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International Observatory on End of Life Care

  1. 2021
  2. Forthcoming

    Prohibit, protect, or adapt? The changing role of volunteers in palliative and hospice care services during the COVID-19 pandemic. A multinational survey (CovPall).

    Walshe, C., Garner, I., Dunleavy, L., Preston, N., Bradshaw, A., Cripps, R., Bajwah, S., Sleeman, K., Hocaoglu, M., Murtagh, F., Oluyase, A., Fraser, L. & Irene, H., 6/09/2021, (Accepted/In press) In: International Journal of Health Policy and Management.

    Research output: Contribution to journalJournal articlepeer-review

  3. Published

    Hospitalisation in the last month of life and in-hospital death of nursing home residents: A cross-sectional analysis of six European countries

    Honinx, E., Piers, R. D., Onwuteaka-Philipsen, B. D., Payne, S., Szczerbińska, K., Gambassi, G., Kylänen, M., Deliens, L., Van Den Block, L. & Smets, T., 31/08/2021, In: BMJ Open. 11, 8, 12 p., e047086.

    Research output: Contribution to journalJournal articlepeer-review

  4. Published

    Large differences in the organization of palliative care in nursing homes in six European countries: findings from the PACE cross-sectional study

    PACE consortium, 25/08/2021, In: BMC Palliative Care. 20, 1, 131.

    Research output: Contribution to journalJournal articlepeer-review

  5. E-pub ahead of print

    Prevalence vs impact: a mixed methods study of survivorship issues in colorectal cancer

    Drury, A., Payne, S. & Brady, A-M., 21/08/2021, In: Quality of Life Research. 18 p.

    Research output: Contribution to journalJournal articlepeer-review

  6. Forthcoming

    Equal but inequitable: response of specialist palliative care and hospice services to people from ethnic minority groups with COVID-19- an observational study (CovPall)

    Bajwah, S., Koffman, J., Hussein, J., Bradshaw, A., Hocaoglu, M., Fraser, L., Oluyase, A., Allwin, C., Dunleavy, L., Preston, N., Cripps, R., Maddocks, M., Sleeman, K., Irene, H., Walshe, C. & Murtagh, F., 17/08/2021, (Accepted/In press) In: BMJ Supportive and Palliative Care.

    Research output: Contribution to journalJournal articlepeer-review

  7. Forthcoming

    A systematic review with thematic synthesis of the experience of hospitalization in people with advanced chronic obstructive pulmonary disease

    Bakthavatsalu, B., Walshe, C. & Simpson, J., 16/08/2021, (Accepted/In press) In: COPD.

    Research output: Contribution to journalJournal articlepeer-review

  8. Published

    Developing and evaluating online COVID-centric advance care planning training and information resources for nursing staff and family members in nursing homes: The Necessary Discussions Study Protocol

    Harding, A., Preston, N., Doherty, J., Cousins, E., Varey, S., McCann, A., Harrison Dening, K., Finucane, A., Carter, G., Mitchell, G. & Brazil, K., 9/08/2021, In: BMC Geriatrics. 21, 8 p., 456.

    Research output: Contribution to journalJournal articlepeer-review

  9. Published

    Exploring the experience of recurrence with advanced cancer for people who perceived themselves to be cancer free: a grounded theory study

    Economou, D., Walshe, C. & Brearley, S., 31/07/2021, In: Supportive Care in Cancer. 29, 7, p. 3885-3894 10 p.

    Research output: Contribution to journalJournal articlepeer-review

  10. Published

    Peer Mentors for People with Advanced Cancer: Lessons Learnt from Recruiting and Training Peer Mentors for a Feasibility Randomized Controlled Trial

    Walshe, C., Roberts, D., Calman, L., Appleton, L., Croft, R., Perez Algorta, G., Skevington, S., Lloyd-Williams, M. & Grande, G., 31/07/2021, In: Journal of Cancer Education. 36, 4, p. 710-718 9 p.

    Research output: Contribution to journalJournal articlepeer-review

  11. Forthcoming

    Developing country specific questions about end-of-life care for nursing home residents with advanced dementia using the nominal group technique with family caregivers.

    Bavelaar, L., Nicula, M., Morris, S., Kaasalainen, S., Achterberg, W., Loucka, M., Vickova, K., Thompson, G., Cornally, N., Hartigan, I., Harding, A., Preston, N., Walshe, C., Cousins, E., Harrison Dening, K., De Vries, K., Brazil, K. & van der Steen, J. T., 20/07/2021, (Accepted/In press) In: Patient Education and Counseling.

    Research output: Contribution to journalJournal articlepeer-review

  12. E-pub ahead of print

    A good death in the child with life shortening illness: A qualitative multiple-case study

    Chong, P. H., Walshe, C. & Hughes, S., 5/07/2021, In: Palliative Medicine. 11 p.

    Research output: Contribution to journalJournal articlepeer-review

  13. Forthcoming

    Smiles behind the masks: A systematic review and narrative synthesis exploring how family members of seriously ill or dying patients are supported during infectious disease outbreaks

    Bloomer, M. & Walshe, C., 13/06/2021, (Accepted/In press) In: Palliative Medicine.

    Research output: Contribution to journalJournal articlepeer-review

  14. E-pub ahead of print

    MyPal: Designing and Evaluating Digital Patient-Reported Outcome Systems for Cancer Palliative Care in Europe

    Payne, S. A., Moore, D. C. & Stamatopoulos, K., 4/06/2021, In: Journal of Palliative Medicine. 24, 7, p. 962-964 3 p.

    Research output: Contribution to journalEditorialpeer-review

  15. Published

    ‘Necessity is the mother of invention’: Specialist palliative care service innovation and practice change in response to COVID-19. Results from a multinational survey (CovPall)

    CovPall Study Team, Dunleavy, L., Preston, N., Bajwah, S., Bradshaw, A., Cripps, R., Fraser, L., Maddocks, M., Hocaoglu, M., Murtagh, F. EM., Oluyase, A., Sleeman, K., Higginson, I. J. & Walshe, C., 31/05/2021, In: Palliative Medicine. 35, 5, p. 814-829 16 p.

    Research output: Contribution to journalJournal articlepeer-review

  16. Published

    Constructing a new role for family carers and volunteers providing care towards the end of life: An Action Research approach exploring a new model of hospice care

    Walshe, C., Barnes, H., Turner, M. & Hughes, S., 31/05/2021, In: Health & Social Care in the Community. 29, 3, p. 837-845 9 p.

    Research output: Contribution to journalJournal articlepeer-review

  17. Forthcoming

    Exploring the experiences of living with Lewy body dementia: An integrative review

    Bentley, A., Salifu, Y. & Walshe, C., 24/05/2021, (Accepted/In press) In: Journal of Advanced Nursing.

    Research output: Contribution to journalJournal articlepeer-review

  18. E-pub ahead of print

    Women's experiences of advanced breast cancer in a resource-limited Arab context: A Stakian multi-case study

    Fearon, D., Hughes, S. & Brearley, S., 21/05/2021, In: Psycho-Oncology.

    Research output: Contribution to journalJournal articlepeer-review

  19. Published

    Length of stay and palliative care: Understanding long-term care facility residents in Europe

    Collingridge Moore, D., 19/05/2021, Lancaster University. 378 p.

    Research output: ThesisDoctoral Thesis

  20. E-pub ahead of print

    Constructivist Stakian Multicase Study: Methodological Issues Encountered in Cross-Cultural Palliative Care Research

    Fearon, D., Hughes, S. & Brearley, S. G., 6/05/2021, In: International Journal of Qualitative Methods. 20

    Research output: Contribution to journalJournal articlepeer-review

  21. Published

    Hospital-based social workers’ perceptions of generalist- and specialist-level palliative social work activities

    Firn, J., Preston, N. & Walshe, C., 1/05/2021, In: Journal of Social Work. 21, 3, p. 416-434 19 p.

    Research output: Contribution to journalJournal articlepeer-review

  22. Forthcoming

    Understanding and addressing challenges for advance care planning in the COVID-19 pandemic: An analysis of the UK CovPall survey data from specialist palliative care services

    Bradshaw, A., Dunleavy, L., Walshe, C., Preston, N., Cripps, R., Hocaoglu, M., Bajwah, S., Maddocks, M., Oluyase, A., Sleeman, K. E., Higginson, I. J., Fraser, L. & Murtagh, F., 23/04/2021, (Accepted/In press) In: Palliative Medicine.

    Research output: Contribution to journalJournal articlepeer-review

  23. Published

    Potentially Inappropriate Treatments at the End of Life in Nursing Home Residents: Findings From the PACE Cross-Sectional Study in Six European Countries

    PACE consortium, 22/04/2021, In: Journal of Pain and Symptom Management. 61, 4, p. 732-742 11 p.

    Research output: Contribution to journalJournal articlepeer-review

  24. Forthcoming

    Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data

    Bayly, J., Bradshaw, A., Fettes, L., Omarjee, M., Talbot-Rice, H., Walshe, C., Sleeman, K., Bajwah, S., Dunleavy, L., Hocaoglu, M., Oluyase, A., Garner, I., Cripps, R., Preston, N., Fraser, L., Murtagh, F., Irene, H. & Maddocks, M., 19/04/2021, (Accepted/In press) In: medRxiv.

    Research output: Contribution to journalJournal article

  25. Published

    MyPal-Child study protocol: An observational prospective clinical feasibility study of the MyPal ePRO-based early palliative care digital system in paediatric oncology patients

    Meyerheim, M., Karamanidou, C., Payne, S., Garani-Papadatos, T., Sander, A., Downing, J., Stamatopoulos, K., Ling, J., Payne, C., Scarfò, L., Lokaj, P., Maramis, C. & Graf, N., 13/04/2021, In: BMJ Open. 11, 4, 9 p., e045226.

    Research output: Contribution to journalJournal articlepeer-review

  26. Published

    Clinical Aspects of Palliative Sedation in Prospective Studies: A Systematic Review

    Arantzamendi, M., Belar, A., Payne, S., Rijpstra, M., Preston, N., Menten, J., Van der Elst, M., Radbruch, L., Hasselaar, J. & Centeno, C., 1/04/2021, In: Journal of Pain and Symptom Management. 61, 4, p. 831-844 14 p.

    Research output: Contribution to journalJournal articlepeer-review

  27. Published

    Evaluating the use of video communication technology in a hospital specialist palliative care team during the COVID-19 pandemic

    Crosby, B., Hanchanale, S., Stanley, S. & Nwosu, A., 31/03/2021, In: AMRC Open Research. 3, 5

    Research output: Contribution to journalJournal article

  28. Published

    International practice in relation to hastened death and assisted dying

    Gerson, S. M. & Preston, N., 31/03/2021, In: Annals of Palliative Medicine. 10, 3, p. 3524-3527 4 p.

    Research output: Contribution to journalEditorialpeer-review

  29. Published

    Overview of voluntarily stopping eating and drinking to hasten death

    Lowers, J., Hughes, S. & Preston, N., 31/03/2021, In: Annals of Palliative Medicine. 10, 3, p. 3611-3616 6 p.

    Research output: Contribution to journalJournal articlepeer-review

  30. Published

    Prohibit, protect, or adapt? The changing role of volunteers in palliative and hospice care services during the COVID-19 pandemic. A multinational survey (CovPall).

    Walshe, C., Garner, I., Dunleavy, L., Preston, N., Bradshaw, A., Cripps, R., Bajwah, S., Sleeman, K., Hocaoglu, M., Maddocks, M., Murtagh, F., Oluyase, A., Fraser, L. & Irene, H., 29/03/2021, In: medRxiv.

    Research output: Contribution to journalJournal article

  31. E-pub ahead of print

    Hearing the voices of children diagnosed with a life-threatening or life-limiting illness and their parents’ accounts in a palliative care setting: A qualitative study

    Ciobanu, E. & Preston, N., 26/03/2021, In: Palliative Medicine. 7 p.

    Research output: Contribution to journalJournal articlepeer-review

  32. Published

    Investigation and management of iron deficiency anaemia in a specialist palliative care setting and the role of intravenous iron: a descriptive analysis of hospice data

    Steele, T., Bonwick, H., Nwosu, A. & Chapman, L., 22/03/2021, In: AMRC Open Research. 3, 6, 19 p.

    Research output: Contribution to journalJournal article

  33. E-pub ahead of print

    Malignant pleural effusions: the patient experience

    Jones, R., Steer, H., Preston, N. & Perkins, P., 11/03/2021, In: BMJ Supportive and Palliative Care.

    Research output: Contribution to journalLetter

  34. Published

    No difference in effects of ‘PACE steps to success’ palliative care program for nursing home residents with and without dementia: a pre-planned subgroup analysis of the seven-country PACE trial

    Miranda, R., Smets, T., Van Den Noortgate, N., van der Steen, J. T., Deliens, L., Payne, S., Szczerbińska, K., Pautex, S., Van Humbeeck, L., Gambassi, G., Kylänen, M., Van den Block, L., Gatsolaeva, Y., Pivodic, L., Honinx, E., Tanghe, M., van Hout, H., Froggatt, K., Onwuteaka-Philipsen, B., Pasman, H. R. W. & 24 others, Piers, R., Baranska, I., Oosterveld-Vlug, M., Wichmann, A. B., Engels, Y., Vernooij-Dassen, M., Hockley, J., Leppäaho, S., Bassal, C., Mammarella, F., Mercuri, M., Rossi, P., Segat, I., Stodolska, A., Adang, E., Andreasen, P., Kuitunen-Kaija, O., Hammar, T., Heikkilä, R., Moore, D. C., Kijowska, V., ten Koppel, M., de Paula, E. M. & PACE, O. B. O., 7/03/2021, In: BMC Palliative Care. 20, 1, 10 p., 39.

    Research output: Contribution to journalJournal articlepeer-review

  35. Published

    What it means to be a palliative care volunteer in eight European countries: a qualitative analysis of accounts of volunteering

    Scott, R., Goossensen, A., Payne, S. & Pelttari, L., 1/03/2021, In: Scandinavian Journal of Caring Sciences. 35, 1, p. 170-177 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  36. Published

    What mediates end-of-life care choices?

    Bloomer, M. & Walshe, C., 1/03/2021, In: Lancet Public Health. 6, 3, p. E139-E140 2 p.

    Research output: Contribution to journalEditorial

  37. E-pub ahead of print

    What are the emotional experiences of being a volunteer in palliative and end-of-life care settings? a systematic review and thematic synthesis

    Coleman, H. & Walshe, C., 26/02/2021, In: Journal of Pain and Symptom Management. 16 p.

    Research output: Contribution to journalJournal articlepeer-review

  38. E-pub ahead of print

    Virtual reality in specialist palliative care: a feasibility study to enable clinical practice adoption

    Nwosu, A., Mills, M., Roughneen, S., Stanley, S., Chapman, L. & Mason, S., 17/02/2021, In: BMJ Supportive and Palliative Care. 5 p.

    Research output: Contribution to journalJournal articlepeer-review

  39. Published

    Experience of Caregivers Supporting a Patient through Voluntarily Stopping Eating and Drinking

    Lowers, J., Hughes, S. & Preston, N., 16/02/2021, In: Journal of Palliative Medicine. 24, 3, p. 376-381 6 p.

    Research output: Contribution to journalJournal articlepeer-review

  40. E-pub ahead of print

    The challenges of caring for people dying from COVID-19: a multinational, observational study (CovPall)

    Oluyase, A., Hocaoglu, M., Cripps, R., Maddocks, M., Walshe, C., Fraser, L., Preston, N., Dunleavy, L., Bradshaw, A., Murtagh, F., Bajwah, S., Sleeman, K. & Irene, H., 5/02/2021, In: Journal of Pain and Symptom Management.

    Research output: Contribution to journalJournal articlepeer-review

  41. Published

    How to measure the effects and potential adverse events of palliative sedation? An integrative review

    Belar, A., Arantzamendi, M., Payne, S., Preston, N., Lee-Rijpstra, M., Hasselaar, J., Radbruch, L., Vanderelst, M., Ling, J. & Centeno, C., 1/02/2021, In: Palliative Medicine. 35, 2, p. 295-314 20 p.

    Research output: Contribution to journalJournal articlepeer-review

  42. Published

    Perspectives on COVID-19 and palliative care research

    Walshe, C., 31/01/2021, In: Palliative Medicine. 35, 1, p. 4-5 2 p.

    Research output: Contribution to journalEditorial

  43. Published

    Case Report: Implantable cardioverter defibrillator (ICD) deactivation in palliative care - a case involving best interest decisions for someone lacking capacity at the end of life

    Tan, C., Hanchanale, S., Sugrue, E. & Nwosu, A., 21/01/2021, In: AMRC Open Research. 3, 4, p. 1-4 4 p.

    Research output: Contribution to journalJournal article

  44. Published
  45. Published

    Case Report: The use of advanced consent methodology and healthcare professional consultee to facilitate research participation in dying patients

    Stanley, S. & Nwosu, A., 11/01/2021, In: AMRC Open Research. 3, 3, p. 1-7 7 p.

    Research output: Contribution to journalJournal article

  46. Published

    Missing not at random in end of life care studies: multiple imputation and sensitivity analysis on data from the ACTION study

    ACTION Consortium, 9/01/2021, In: BMC Medical Research Methodology. 21, 1, 12 p., 13.

    Research output: Contribution to journalJournal articlepeer-review

  47. Published

    Palliative and end-of-life educational interventions for staff working in long-term care facilities: An integrative review of the literature

    Iida, K., Ryan, A., Hasson, F., Payne, S. & McIlfatrick, S., 1/01/2021, In: International Journal of Older People Nursing. 16, 1, 14 p., e12347.

    Research output: Contribution to journalJournal articlepeer-review

  48. Published

    Palliative care needs-assessment and measurement tools used in patients with heart failure: a systematic mixed-studies review with narrative synthesis

    Remawi, B., Gadoud, A., Murphy, I. M. J. & Preston, N., 1/01/2021, In: Heart Failure Reviews. 26, p. 137-155 19 p.

    Research output: Contribution to journalJournal articlepeer-review

  49. Published
  50. 2020
  51. Published

    How views of Oncologists and Haematologists impacts Palliative Care Referral: A Systematic Review

    Salins, N., Ghoshal, A., Hughes, S. & Preston, N., 23/11/2020, In: BMC Palliative Care. 19, 19 p., 175.

    Research output: Contribution to journalJournal articlepeer-review

  52. Published

    Exploring the psychological impact of life-limiting illness using the Attitude to Health Change scales: A qualitative focus group study in a hospice palliative care setting

    Dunleavy, L., Walshe, C. & Machin, L., 20/11/2020, In: European Journal of Cancer Care. 29, 6, 10 p., e13302.

    Research output: Contribution to journalJournal articlepeer-review

  53. Published

    Advance care planning in patients with advanced cancer: A 6-country, cluster randomised clinical trial

    Korfage, I. J., Dunleavy, L., Payne, S. & Preston, N., 13/11/2020, In: PLoS Medicine. 17, 11, 16 p., e1003422.

    Research output: Contribution to journalJournal articlepeer-review

  54. Published

    The challenges of caring for people dying from COVID-19: a multinational, observational study of palliative and hospice services (CovPall)

    Oluyase, A., Hocaoglu, M., Cripps, R., Maddocks, M., Walshe, C., Fraser, L., Preston, N., Dunleavy, L., Bradshaw, A., Murtagh, F., Bajwah, S., Sleeman, K. & Higginson, I. J., 4/11/2020, In: medRxiv.

    Research output: Contribution to journalJournal article

  55. Published

    Understanding and addressing challenges for Advance Care Planning in the COVID-19 pandemic: An analysis of the UK CovPall survey data from specialist palliative care services.

    Bradshaw, A., Dunleavy, L., Walshe, C., Preston, N., Cripps, R., Hocaoglu, M., Bajwah, S., Oluyase, A., Maddocks, M., Sleeman, K., Higginson, I., Fraser, L. & Murtagh, F., 30/10/2020, In: medRxiv.

    Research output: Contribution to journalJournal article

  56. Published

    Comparison of the experience of caregiving at end of life or in hastened death: A narrative synthesis review

    Lowers, J., Scardaville, M., Hughes, S. & Preston, N., 8/10/2020, In: BMC Palliative Care. 19, 16 p., 154.

    Research output: Contribution to journalJournal articlepeer-review

  57. Published

    The need for early referral to palliative care especially for Black, Asian and minority ethnic groups in a COVID-19 pandemic: Findings from a service evaluation

    Chidiac, C., Feuer, D., Flatley, M., Rodgerson, A., Grayson, K. & Preston, N., 1/10/2020, In: Palliative Medicine. 34, 9, p. 1241-1248 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  58. Published

    Nonparametric Time Series Summary Statistics for High-Frequency Accelerometry Data from Individuals with Advanced Dementia

    Suibkitwanchai, K., Sykulski, A., Perez Algorta, G., Waller, D. & Walshe, C., 25/09/2020, In: PLoS ONE. 15, 9, 23 p., e0239368.

    Research output: Contribution to journalJournal articlepeer-review

  59. Published

    Decreased costs and retained QoL due to the 'PACE Steps to Success' intervention in LTCFs: cost-effectiveness analysis of a randomized controlled trial

    Wichmann, A. B., Adang, E. M. M., Vissers, K. C. P., Szczerbińska, K., Kylänen, M., Payne, S., Gambassi, G., Onwuteaka-Philipsen, B. D., Smets, T., Van den Block, L., Deliens, L., Vernooij-Dassen, M. J. F. J., Engels, Y. & group, PACE. T., 22/09/2020, In: BMC Medicine. 18, 1, 9 p., 258.

    Research output: Contribution to journalJournal articlepeer-review

  60. Published
  61. E-pub ahead of print

    Exploring the barriers and gateways to intersubjectivity in dementia care: A meta-ethnography

    Hodge, G., Froggatt, K., Limmer, M. & Bingley, A., 20/08/2020, In: Journal of Clinical Nursing.

    Research output: Contribution to journalJournal article

  62. Published

    Peer support to maintain psychological wellbeing in people with advanced cancer: Findings from a feasibility study for a Randomised Controlled Trial

    Walshe, C., Roberts, D., Calman, L., Appleton, L., Croft, R., Skevington, S., Lloyd-Williams, M., Grande, G. & Perez Algorta, G., 17/08/2020, In: BMC Palliative Care. 19, 13 p., 129.

    Research output: Contribution to journalJournal articlepeer-review

  63. Published

    A systematic review of the resource use of a palliative care approach in adult non-cancer patients with a life-limiting illness

    Gavini, S., Janke, K., Gadoud, A. & Salifu, Y., 14/08/2020, PROSPERO International prospective register of systematic reviews.

    Research output: Contribution to specialist publicationArticle

  64. Published

    Communication patterns in nurse-led chemotherapy clinics: A mixed-method study

    Farrell, C., Chan, E. A., Siouta, E., Walshe, C. & Molassiotis, A., 1/08/2020, In: Patient Education and Counseling. 103, 8, p. 1538-1545 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  65. Published

    Exploring a New Model of End-of-Life Care for Older People that Operates in the Space Between the Life World and the Healthcare System: A Qualitative Case Study

    Dodd, S., Preston, N., Payne, S. & Walshe, C., 1/08/2020, In: International Journal of Health Policy and Management. 9, 8, p. 344-351 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  66. Published

    Palliative Care Implementation in Long-Term Care Facilities: European Association for Palliative Care White Paper

    Froggatt, K., Moore, D. C., Van den Block, L., Ling, J., Payne, S. A., Kylanen, M. & PACE consortium, 1/08/2020, In: Journal of the American Medical Directors Association. 21, 8, p. 1051-1057 7 p.

    Research output: Contribution to journalJournal articlepeer-review

  67. Published

    Supporting adults bereaved through COVID-19: a rapid review of the impact of previous pandemics on grief and bereavement

    Mayland, C. R., Harding, A., Preston, N. & Payne, S., 1/08/2020, In: Journal of Pain and Symptom Management. 60, 2, p. e33-e39 7 p.

    Research output: Contribution to journalJournal articlepeer-review

  68. Published

    Understanding the Outcomes of Supplementary Support Services in Palliative Care for Older People: A Scoping Review and Mapping Exercise

    Dodd, S., Payne, S., Preston, N. & Walshe, C., 1/08/2020, In: Journal of Pain and Symptom Management. 60, 2, p. 449-459 11 p.

    Research output: Contribution to journalJournal articlepeer-review

  69. Published

    Handbook of Theory and Methods in Applied Health Research: Questions, Methods and Choices

    Walshe, C. (ed.) & Brearley, S. (ed.), 31/07/2020, Cheltenham: Edward Elgar. 367 p.

    Research output: Book/Report/ProceedingsBook

  70. Published

    Living with Advanced Chronic Obstructive Pulmonary Disease: A Qualitative Interview Study with Patients and Informal Carers

    Fusi-Schmidhauser, T., Froggatt, K. & Preston, N., 3/07/2020, In: COPD. 17, 4, p. 410-418 9 p.

    Research output: Contribution to journalJournal articlepeer-review

  71. Published

    Conservative Management of COVID-19 Patients—Emergency Palliative Care in Action

    Fusi-Schmidhauser, T., Preston, N. J., Keller, N. & Gamondi, C., 1/07/2020, In: Journal of Pain and Symptom Management. 60, 1, p. e27-e30 4 p.

    Research output: Contribution to journalJournal articlepeer-review

  72. Published
  73. Published

    Research priorities in advanced heart failure: James Lind alliance priority setting partnership

    Taylor, C., Huntley, A. L., Burden, J., Gadoud, A., Gronlund, T., Jones, N. R., Wicks, E., McKelvie, S., Byatt, K., Lehman, R., King, A., Mumford, B., Feder, G., Mant, J., Hobbs, R. & Johnson, R., 30/06/2020, In: BMJ Open Heart . 7, 1, 9 p., e001258.

    Research output: Contribution to journalJournal articlepeer-review

  74. Published
  75. E-pub ahead of print

    Refractory angina is a growing challenge for palliative medicine: a systematic review of non-invasive interventions

    Murphy, I., Sivashankar, A. & Gadoud, A., 4/06/2020, In: BMJ Supportive and Palliative Care.

    Research output: Contribution to journalJournal articlepeer-review

  76. Published

    Aims, actions and advance care planning by district nurses providing palliative care: an ethnographic observational study

    Walshe, C., 2/06/2020, In: British Journal of Community Nursing. 25, 6, p. 276-286 11 p.

    Research output: Contribution to journalJournal articlepeer-review

  77. Published

    Ethical and research governance approval across Europe: Experiences from three European palliative care studies

    Preston, N., van Delden, J. J. M., Ingravallo, F., Hughes, S., Hasselaar, J., van der Heide, A., Van den Block, L., Dunleavy, L., Groot, M., Csikos, A. & Payne, S., 1/06/2020, In: Palliative Medicine. 34, 6, p. 817-821 5 p.

    Research output: Contribution to journalJournal articlepeer-review

  78. Published

    It’s not what they were expecting: a systematic review and narrative synthesis of the role and experience of the hospital palliative care volunteer

    Bloomer, M. & Walshe, C., 1/05/2020, In: Palliative Medicine. 34, 5, p. 589-604 16 p.

    Research output: Contribution to journalJournal articlepeer-review

  79. Published

    Strategies for the implementation of palliative care education and organizational interventions in long-term care facilities: A scoping review

    PACE, 1/05/2020, In: Palliative Medicine. 34, 5, p. 558-570 13 p.

    Research output: Contribution to journalReview articlepeer-review

  80. Published

    Digitisation and the Patient-Professional Relationship in Palliative Care

    Payne, S., Tanner, M. & Hughes, S., 30/04/2020, In: Palliative Medicine. 34, 4, p. 441-443 3 p.

    Research output: Contribution to journalEditorialpeer-review

  81. Published

    Physical restraining of nursing home residents in the last week of life: An epidemiological study in six European countries

    PACE consortium, 30/04/2020, In: International Journal of Nursing Studies. 104, 8 p., 103511.

    Research output: Contribution to journalJournal articlepeer-review

  82. E-pub ahead of print

    COVID-19: A personal perspective

    Walshe, C., 29/04/2020, In: Palliative Medicine. 2 p.

    Research output: Contribution to journalEditorial

  83. Published

    Disseminating research findings using a Massive Online Open Course for maximising impact and developing recommendations for practice

    Preston, N., Hasselaar, J., Hughes, S., Kaley, A., Linge-Dahl, L., Radvanyi, I., Tubman, P., van Beek, K., Varey, S. & Payne, S., 22/04/2020, In: BMC Palliative Care. 19, 8 p., 54.

    Research output: Contribution to journalJournal articlepeer-review

  84. Published

    Interventions for the management of malignant pleural effusions: a network meta-analysis

    Dipper, A., Jones, H. E., Bhatnagar, R., Preston, N. J., Maskell, N. & Clive, A. O., 21/04/2020, In: Cochrane Database of Systematic Reviews. 4, 310 p., CD010529.

    Research output: Contribution to journalReview articlepeer-review

  85. E-pub ahead of print

    Emergency Palliative Care Planning and Support in a COVID-19 Pandemic

    Chidiac, C., Feuer, D., Naismith, J., Flatley, M. & Preston, N., 20/04/2020, In: Journal of Palliative Medicine.

    Research output: Contribution to journalLetterpeer-review

  86. Published

    Associations between length of stay in long term care facilities and end of life care. Analysis of the pace cross-sectional study

    Moore, D. C., Payne, S., Keegan, T., Deliens, L., Smets, T., Gambassi, G., Kylänen, M., Kijowska, V., Onwuteaka-Philipsen, B. & Van den Block, L., 16/04/2020, In: International Journal of Environmental Research and Public Health. 17, 8, 14 p., 2742.

    Research output: Contribution to journalJournal articlepeer-review

  87. Published

    Do journals contribute to the international publication of research in their field? A bibliometric analysis of palliative care journal data

    Walshe, C., Ahmed, F. & Preston, N., 1/04/2020, In: Palliative Medicine. 34, 4, p. 541-546 6 p.

    Research output: Contribution to journalJournal articlepeer-review

  88. Published

    Medical Aid in Dying, Hastened Death and Suicide: A Qualitative Study of Hospice Professionals' Experiences from Washington State

    Gerson, S. M., Preston, N. & Bingley, A., 31/03/2020, In: Journal of Pain and Symptom Management. 59, 3, p. 679-686.e1 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  89. Published

    Swiss Families' Experiences of Interactions with Providers during Assisted Suicide: A Secondary Data Analysis of an Interview Study

    Gamondi, C., Pott, M., Preston, N. & Payne, S., 25/03/2020, In: Journal of Palliative Medicine. 23, 4, p. 506-512 7 p.

    Research output: Contribution to journalJournal articlepeer-review

  90. E-pub ahead of print

    Comfort and clinical events at the end of life of nursing home residents with and without dementia: The six-country epidemiological PACE study

    Miranda, R., van der Steen, J. T., Smets, T., Van den Noortgate, N., Deliens, L., Payne, S., Kylänen, M., Szczerbińska, K., Gambassi, G., Van den Block, L. & PACE, O. B. O., 10/03/2020, In: International Journal of Geriatric Psychiatry. 9 p.

    Research output: Contribution to journalJournal articlepeer-review

  91. Published

    Factors Associated with Perception of the Quality of Physicians' End-of-life Communication in Long-Term Care Facilities: PACE Cross-Sectional Study

    Barańska, I., Kijowska, V., Engels, Y., Finne-Soveri, H., Froggatt, K., Gambassi, G., Hammar, T., Oosterveld-Vlug, M., Payne, S., Van Den Noortgate, N., Smets, T., Deliens, L., Van den Block, L., Szczerbińska, K., Adang, E., Andreasen, P., Collingridge Moore, D., van Hout, H., Ten Koppel, M., Mammarella, F. & 9 others, Mercuri, M., Onwuteaka-Philipsen, B. D., Pivodic, L., Rossi, P., Sowerby, E., Stodolska, A., Wichmann, A., van der Steen, J. T. & Vernooij-Dassen, M., 1/03/2020, In: Journal of the American Medical Directors Association. 21, 3, p. 439.e1-439.e8 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  92. Published

    Perception of the Quality of Communication With Physicians Among Relatives of Dying Residents of Long-term Care Facilities in 6 European Countries: PACE Cross-Sectional Study

    Baranska, I., Kijowska, V., Engels, Y., Finne-Soveri, H., Froggatt, K., Gambassi, G., Hammar, T., Oosterveld-Vlug, M., Payne, S., Van Den Noortgate, N., Smets, T., Luc, D., Van den Block, L. & Szczerbińska, K., 1/03/2020, In: Journal of the American Medical Directors Association. 21, 3, p. 331-337 7 p.

    Research output: Contribution to journalJournal articlepeer-review

  93. Published

    European Palliative Sedation Project

    Payne, S. A. & Hasselaar, J., 29/02/2020, In: Journal of Palliative Medicine. 23, 2, p. 154-155 2 p.

    Research output: Contribution to journalEditorialpeer-review

  94. Published

    Length of stay in long-term care facilities: A comparison of residents in six European countries. Results of the PACE cross-sectional study

    Moore, D. C., Payne, S., Keegan, T., Van Den Block, L., Deliens, L., Gambassi, G., Heikkila, R., Kijowska, V., Roeline Pasman, H., Pivodic, L. & Froggatt, K., 29/02/2020, In: BMJ Open. 10, 3, 13 p., e033881.

    Research output: Contribution to journalJournal articlepeer-review

  95. Published

    International palliative care research priorities: A systematic review

    Hasson, F., Nicholson, E., Muldrew, D., Bamidele, O., Payne, S. & McIlfatrick, S., 3/02/2020, In: BMC Palliative Care. 19, 1, 16 p., 16.

    Research output: Contribution to journalJournal articlepeer-review

  96. Published

    Coping strategies of patients with advanced lung or colorectal cancer in six European countries: Insights from the ACTION Study

    Jabbarian, L. J., Korfage, I. J., Červ, B., van Delden, J. J. M., Deliens, L., Miccinesi, G., Payne, S., Thit Johnsen, A., Verkissen, M. N., Wilcock, A., van der Heide, A. & Rietjens, J. A. C., 1/02/2020, In: Psycho-Oncology. 29, 2, p. 347-355 9 p.

    Research output: Contribution to journalJournal articlepeer-review

  97. Published

    Perspectives of Elders and their Adult Children of Black and Minority Ethnic Heritage on End-of-Life Conversations: A Meta-ethnography

    De Souza, J., Froggatt, K., Walshe, C. & Gillett, K., 1/02/2020, In: Palliative Medicine. 34, 2, p. 195-208 14 p.

    Research output: Contribution to journalJournal articlepeer-review

  98. Published

    A group intervention to improve quality of life for people with advanced dementia living in care homes: the Namaste feasibility cluster RCT

    Froggatt, K., Dunleavy, L., Perez Algorta, G., Preston, N. & Walshe, C., 23/01/2020, In: Health Technology Assessment. 24, 6, p. 1-139 139 p.

    Research output: Contribution to journalJournal articlepeer-review

  99. E-pub ahead of print

    Palliative care for non-cancer conditions in primary care: A time trend analysis in the UK (2009-2014)

    Gadoud, A., Kane, E., Oliver, S. E., Johnson, M. J., MacLeod, U. & Allgar, V., 13/01/2020, In: BMJ Supportive and Palliative Care. 9 p.

    Research output: Contribution to journalJournal articlepeer-review

  100. Published
  101. Published

    Challenges of undertaking a systematic review to measure residents’ length of stay in care homes

    Collingridge Moore, D., Payne, S., Keegan, T. & Froggatt, K., 2020.

    Research output: Contribution to conference - Without ISBN/ISSN Posterpeer-review

  102. Published

    Palliative Care for Older People

    Collingridge Moore, D. & Payne, S., 2020, Encyclopedia of Biomedical Gerontology. Rattan, S. (ed.). Elsevier Academic Press

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

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