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  • Lord Field Smith 2017 preprint complete

    Rights statement: This is the peer reviewed version of the following article: Lord AJ, Field S, Smith IC. The experiences of staff who support people with intellectual disability on issues about death, dying and bereavement: A metasynthesis. J Appl Res Intellect Disabil. 2017;30:1007–1021. https://doi.org/10.1111/jar.12376 which has been published in final form at http://onlinelibrary.wiley.com/doi/10.1111/jar.12376/abstract This article may be used for non-commercial purposes in accordance With Wiley Terms and Conditions for self-archiving.

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The Experiences of Staff Who Support People with Intellectual Disability on Issues About Death, Dying, and Bereavement: a metasynthesis

Research output: Contribution to journalJournal article

Published
<mark>Journal publication date</mark>11/2017
<mark>Journal</mark>Journal of Applied Research in Intellectual Disabilities
Issue number6
Volume30
Number of pages15
Pages (from-to)1007-1021
Publication statusPublished
Early online date12/07/17
Original languageEnglish

Abstract

Background:
Historically, people with intellectual disabilities have tended to be excluded
from knowing about death, dying, and bereavement. Staff in intellectual disability services
can play a valuable role in improving understanding of these issues in those they support.
This qualitative metasynthesis aimed to understand the experiences of staff supporting adults
with intellectual disabilities with issues of death, dying, and bereavement.

Method:
Thirteen papers were identified following a systematic review of six databases.

Results:
Three themes were developed following a lines-of-argument synthesis: (1) Talking about death is hard: Negotiating the uncertainty in death, dying, and bereavement; (2) The commitment to
promoting a “good death”; and (3) The grief behind the professional mask. “A cautious silence: The taboo of death,” was an overarching theme.

Conclusions:
A more open culture around issues of death, dying, and bereavement in intellectual disability settings is essential and could be promoted through staff training and support.

Bibliographic note

This is the peer reviewed version of the following article: Lord AJ, Field S, Smith IC. The experiences of staff who support people with intellectual disability on issues about death, dying and bereavement: A metasynthesis. J Appl Res Intellect Disabil. 2017;30:1007–1021. https://doi.org/10.1111/jar.12376 which has been published in final form at http://onlinelibrary.wiley.com/doi/10.1111/jar.12376/abstract This article may be used for non-commercial purposes in accordance With Wiley Terms and Conditions for self-archiving.