Rights statement: The final, definitive version of this article has been published in the Journal, Dementia, 18 (7-8), 2019, © SAGE Publications Ltd, 2019 by SAGE Publications Ltd at the Dementia page: https://journals.sagepub.com/home/dem on SAGE Journals Online: http://online.sagepub.com/
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Final published version
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Research output: Contribution to Journal/Magazine › Journal article › peer-review
}
TY - JOUR
T1 - Visioning change
T2 - Co-producing a model of involvement and engagement in research
AU - Swarbrick, Caroline
AU - Open Doors
AU - Scottish Dementia Working Group
AU - EDUCATE
AU - Davis, Katie
AU - Keady, John
N1 - The final, definitive version of this article has been published in the Journal, Dementia, 18 (7-8), 2019, © SAGE Publications Ltd, 2019 by SAGE Publications Ltd at the Dementia page: https://journals.sagepub.com/home/dem on SAGE Journals Online: http://online.sagepub.com/
PY - 2019/11/1
Y1 - 2019/11/1
N2 - The involvement of people living with dementia in research has traditionally been located in the realms of 'subject' or 'participant'. However, there has been an increase in demand for greater transparency by academic bidding teams (particularly within the UK) in demonstrating how people with a lived experience have been and will be involved in the research process. Located within the Economic and Social Research Council/National Institute for Health Research (ESRC/NIHR)-funded Neighbourhoods and Dementia Study (2014-2019), led by The University of Manchester (UK), this paper outlines the development of the CO-researcher INvolvement and Engagement in Dementia (COINED) Model, which was co-produced alongside three independent groups of people living with dementia: Open Doors, the Scottish Dementia Working Group and EDUCATE.
AB - The involvement of people living with dementia in research has traditionally been located in the realms of 'subject' or 'participant'. However, there has been an increase in demand for greater transparency by academic bidding teams (particularly within the UK) in demonstrating how people with a lived experience have been and will be involved in the research process. Located within the Economic and Social Research Council/National Institute for Health Research (ESRC/NIHR)-funded Neighbourhoods and Dementia Study (2014-2019), led by The University of Manchester (UK), this paper outlines the development of the CO-researcher INvolvement and Engagement in Dementia (COINED) Model, which was co-produced alongside three independent groups of people living with dementia: Open Doors, the Scottish Dementia Working Group and EDUCATE.
KW - dementia
KW - involvement
KW - engagement
KW - co-production
KW - co-research
U2 - 10.1177/1471301216674559
DO - 10.1177/1471301216674559
M3 - Journal article
VL - 18
SP - 3165
EP - 3172
JO - Dementia
JF - Dementia
SN - 1471-3012
IS - 7-8
ER -