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    Rights statement: The final, definitive version of this article has been published in the Journal, Dementia, 18 (7-8), 2019, © SAGE Publications Ltd, 2019 by SAGE Publications Ltd at the Dementia page: https://journals.sagepub.com/home/dem on SAGE Journals Online: http://online.sagepub.com/

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Visioning change: Co-producing a model of involvement and engagement in research

Research output: Contribution to journalJournal article

Published
  • Open Doors
  • Scottish Dementia Working Group
  • EDUCATE
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<mark>Journal publication date</mark>1/11/2019
<mark>Journal</mark>Dementia
Issue number7-8
Volume18
Number of pages8
Pages (from-to)3165-3172
Publication statusPublished
Early online date16/10/16
Original languageEnglish

Abstract

The involvement of people living with dementia in research has traditionally been located in the realms of 'subject' or 'participant'. However, there has been an increase in demand for greater transparency by academic bidding teams (particularly within the UK) in demonstrating how people with a lived experience have been and will be involved in the research process. Located within the Economic and Social Research Council/National Institute for Health Research (ESRC/NIHR)-funded Neighbourhoods and Dementia Study (2014-2019), led by The University of Manchester (UK), this paper outlines the development of the CO-researcher INvolvement and Engagement in Dementia (COINED) Model, which was co-produced alongside three independent groups of people living with dementia: Open Doors, the Scottish Dementia Working Group and EDUCATE.

Bibliographic note

The final, definitive version of this article has been published in the Journal, Dementia, 18 (7-8), 2019, © SAGE Publications Ltd, 2019 by SAGE Publications Ltd at the Dementia page: https://journals.sagepub.com/home/dem on SAGE Journals Online: http://online.sagepub.com/