Home > Research > Publications & Outputs > Understandings of psychological difficulties in...

Associated organisational unit

Electronic data

  • TheedPAPTRAPsept2017-FOR PURE

    Rights statement: This is the peer reviewed version of the following article: Theed, R. , Eccles, F. J. and Simpson, J. (2018), Understandings of psychological difficulties in people with the Huntington's disease gene and their expectations of psychological therapy. Psychol Psychother Theory Res Pract, 91: 216-231. doi:10.1111/papt.12157 which has been published in final form at http://onlinelibrary.wiley.com/doi/10.1111/papt.12157/abstract This article may be used for non-commercial purposes in accordance With Wiley Terms and Conditions for self-archiving.

    Accepted author manuscript, 758 KB, PDF document

    Available under license: CC BY-NC: Creative Commons Attribution-NonCommercial 4.0 International License

Links

Text available via DOI:

View graph of relations

Understandings of psychological difficulties in people with the Huntington’s disease gene mutation and their expectations of psychological therapy

Research output: Contribution to journalJournal article

Published

Standard

Understandings of psychological difficulties in people with the Huntington’s disease gene mutation and their expectations of psychological therapy. / Theed, Rachael; Eccles, Fiona Juliet Rosalind; Simpson, Jane.

In: Psychology and Psychotherapy: Theory, Research and Practice, Vol. 91, No. 2, 06.2018, p. 216-231.

Research output: Contribution to journalJournal article

Harvard

APA

Vancouver

Author

Bibtex

@article{1eff73adb24a417bade339f0bb417bdd,
title = "Understandings of psychological difficulties in people with the Huntington{\textquoteright}s disease gene mutation and their expectations of psychological therapy",
abstract = "ObjectivesThis study sought to investigate how people who had tested positive for the Huntington's disease (HD) gene mutation understood and experienced psychological distress and their expectations of psychological therapy.DesignA qualitative methodology was adopted involving semi-structured interviews and interpretative phenomenological analysis (IPA).MethodA total of nine participants (five women and four men) who had opted to engage in psychological therapy were recruited and interviewed prior to the start of this particular psychological therapeutic intervention. Interviews were transcribed verbatim and analysed using IPA whereby themes were analysed within and across transcripts and classified into superordinate themes.ResultsThree superordinate themes were developed: Attributing psychological distress to HD: {\textquoteleft}you're blaming everything on that now{\textquoteright}; Changes in attributions of distress over time: {\textquoteleft}in the past you'd just get on with it{\textquoteright}; and Approaching therapy with an open mind, commitment, and hope: {\textquoteleft}a light at the end of the tunnel{\textquoteright}.ConclusionUnderstandings of psychological distress in HD included biological and psychological explanations, with both often being accepted simultaneously by the same individual but with biomedical accounts generally dominating. Individual experience seemed to reflect a dynamic process whereby people's understanding and experience of their distress changed over time. Psychological therapy was accepted as a positive alternative to medication, providing people with HD with hope that their psychological well-being could be enhanced.",
keywords = "Huntington's disease , mindfulness‐based cognitive therapy, psychological difficulties, psychological therapy",
author = "Rachael Theed and Eccles, {Fiona Juliet Rosalind} and Jane Simpson",
note = "This is the peer reviewed version of the following article: Theed, R. , Eccles, F. J. and Simpson, J. (2018), Understandings of psychological difficulties in people with the Huntington's disease gene and their expectations of psychological therapy. Psychol Psychother Theory Res Pract, 91: 216-231. doi:10.1111/papt.12157 which has been published in final form at http://onlinelibrary.wiley.com/doi/10.1111/papt.12157/abstract This article may be used for non-commercial purposes in accordance With Wiley Terms and Conditions for self-archiving.",
year = "2018",
month = jun
doi = "10.1111/papt.12157",
language = "English",
volume = "91",
pages = "216--231",
journal = "Psychology and Psychotherapy: Theory, Research and Practice",
issn = "1476-0835",
publisher = "Wiley-Blackwell",
number = "2",

}

RIS

TY - JOUR

T1 - Understandings of psychological difficulties in people with the Huntington’s disease gene mutation and their expectations of psychological therapy

AU - Theed, Rachael

AU - Eccles, Fiona Juliet Rosalind

AU - Simpson, Jane

N1 - This is the peer reviewed version of the following article: Theed, R. , Eccles, F. J. and Simpson, J. (2018), Understandings of psychological difficulties in people with the Huntington's disease gene and their expectations of psychological therapy. Psychol Psychother Theory Res Pract, 91: 216-231. doi:10.1111/papt.12157 which has been published in final form at http://onlinelibrary.wiley.com/doi/10.1111/papt.12157/abstract This article may be used for non-commercial purposes in accordance With Wiley Terms and Conditions for self-archiving.

PY - 2018/6

Y1 - 2018/6

N2 - ObjectivesThis study sought to investigate how people who had tested positive for the Huntington's disease (HD) gene mutation understood and experienced psychological distress and their expectations of psychological therapy.DesignA qualitative methodology was adopted involving semi-structured interviews and interpretative phenomenological analysis (IPA).MethodA total of nine participants (five women and four men) who had opted to engage in psychological therapy were recruited and interviewed prior to the start of this particular psychological therapeutic intervention. Interviews were transcribed verbatim and analysed using IPA whereby themes were analysed within and across transcripts and classified into superordinate themes.ResultsThree superordinate themes were developed: Attributing psychological distress to HD: ‘you're blaming everything on that now’; Changes in attributions of distress over time: ‘in the past you'd just get on with it’; and Approaching therapy with an open mind, commitment, and hope: ‘a light at the end of the tunnel’.ConclusionUnderstandings of psychological distress in HD included biological and psychological explanations, with both often being accepted simultaneously by the same individual but with biomedical accounts generally dominating. Individual experience seemed to reflect a dynamic process whereby people's understanding and experience of their distress changed over time. Psychological therapy was accepted as a positive alternative to medication, providing people with HD with hope that their psychological well-being could be enhanced.

AB - ObjectivesThis study sought to investigate how people who had tested positive for the Huntington's disease (HD) gene mutation understood and experienced psychological distress and their expectations of psychological therapy.DesignA qualitative methodology was adopted involving semi-structured interviews and interpretative phenomenological analysis (IPA).MethodA total of nine participants (five women and four men) who had opted to engage in psychological therapy were recruited and interviewed prior to the start of this particular psychological therapeutic intervention. Interviews were transcribed verbatim and analysed using IPA whereby themes were analysed within and across transcripts and classified into superordinate themes.ResultsThree superordinate themes were developed: Attributing psychological distress to HD: ‘you're blaming everything on that now’; Changes in attributions of distress over time: ‘in the past you'd just get on with it’; and Approaching therapy with an open mind, commitment, and hope: ‘a light at the end of the tunnel’.ConclusionUnderstandings of psychological distress in HD included biological and psychological explanations, with both often being accepted simultaneously by the same individual but with biomedical accounts generally dominating. Individual experience seemed to reflect a dynamic process whereby people's understanding and experience of their distress changed over time. Psychological therapy was accepted as a positive alternative to medication, providing people with HD with hope that their psychological well-being could be enhanced.

KW - Huntington's disease

KW - mindfulness‐based cognitive therapy

KW - psychological difficulties

KW - psychological therapy

U2 - 10.1111/papt.12157

DO - 10.1111/papt.12157

M3 - Journal article

VL - 91

SP - 216

EP - 231

JO - Psychology and Psychotherapy: Theory, Research and Practice

JF - Psychology and Psychotherapy: Theory, Research and Practice

SN - 1476-0835

IS - 2

ER -