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International Observatory on End of Life Care

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  1. Published

    An analysis of the experiences of bereaved relatives and health care providers following palliative sedation: a study protocol for a qualitative international multicenter case study

    Van der Elst, M., Payne, S., Arantzamendi, M., Preston, N., Hasselaar, J., Centeno, C., Belar, A., Jaspers, B., Brunsch, H., Surges, S., Adile, C. & Menten, J., 23/12/2022, In: BMC Palliative Care. 21, 1, 8 p., 227.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  2. Published

    Person-centred palliative care in five European countries: the experiences of patients and family carers

    van der Eerden, M., Hughes, S., Varey, S. E., Ewert, B., Schwabe, S., Busa, C., Kiss, Z., van Beek, K., van Ende, S., Csikos, A., Hasselaar, J. & Groot, M., 24/05/2016.

    Research output: Contribution to conference - Without ISBN/ISSN › Conference paper › peer-review

  3. Published

    Evaluation of a Palliative Care Program for Nursing Homes in 7 Countries: The PACE Cluster-Randomized Clinical Trial

    Van Den Block, L., Honinx, E., Pivodic, L., Miranda, R., Onwuteaka-Philipsen, B. D., Van Hout, H., Pasman, H. R. W., Oosterveld-Vlug, M., Ten Koppel, M., Piers, R., Van Den Noortgate, N., Engels, Y., Vernooij-Dassen, M., Hockley, J., Froggatt, K., Payne, S., Szczerbińska, K., Kylänen, M., Gambassi, G., Pautex, S., & 4 othersBassal, C., De Buysser, S., Deliens, L. & Smets, T., 11/11/2019, In: JAMA Internal Medicine. 180, 2, p. 233-242 10 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  4. Published

    Comparing palliative care in care homes across Europe (PACE): protocol of a cross-sectional study of deceased residents in six EU countries

    Van den Block, L., Smets, T., van Dop, N., Adang, E., Andreasen, P., Collingridge Moore, D., Engels, Y., Finne-Soveri, H., Froggatt, K. A., Payne, S. A. & Sowerby, E., 1/06/2016, In: Journal of the American Medical Directors Association. 17, 6, p. 566.e1-566.e7 7 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  5. Published

    To what degree is palliative care integrated in guidelines and pathways for adult cancer patients in Europe: a systematic literature review

    van Beek, K., Siouta, N., Preston, N. J., Hasselaar, J., Hughes, S., Payne, S. A., Radbruch, L., Centeno, C., Csikos, A., Garralda, E., van der Eerden, M., Hodiamont, F., Radvanyi, I. & Menten, J., 3/03/2016, In: BMC Palliative Care. 15, 26, 17 p., 26.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  6. Published

    Governance in changing times : the experiences of hospice trustees in the United Kingdom.

    Turner, M. & Payne, S., 12/2009, In: Palliative Medicine. 23, 8, p. 718-722 5 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  7. Published

    How notorious do dying prisoners need to be to receive high quality end-of-life care?

    Turner, M., Barbarachild, Z., Kidd, H. & Payne, S., 2009, In: International Journal of Palliative Nursing. 15, 10, p. 472-3 2 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  8. Published

    Recognising the hidden volunteers in palliative care : a survey of hospice trustees in the United Kingdom.

    Turner, M. & Payne, S., 2009, In: European Journal of Palliative Care. 16, p. 176-176 1 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  9. Published

    How research active is your hospice? : results of a telephone survey to map research activity in UK hospices.

    Turner, M. & Payne, S., 11/2009, In: End of Life Care. 3, 4, p. 59-59 1 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  10. Published

    All tooled up : an evaluation of end of life care tools in care homes in North Lancashire.

    Turner, M., Payne, S. & Froggatt, K., 11/2009, In: End of Life Care. 3, 4, p. 59-59 1 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  11. Published

    Mandatory communication skills training for cancer and palliative care staff: does one size fit all?

    Turner, M., Payne, S. & O'Brien, T., 12/2011, In: European Journal of Oncology Nursing. 15, 5, p. 398-403 6 p.

    Research output: Contribution to Journal/Magazine › Journal article

  12. Published

    Care or custody? an evaluation of palliative care in prisons in North West England

    Turner, M., Payne, S. & Barbarachild, Z., 06/2011, In: Palliative Medicine. 25, 4, p. 370-377 8 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  13. Published

    Methods of building and improving the research capacity of hospices

    Turner, M. & Payne, S., 2012, In: European Journal of Palliative Care. 19, 1, p. 34-37 4 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  14. Published

    Uncovering the hidden volunteers in palliative care: a survey of hospice trustees in the United Kingdom

    Turner, M. & Payne, S., 12/2008, In: Palliative Medicine. 22, 8, p. 973-974 2 p.

    Research output: Contribution to Journal/Magazine › Journal article

  15. Published

    Palliative care for prisoners

    Turner, M. & Payne, S., 2011, Death, dying, and social differences. Oliviere, D., Monroe, B. & Payne, S. (eds.). 2 ed. Oxford: Oxford University Press, p. 200-206 7 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter

  16. Published

    Family carers' delivery of medications for the person dying at home: preliminary findings from the 'unpacking the home' study

    Turner, M., Seamark, D., Milligan, C., Thomas, C., Brearley, S. G., Wang, X., Blake, S. & Payne, S., 03/2013, In: BMJ Supportive and Palliative Care. 3, 1, p. 125-126 2 p.

    Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review

  17. Published

    'Unpacking the home' - a social science approach to researching dying at home

    Turner, M., Seamark, D., Milligan, C., Brearley, S., Wang, X., Blake, S. & Payne, S., 1/06/2012, In: BMJ Supportive and Palliative Care. 2, 2, 1 p.

    Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review

  18. Published

    Care for people in prison

    Turner, M. & Peacock, M., 20/11/2015, Palliative care nursing at a glance. Ingleton, C. & Larkin, P. (eds.). Wiley

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter

  19. Published

    Caring for a dying spouse at the end of life: “It’s one of the things you volunteer for when you get married”: a qualitative study of the oldest carers’ experiences

    Turner, J. M., King, C., Milligan, C., Thomas, C., Brearley, S. G., Seamark, D., Wang, X., Blake, S. & Payne, S. A., 05/2016, In: Age and Ageing. 45, 3, p. 421-426 6 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  20. Published

    Improving palliative care for prisoners: the 'both sides of the fence' study

    Turner, J. M., 03/2016, In: Prison Service Journal. 224

    Research output: Contribution to Journal/Magazine › Journal article

  21. Published

    Palliative care in UK prisons: practical and emotional challenges for staff and fellow prisoners

    Turner, M. & Peacock, M., 01/2017, In: Journal of Correctional Health Care. 23, 1, p. 56-65 10 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  22. Published

    Ageing and dying in the contemporary neoliberal prison system: exploring the 'double burden' for older prisoners

    Turner, M., Peacock, M., Payne, S. A., Fletcher, A. & Froggatt, K. A., 09/2018, In: Social Science and Medicine. 212, p. 161-167 7 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  23. Published

    A theoretical framework of the factors affecting the end‐of‐life trajectory and provision of end‐of‐life care for people with intellectual disabilities (ID)

    Tuffrey-Wijne, I., Todd, S., Hatton, C., Glover, G., Heslop, P., Brearley, S., Hunt, K., Finlay, I. & Hollins, S., 1/07/2019, In: Journal of Intellectual Disability Research. 63, 7, p. 651-651 1 p.

    Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review

  24. Published

    What is the evidence for the use of acupuncture as an intervention for symptom management in cancer supportive and palliative care: an integrative overview of reviews

    Towler, P., Molassiotis, A. & Brearley, S. G., 10/2013, In: Supportive Care in Cancer. 21, 10, p. 2913-2923 11 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  25. Published

    Forgotten lives, hidden Deaths: people with ID living in and dying in non‐ID care settings

    Todd, S., Bernal, J., Hunt, K., Brearley, S. & McCarron, M., 1/07/2019, In: Journal of Intellectual Disability Research. 63, 7, p. 646-646 1 p.

    Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review

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