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The ‘lost tribe’ reconsidered: Teenagers and young adults treated for cancer in adult settings in the UK

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The ‘lost tribe’ reconsidered : Teenagers and young adults treated for cancer in adult settings in the UK. / Marshall, Steve; Grinyer, Anne; Limmer, Mark.

In: European Journal of Oncology Nursing, Vol. 33, 01.04.2018, p. 85-90.

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@article{47ff982b681848559ba5d3ac824fc9ab,
title = "The ‘lost tribe’ reconsidered: Teenagers and young adults treated for cancer in adult settings in the UK",
abstract = "Purpose Although the UK has pioneered the development of specialist adolescent cancer units, the majority of teenagers and young adults (TYAs) continue to be treated at their local hospital or at a cancer centre alongside adults of all ages. This study aimed to elicit young people's views on this experience of having cancer treatment in an adult setting. Methods Seventeen participants who had been treated for cancer in an adult hospital between the ages of 15 and 24 were recruited via cancer charities and social media. Telephone interviews were conducted with the participants and the resulting data were analysed using thematic analysis. Results Already feeling out of sync as a TYA with cancer, participants felt out of place in the adult setting. Four factors contributed to this negative experience: a lack of affinity with older patients; the challenging issues in the adult setting; the absence of empathy towards TYAs by staff; and the unsuitability of the environment for adolescents. Conclusion Staff working with TYAs with cancer in the adult setting should be aware of the potentially detrimental impact of this environment on this cohort of patients, and consider ways of adapting and modifying their approach.",
keywords = "Adolescents, Teenagers, Young adults, Cancer, Patient satisfaction, Adult hospital, Unmet needs",
author = "Steve Marshall and Anne Grinyer and Mark Limmer",
year = "2018",
month = "4",
day = "1",
doi = "10.1016/j.ejon.2018.02.001",
language = "English",
volume = "33",
pages = "85--90",
journal = "European Journal of Oncology Nursing",
issn = "1462-3889",
publisher = "Churchill Livingstone",

}

RIS

TY - JOUR

T1 - The ‘lost tribe’ reconsidered

T2 - Teenagers and young adults treated for cancer in adult settings in the UK

AU - Marshall, Steve

AU - Grinyer, Anne

AU - Limmer, Mark

PY - 2018/4/1

Y1 - 2018/4/1

N2 - Purpose Although the UK has pioneered the development of specialist adolescent cancer units, the majority of teenagers and young adults (TYAs) continue to be treated at their local hospital or at a cancer centre alongside adults of all ages. This study aimed to elicit young people's views on this experience of having cancer treatment in an adult setting. Methods Seventeen participants who had been treated for cancer in an adult hospital between the ages of 15 and 24 were recruited via cancer charities and social media. Telephone interviews were conducted with the participants and the resulting data were analysed using thematic analysis. Results Already feeling out of sync as a TYA with cancer, participants felt out of place in the adult setting. Four factors contributed to this negative experience: a lack of affinity with older patients; the challenging issues in the adult setting; the absence of empathy towards TYAs by staff; and the unsuitability of the environment for adolescents. Conclusion Staff working with TYAs with cancer in the adult setting should be aware of the potentially detrimental impact of this environment on this cohort of patients, and consider ways of adapting and modifying their approach.

AB - Purpose Although the UK has pioneered the development of specialist adolescent cancer units, the majority of teenagers and young adults (TYAs) continue to be treated at their local hospital or at a cancer centre alongside adults of all ages. This study aimed to elicit young people's views on this experience of having cancer treatment in an adult setting. Methods Seventeen participants who had been treated for cancer in an adult hospital between the ages of 15 and 24 were recruited via cancer charities and social media. Telephone interviews were conducted with the participants and the resulting data were analysed using thematic analysis. Results Already feeling out of sync as a TYA with cancer, participants felt out of place in the adult setting. Four factors contributed to this negative experience: a lack of affinity with older patients; the challenging issues in the adult setting; the absence of empathy towards TYAs by staff; and the unsuitability of the environment for adolescents. Conclusion Staff working with TYAs with cancer in the adult setting should be aware of the potentially detrimental impact of this environment on this cohort of patients, and consider ways of adapting and modifying their approach.

KW - Adolescents

KW - Teenagers

KW - Young adults

KW - Cancer

KW - Patient satisfaction

KW - Adult hospital

KW - Unmet needs

U2 - 10.1016/j.ejon.2018.02.001

DO - 10.1016/j.ejon.2018.02.001

M3 - Journal article

VL - 33

SP - 85

EP - 90

JO - European Journal of Oncology Nursing

JF - European Journal of Oncology Nursing

SN - 1462-3889

ER -