Research output: Contribution to Journal/Magazine › Journal article › peer-review
Research output: Contribution to Journal/Magazine › Journal article › peer-review
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TY - JOUR
T1 - "They want to know where they came from"
T2 - population genetics, identity, and family genealogy
AU - Tutton, Richard
PY - 2004
Y1 - 2004
N2 - This paper discusses the changing relationship between population genetics, family genealogy and identity. It reports on empirical research with participants in a genetic study who anticipated that personal feedback on the analysis of their donated samples would elucidate aspects of their own family genealogies. The paper also documents how geneticists, building on the practices of offering personal feedback to research participants, have developed genetic tests marketed directly to people wishing to trace their ancestry. Some of the social and ethical issues raised by this development in the use of genetic testing are considered.
AB - This paper discusses the changing relationship between population genetics, family genealogy and identity. It reports on empirical research with participants in a genetic study who anticipated that personal feedback on the analysis of their donated samples would elucidate aspects of their own family genealogies. The paper also documents how geneticists, building on the practices of offering personal feedback to research participants, have developed genetic tests marketed directly to people wishing to trace their ancestry. Some of the social and ethical issues raised by this development in the use of genetic testing are considered.
KW - Consumer Participation
KW - Family
KW - Genetic Research
KW - Genetics, Population
KW - Humans
KW - Interviews as Topic
KW - Pedigree
KW - Scotland
U2 - 10.1080/1463677042000189606
DO - 10.1080/1463677042000189606
M3 - Journal article
C2 - 15470787
VL - 23
SP - 105
EP - 120
JO - New Genetics and Society
JF - New Genetics and Society
SN - 1463-6778
IS - 1
ER -