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Research output: Contribution to Journal/Magazine › Journal article › peer-review
Research output: Contribution to Journal/Magazine › Journal article › peer-review
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TY - JOUR
T1 - The experiences of being diagnosed with Parkinson’s Disease
AU - Warren, Emma
AU - Eccles, Fiona Juliet Rosalind
AU - Travers, Vicky
AU - Simpson, Jane
PY - 2016/12
Y1 - 2016/12
N2 - Being diagnosed with a chronic illness such as Parkinson’s disease (PD) can have a considerable psychological impact on a person’s life. However, this has been little explored and therefore it is unclear what support may be most beneficial at this time. This study therefore explored personal experiences of being diagnosed with PD. Six participants were interviewed and data analysed using thematic analysis. Three over-arching themes emerged: 1) “Understanding it is an important thing” – The value of knowledge; 2) "You’ve got to get used to accepting the fact that you need help" - The social implications of being diagnosed with PD; and 3) "I think you need to talk to somebody" - The importance of supportive others.The process of diagnosis was complex and often challenging for participants, with respect totheir own understanding and that of others. Recommendations for future practice withinspecialist PD services are made, to improve the support that is offered at this time.
AB - Being diagnosed with a chronic illness such as Parkinson’s disease (PD) can have a considerable psychological impact on a person’s life. However, this has been little explored and therefore it is unclear what support may be most beneficial at this time. This study therefore explored personal experiences of being diagnosed with PD. Six participants were interviewed and data analysed using thematic analysis. Three over-arching themes emerged: 1) “Understanding it is an important thing” – The value of knowledge; 2) "You’ve got to get used to accepting the fact that you need help" - The social implications of being diagnosed with PD; and 3) "I think you need to talk to somebody" - The importance of supportive others.The process of diagnosis was complex and often challenging for participants, with respect totheir own understanding and that of others. Recommendations for future practice withinspecialist PD services are made, to improve the support that is offered at this time.
KW - Parkinson's disease
KW - diagnosis
KW - nurse
KW - specialist services
KW - support
KW - social
KW - psychological
U2 - 10.12968/bjnn.2016.12.6.288
DO - 10.12968/bjnn.2016.12.6.288
M3 - Journal article
VL - 12
SP - 288
EP - 296
JO - British Journal of Neuroscience Nursing
JF - British Journal of Neuroscience Nursing
SN - 1747-0307
IS - 6
ER -