International Observatory on End of Life Care

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Published
Family caregivers' reflections on experiences of assisted suicide in Switzerland: a qualitative interview study
Gamondi, C., Pott, M., Preston, N. & Payne, S., 04/2018, In: Journal of Pain and Symptom Management. 55, 4, p. 1085-1094 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Family members' experiences of assisted dying: A systematic literature review with thematic synthesis
Gamondi, C., Fusi-Schmidhauser, T., Oriani, A., Payne, S. & Preston, N., 1/09/2019, In: Palliative Medicine. 33, 8, p. 1091-1105 15 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Swiss Families' Experiences of Interactions with Providers during Assisted Suicide: A Secondary Data Analysis of an Interview Study
Gamondi, C., Pott, M., Preston, N. & Payne, S., 25/03/2020, In: Journal of Palliative Medicine. 23, 4, p. 506-512 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The experiences of families who support a patient who dies from assisted suicide in Switzerland
Gamondi, C., 4/07/2022, Lancaster University. 201 p.
Research output: Thesis › Doctoral Thesis
Published
Ethical Principles in Digital Palliative Care for Children: The MyPal Project and Experiences Made in Designing a Trustworthy Approach
Garani-Papadatos, T., Natsiavas, P., Meyerheim, M., Hoffmann, S., Karamanidou, C. & Payne, S. A., 18/03/2022, In: Frontiers in Digital Health. 4, 10 p., 730430.
Research output: Contribution to Journal/Magazine › Review article › peer-review
Published
Living with advanced chronic obstructive pulmonary disease : patients concerns regarding death and dying.
Gardiner, C., Gott, M., Small, N., Payne, S., Seamark, D., Barnes, S., Halpin, D. & Ruse, C., 12/2009, In: Palliative Medicine. 23, 8, p. 691-697 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Exploring the care needs of patients with advanced COPD : an overview of the literature.
Gardiner, C., Gott, M., Payne, S., Small, N., Barnes, S., Halpin, D., Ruse, C. & Seamark, D., 02/2010, In: Respiratory Medicine. 104, 2, p. 159-165 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Discussing prognosis in advanced COPD : findings from a qualitative study with medical and nursing staff in the UK.
Gardiner, C., Gott, M., Barnes, S., Halpin, D., Payne, S., Ruse, C., Seamark, D. & Small, N., 2009, In: European Journal of Palliative Care. 16, p. 52
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Reconciling informed consent and “do no harm”: ethical challenges in palliative care research and practice in COPD
Gardiner, C., Barnes, S., Small, N., Gott, M., Payne, S., Halpin, D. & Seamark, D., 07/2010, In: Palliative Medicine. 24, 5, p. 469-472 4 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Charitably funded hospices and the challenges associated with the COVID-19 pandemic: A mixed-methods study (CovPall)
Garner, I., Walshe, C., Dunleavy, L., Bradshaw, A., Preston, N., Fraser, L., Murtagh, F., Oluyase, A. O., Sleeman, K. E., Hocaoglu, M. B., Bajwah, S., Chambers, R., Maddocks, M. & Higginson, IJ., 10/10/2022, In: BMC Palliative Care. 21, 9 p., 176.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Impact of digital technology in care homes on Emergency Department attendances
Garner, A., Knight, J., Preston, N., Dixon, S., Watchorn, S., Caiado, C., McShane, C., King, G. & Mason, S., 22/11/2022, In: Emergency Medicine Journal. 39, 12, 1 p., A974.
Research output: Contribution to Journal/Magazine › Meeting abstract
Published
Regulations on palliative sedation: an international survey across eight European countries
Garralda, E., Busa, C., Pozsgai, É., Osztromok-Lukacs, V., Csikós, A., Radbruch, L., Hasselaar, J., Menten, J., Payne, S., Adile, C., Hurducas, F. & Centeno, C., 27/10/2022, In: European Journal of Public Health. 2022, 7 p., ckac153.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Understanding health inequalities: Locating people in geographical and social spaces
Gatrell, A. C., Thomas, C., Bennett, S., Bostock, L., Popay, J., Williams, G. & Shahtahmasebi, S., 2000, Understanding health inequalities. Graham, H. (ed.). Buckingham: Open University Press, p. 156-169 14 p.
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
Mapping the determinants of health inequalities in social space: can Bourdieu help us?
Gatrell, A. C., Popay, J. & Thomas, C., 09/2004, In: Health and Place. 10, 3, p. 245-257 13 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Place of death : analysis of cancer deaths in part of North West England.
Gatrell, A. C., Harman, J. C., Francis, B. J., Thomas, C., Morris, S. M. & McIllmurray, M., 03/2003, In: Journal of Public Health Medicine. 25, 1, p. 53-58 6 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Local geographies of health inequalities.
Gatrell, A. C., Berridge, D., Bennett, S., Bostock, L., Thomas, C., Popay, J. & Williams, G., 2004, The geography of health inequalities in the developed world: views from Britain and North America. Boyle, P., Curtis, S., Graham, E. & Moore, E. (eds.). Aldershot: Ashgate Press, p. 177-197 21 p.
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
Place and space: geographic perspectives on death and dying
Gatrell, A. & Payne, S., 2011, Death, dying, and social differences. Oliviere, D., Monroe, B. & Payne, S. (eds.). Oxford: Oxford University Press, p. 32-44 13 p.
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
A systematic review of the resource use of a palliative care approach in adult non-cancer patients with a life-limiting illness
Gavini, S., Janke, K., Gadoud, A. & Salifu, Y., 14/08/2020, PROSPERO International prospective register of systematic reviews.
Research output: Contribution to specialist publication › Article
Published
Euthanasia, assisted dying, and assisted suicide in palliative care settings: reports from the Netherlands, Switzerland, and Washington State (TH323)
Gerson, S., Lewis, D. & Gamondi, C., 02/2016, In: Journal of Pain and Symptom Management. 51, 2, p. 326-327 2 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
When is hastened death considered suicide? a systematically conducted literature review about palliative care professionals' experiences where assisted dying is legal
Gerson, S. M., Bingley, A., Preston, N. & Grinyer, A., 31/08/2019, In: BMC Palliative Care. 18, 1, 13 p., 75.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Medical Aid in Dying, Hastened Death and Suicide: A Qualitative Study of Hospice Professionals' Experiences from Washington State
Gerson, S. M., Preston, N. & Bingley, A., 31/03/2020, In: Journal of Pain and Symptom Management. 59, 3, p. 679-686.e1 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
International practice in relation to hastened death and assisted dying
Gerson, S. M. & Preston, N., 31/03/2021, In: Annals of Palliative Medicine. 10, 3, p. 3524-3527 4 p.
Research output: Contribution to Journal/Magazine › Editorial › peer-review
Published
End of life care for community dwelling older people with dementia : an integrated review.
Goodman, C., Evans, C., Wilcock, J., Froggatt, K., Drennan, V., Sampson, E., Blanchard, M., Bissett, M. & Iliffe, S., 04/2010, In: International Journal of Geriatric Psychiatry. 25, 4, p. 329-337 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
A Study to develop integrated working between primary health care services and care homes. NIHR Service Delivery and Organisation programme.
Goodman, C., Davies, S. L., Dickinson, A., Gage, H., Froggatt, K., Morbey, H., Victor, C., Masey, H., Martin, W. & Iliffe, S., 01/2013, NIHR Service Delivery and Organisation Programme. 276 p.
Research output: Book/Report/Proceedings › Commissioned report
Published
End of life care interventions for people with dementia in care homes: addressing uncertainty within a framework for service delivery and evaluation
Goodman, C., Froggatt, K. A., Amador, S., Mathie, E. & Mayrhofer, A., 17/09/2015, In: BMC Palliative Care. 14, 9 p., 42.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
I've had a good life, what's left is a bonus: factor analysis of the Mental Adjustment to Cancer Scale in a palliative care population
Goodwin, L., Price, A., Lee, W., Rayner, L., Moorey, S., Monroe, B., Sykes, N., Hansford, P., Higginson, IJ. & Hotopf, M., 1/03/2014, In: Palliative Medicine. 28, 3, p. 243-255 13 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Predictors of non-remission of depression in a palliative care population
Goodwin, L., Lee, W., Price, A., Rayner, L., Monroe, B., Sykes, N., Hansford, P., Higginson, IJ. & Hotopf, M., 1/07/2012, In: Palliative Medicine. 26, 5, p. 683-695 13 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Preparation for dying and views about the ‘good death’ in heart failure: a qualitative study with older patients and bereaved carers.
Gott, M., Barnes, S. & Payne, S., 04/2006, In: Palliative Medicine. 20, 3, p. 246 Abstract number: 70.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Dying trajectories in heart failure.
Gott, M., Barnes, S., Payne, S., Seamark, D., Parker, C., Gariballa, S. & Small, N., 03/2007, In: Palliative Medicine. 21, 2, p. 95-99 5 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Patient views of social services provision for older people with advanced heart failure.
Gott, M., Barnes, S., Payne, S., Parker, C., Seamark, D., Gariballa, S. & Small, N., 07/2007, In: Health and Social Care in the Community. 15, 4, p. 333-342 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Older people's views of a good death in heart failure : implications for palliative care provision.
Gott, M., Small, N., Barnes, S., Payne, S. & Seamark, D., 10/2008, In: Social Science and Medicine. 67, 7, p. 1113-1121 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Barriers to advance care planning in Chronic Obstructive Pulmonary Disease.
Gott, M., Gardiner, C., Small, N., Payne, S., Seamark, D., Barnes, S., Halpin, D. & Ruse, C., 10/2009, In: Palliative Medicine. 23, 7, p. 642-648 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
A multi-centre longitudinal study to identify the palliative care needs of older people with heart failure and their families : executive summary.
Gott, M., Barnes, S., Payne, S., Seamark, D., Parker, C., Gariballa, S. & Small, N., 08/2006, Sheffield: University of Sheffield.
Research output: Working paper
Published
A pilot study to explore the palliative care needs of older patients with chronic obstructive pulmonary disease (COPD).
Gott, M., Barnes, S., Gardiner, C., Halpin, D., Parker, C., Payne, S., Ruse, C., Seamark, D. & Small, N., 2009.
Research output: Working paper
Published
Conducting a multi-centre longitudinal study within palliative care : ethical and practical challenges.
Gott, M., Payne, S., Seamark, D. & Barnes, S., 03/2004, In: Palliative Medicine. 18, 2, p. 168-169 2 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Predictors of the quality of life of older people with heart failure recruited from primary care.
Gott, M., Barnes, S., Parker, C., Payne, S., Seamark, D., Gariballa, S. & Small, N. A., 03/2006, In: Psychology and Health. 35, 2, p. 172-177 6 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Values Associated with Service User and Public Involvement (UPI) in Health and Social Care Research: a Narrative Review
Gradinger, F., Britten, N., Wyatt, K., Froggatt, K., Gibson, A., Jacoby, A., Lobban, F., Mayes, D., Snape, D., Rawcliffe, T. & Popay, J., 10/2015, In: Health Expectations. 18, 5, p. 661-675 15 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Supporting lay carers in end of life care : current gaps and future priorities.
Grande, G., Stajduhar, K., Aoun, S., Toye, C., Funk, L., Addington-Hall, J., Payne, S. & Todd, C., 06/2009, In: Palliative Medicine. 23, 4, p. 339-344 6 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The need for new perspectives on evaluation of palliative care
Grande, G. & Preston, N., 12/2011, In: Palliative Medicine. 25, 8, p. 737-738 2 p.
Research output: Contribution to Journal/Magazine › Editorial › peer-review
Published
Illness representations among people with non-epileptic seizures attending a neuropsychiatry clinic : a qualitative study based on the self-regulation.
Green, A., Payne, S. & Barnitt, R., 06/2004, In: Seizure - European Journal of Epilepsy. 13, 5, p. 331-339 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Weighted blankets and sleep in autistic children - a randomised controlled trial
Gringras, P., Green, D., Wright, B., Rush, C., Sparrowhawk, M., Pratt, K., Allgar, V., Hooke, N., Moore, D., Zaiwalla, Z. & Wiggs, L., 8/09/2014, In: Journal of Sleep Research. 23, Suppl. 1, p. 320-320 1 p.
Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review
Published
Ethical dilemmas in non-clinical health research.
Grinyer, A., 03/2001, In: Nursing Ethics. 8, 2, p. 123-132 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Young adults with cancer : the effects of the illness on parents and families.
Grinyer, A. & Thomas, C., 04/2001, In: International Journal of Palliative Nursing. 7, 4, p. 162-170 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The anonymity of research participants : assumptions, ethics and practicalities.
Grinyer, A., 2002, Surrey: University of Surrey.
Research output: Working paper
Published
Sickness absence as risk-taking behaviour: a study of organisational and cultural factors in the public sector.
Grinyer, A. & Singleton, V., 2000, In: Health, Risk and Society. 2, 1, p. 7-21 15 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Life after cancer in adolescence and young adulthood: the experience of survivorship
Grinyer, A., 2009, London: Routledge. 194 p.
Research output: Book/Report/Proceedings › Book
Published
Cancer in young adults: through parents’ eyes.
Grinyer, A., 2002, Buckingham: Open University Press. 194 p.
Research output: Book/Report/Proceedings › Book
Published
The impact of cancer on parents of adolescents and young people.
Grinyer, A., 2008, Cancer Care for Adolescents and Young Adults. Kelly, D. & Gibson, F. (eds.). Oxford: Blackwell, p. 44-58 15 p.
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
Contrasting parental perspectives with those of teenagers and young adults with cancer: Comparing the findings from two qualitative studies.
Grinyer, A., 07/2009, In: European Journal of Oncology Nursing. 13, 3, p. 200-206 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The late effects of mantle field radiotherapy : the information and support needs of women survivors of Hodgkin's disease.
Grinyer, A., 07/2010, In: European Journal of Oncology Nursing. 14, 3, p. 183-189 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review

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