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    Rights statement: The final, definitive version of this article has been published in the Journal, Palliative Medicine, 33 (9), 2019, © SAGE Publications Ltd, 2019 by SAGE Publications Ltd at the Palliative Medicine page: https://journals.sagepub.com/home/pmj on SAGE Journals Online: http://online.sagepub.com/

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The experiences of family members witnessing the diminishing drinking of a dying relative: An adapted meta-narrative literature review

Research output: Contribution to journalJournal article

Published
<mark>Journal publication date</mark>1/10/2019
<mark>Journal</mark>Palliative Medicine
Issue number9
Volume33
Number of pages12
Pages (from-to)1146-1157
Publication statusPublished
Early online date1/07/19
Original languageEnglish

Abstract

Background: Addressing the concerns of family members is an important aspect of palliative and end-of-life care. One aspect that commonly causes family caregivers concern is the decline of patients’ oral fluid intake in the last few days of life. 

Aim: To map the narratives in which family members’ experiences of witnessing the diminishing drinking of a dying relative have been researched, review the findings within each narrative and consider directions for future research. 

Design: An adapted meta-narrative review approach. 

Data Sources: The Cumulative Index of Nursing and Applied Health Literature, Medline, PsycINFO, Psycharticles and Scopus databases were searched for relevant research published between January 1982 and December 2017. Quality was assessed using the Quality Assessment and Review Instrument. 

Results: A total of 22 papers met the inclusion criteria. No study focused specifically on the experiences of family members when witnessing the diminishing drinking of dying relatives. However, research about diminishing drinking was identified within studies broadly focusing on cancer cachexia, clinical decision-making about hydration and/or nutrition and support in a hospice context. The research indicates that family members’ experiences of diminishing drinking vary with their views about the significance of drinking, dying well and their expectations of themselves and healthcare professionals. 

Conclusion: While some understanding of the topic can be inferred from research in related areas, there is a paucity of information specifically about family members’ experiences when witnessing the diminishing drinking of a dying relative.

Bibliographic note

The final, definitive version of this article has been published in the Journal, Palliative Medicine, 33 (9), 2019, © SAGE Publications Ltd, 2019 by SAGE Publications Ltd at the Palliative Medicine page: https://journals.sagepub.com/home/pmj on SAGE Journals Online: http://online.sagepub.com/