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  • JARID_2015_Epilepsy_Service_Responses

    Rights statement: This is the peer reviewed version of the following article: Robertson, J., Baines, S., Emerson, E. and Hatton, C. (2017), Service Responses to People with Intellectual Disabilities and Epilepsy: A Systematic Review. J Appl Res Intellect Disabil, 30: 1–32. doi:10.1111/jar.12228 which has been published in final form at http://onlinelibrary.wiley.com/doi/10.1111/jar.12228 This article may be used for non-commercial purposes in accordance With Wiley Terms and Conditions for self-archiving.

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Service responses to people with intellectual disabilities and epilepsy: a systematic review

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Service responses to people with intellectual disabilities and epilepsy : a systematic review. / Robertson, Janet; Baines, Susannah; Emerson, Eric; Hatton, Chris.

In: Journal of Applied Research in Intellectual Disabilities, Vol. 30, No. 1, 01.2017, p. 1-32.

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@article{55f5bf3643404f198e3ca5a94ebcf686,
title = "Service responses to people with intellectual disabilities and epilepsy: a systematic review",
abstract = "BACKGROUND: Epilepsy is highly prevalent in people with intellectual disabilities and is associated with increased mortality and high healthcare usage. This systematic review summarizes research on service responses to people with intellectual disabilities and epilepsy.METHOD: Studies published from 1990 were identified via electronic searches using Medline, Cinahl, PsycINFO and Web of Science, email requests to researcher networks, and cross-citations. Information extracted from studies was reviewed narratively in relation to identified themes.RESULTS: Thirty-five studies met the inclusion criteria. Overall study quality was low, with no RCTs or similarly robust intervention study designs. Access to specialists was inconsistent. The importance of proxies and the need for education regarding epilepsy for staff, carers and people with intellectual disabilities were highlighted.CONCLUSION: There are no methodologically robust studies on service-related interventions for people with intellectual disabilities and epilepsy. Further research on improving service delivery is required to substantiate findings reported here.",
keywords = "epilepsy, intellectual disabilities, service responses",
author = "Janet Robertson and Susannah Baines and Eric Emerson and Chris Hatton",
note = "This is the peer reviewed version of the following article: Robertson, J., Baines, S., Emerson, E. and Hatton, C. (2017), Service Responses to People with Intellectual Disabilities and Epilepsy: A Systematic Review. J Appl Res Intellect Disabil, 30: 1–32. doi:10.1111/jar.12228 which has been published in final form at http://onlinelibrary.wiley.com/doi/10.1111/jar.12228 This article may be used for non-commercial purposes in accordance With Wiley Terms and Conditions for self-archiving.",
year = "2017",
month = "1",
doi = "10.1111/jar.12228",
language = "English",
volume = "30",
pages = "1--32",
journal = "Journal of Applied Research in Intellectual Disabilities",
issn = "1360-2322",
publisher = "Wiley-Blackwell Publishing Ltd",
number = "1",

}

RIS

TY - JOUR

T1 - Service responses to people with intellectual disabilities and epilepsy

T2 - a systematic review

AU - Robertson, Janet

AU - Baines, Susannah

AU - Emerson, Eric

AU - Hatton, Chris

N1 - This is the peer reviewed version of the following article: Robertson, J., Baines, S., Emerson, E. and Hatton, C. (2017), Service Responses to People with Intellectual Disabilities and Epilepsy: A Systematic Review. J Appl Res Intellect Disabil, 30: 1–32. doi:10.1111/jar.12228 which has been published in final form at http://onlinelibrary.wiley.com/doi/10.1111/jar.12228 This article may be used for non-commercial purposes in accordance With Wiley Terms and Conditions for self-archiving.

PY - 2017/1

Y1 - 2017/1

N2 - BACKGROUND: Epilepsy is highly prevalent in people with intellectual disabilities and is associated with increased mortality and high healthcare usage. This systematic review summarizes research on service responses to people with intellectual disabilities and epilepsy.METHOD: Studies published from 1990 were identified via electronic searches using Medline, Cinahl, PsycINFO and Web of Science, email requests to researcher networks, and cross-citations. Information extracted from studies was reviewed narratively in relation to identified themes.RESULTS: Thirty-five studies met the inclusion criteria. Overall study quality was low, with no RCTs or similarly robust intervention study designs. Access to specialists was inconsistent. The importance of proxies and the need for education regarding epilepsy for staff, carers and people with intellectual disabilities were highlighted.CONCLUSION: There are no methodologically robust studies on service-related interventions for people with intellectual disabilities and epilepsy. Further research on improving service delivery is required to substantiate findings reported here.

AB - BACKGROUND: Epilepsy is highly prevalent in people with intellectual disabilities and is associated with increased mortality and high healthcare usage. This systematic review summarizes research on service responses to people with intellectual disabilities and epilepsy.METHOD: Studies published from 1990 were identified via electronic searches using Medline, Cinahl, PsycINFO and Web of Science, email requests to researcher networks, and cross-citations. Information extracted from studies was reviewed narratively in relation to identified themes.RESULTS: Thirty-five studies met the inclusion criteria. Overall study quality was low, with no RCTs or similarly robust intervention study designs. Access to specialists was inconsistent. The importance of proxies and the need for education regarding epilepsy for staff, carers and people with intellectual disabilities were highlighted.CONCLUSION: There are no methodologically robust studies on service-related interventions for people with intellectual disabilities and epilepsy. Further research on improving service delivery is required to substantiate findings reported here.

KW - epilepsy

KW - intellectual disabilities

KW - service responses

U2 - 10.1111/jar.12228

DO - 10.1111/jar.12228

M3 - Journal article

C2 - 26525459

VL - 30

SP - 1

EP - 32

JO - Journal of Applied Research in Intellectual Disabilities

JF - Journal of Applied Research in Intellectual Disabilities

SN - 1360-2322

IS - 1

ER -