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Solidaroty and equity : new ethical frameworks for genetic databases.

Research output: Contribution to journalJournal article

Published

Journal publication date04/2001
JournalNature Reviews Genetics
Journal number4
Volume2
Number of pages4
Pages318-321
Original languageEnglish

Abstract

Genetic database initiatives have given rise to considerable debate about their potential harms and benefits. The question arises as to whether existing ethical frameworks are sufficient to mediate between the competing interests at stake. One approach is to strengthen mechanisms for obtaining informed consent and for protecting confidentiality. However, there is increasing interest in other ethical frameworks, involving solidarity — participation in research for the common good — and the sharing of the benefits of research.