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International Observatory on End of Life Care

  1. Published

    Predicting mortality among a community-based sample of older people with heart failure.

    Barnes, S., Gott, M., Payne, S., Parker, C., Seamark, D., Gariballa, S. & Small, N., 2008, In: Chronic Illness. 4, 1, p. 5-12 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  2. Published

    Recruiting older people with heart failure into a study exploring palliative care needs.

    Barnes, S., Gott, M. & Payne, S., 2005.

    Research output: Contribution to conference - Without ISBN/ISSN Poster

  3. Published

    Characteristics and views of family carers in older people with heart failure.

    Barnes, S., Gott, M., Payne, S., Parker, C., Seamark, D., Gariballa, S. & Small, N. A., 25/08/2006, In: International Journal of Palliative Nursing. 12, 8, p. 380-389 10 p.

    Research output: Contribution to journalJournal articlepeer-review

  4. Published

    Prevalence of symptoms in a community-based sample of heart failure patients.

    Barnes, S., Gott, M., Payne, S., Seamark, D., Parker, C., Gariballa, S. & Small, N. A., 09/2006, In: Journal of Pain and Symptom Management. 32, 3, p. 208-216 9 p.

    Research output: Contribution to journalJournal articlepeer-review

  5. Published

    Communication in heart failure : perspectives from older people and primary care professionals.

    Barnes, S., Gott, M., Payne, S., Seamark, D., Parker, C., Gariballa, S. & Small, N. A., 11/2006, In: Health and Social Care in the Community. 14, 6, p. 482-490 9 p.

    Research output: Contribution to journalJournal articlepeer-review

  6. Published

    Factors Associated with Perception of the Quality of Physicians' End-of-life Communication in Long-Term Care Facilities: PACE Cross-Sectional Study

    Barańska, I., Kijowska, V., Engels, Y., Finne-Soveri, H., Froggatt, K., Gambassi, G., Hammar, T., Oosterveld-Vlug, M., Payne, S., Van Den Noortgate, N., Smets, T., Deliens, L., Van den Block, L., Szczerbińska, K., Adang, E., Andreasen, P., Collingridge Moore, D., van Hout, H., Ten Koppel, M., Mammarella, F. & 9 others, Mercuri, M., Onwuteaka-Philipsen, B. D., Pivodic, L., Rossi, P., Sowerby, E., Stodolska, A., Wichmann, A., van der Steen, J. T. & Vernooij-Dassen, M., 1/03/2020, In: Journal of the American Medical Directors Association. 21, 3, p. 439.e1-439.e8 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  7. Published

    Perception of the Quality of Communication With Physicians Among Relatives of Dying Residents of Long-term Care Facilities in 6 European Countries: PACE Cross-Sectional Study

    Baranska, I., Kijowska, V., Engels, Y., Finne-Soveri, H., Froggatt, K., Gambassi, G., Hammar, T., Oosterveld-Vlug, M., Payne, S., Van Den Noortgate, N., Smets, T., Luc, D., Van den Block, L. & Szczerbińska, K., 1/03/2020, In: Journal of the American Medical Directors Association. 21, 3, p. 331-337 7 p.

    Research output: Contribution to journalJournal articlepeer-review

  8. Published

    Observation and action research.

    Ballinger, C., Yardley, L. & Payne, S., 2004, Research methods for clinical and health psychology. Marks, D. F. & Yardley, L. (eds.). London: Sage, 248 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  9. Published

    Discourse analysis : principles, applications and critique.

    Ballinger, C. & Payne, S., 12/2000, In: British Journal of Occupational Therapy. 63, 12, p. 566-572 7 p.

    Research output: Contribution to journalJournal articlepeer-review

  10. Published

    Falling from grace or into expert hands? : alternative accounts about falling in older people.

    Ballinger, C. & Payne, S., 12/2000, In: British Journal of Occupational Therapy. 63, 12, p. 573-579 7 p.

    Research output: Contribution to journalJournal articlepeer-review

  11. Published

    The construction of risk of falling among and by older people.

    Ballinger, C. & Payne, S., 05/2002, In: Ageing and Society. 22, 3, p. 305-324 20 p.

    Research output: Contribution to journalJournal articlepeer-review

  12. Forthcoming

    A systematic review with thematic synthesis of the experience of hospitalization in people with advanced chronic obstructive pulmonary disease

    Bakthavatsalu, B., Walshe, C. & Simpson, J., 16/08/2021, (Accepted/In press) In: COPD.

    Research output: Contribution to journalJournal articlepeer-review

  13. E-pub ahead of print

    The experience of hospitalization in people with advanced chronic obstructive pulmonary disease: A qualitative, phenomenological study

    Bakthavatsalu, B., Walshe, C. & Simpson, J., 4/02/2022, (E-pub ahead of print) In: Chronic Illness. 15 p.

    Research output: Contribution to journalJournal articlepeer-review

  14. Published

    Language barriers to defining concepts in medicine: the case of palliative sedation

    Bakogiannis, A. & Papavasiliou, E., 11/2016, In: American Journal of Hospice and Palliative Medicine. 33, 9, p. 909-910 2 p.

    Research output: Contribution to journalJournal articlepeer-review

  15. Published

    Reflecting on the Long-term (Neurological) End-of-Life Conference

    Baker, M., Payne, S., Stanley, C., Bowen, C., Webb, P., Daveson, B., Morrey, V. & O'Connor, M., 04/2010, In: British Journal of Neuroscience Nursing. 6, 4, p. 188-190 3 p.

    Research output: Contribution to journalJournal articlepeer-review

  16. Forthcoming

    Equal but inequitable: response of specialist palliative care and hospice services to people from ethnic minority groups with COVID-19- an observational study (CovPall)

    Bajwah, S., Koffman, J., Hussein, J., Bradshaw, A., Hocaoglu, M., Fraser, L., Oluyase, A., Allwin, C., Dunleavy, L., Preston, N., Cripps, R., Maddocks, M., Sleeman, K., Irene, H., Walshe, C. & Murtagh, F., 17/08/2021, (Accepted/In press) In: BMJ Supportive and Palliative Care.

    Research output: Contribution to journalJournal articlepeer-review

  17. Published

    The nursing contribution to qualitative research in palliative care 1990-1999 : a critical evaluation.

    Bailey, C., Froggatt, K., Field, D. & Krishnasamy, M., 10/2002, In: Journal of Advanced Nursing. 40, 1, p. 48-60 13 p.

    Research output: Contribution to journalJournal articlepeer-review

  18. Published

    The cancer experiences research collaborative (CECo) : building research capacity in supportive and palliative care.

    Bailey, C., Wilson, R., Addington-Hall, J., Payne, S., Clark, D., Lloyd-Williams, M., Molassiotis, A. & Seymour, J., 12/2006, In: Progress in Palliative Care. 14, 6, p. 265-270 6 p.

    Research output: Contribution to journalJournal articlepeer-review

  19. Published

    Antibiotics / anti-inflammatories for reducing acute inflammatory episodes in lymphoedema of the limbs (Review)

    Badger, C. M. A., Seers, K., Preston, N. & Mortimer, P. S., 2009, In: Cochrane Database of Systematic Reviews. Issue

    Research output: Contribution to journalJournal articlepeer-review

  20. Published

    Antibiotics / anti-inflammatories for reducing acute inflammatory episodes in lymphoedema of the limbs.

    Badger, C. M. A., Seers, K., Preston, N. & Mortimer, P. S., 2004, In: Cochrane Database of Systematic Reviews. Issue

    Research output: Contribution to journalJournal articlepeer-review

  21. Published

    Benzo-pyrones for reducing and controlling lymphoedema of the limbs.

    Badger, C. M. A., Preston, N., Seers, K. & Mortimer, P. S., 2009, In: Cochrane Database of Systematic Reviews. 2009, 1

    Research output: Contribution to journalJournal articlepeer-review

  22. Published

    Antibiotics / anti-inflammatories for reducing acute inflammatory episodes in lymphoedema of the limbs (Withdrawn Paper. 2009, art. no. CD003143)

    Badger, C. M. A., Preston, N. J., Seers, K. & Mortimer, P. S., 2009, In: Cochrane Database of Systematic Reviews. 1, p. - 4 p., CD003143.

    Research output: Contribution to journalJournal articlepeer-review

  23. Published

    A post-graduate's guide to doing a literature review in health and social care

    Aveyard, H., Payne, S. A. & Preston, N. J., 1/02/2016, Oxford: Oxford University Press. 200 p.

    Research output: Book/Report/ProceedingsBook

  24. Unpublished

    Exploring the impact of user involvement on health and social care services for cancer in the UK.

    Attree, P., Morris, S., Clifton, M., Hinder, S. & Vaughan, S., 01/2009, (Unpublished) Lancaster, UK, 92 p.

    Research output: Working paper

  25. Published

    Exploring the influence of service user involvement on health and social care services for cancer.

    Attree, P., Morris, S., Payne, S., Vaughan, S. & Hinder, S., 03/2011, In: Health Expectations. 14, 1, p. 48-58 11 p.

    Research output: Contribution to journalJournal articlepeer-review

  26. Published

    “Never at ease” – family carers within integrated palliative care: a multinational, mixed method study

    Ateş, G., Ebenau, A., Busa, C., Csikos, A., Hasselaar, J., Jaspers, B., Menten, J., Payne, S., van Beek, K., Varey, S., Groot, M. & Radbruch, L., 1/03/2018, In: BMC Palliative Care. 17, 11 p., 39.

    Research output: Contribution to journalJournal articlepeer-review

  27. Published

    Communication between patients with strokes and physiotherapists.

    Ashburn, A., Wiles, R. A., Murphy, C., Payne, S. & Campbell, F., 04/2001, In: Clinical Rehabilitation. 15, 4, p. 449-450 2 p.

    Research output: Contribution to journalJournal articlepeer-review

  28. Published

    'They've got to learn': a qualitative study exploring the views of patients and staff regarding medical student teaching in a hospice

    Arolker, M., Barnes, J., Gadoud, A., Jones, L., Barnes, L. & Johnson, M. J., 06/2010, In: Palliative Medicine. 24, 4, p. 419-426 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  29. Published

    Benefits of interventions for respiratory secretion management in adult palliative care patients-a systematic review

    Arcuri, J. F., Abarshi, E., Preston, N. J., Brine, J. & Pires Di Lorenzo, V. A., 9/08/2016, In: BMC Palliative Care. 15, 11 p., 74.

    Research output: Contribution to journalJournal articlepeer-review

  30. Published

    Clinical Aspects of Palliative Sedation in Prospective Studies: A Systematic Review

    Arantzamendi, M., Belar, A., Payne, S., Rijpstra, M., Preston, N., Menten, J., Van der Elst, M., Radbruch, L., Hasselaar, J. & Centeno, C., 1/04/2021, In: Journal of Pain and Symptom Management. 61, 4, p. 831-844 14 p.

    Research output: Contribution to journalJournal articlepeer-review

  31. E-pub ahead of print

    Advance directives in European long-term care facilities: A cross-sectional survey

    Andreasen, P., Finne-Soveri, U. H., Deliens, L., Van Den Block, L., Payne, S., Gambassi, G., Onwuteaka-Philipsen, B. D., Smets, T., Lilja, E., Kijowska, V. & Szczerbińska, K., 21/05/2019, (E-pub ahead of print) In: BMJ Supportive and Palliative Care. 10 p.

    Research output: Contribution to journalJournal articlepeer-review

  32. Published

    A qualitative exploration of the collaborative working between palliative care and geriatric medicine: barriers and facilitators from a European perspective

    EURO-IMPACT, 11/05/2016, In: BMC Palliative Care. 15, 10 p., 47.

    Research output: Contribution to journalJournal articlepeer-review

  33. Published
  34. Published

    Systematic review of the problems and issues of accessing specialist palliative care by patients, carers and health and social care professionals.

    Ahmed, N., Bestall, J., Ahmedzai, S., Payne, S., Clark, D. & Noble, B., 09/2004, In: Palliative Medicine. 18, 6, p. 525-542 18 p.

    Research output: Contribution to journalJournal articlepeer-review

  35. Published

    The use of cognitive interviewing methodology in the design and testing of a screening tool for supportive and palliative care needs.

    Ahmed, N., Bestall, J. C., Payne, S., Noble, B. & Ahmedzai, S. H., 06/2009, In: Supportive Care in Cancer. 17, 6, p. 665-673 9 p.

    Research output: Contribution to journalJournal articlepeer-review

  36. Published
  37. Published

    Systematic review of the problems and issues of accessing specialist palliative care by patients, carers and health and social care professionals.

    Ahmed, N., Bestall, J. C., Ahmedzai, S. H., Payne, S., Clark, D. & Noble, B., 03/2004, In: Palliative Medicine. 18, 2, p. 171-172 2 p.

    Research output: Contribution to journalJournal articlepeer-review

  38. Published

    Letter to the editor: Re: Jenni Burt, Rosalind Raine. The effect of age on referral to and use of specialist palliative care services in adult cancer patients: a systematic review

    Ahmed, N., Payne, S. & Ahmedzai, S., 2009, In: Age and Ageing. 38, 6, p. 765-766 2 p.

    Research output: Contribution to journalLetterpeer-review

  39. Published

    Research methods in palliative care.

    Addington-Hall, J., Bruera, E., Higginson, J. & Payne, S., 2007, Oxford: Oxford University Press. 315 p.

    Research output: Book/Report/ProceedingsBook

  40. Published

    Cancer experiences research collaborative annual progress report, year 1 : May 2006-April 2007.

    Addington-Hall, J. & Payne, S., 07/2007, London: NCRI.

    Research output: Working paper

  41. Published

    Cancer Experiences Research Collaborative Annual Progress Report, year 2: May 2007-April 2008.

    Addington-Hall, J. & Payne, S., 07/2008, London: NCRI.

    Research output: Working paper

  42. Published

    An Australian survey of palliative care and hospice bereavement services.

    Abbott, J., O'Connor, M. & Payne, S., 2008, In: Australian Journal of Cancer Nursing. 9, 2, p. 12-17 6 p.

    Research output: Contribution to journalJournal articlepeer-review

  43. Published

    Recognising patients who will die in the near future: a nationwide study via the Dutch Sentinel Network of GPs

    Abarshi, E. A., Echteld, M. A., Van den Block, L., Donker, G. A., Deliens, L. & Onwuteaka-Philipsen, B. D., 2011, In: British Journal of General Practice. 61, 587, p. e371-378 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  44. Published

    Discussing end-of-life issues in the last months of life: a nationwide study among general practitioners

    Abarshi, E., Echteld, M., Donker, G., Van den Block, L., Onwuteaka-Philipsen, B. & Deliens, L., 03/2011, In: Journal of Palliative Medicine. 14, 3, p. 323-330 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  45. Published

    Use of palliative care services and general practitioner visits at the end of life in The Netherlands and Belgium

    Abarshi, E., Echteld, M. A., Van den Block, L., Donker, G., Bossuyt, N., Meeussen, K., Bilsen, J., Onwuteaka-Philipsen, B. & Deliens, L., 02/2011, In: Journal of Pain and Symptom Management. 41, 2, p. 436-448 13 p.

    Research output: Contribution to journalJournal articlepeer-review

  46. Published

    The oldest old and GP end-of-life care in the Dutch community: a nationwide study

    Abarshi, E., Echteld, M. A., Van den Block, L., Donker, G., Deliens, L. & Onwuteaka-Philipsen, B., 2010, In: Age and Ageing. 39, 6, p. 716-722 7 p.

    Research output: Contribution to journalJournal articlepeer-review

  47. Published

    Transitions between care settings at the end of life in the Netherlands: results from a nationwide study

    Abarshi, E., Echteld, M., Van den Block, L., Donker, G., Deliens, L. & Onwuteaka-Philipsen, B., 03/2010, In: Palliative Medicine. 24, 2, p. 166-174 9 p.

    Research output: Contribution to journalJournal articlepeer-review

  48. Published

    General practitioner awareness of preferred place of death and correlates of dying in a preferred place: a nationwide mortality follow-back study in the Netherlands

    Abarshi, E., Onwuteaka-Philipsen, B., Donker, G., Echteld, M., Van den Block, L. & Deliens, L., 10/2009, In: Journal of Pain and Symptom Management. 38, 4, p. 568-577 10 p.

    Research output: Contribution to journalJournal articlepeer-review

  49. Published

    Euthanasia requests and cancer types in the Netherlands: is there a relationship?

    Abarshi, E., Onwuteaka-Philipsen, B. D. & van der Wal, G., 02/2009, In: Health Policy. 89, 2, p. 168-173 6 p.

    Research output: Contribution to journalJournal articlepeer-review

  50. Published

    The complexity of nurses' attitudes and practice of sedation at the end of life: a systematic literature review

    Abarshi, E. A., Papavasiliou, E., Preston, N., Brown, J., Payne, S. & EURO IMPACT, 05/2014, In: Journal of Pain and Symptom Management. 47, 5, p. 915-925 11 p.

    Research output: Contribution to journalJournal articlepeer-review

  51. Published

    Physician Visits and Recognition of Residents' Terminal Phase in Long-Term Care Facilities: Findings From the PACE Cross-Sectional Study in 6 EU Countries

    PACE, 1/06/2019, In: Journal of the American Medical Directors Association. 20, 6, p. 696-702.e1 7 p.

    Research output: Contribution to journalJournal articlepeer-review

  52. Published

    Physical and Psychological Distress Are Related to Dying Peacefully in Residents with Dementia in Long-Term Care Facilities

    EURO IMPACT, 07/2015, In: Journal of Pain and Symptom Management. 50, 1, p. 1-8 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  53. Published

    Symptom clusters in people living with HIV attending five palliative care facilities in two sub-Saharan African countries: A hierarchical cluster analysis

    ENCOMPASS & EURO IMPACT, 12/05/2015, In: PLoS ONE. 10, 5, 12 p., e0126554.

    Research output: Contribution to journalJournal articlepeer-review

  54. Published

    Final transitions to place of death: Patients and families wishes

    EURO-IMPACT, 1/12/2017, In: Journal of Public Health (United Kingdom). 39, 4, p. e302-e311 10 p.

    Research output: Contribution to journalJournal articlepeer-review

  55. Published

    International variations in clinical practice guidelines for palliative sedation: A systematic review

    on behalf of EURO IMPACT, 1/09/2017, In: BMJ Supportive and Palliative Care. 7, 3, p. 223-229 7 p.

    Research output: Contribution to journalReview articlepeer-review

  56. Published

    Trained facilitators' experiences with structured advance care planning conversations in oncology: an international focus group study within the ACTION trial

    ACTION Consortium, 31/10/2019, In: BMC Cancer. 19, 1, 13 p., 1026.

    Research output: Contribution to journalJournal articlepeer-review

  57. Published

    Physical restraining of nursing home residents in the last week of life: An epidemiological study in six European countries

    PACE consortium, 30/04/2020, In: International Journal of Nursing Studies. 104, 8 p., 103511.

    Research output: Contribution to journalJournal articlepeer-review

  58. Published

    Strategies for the implementation of palliative care education and organizational interventions in long-term care facilities: A scoping review

    PACE, 1/05/2020, In: Palliative Medicine. 34, 5, p. 558-570 13 p.

    Research output: Contribution to journalReview articlepeer-review

  59. Published

    Potentially Inappropriate Treatments at the End of Life in Nursing Home Residents: Findings From the PACE Cross-Sectional Study in Six European Countries

    PACE consortium, 22/04/2021, In: Journal of Pain and Symptom Management. 61, 4, p. 732-742 11 p.

    Research output: Contribution to journalJournal articlepeer-review

  60. Published

    ‘Necessity is the mother of invention’: Specialist palliative care service innovation and practice change in response to COVID-19. Results from a multinational survey (CovPall)

    CovPall Study Team, Dunleavy, L., Preston, N., Bajwah, S., Bradshaw, A., Cripps, R., Fraser, L., Maddocks, M., Hocaoglu, M., Murtagh, F. EM., Oluyase, A., Sleeman, K., Higginson, I. J. & Walshe, C., 31/05/2021, In: Palliative Medicine. 35, 5, p. 814-829 16 p.

    Research output: Contribution to journalJournal articlepeer-review

  61. Published

    Missing not at random in end of life care studies: multiple imputation and sensitivity analysis on data from the ACTION study

    ACTION Consortium, 9/01/2021, In: BMC Medical Research Methodology. 21, 1, 12 p., 13.

    Research output: Contribution to journalJournal articlepeer-review

  62. Published

    Large differences in the organization of palliative care in nursing homes in six European countries: findings from the PACE cross-sectional study

    PACE consortium, 25/08/2021, In: BMC Palliative Care. 20, 1, 131.

    Research output: Contribution to journalJournal articlepeer-review

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