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International Observatory on End of Life Care

  1. Published

    The biographical impact of teenage and adolescent cancer.

    Grinyer, A., 2007, In: Chronic Illness. 3, 4, p. 265-277 13 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  2. Published

    The ethics of Internet usage in health and personal narratives research.

    Grinyer, A., 2007, In: Social Research Update. Issue

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  3. Published

    Personal agendas in emotionally demanding research.

    Grinyer, A., 2005, In: Social Research Update. Issue

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  4. Published

    The importance of place of death in young adults with terminal cancer.

    Grinyer, A. & Thomas, C., 05/2004, In: Mortality. 9, 2, p. 114-131 18 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  5. Published

    The Narrative Correspondence Method: What a Follow-Up Study Can Tell Us about the Longer Term Effect on Participants in Emotionally Demanding Research.

    Grinyer, A., 12/2004, In: Qualitative Health Research. 14, 10, p. 1326-1341 16 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  6. Published

    Young people living with cancer: implications for policy and practice.

    Grinyer, A., 2007, Open University Press. 182 p.

    Research output: Book/Report/ProceedingsBook

  7. Published

    Caring for a young adult with cancer: The impact on mothers' health.

    Grinyer, A., 07/2006, In: Health and Social Care in the Community. 14, 4, p. 311-318 8 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  8. Published

    Young adults with cancer: parents' interaction with health professionals.

    Grinyer, A., 03/2004, In: European Journal of Cancer Care. 13, 1, p. 88-95 8 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  9. Unpublished

    Young adults with cancer: how their life stage affects parents and Families. [Poster]

    Grinyer, A. & Thomas, C., 2001, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN Poster

  10. Published

    Telling the story of illness and death.

    Grinyer, A., 2006, In: Auto/Biography. 14, p. 206-222 17 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  11. Published

    Dying as a teenager or young person

    Grinyer, A., 2011, Death, dying, and social differences. Oliviere, D., Monroe, B. & Payne, S. (eds.). 2nd ed. ed. Oxford: Oxford University Press, p. 118-125 8 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter (peer-reviewed)

  12. Published

    The value of interviewing on multiple occasions or longitudinally

    Grinyer, A. & Thomas, C., 2012, The Sage handbook of interview research: the complexity of the craft . Gubrium, J. F., Holstein, J. A., McKinney, K. & Marvasti, A. (eds.). 2nd ed. ed. Thousand Oaks: Sage, p. 219-230 12 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter (peer-reviewed)

  13. Published

    Issues of Power, Control and Choice in Children's Hospice Respite Care Services: a qualitative study

    Grinyer, A., 2010, In: International Journal of Palliative Nursing. 14, 5, p. 505-510 5 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  14. Published

    Teenage and young adult palliative and end of life care service evaluation

    Grinyer, A. & Barbarachild, Z., 04/2011, London: Teenage Cancer Trust.

    Research output: Book/Report/ProceedingsCommissioned report

  15. Published

    Palliative and end of life care for children and young people: home, hospice, hospital

    Grinyer, A., 02/2012, 2nd ed. ed. Oxford: Blackwell. 184 p.

    Research output: Book/Report/ProceedingsBook

  16. Published

    A bereavement group for parents whose son or daughter died from cancer: how shared experience can lessen isolation

    Grinyer, A., 11/2012, In: Mortality. 17, 4, p. 338-354 17 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  17. Published

    Palliative and end of life care.

    Hall, S. & Payne, S., 08/2010, Health psychology. French, D., Vedhara, K., Kaptein, A. A. & Weinman, J. (eds.). Oxford: Wiley-Blackwell, 432 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  18. Published

    Interventions for improving palliative care for older people living in nursing care homes

    Hall, S., Kolliakou, A., Petkova, H., Froggatt, K. & Higginson, I. J., 03/2011, In: Cochrane Database of Systematic Reviews. 3, CD007132.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  19. E-pub ahead of print

    Self-perceived preparedness of the new UK palliative medicine consultants: A survey of clinical and non-clinical preparedness after higher specialty training

    Hanchanale, S., Nwosu, A. & Boland, J. W., 23/02/2024, (E-pub ahead of print) In: BMJ Supportive and Palliative Care.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  20. Published

    Telehealth in palliative care is being described but not evaluated: A systematic review

    Hancock, S., Preston, N., Jones, H. & Gadoud, A., 13/12/2019, In: BMC Palliative Care. 18, 1, 15 p., 114.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  21. Published

    63 Systematic review of prognostic variables associated with mortality in adult patients with heart failure

    Hancock, S., Oriani, A., Johnson, M. J., Macleod, U. & Gadoud, A., 1/03/2020, Accepted Oral and Poster Abstract Submissions, The Palliative Care Congress 1 Specialty: 3 Settings – home, hospice, hospital 19–20 March 2020 | Telford International Centre. Suppl 1 ed. Vol. 10. p. A30-A31 (BMJ Supportive and Palliative Care).

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNConference contribution/Paperpeer-review

  22. Published

    Funding health and social services for older people: a qualitative study of the views of care recipients in the last year of life

    Hanratty, B., Lowson, E., Holmes, L., Grande, G., Addington-Hall, J., Payne, S. & Seymour, J., 05/2012, In: Journal of the Royal Society of Medicine. 105, 5, p. 201-207 7 p., JRSM-11-0189.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  23. Published

    Breaking bad news sensitively: what is important to patients in their last year of life?

    Hanratty, B., Lowson, E., Holmes, L., Grande, G., Jacoby, A., Payne, S., Seymour, J. & Whitehead, M., 31/01/2012, In: BMJ Supportive and Palliative Care. 2, 1, p. 24-28 5 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  24. Published

    A comparison of strategies to recruit older patients and carers to end-of-life research in primary care

    Hanratty, B., Lowson, E., Holmes, L., Addington-Hall, J., Arthur, T. A. A., Grande, G., Payne, S. & Seymour, J., 27/09/2012, In: BMC Health Services Research. 12, 7 p., 342.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  25. Published

    Loneliness as a risk factor for care home admission in the English Longitudinal Study of Ageing

    Hanratty, B., Stow, D., Collingridge Moore, D., Valtorta, N. K. & Matthews, F., 1/11/2018, In: Age and Ageing. 47, 6, p. 896-900 5 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  26. Published

    Scraps : hidden nursing information and its influence on the delivery of care.

    Hardey, M., Payne, S. & Coleman, P., 07/2000, In: Journal of Advanced Nursing. 32, 1, p. 208-214 7 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  27. Published

    Professional territories and the fragmented landscape of elderly care.

    Hardey, M., Payne, S., Powell, J., Hawker, S. & Kerr, C., 09/2001, In: The Journal of the Royal Society for the Promotion of Health. 121, 3, p. 159-164 6 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  28. Published

    Developing and evaluating online COVID-centric advance care planning training and information resources for nursing staff and family members in nursing homes: The Necessary Discussions Study Protocol

    Harding, A., Preston, N., Doherty, J., Cousins, E., Varey, S., McCann, A., Harrison Dening, K., Finucane, A., Carter, G., Mitchell, G. & Brazil, K., 9/08/2021, In: BMC Geriatrics. 21, 8 p., 456.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  29. Published

    International palliative care research priorities: A systematic review

    Hasson, F., Nicholson, E., Muldrew, D., Bamidele, O., Payne, S. & McIlfatrick, S., 3/02/2020, In: BMC Palliative Care. 19, 1, 16 p., 16.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  30. Published

    Appraising the evidence : reviewing disparate data systematically.

    Hawker, S., Payne, S., Kerr, C., Hardey, M. & Powell, J., 11/2002, In: Qualitative Health Research. 12, 9, p. 1284-1299 16 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  31. Published

    End of life care in community hopsitals from the perspectives of bereaved family members and carers.

    Hawker, S., Kerr, C. & Payne, S., 03/2004, In: Palliative Medicine. 18, 2, p. 149-150 2 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  32. Published

    End of life care in community hospitals : the perceptions of bereaved family members.

    Hawker, S., Kerr, C., Payne, S., Seamark, D., Davis, C., Roberts, H., Jarrett, N., Roderick, P. & Smith, H., 07/2006, In: Palliative Medicine. 20, 5, p. 541-547 7 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  33. Published

    Approaching the end of life and dying with dementia in care homes : the accounts of family carers.

    Hennings, J., Froggatt, K. & Keady, J., 05/2010, In: Reviews in Clinical Gerontology. 20, 2, p. 114-127 14 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  34. Published

    Standard practice or practice standard? : family involvement at the end of life.

    Hennings, J., Froggatt, K. & Keady, J., 2009, In: Nursing and Residential Care. 11, 8, p. 403-405 3 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  35. Published

    Spouse caregivers of people with advanced dementia in nursing homes: a longitudinal narrative study

    Hennings, J., Froggatt, K. & Payne, S., 07/2013, In: Palliative Medicine. 27, 7, p. 683-691 9 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  36. Published

    The experiences of family caregivers of people with advanced dementia living in nursing homes, with a specific focus on spouses: a narrative literature review

    Hennings, J. & Froggatt, K. A., 01/2019, In: Dementia. 18, 1, p. 303-322 20 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  37. Published

    Sensitivity to change of the Rheumatoid Arthritis Self-Efficacy scale (RASE) and predictors of change in self-efficacy

    Hewlett, S., Cockshott, Z., Almeida, C., Richards, P., Lowe, R., Greenwood, R., Kirwan, J. & RASE Study Group, 03/2008, In: Musculoskeletal Care. 6, 1, p. 49-67 19 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  38. Published

    Development and validation of a self-efficacy scale for use in British patients with rheumatoid arthritis (RASE)

    Hewlett, S., Cockshott, Z., Kirwan, J., Barrett, J., Stamp, J. & Haslock, I., 1/11/2001, In: Rheumatology. 40, 11, p. 1221-1230 10 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  39. Published

    Patients' perceptions of fatigue in rheumatoid arthritis: overwhelming, uncontrollable, ignored

    Hewlett, S., Cockshott, Z., Byron, M., Kitchen, K., Tipler, S., Pope, D. & Hehir, M., 15/10/2005, In: Arthritis and Rheumatism. 53, 5, p. 697-702 6 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  40. Published

    Evaluating complex interventions in end of life care: the MORECare statement on good practice generated by a synthesis of transparent expert consultations and systematic reviews

    Higginson, I. J., Evans, C. J., Grande, G., Preston, N., Morgan, M., McCrone, P., Lewis, P., Fayers, P., Harding, R., Hotopf, M., Murray, S. A., Benalia, H., Gysels, M., Farquhar, M., Todd, C. & MORECare, 23/04/2013, In: BMC Pulmonary Medicine. 11, 11 p., 111.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  41. Published

    Symptom control and survival for people severely ill with COVID: a multicentre cohort study (CovPall-Symptom)

    Higginson, I., Hocaoglu, M., Fraser, L., Maddocks, M., Sleeman, K., Oluyase, A., Chambers, R., Preston, N., Dunleavy, L., Bradshaw, A., Bajwah, S., Murtagh, F. & Walshe, C., 31/10/2022, In: Journal of Pain and Symptom Management. 64, 4, p. 377-390 14 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  42. Published

    Adaptation and multicentre validation of a patient-centred outcome scale for people severely ill with COVID (IPOS-COV)

    Hocaoglu, M., Murtagh, F., Walshe, C., Chambers, R., Maddocks, M., Sleeman, K., Oluyase, A., Dunleavy, L., Bradshaw, A., Bajwah, S., Fraser, L., Preston, N. & Irene, H., 31/12/2023, In: Health and Quality of Life Outcomes. 21, 12 p., 29.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  43. Published

    A framework for cross-cultural development and implementation of complex interventions to improve palliative care in nursing homes: the PACE steps to success programme

    Hockley, J., Froggatt, K., Van den Block, L., Onwuteaka-Philipsen, B., Kylänen, M., Szczerbińska, K., Gambassi, G., Pautex, S. & Payne, S. A., 24/10/2019, In: BMC Health Services Research. 19, 1, 11 p., 745.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  44. Published

    Exploring the barriers and gateways to intersubjectivity in dementia care: A meta-ethnography

    Hodge, G., Froggatt, K., Limmer, M. & Bingley, A., 31/07/2022, In: Journal of Clinical Nursing. 31, 13-14, p. 1947-1959 13 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  45. Published

    The experience of informal caregivers in providing patient care in hospitals in low- and middle-income countries: A qualitative meta-synthesis

    Hogan, U., Bingley, A., Morbey, H. & Walshe, C., 31/10/2022, In: Journal of Health Services Research and Policy. 27, 4, p. 321-329 9 p.

    Research output: Contribution to Journal/MagazineReview articlepeer-review

  46. Published

    Agreement of Nursing Home Staff With Palliative Care Principles: A PACE Cross-sectional Study Among Nurses and Care Assistants in Five European Countries

    Honinx, E., Smets, T., Piers, R., Deliens, L., Payne, S., Kylänen, M., Barańska, I., Pasman, H. R. W., Gambassi, G., Van den Block, L., Gatsolaeva, Y., Miranda, R., Pivodic, L., Tanghe, M., van Hout, H., Van Den Noortgate, N., Froggatt, K., Onwuteaka-Philipsen, B., Szczerbińska, K., Oosterveld-Vlug, M., & 21 othersWichmann, A. B., Engels, Y., Vernooij-Dassen, M., Hockley, J., Leppäaho, S., Pautex, S., Bassal, C., Mammarella, F., Mercuri, M., Rossi, P., Segat, I., Stodolska, A., Adang, E., Andreasen, P., Kuitunen-Kaija, O., Moore, D. C., Pac, A., Kijowska, V., Koppel, M. T., van der Steen, J. T. & Morgan de Paula, E., 1/11/2019, In: Journal of Pain and Symptom Management. 58, 5, p. 824-834 11 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  47. Published

    Dying in long-term care facilities in Europe: The PACE epidemiological study of deceased residents in six countries

    Honinx, E., Van Dop, N., Smets, T., Deliens, L., Van Den Noortgate, N., Froggatt, K., Gambassi, G., Kylänen, M., Onwuteaka-Philipsen, B., Szczerbińska, K., Van Den Block, L., Gatsolaeva, Y., Miranda, R., Pivodic, L., Tanghe, M., Van Hout, H., Pasman, R. H. R. W., Oosterveld-Vlug, M., Piers, R., Wichmann, A. B., & 22 othersEngels, Y., Vernooij-Dassen, M., Hockley, J., Payne, S., Leppäaho, S., Barańska, I., Pautex, S., Bassal, C., Mammarella, F., Mercuri, M., Rossi, P., Segat, I., Stodolska, A., Adang, E., Andreasen, P., Kuitunen-Kaija, O., Moore, D. C., Pac, A., Kijowska, V., Ten Koppel, M., Van Der Steen, J. T. & De Paula, E. M., 30/08/2019, In: BMC Public Health. 19, 1, 12 p., 1199.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  48. Published

    Hospitalisation in the last month of life and in-hospital death of nursing home residents: A cross-sectional analysis of six European countries

    Honinx, E., Piers, R. D., Onwuteaka-Philipsen, B. D., Payne, S., Szczerbińska, K., Gambassi, G., Kylänen, M., Deliens, L., Van Den Block, L. & Smets, T., 31/08/2021, In: BMJ Open. 11, 8, 12 p., e047086.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  49. Published

    Advance Care Planning for Patients with Lung Cancer: The proposed development of a complex intervention.

    Horne, G., Seymour, J. & Payne, S., 03/2006, In: Palliative Medicine. 20, 2, p. 148

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  50. Published

    Removing the boundaries : palliative care for patients with heart failure.

    Horne, G. & Payne, S., 06/2004, In: Palliative Medicine. 18, 4, p. 291-296 6 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

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