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What do relatives experience when supporting someone in early psychosis?

Research output: Contribution to journalJournal article

Published
  • Laura Wainwright
  • David Glentworth
  • Gillian Haddock
  • Ros Bentley
  • Fiona Lobban
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<mark>Journal publication date</mark>2014
<mark>Journal</mark>Psychology and Psychotherapy: Theory, Research and Practice
Issue number1
Volume88
Number of pages15
Pages (from-to)105-119
Publication statusPublished
Early online date12/03/14
Original languageEnglish

Abstract

Objectives
In the United Kingdom (UK), the government has set out priorities to support relatives and carers. Despite this, many relatives of people experiencing psychosis continue to feel unsupported by mental health services. This may be due to lack of funding, high caseloads for mental health professionals, or due to a lack of understanding of what relatives experience as a result of their family member's psychosis. This research aimed to explore relatives’ experiences of supporting a relative in early psychosis.

Design
Thematic analysis was used to conduct an in-depth study of relatives’ experiences of supporting a family member in early psychosis.

Methods
Eligible individuals were recruited via local National Health Service Early Intervention Teams and other carer support agencies. Four focus groups were conducted, each with a range of five to seven participants.

Results
Four key themes ‘reflecting relatives’ understanding and management of psychosis were identified: ‘Psychosis from the relatives’ perspective’; ‘Relatives’ fight with the mental health ‘system’; ‘Is anybody listening? Does anyone understand?’; and ‘Relatives’ coping’. Clinical implications of these themes are discussed.

Conclusions
This study has clear implications for improvement in how relatives are supported in the United Kingdom, such as; clearer guidance for staff about confidentiality, treating relatives as partners in care and providing better quality information for relatives.