard

Living with advanced chronic obstructive pulmonary disease : patients concerns regarding death and dying. / Gardiner, Clare; Gott, Merryn; Small, Neil et al.
In: Palliative Medicine, Vol. 23, No. 8, 12.2009, p. 691-697.

Research output: Contribution to Journal/MagazineJournal articlepeer-review

Harvard

Gardiner, C, Gott, M, Small, N, Payne, S, Seamark, D, Barnes, S, Halpin, D & Ruse, C 2009, 'Living with advanced chronic obstructive pulmonary disease : patients concerns regarding death and dying.', Palliative Medicine, vol. 23, no. 8, pp. 691-697. https://doi.org/10.1177/0269216309107003

APA

Gardiner, C., Gott, M., Small, N., Payne, S., Seamark, D., Barnes, S., Halpin, D., & Ruse, C. (2009). Living with advanced chronic obstructive pulmonary disease : patients concerns regarding death and dying. Palliative Medicine, 23(8), 691-697. https://doi.org/10.1177/0269216309107003

Vancouver

Gardiner C, Gott M, Small N, Payne S, Seamark D, Barnes S et al. Living with advanced chronic obstructive pulmonary disease : patients concerns regarding death and dying. Palliative Medicine. 2009 Dec;23(8):691-697. doi: 10.1177/0269216309107003

Author

Gardiner, Clare ; Gott, Merryn ; Small, Neil et al. / Living with advanced chronic obstructive pulmonary disease : patients concerns regarding death and dying. In: Palliative Medicine. 2009 ; Vol. 23, No. 8. pp. 691-697.

Bibtex

@article{84d15474c6af4646bddf6d74515519f5,
title = "Living with advanced chronic obstructive pulmonary disease : patients concerns regarding death and dying.",
abstract = "Prognosis in COPD is poor and many patients perceive shortcomings in the education they receive about aspects of their condition. This study explores the experiences of patients with COPD, particularly fears surrounding death and dying. Semi-structured interviews were conducted with 21 patients with moderate or severe COPD. Findings revealed that patient understanding of COPD was poor, most patients were unaware of the progressive nature of the condition, and few were aware they could die of COPD. Despite this, patients often expressed concerns that their condition might deteriorate. Patients had particular concerns regarding the manner of their death; the overriding fear was dying of breathlessness or suffocation. None of the patients{\textquoteright} had discussed these fears with a health care professional. Improved patient education is needed in order to improve patients understanding of their condition and prognosis. Open communication regarding death, as advocated in a palliative care approach, is also appropriate to alleviate patients fears and to allow them to make decisions regarding the management of their care at the end of life.",
keywords = "palliative care • chronic obstructive pulmonary disease • communication • death and dying",
author = "Clare Gardiner and Merryn Gott and Neil Small and Sheila Payne and David Seamark and Sarah Barnes and David Halpin and Charlotte Ruse",
year = "2009",
month = dec,
doi = "10.1177/0269216309107003",
language = "English",
volume = "23",
pages = "691--697",
journal = "Palliative Medicine",
issn = "1477-030X",
publisher = "SAGE Publications Ltd",
number = "8",

}

RIS

TY - JOUR

T1 - Living with advanced chronic obstructive pulmonary disease : patients concerns regarding death and dying.

AU - Gardiner, Clare

AU - Gott, Merryn

AU - Small, Neil

AU - Payne, Sheila

AU - Seamark, David

AU - Barnes, Sarah

AU - Halpin, David

AU - Ruse, Charlotte

PY - 2009/12

Y1 - 2009/12

N2 - Prognosis in COPD is poor and many patients perceive shortcomings in the education they receive about aspects of their condition. This study explores the experiences of patients with COPD, particularly fears surrounding death and dying. Semi-structured interviews were conducted with 21 patients with moderate or severe COPD. Findings revealed that patient understanding of COPD was poor, most patients were unaware of the progressive nature of the condition, and few were aware they could die of COPD. Despite this, patients often expressed concerns that their condition might deteriorate. Patients had particular concerns regarding the manner of their death; the overriding fear was dying of breathlessness or suffocation. None of the patients’ had discussed these fears with a health care professional. Improved patient education is needed in order to improve patients understanding of their condition and prognosis. Open communication regarding death, as advocated in a palliative care approach, is also appropriate to alleviate patients fears and to allow them to make decisions regarding the management of their care at the end of life.

AB - Prognosis in COPD is poor and many patients perceive shortcomings in the education they receive about aspects of their condition. This study explores the experiences of patients with COPD, particularly fears surrounding death and dying. Semi-structured interviews were conducted with 21 patients with moderate or severe COPD. Findings revealed that patient understanding of COPD was poor, most patients were unaware of the progressive nature of the condition, and few were aware they could die of COPD. Despite this, patients often expressed concerns that their condition might deteriorate. Patients had particular concerns regarding the manner of their death; the overriding fear was dying of breathlessness or suffocation. None of the patients’ had discussed these fears with a health care professional. Improved patient education is needed in order to improve patients understanding of their condition and prognosis. Open communication regarding death, as advocated in a palliative care approach, is also appropriate to alleviate patients fears and to allow them to make decisions regarding the management of their care at the end of life.

KW - palliative care • chronic obstructive pulmonary disease • communication • death and dying

U2 - 10.1177/0269216309107003

DO - 10.1177/0269216309107003

M3 - Journal article

VL - 23

SP - 691

EP - 697

JO - Palliative Medicine

JF - Palliative Medicine

SN - 1477-030X

IS - 8

ER -