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Patient-centered integrated palliative care pathways in advanced disease: a mixed methods study

Research output: Contribution to conference - Without ISBN/ISSN Conference paper

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Patient-centered integrated palliative care pathways in advanced disease: a mixed methods study. / Hughes, Sean; Hasselaar, Jeroen.
2014. Paper presented at 14th International Conference on Integrated Care, Brussels, Belgium.

Research output: Contribution to conference - Without ISBN/ISSN Conference paper

Harvard

Hughes, S & Hasselaar, J 2014, 'Patient-centered integrated palliative care pathways in advanced disease: a mixed methods study', Paper presented at 14th International Conference on Integrated Care, Brussels, Belgium, 2/04/14 - 4/04/14.

APA

Hughes, S., & Hasselaar, J. (2014). Patient-centered integrated palliative care pathways in advanced disease: a mixed methods study. Paper presented at 14th International Conference on Integrated Care, Brussels, Belgium.

Vancouver

Hughes S, Hasselaar J. Patient-centered integrated palliative care pathways in advanced disease: a mixed methods study. 2014. Paper presented at 14th International Conference on Integrated Care, Brussels, Belgium.

Author

Hughes, Sean ; Hasselaar, Jeroen. / Patient-centered integrated palliative care pathways in advanced disease : a mixed methods study. Paper presented at 14th International Conference on Integrated Care, Brussels, Belgium.

Bibtex

@conference{81d49848ebc7467d8d32e6a87be2c23b,
title = "Patient-centered integrated palliative care pathways in advanced disease: a mixed methods study",
abstract = "Introduction: People with life threatening disease across Europe face challenges in engaging with a wide range of agencies and multiple professionals during the course of their illness, even up to the point of death. It is known that many services attempt – formally or otherwise – to dovetail their efforts with others in the local health economy, but little is known about these initiatives, nor about what works best in terms of service organisation. This is especially the case when considered from the patient and carer standpoint. Against a backdrop of shrinking resources for health and social care in an age of austerity and in the light of an ageing population with increasing need, more needs to be known about how integrating aspects of service delivery will best help people in the last phase of their lives. Study design: The study will use a mix of quantitative and qualitative approaches to investigate integrated palliative care pathways in advanced cancer and chronic disease.Methods: The study will be conducted by an international team in five distinct phases:1. Systematic review of the literature considering existing evidence for integrated palliative care initiatives in Europe2. Development of a taxonomy of integrated palliative care initiatives in Europe3. Data collection exploring the experiences of patients, carers and professional care givers of integrated palliative care initiatives in five European nations using shadowing techniques, qualitative interviewing and quantitative quality of life and symptom burden measures 4. Development of (requirements for) best practices in integrated palliative care in Europe based on the analysis of gathered data 5. Development of an elearning platform around best practice in integrated palliative care aimed at equipping professionals with knowledge to enhance and influence local care provision Dissemination: Study outputs will be disseminated throughout the project using a variety of methods including: scientific publications and presentations; the provision of an interactive website; the development of an elearning platform; engagement with social media and ending with an invitational conference aimed at influencing policy development at senior European political and policy decision making level. Conclusion: Our knowledge about integrated palliative care pathways in advanced disease remains patchy and incomplete. It is clear that many initiatives are underway across Europe. Our study will pull together that knowledge, enhancing it significantly with the views of patients and those at the coalface of service delivery, putting us in a position to make evidence based recommendations for best practice in this field. ",
keywords = "integrated care, palliative care, care pathways, advanced disease",
author = "Sean Hughes and Jeroen Hasselaar",
year = "2014",
month = apr,
day = "2",
language = "English",
note = "14th International Conference on Integrated Care ; Conference date: 02-04-2014 Through 04-04-2014",

}

RIS

TY - CONF

T1 - Patient-centered integrated palliative care pathways in advanced disease

T2 - 14th International Conference on Integrated Care

AU - Hughes, Sean

AU - Hasselaar, Jeroen

PY - 2014/4/2

Y1 - 2014/4/2

N2 - Introduction: People with life threatening disease across Europe face challenges in engaging with a wide range of agencies and multiple professionals during the course of their illness, even up to the point of death. It is known that many services attempt – formally or otherwise – to dovetail their efforts with others in the local health economy, but little is known about these initiatives, nor about what works best in terms of service organisation. This is especially the case when considered from the patient and carer standpoint. Against a backdrop of shrinking resources for health and social care in an age of austerity and in the light of an ageing population with increasing need, more needs to be known about how integrating aspects of service delivery will best help people in the last phase of their lives. Study design: The study will use a mix of quantitative and qualitative approaches to investigate integrated palliative care pathways in advanced cancer and chronic disease.Methods: The study will be conducted by an international team in five distinct phases:1. Systematic review of the literature considering existing evidence for integrated palliative care initiatives in Europe2. Development of a taxonomy of integrated palliative care initiatives in Europe3. Data collection exploring the experiences of patients, carers and professional care givers of integrated palliative care initiatives in five European nations using shadowing techniques, qualitative interviewing and quantitative quality of life and symptom burden measures 4. Development of (requirements for) best practices in integrated palliative care in Europe based on the analysis of gathered data 5. Development of an elearning platform around best practice in integrated palliative care aimed at equipping professionals with knowledge to enhance and influence local care provision Dissemination: Study outputs will be disseminated throughout the project using a variety of methods including: scientific publications and presentations; the provision of an interactive website; the development of an elearning platform; engagement with social media and ending with an invitational conference aimed at influencing policy development at senior European political and policy decision making level. Conclusion: Our knowledge about integrated palliative care pathways in advanced disease remains patchy and incomplete. It is clear that many initiatives are underway across Europe. Our study will pull together that knowledge, enhancing it significantly with the views of patients and those at the coalface of service delivery, putting us in a position to make evidence based recommendations for best practice in this field.

AB - Introduction: People with life threatening disease across Europe face challenges in engaging with a wide range of agencies and multiple professionals during the course of their illness, even up to the point of death. It is known that many services attempt – formally or otherwise – to dovetail their efforts with others in the local health economy, but little is known about these initiatives, nor about what works best in terms of service organisation. This is especially the case when considered from the patient and carer standpoint. Against a backdrop of shrinking resources for health and social care in an age of austerity and in the light of an ageing population with increasing need, more needs to be known about how integrating aspects of service delivery will best help people in the last phase of their lives. Study design: The study will use a mix of quantitative and qualitative approaches to investigate integrated palliative care pathways in advanced cancer and chronic disease.Methods: The study will be conducted by an international team in five distinct phases:1. Systematic review of the literature considering existing evidence for integrated palliative care initiatives in Europe2. Development of a taxonomy of integrated palliative care initiatives in Europe3. Data collection exploring the experiences of patients, carers and professional care givers of integrated palliative care initiatives in five European nations using shadowing techniques, qualitative interviewing and quantitative quality of life and symptom burden measures 4. Development of (requirements for) best practices in integrated palliative care in Europe based on the analysis of gathered data 5. Development of an elearning platform around best practice in integrated palliative care aimed at equipping professionals with knowledge to enhance and influence local care provision Dissemination: Study outputs will be disseminated throughout the project using a variety of methods including: scientific publications and presentations; the provision of an interactive website; the development of an elearning platform; engagement with social media and ending with an invitational conference aimed at influencing policy development at senior European political and policy decision making level. Conclusion: Our knowledge about integrated palliative care pathways in advanced disease remains patchy and incomplete. It is clear that many initiatives are underway across Europe. Our study will pull together that knowledge, enhancing it significantly with the views of patients and those at the coalface of service delivery, putting us in a position to make evidence based recommendations for best practice in this field.

KW - integrated care

KW - palliative care

KW - care pathways

KW - advanced disease

M3 - Conference paper

Y2 - 2 April 2014 through 4 April 2014

ER -