Implementing and evaluating online advance care planning training in UK nursing homes during COVID-19: findings from the Necessary Discussions multi-site case study project

Cousins, E., Preston, N., Doherty, J., Varey, S., Harding, A., Adrienne, M., Harrison Dening, K., Finucane, A., Carter, G., Mitchell, G. & Brazil, K., 13/05/2022, In: BMC Geriatrics. 22, 419.

Research output: Contribution to journal › Journal article › peer-review

Developing country specific questions about end-of-life care for nursing home residents with advanced dementia using the nominal group technique with family caregivers.

Bavelaar, L., Nicula, M., Morris, S., Kaasalainen, S., Achterberg, W., Loucka, M., Vickova, K., Thompson, G., Cornally, N., Hartigan, I., Harding, A., Preston, N., Walshe, C., Cousins, E., Harrison Dening, K., De Vries, K., Brazil, K. & van der Steen, J. T., 30/04/2022, In: Patient Education and Counseling. 105, 4, p. 965-973 9 p.

Research output: Contribution to journal › Journal article › peer-review

Prevalence vs impact: a mixed methods study of survivorship issues in colorectal cancer

Drury, A., Payne, S. & Brady, A-M., 30/04/2022, In: Quality of Life Research. 31, 4, p. 1117-1134 18 p.

Research output: Contribution to journal › Journal article › peer-review

The experience of informal caregivers in providing patient care in hospitals in low- and middle-income countries: A qualitative meta-synthesis

Hogan, U., Bingley, A., Morbey, H. & Walshe, C., 13/04/2022, (Accepted/In press) In: Journal of Health Services Research and Policy.

Research output: Contribution to journal › Journal article › peer-review

Revised recommendations on standards and norms for palliative care in Europe from the European Association for Palliative Care (EAPC): A Delphi study

Payne, S., Harding, A., Williams, T., Ling, J. & Ostgathe, C., 1/04/2022, In: Palliative Medicine. 36, 4, p. 680-697 18 p.

Research output: Contribution to journal › Journal article › peer-review

The impact on emotional well-being of being a palliative care volunteer: An interpretative phenomenological analysis

Coleman, H., Sanderson-Thomas, A. & Walshe, C., 1/04/2022, In: Palliative Medicine. 36, 4, p. 671-679 9 p.

Research output: Contribution to journal › Journal article › peer-review

Change in Activity of Palliative Care Services during the Covid-19 Pandemic: A Multinational Survey (CovPall)

Sleeman, K. E., Cripps, R. L., Murtagh, F. E. M., Oluyase, A. O., Hocaoglu, M. B., Maddocks, M., Walshe, C., Preston, N., Dunleavy, L., Bradshaw, A., Bajwah, S., Higginson, I. J. & Fraser, L. K., 31/03/2022, In: Journal of Palliative Medicine. 25, 3, p. 465-471 7 p.

Research output: Contribution to journal › Journal article › peer-review

Identification of Digital Health Priorities for Palliative Care Research: Modified Delphi Study

Nwosu, A., McGlinchey, T., Sanders, J., Stanley, S., Palfrey, J., Lubbers, P., Chapman, L., Finucane, A. & Mason, S., 21/03/2022, In: JMIR Aging. 5, 1, 15 p., e32075.

Research output: Contribution to journal › Journal article › peer-review

Ethical Principles in Digital Palliative Care for Children: The MyPal Project and Experiences Made in Designing a Trustworthy Approach

Garani-Papadatos, T., Natsiavas, P., Meyerheim, M., Hoffmann, S., Karamanidou, C. & Payne, S. A., 18/03/2022, In: Frontiers in Digital Health. 4, 10 p., 730430.

Research output: Contribution to journal › Review article › peer-review

Experiences of staff providing specialist palliative care during COVID-19: A multiple qualitative case study

Bradshaw, A., Dunleavy, L., Garner, I., Preston, N., Bajwah, S., Cripps, R., Fraser, L., Maddocks, M., Hocaoglu, M., Murtagh, F. E. M., Oluyase, A., Sleeman, K. E., Higginson, I. J. & Walshe, C., 8/02/2022, (E-pub ahead of print) In: Journal of the Royal Society of Medicine.

Research output: Contribution to journal › Journal article › peer-review

The experience of hospitalization in people with advanced chronic obstructive pulmonary disease: A qualitative, phenomenological study

Bakthavatsalu, B., Walshe, C. & Simpson, J., 4/02/2022, (E-pub ahead of print) In: Chronic Illness. 15 p.

Research output: Contribution to journal › Journal article › peer-review

Development of guidelines to reduce, handle and report missing data in palliative care trials: A multi-stakeholder modified nominal group technique

Hussain, J. A., White, I. R., Johnson, M. J., Byrne, A., Preston, N. J., Haines, A., Seddon, K. & Peters, T. J., 17/01/2022, In: Palliative Medicine. 36, 1, p. 59-70 12 p.

Research output: Contribution to journal › Journal article › peer-review

The Decision-Making Process for Palliative Sedation for Patients with Advanced Cancer—Analysis from a Systematic Review of Prospective Studies

Belar, A., Arantzamendi, M., Menten, J., Payne, S., Hasselaar, J. & Centeno, C., 8/01/2022, In: Cancers. 14, 2, 301.

Research output: Contribution to journal › Journal article › peer-review

Applying an Analytical Process to Longitudinal Narrative Interviews With Couples Living and Dying With Lewy Body Dementia

Bentley, A., Walshe, C. & Salifu, Y., 31/12/2021, In: International Journal of Qualitative Methods. 20, 8 p.

Research output: Contribution to journal › Journal article › peer-review

Exploring the experiences of living with Lewy body dementia: An integrative review

Bentley, A., Salifu, Y. & Walshe, C., 31/12/2021, In: Journal of Advanced Nursing. 77, 12, p. 4632-4645 14 p.

Research output: Contribution to journal › Journal article › peer-review

Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data

Bayly, J., Bradshaw, A., Fettes, L., Omarjee, M., Talbot-Rice, H., Walshe, C., Sleeman, K. E., Bajwah, S., Dunleavy, L., Hocaoglu, M., Oluyase, A., Garner, I., Cripps, R., Preston, N., Fraser, L. K., Murtagh, F. EM., Higginson, I. J. & Maddocks, M., 29/12/2021, (E-pub ahead of print) In: Palliative Medicine. 13 p.

Research output: Contribution to journal › Journal article › peer-review

Exploring specialist palliative care practitioner perspectives on the face validity of the Attitude to Health Change scales in assessing the impact of life-limiting illness on patients and carers

Machin, L., Walshe, C. & Dunleavy, L., 13/12/2021, (E-pub ahead of print) In: Journal of Palliative Care.

Research output: Contribution to journal › Journal article › peer-review

A good death in the child with life shortening illness: A qualitative multiple-case study

Chong, P. H., Walshe, C. & Hughes, S., 1/12/2021, In: Palliative Medicine. 35, 10, p. 1878-1888 11 p.

Research output: Contribution to journal › Journal article › peer-review

Palliative care integration for patients with advanced chronic obstructive pulmonary disease (COPD): Identifying essential components using participatory action research

Fusi-Schmidhauser, T., Froggatt, K. & Preston, N., 1/12/2021, In: Palliative Medicine. 35, 10, p. 1933-1940 8 p.

Research output: Contribution to journal › Journal article › peer-review

Experiences of staff providing specialist palliative care during COVID-19: A multiple qualitative case study

Bradshaw, A., Dunleavy, L., Garner, I., Preston, N., Bajwah, S., Cripps, R., Fraser, L., Maddocks, M., Hocaoglu, M., Murtagh, F. E. M., Oluyase, A., Sleeman, K. E., Higginson, IJ. & Walshe, C., 20/11/2021, In: medRxiv.

Research output: Contribution to journal › Journal article

Change in activity of palliative care services during the Covid-19 pandemic: a multi-national survey (CovPall)

Dunleavy, L., Preston, N. & Walshe, C., 17/11/2021, (Accepted/In press) In: Journal of Palliative Medicine.

Research output: Contribution to journal › Journal article › peer-review

Undertaking Research Using Online Nominal Group Technique: Lessons from an International Study (RESPACC)

Mason, S., Ling, J., Mosoiu, D., Arantzamendi, M., Tserkezoglou, A. J., Predoiu, O. & Payne, S., 17/11/2021, In: Journal of Palliative Medicine. 24, 12, p. 1867-1871 5 p.

Research output: Contribution to journal › Journal article › peer-review

MyPal ADULT study protocol: A randomised clinical trial of the MyPal ePRO-based early palliative care system in adult patients with haematological malignancies

Scarfò, L., Karamanidou, C., Doubek, M., Garani-Papadatos, T., Didi, J., Pontikoglou, C., Ling, J., Payne, C., Papadaki, H. A., Rosenquist, R., Stavroyianni, N., Payne, S., Ghia, P., Natsiavas, P., Maramis, C. & Stamatopoulos, K., 2/11/2021, In: BMJ Open. 11, 11, 10 p., e050256.

Research output: Contribution to journal › Journal article › peer-review

“Resuscitate and Push”: End-of-Life Care Experiences of Healthcare Staff in the Emergency Department – A Hermeneutic Phenomenological Study

Bayuo, J., Anago, E. K., Agyei, F. B., Salifu, Y., Kyei Baffour, P. & Atta Poku, C., 29/10/2021, (E-pub ahead of print) In: Journal of Palliative Care.

Research output: Contribution to journal › Journal article › peer-review

What are the emotional experiences of being a volunteer in palliative and end-of-life care settings? a systematic review and thematic synthesis

Coleman, H. & Walshe, C., 30/09/2021, In: Journal of Pain and Symptom Management. 62, 3, p. 232-247 16 p.

Research output: Contribution to journal › Journal article › peer-review

Prohibit, protect, or adapt? The changing role of volunteers in palliative and hospice care services during the COVID-19 pandemic. A multinational survey (CovPall).

Walshe, C., Garner, I., Dunleavy, L., Preston, N., Bradshaw, A., Cripps, R., Bajwah, S., Sleeman, K., Hocaoglu, M., Murtagh, F., Oluyase, A., Fraser, L. & Irene, H., 8/09/2021, (E-pub ahead of print) In: International Journal of Health Policy and Management.

Research output: Contribution to journal › Journal article › peer-review

Smiles behind the masks: A systematic review and narrative synthesis exploring how family members of seriously ill or dying patients are supported during infectious disease outbreaks

Bloomer, M. & Walshe, C., 1/09/2021, In: Palliative Medicine. 35, 8, p. 1452-1467 16 p.

Research output: Contribution to journal › Journal article › peer-review

The challenges of caring for people dying from COVID-19: a multinational, observational study (CovPall)

Oluyase, A., Hocaoglu, M., Cripps, R., Maddocks, M., Walshe, C., Fraser, L., Preston, N., Dunleavy, L., Bradshaw, A., Murtagh, F., Bajwah, S., Sleeman, K. & Irene, H., 1/09/2021, In: Journal of Pain and Symptom Management. 62, 3, p. 460-4470 11 p.

Research output: Contribution to journal › Journal article › peer-review

Hospitalisation in the last month of life and in-hospital death of nursing home residents: A cross-sectional analysis of six European countries

Honinx, E., Piers, R. D., Onwuteaka-Philipsen, B. D., Payne, S., Szczerbińska, K., Gambassi, G., Kylänen, M., Deliens, L., Van Den Block, L. & Smets, T., 31/08/2021, In: BMJ Open. 11, 8, 12 p., e047086.

Research output: Contribution to journal › Journal article › peer-review

Large differences in the organization of palliative care in nursing homes in six European countries: findings from the PACE cross-sectional study

PACE consortium, 25/08/2021, In: BMC Palliative Care. 20, 1, 131.

Research output: Contribution to journal › Journal article › peer-review

Equal but inequitable: response of specialist palliative care and hospice services to people from ethnic minority groups with COVID-19- an observational study (CovPall)

Bajwah, S., Koffman, J., Hussein, J., Bradshaw, A., Hocaoglu, M., Fraser, L., Oluyase, A., Allwin, C., Dunleavy, L., Preston, N., Cripps, R., Maddocks, M., Sleeman, K., Irene, H., Walshe, C. & Murtagh, F., 17/08/2021, (Accepted/In press) In: BMJ Supportive and Palliative Care.

Research output: Contribution to journal › Journal article › peer-review

A systematic review with thematic synthesis of the experience of hospitalization in people with advanced chronic obstructive pulmonary disease

Bakthavatsalu, B., Walshe, C. & Simpson, J., 16/08/2021, (Accepted/In press) In: COPD.

Research output: Contribution to journal › Journal article › peer-review

Developing and evaluating online COVID-centric advance care planning training and information resources for nursing staff and family members in nursing homes: The Necessary Discussions Study Protocol

Harding, A., Preston, N., Doherty, J., Cousins, E., Varey, S., McCann, A., Harrison Dening, K., Finucane, A., Carter, G., Mitchell, G. & Brazil, K., 9/08/2021, In: BMC Geriatrics. 21, 8 p., 456.

Research output: Contribution to journal › Journal article › peer-review

Exploring the experience of recurrence with advanced cancer for people who perceived themselves to be cancer free: a grounded theory study

Economou, D., Walshe, C. & Brearley, S., 31/07/2021, In: Supportive Care in Cancer. 29, 7, p. 3885-3894 10 p.

Research output: Contribution to journal › Journal article › peer-review

MyPal: Designing and Evaluating Digital Patient-Reported Outcome Systems for Cancer Palliative Care in Europe

Payne, S. A., Moore, D. C. & Stamatopoulos, K., 31/07/2021, In: Journal of Palliative Medicine. 24, 7, p. 962-964 3 p.

Research output: Contribution to journal › Editorial › peer-review

Peer Mentors for People with Advanced Cancer: Lessons Learnt from Recruiting and Training Peer Mentors for a Feasibility Randomized Controlled Trial

Walshe, C., Roberts, D., Calman, L., Appleton, L., Croft, R., Perez Algorta, G., Skevington, S., Lloyd-Williams, M. & Grande, G., 31/07/2021, In: Journal of Cancer Education. 36, 4, p. 710-718 9 p.

Research output: Contribution to journal › Journal article › peer-review

Technology in Palliative Care (TIP): the identification of digital priorities for palliative care research using a modified Delphi method

Nwosu, A., McGlinchey, T., Sanders, J., Stanley, S., Palfrey, J., Lubbers, P., Chapman, L., Finucane, A. & Mason, S., 3/07/2021, In: medRxiv.

Research output: Contribution to journal › Journal article

Understanding and addressing challenges for advance care planning in the COVID-19 pandemic: An analysis of the UK CovPall survey data from specialist palliative care services

Bradshaw, A., Dunleavy, L., Walshe, C., Preston, N., Cripps, R., Hocaoglu, M., Bajwah, S., Maddocks, M., Oluyase, A., Sleeman, K. E., Higginson, I. J., Fraser, L. & Murtagh, F., 1/07/2021, In: Palliative Medicine. 35, 7, p. 1225-1237 13 p.

Research output: Contribution to journal › Journal article › peer-review

‘Necessity is the mother of invention’: Specialist palliative care service innovation and practice change in response to COVID-19. Results from a multinational survey (CovPall)

CovPall Study Team, Dunleavy, L., Preston, N., Bajwah, S., Bradshaw, A., Cripps, R., Fraser, L., Maddocks, M., Hocaoglu, M., Murtagh, F. EM., Oluyase, A., Sleeman, K., Higginson, I. J. & Walshe, C., 31/05/2021, In: Palliative Medicine. 35, 5, p. 814-829 16 p.

Research output: Contribution to journal › Journal article › peer-review

Constructing a new role for family carers and volunteers providing care towards the end of life: An Action Research approach exploring a new model of hospice care

Walshe, C., Barnes, H., Turner, M. & Hughes, S., 31/05/2021, In: Health & Social Care in the Community. 29, 3, p. 837-845 9 p.

Research output: Contribution to journal › Journal article › peer-review

Women's experiences of advanced breast cancer in a resource-limited Arab context: A Stakian multi-case study

Fearon, D., Hughes, S. & Brearley, S., 21/05/2021, (E-pub ahead of print) In: Psycho-Oncology.

Research output: Contribution to journal › Journal article › peer-review

Constructivist Stakian Multicase Study: Methodological Issues Encountered in Cross-Cultural Palliative Care Research

Fearon, D., Hughes, S. & Brearley, S. G., 6/05/2021, In: International Journal of Qualitative Methods. 20

Research output: Contribution to journal › Journal article › peer-review

Hearing the voices of children diagnosed with a life-threatening or life-limiting illness and their parents’ accounts in a palliative care setting: A qualitative study

Ciobanu, E. & Preston, N., 1/05/2021, In: Palliative Medicine. 35, 5, p. 886-892 7 p.

Research output: Contribution to journal › Journal article › peer-review

Hospital-based social workers’ perceptions of generalist- and specialist-level palliative social work activities

Firn, J., Preston, N. & Walshe, C., 1/05/2021, In: Journal of Social Work. 21, 3, p. 416-434 19 p.

Research output: Contribution to journal › Journal article › peer-review

Potentially Inappropriate Treatments at the End of Life in Nursing Home Residents: Findings From the PACE Cross-Sectional Study in Six European Countries

PACE consortium, 22/04/2021, In: Journal of Pain and Symptom Management. 61, 4, p. 732-742 11 p.

Research output: Contribution to journal › Journal article › peer-review

Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data

Bayly, J., Bradshaw, A., Fettes, L., Omarjee, M., Talbot-Rice, H., Walshe, C., Sleeman, K., Bajwah, S., Dunleavy, L., Hocaoglu, M., Oluyase, A., Garner, I., Cripps, R., Preston, N., Fraser, L., Murtagh, F., Irene, H. & Maddocks, M., 19/04/2021, (Accepted/In press) In: medRxiv.

Research output: Contribution to journal › Journal article

MyPal-Child study protocol: An observational prospective clinical feasibility study of the MyPal ePRO-based early palliative care digital system in paediatric oncology patients

Meyerheim, M., Karamanidou, C., Payne, S., Garani-Papadatos, T., Sander, A., Downing, J., Stamatopoulos, K., Ling, J., Payne, C., Scarfò, L., Lokaj, P., Maramis, C. & Graf, N., 13/04/2021, In: BMJ Open. 11, 4, 9 p., e045226.

Research output: Contribution to journal › Journal article › peer-review

Clinical Aspects of Palliative Sedation in Prospective Studies: A Systematic Review

Arantzamendi, M., Belar, A., Payne, S., Rijpstra, M., Preston, N., Menten, J., Van der Elst, M., Radbruch, L., Hasselaar, J. & Centeno, C., 1/04/2021, In: Journal of Pain and Symptom Management. 61, 4, p. 831-844 14 p.

Research output: Contribution to journal › Journal article › peer-review

Evaluating the use of video communication technology in a hospital specialist palliative care team during the COVID-19 pandemic

Crosby, B., Hanchanale, S., Stanley, S. & Nwosu, A., 31/03/2021, In: AMRC Open Research. 3, 5

Research output: Contribution to journal › Journal article

International practice in relation to hastened death and assisted dying

Gerson, S. M. & Preston, N., 31/03/2021, In: Annals of Palliative Medicine. 10, 3, p. 3524-3527 4 p.

Research output: Contribution to journal › Editorial › peer-review

Overview of voluntarily stopping eating and drinking to hasten death

Lowers, J., Hughes, S. & Preston, N., 31/03/2021, In: Annals of Palliative Medicine. 10, 3, p. 3611-3616 6 p.

Research output: Contribution to journal › Journal article › peer-review

Prohibit, protect, or adapt? The changing role of volunteers in palliative and hospice care services during the COVID-19 pandemic. A multinational survey (CovPall).

Walshe, C., Garner, I., Dunleavy, L., Preston, N., Bradshaw, A., Cripps, R., Bajwah, S., Sleeman, K., Hocaoglu, M., Maddocks, M., Murtagh, F., Oluyase, A., Fraser, L. & Irene, H., 29/03/2021, In: medRxiv.

Research output: Contribution to journal › Journal article

Investigation and management of iron deficiency anaemia in a specialist palliative care setting and the role of intravenous iron: a descriptive analysis of hospice data

Steele, T., Bonwick, H., Nwosu, A. & Chapman, L., 22/03/2021, In: AMRC Open Research. 3, 6, 19 p.

Research output: Contribution to journal › Journal article

Malignant pleural effusions: the patient experience

Jones, R., Steer, H., Preston, N. & Perkins, P., 11/03/2021, (E-pub ahead of print) In: BMJ Supportive and Palliative Care.

Research output: Contribution to journal › Letter

No difference in effects of ‘PACE steps to success’ palliative care program for nursing home residents with and without dementia: a pre-planned subgroup analysis of the seven-country PACE trial

Miranda, R., Smets, T., Van Den Noortgate, N., van der Steen, J. T., Deliens, L., Payne, S., Szczerbińska, K., Pautex, S., Van Humbeeck, L., Gambassi, G., Kylänen, M., Van den Block, L., Gatsolaeva, Y., Pivodic, L., Honinx, E., Tanghe, M., van Hout, H., Froggatt, K., Onwuteaka-Philipsen, B., Pasman, H. R. W. & 24 others, Piers, R., Baranska, I., Oosterveld-Vlug, M., Wichmann, A. B., Engels, Y., Vernooij-Dassen, M., Hockley, J., Leppäaho, S., Bassal, C., Mammarella, F., Mercuri, M., Rossi, P., Segat, I., Stodolska, A., Adang, E., Andreasen, P., Kuitunen-Kaija, O., Hammar, T., Heikkilä, R., Moore, D. C., Kijowska, V., ten Koppel, M., de Paula, E. M. & PACE, O. B. O., 7/03/2021, In: BMC Palliative Care. 20, 1, 10 p., 39.

Research output: Contribution to journal › Journal article › peer-review

What it means to be a palliative care volunteer in eight European countries: a qualitative analysis of accounts of volunteering

Scott, R., Goossensen, A., Payne, S. & Pelttari, L., 1/03/2021, In: Scandinavian Journal of Caring Sciences. 35, 1, p. 170-177 8 p.

Research output: Contribution to journal › Journal article › peer-review

What mediates end-of-life care choices?

Bloomer, M. & Walshe, C., 1/03/2021, In: Lancet Public Health. 6, 3, p. E139-E140 2 p.

Research output: Contribution to journal › Editorial

Virtual reality in specialist palliative care: a feasibility study to enable clinical practice adoption

Nwosu, A., Mills, M., Roughneen, S., Stanley, S., Chapman, L. & Mason, S., 17/02/2021, (E-pub ahead of print) In: BMJ Supportive and Palliative Care. 5 p.

Research output: Contribution to journal › Journal article › peer-review

Experience of Caregivers Supporting a Patient through Voluntarily Stopping Eating and Drinking

Lowers, J., Hughes, S. & Preston, N., 16/02/2021, In: Journal of Palliative Medicine. 24, 3, p. 376-381 6 p.

Research output: Contribution to journal › Journal article › peer-review

How to measure the effects and potential adverse events of palliative sedation? An integrative review

Belar, A., Arantzamendi, M., Payne, S., Preston, N., Lee-Rijpstra, M., Hasselaar, J., Radbruch, L., Vanderelst, M., Ling, J. & Centeno, C., 1/02/2021, In: Palliative Medicine. 35, 2, p. 295-314 20 p.

Research output: Contribution to journal › Journal article › peer-review

Perspectives on COVID-19 and palliative care research

Walshe, C., 31/01/2021, In: Palliative Medicine. 35, 1, p. 4-5 2 p.

Research output: Contribution to journal › Editorial

Case Report: Implantable cardioverter defibrillator (ICD) deactivation in palliative care - a case involving best interest decisions for someone lacking capacity at the end of life

Tan, C., Hanchanale, S., Sugrue, E. & Nwosu, A., 21/01/2021, In: AMRC Open Research. 3, 4, p. 1-4 4 p.

Research output: Contribution to journal › Journal article

What should we report? Lessons learnt from the development and implementation of serious adverse event reporting procedures in non-pharmacological trials in palliative care

Dunleavy, L., Walshe, C., Preston, N., Payne, S. & Collingridge Moore, D., 20/01/2021, In: BMC Palliative Care. 20, 8 p., 19.

Research output: Contribution to journal › Journal article › peer-review

Case Report: The use of advanced consent methodology and healthcare professional consultee to facilitate research participation in dying patients

Stanley, S. & Nwosu, A., 11/01/2021, In: AMRC Open Research. 3, 3, p. 1-7 7 p.

Research output: Contribution to journal › Journal article

Missing not at random in end of life care studies: multiple imputation and sensitivity analysis on data from the ACTION study

ACTION Consortium, 9/01/2021, In: BMC Medical Research Methodology. 21, 1, 12 p., 13.

Research output: Contribution to journal › Journal article › peer-review

Palliative and end-of-life educational interventions for staff working in long-term care facilities: An integrative review of the literature

Iida, K., Ryan, A., Hasson, F., Payne, S. & McIlfatrick, S., 1/01/2021, In: International Journal of Older People Nursing. 16, 1, 14 p., e12347.

Research output: Contribution to journal › Journal article › peer-review

Palliative care needs-assessment and measurement tools used in patients with heart failure: a systematic mixed-studies review with narrative synthesis

Remawi, B., Gadoud, A., Murphy, I. M. J. & Preston, N., 1/01/2021, In: Heart Failure Reviews. 26, p. 137-155 19 p.

Research output: Contribution to journal › Journal article › peer-review

How views of Oncologists and Haematologists impacts Palliative Care Referral: A Systematic Review

Salins, N., Ghoshal, A., Hughes, S. & Preston, N., 23/11/2020, In: BMC Palliative Care. 19, 19 p., 175.

Research output: Contribution to journal › Journal article › peer-review

Exploring the psychological impact of life-limiting illness using the Attitude to Health Change scales: A qualitative focus group study in a hospice palliative care setting

Dunleavy, L., Walshe, C. & Machin, L., 20/11/2020, In: European Journal of Cancer Care. 29, 6, 10 p., e13302.

Research output: Contribution to journal › Journal article › peer-review

Advance care planning in patients with advanced cancer: A 6-country, cluster randomised clinical trial

Korfage, I. J., Dunleavy, L., Payne, S. & Preston, N., 13/11/2020, In: PLoS Medicine. 17, 11, 16 p., e1003422.

Research output: Contribution to journal › Journal article › peer-review

The challenges of caring for people dying from COVID-19: a multinational, observational study of palliative and hospice services (CovPall)

Oluyase, A., Hocaoglu, M., Cripps, R., Maddocks, M., Walshe, C., Fraser, L., Preston, N., Dunleavy, L., Bradshaw, A., Murtagh, F., Bajwah, S., Sleeman, K. & Higginson, I. J., 4/11/2020, In: medRxiv.

Research output: Contribution to journal › Journal article

Understanding and addressing challenges for Advance Care Planning in the COVID-19 pandemic: An analysis of the UK CovPall survey data from specialist palliative care services.

Bradshaw, A., Dunleavy, L., Walshe, C., Preston, N., Cripps, R., Hocaoglu, M., Bajwah, S., Oluyase, A., Maddocks, M., Sleeman, K., Higginson, I., Fraser, L. & Murtagh, F., 30/10/2020, In: medRxiv.

Research output: Contribution to journal › Journal article

Comparison of the experience of caregiving at end of life or in hastened death: A narrative synthesis review

Lowers, J., Scardaville, M., Hughes, S. & Preston, N., 8/10/2020, In: BMC Palliative Care. 19, 16 p., 154.

Research output: Contribution to journal › Journal article › peer-review

The need for early referral to palliative care especially for Black, Asian and minority ethnic groups in a COVID-19 pandemic: Findings from a service evaluation

Chidiac, C., Feuer, D., Flatley, M., Rodgerson, A., Grayson, K. & Preston, N., 1/10/2020, In: Palliative Medicine. 34, 9, p. 1241-1248 8 p.

Research output: Contribution to journal › Journal article › peer-review

Nonparametric Time Series Summary Statistics for High-Frequency Accelerometry Data from Individuals with Advanced Dementia

Suibkitwanchai, K., Sykulski, A., Perez Algorta, G., Waller, D. & Walshe, C., 25/09/2020, In: PLoS ONE. 15, 9, 23 p., e0239368.

Research output: Contribution to journal › Journal article › peer-review

Decreased costs and retained QoL due to the 'PACE Steps to Success' intervention in LTCFs: cost-effectiveness analysis of a randomized controlled trial

Wichmann, A. B., Adang, E. M. M., Vissers, K. C. P., Szczerbińska, K., Kylänen, M., Payne, S., Gambassi, G., Onwuteaka-Philipsen, B. D., Smets, T., Van den Block, L., Deliens, L., Vernooij-Dassen, M. J. F. J., Engels, Y. & group, PACE. T., 22/09/2020, In: BMC Medicine. 18, 1, 9 p., 258.

Research output: Contribution to journal › Journal article › peer-review

Exploring the barriers and gateways to intersubjectivity in dementia care: A meta-ethnography

Hodge, G., Froggatt, K., Limmer, M. & Bingley, A., 20/08/2020, (E-pub ahead of print) In: Journal of Clinical Nursing.

Research output: Contribution to journal › Journal article › peer-review

Peer support to maintain psychological wellbeing in people with advanced cancer: Findings from a feasibility study for a Randomised Controlled Trial

Walshe, C., Roberts, D., Calman, L., Appleton, L., Croft, R., Skevington, S., Lloyd-Williams, M., Grande, G. & Perez Algorta, G., 17/08/2020, In: BMC Palliative Care. 19, 13 p., 129.

Research output: Contribution to journal › Journal article › peer-review

Communication patterns in nurse-led chemotherapy clinics: A mixed-method study

Farrell, C., Chan, E. A., Siouta, E., Walshe, C. & Molassiotis, A., 1/08/2020, In: Patient Education and Counseling. 103, 8, p. 1538-1545 8 p.

Research output: Contribution to journal › Journal article › peer-review

Exploring a New Model of End-of-Life Care for Older People that Operates in the Space Between the Life World and the Healthcare System: A Qualitative Case Study

Dodd, S., Preston, N., Payne, S. & Walshe, C., 1/08/2020, In: International Journal of Health Policy and Management. 9, 8, p. 344-351 8 p.

Research output: Contribution to journal › Journal article › peer-review

Palliative Care Implementation in Long-Term Care Facilities: European Association for Palliative Care White Paper

Froggatt, K., Moore, D. C., Van den Block, L., Ling, J., Payne, S. A., Kylanen, M. & PACE consortium, 1/08/2020, In: Journal of the American Medical Directors Association. 21, 8, p. 1051-1057 7 p.

Research output: Contribution to journal › Journal article › peer-review

Supporting adults bereaved through COVID-19: a rapid review of the impact of previous pandemics on grief and bereavement

Mayland, C. R., Harding, A., Preston, N. & Payne, S., 1/08/2020, In: Journal of Pain and Symptom Management. 60, 2, p. e33-e39 7 p.

Research output: Contribution to journal › Journal article › peer-review

Understanding the Outcomes of Supplementary Support Services in Palliative Care for Older People: A Scoping Review and Mapping Exercise

Dodd, S., Payne, S., Preston, N. & Walshe, C., 1/08/2020, In: Journal of Pain and Symptom Management. 60, 2, p. 449-459 11 p.

Research output: Contribution to journal › Journal article › peer-review

Living with Advanced Chronic Obstructive Pulmonary Disease: A Qualitative Interview Study with Patients and Informal Carers

Fusi-Schmidhauser, T., Froggatt, K. & Preston, N., 3/07/2020, In: COPD. 17, 4, p. 410-418 9 p.

Research output: Contribution to journal › Journal article › peer-review

Conservative Management of COVID-19 Patients—Emergency Palliative Care in Action

Fusi-Schmidhauser, T., Preston, N. J., Keller, N. & Gamondi, C., 1/07/2020, In: Journal of Pain and Symptom Management. 60, 1, p. e27-e30 4 p.

Research output: Contribution to journal › Journal article › peer-review

Protocol for a systematic review on the experience of informal caregivers for people with a moderate to advanced dementia within a domestic home setting

James, C., Walshe, C. & Froggatt, K., 1/07/2020, In: PROSPERO.

Research output: Contribution to journal › Journal article › peer-review

Research priorities in advanced heart failure: James Lind alliance priority setting partnership

Taylor, C., Huntley, A. L., Burden, J., Gadoud, A., Gronlund, T., Jones, N. R., Wicks, E., McKelvie, S., Byatt, K., Lehman, R., King, A., Mumford, B., Feder, G., Mant, J., Hobbs, R. & Johnson, R., 30/06/2020, In: BMJ Open Heart . 7, 1, 9 p., e001258.

Research output: Contribution to journal › Journal article › peer-review

Protocol for a systematic review on the experience of informal caregivers for people with a moderate to advanced dementia within a domestic home setting

James, C., Walshe, C. & Froggatt, K., 19/06/2020, In: BMC Systematic Reviews.

Research output: Contribution to journal › Journal article

Refractory angina is a growing challenge for palliative medicine: a systematic review of non-invasive interventions

Murphy, I., Sivashankar, A. & Gadoud, A., 4/06/2020, (E-pub ahead of print) In: BMJ Supportive and Palliative Care.

Research output: Contribution to journal › Journal article › peer-review

Aims, actions and advance care planning by district nurses providing palliative care: an ethnographic observational study

Walshe, C., 2/06/2020, In: British Journal of Community Nursing. 25, 6, p. 276-286 11 p.

Research output: Contribution to journal › Journal article › peer-review

Ethical and research governance approval across Europe: Experiences from three European palliative care studies

Preston, N., van Delden, J. J. M., Ingravallo, F., Hughes, S., Hasselaar, J., van der Heide, A., Van den Block, L., Dunleavy, L., Groot, M., Csikos, A. & Payne, S., 1/06/2020, In: Palliative Medicine. 34, 6, p. 817-821 5 p.

Research output: Contribution to journal › Journal article › peer-review

It’s not what they were expecting: a systematic review and narrative synthesis of the role and experience of the hospital palliative care volunteer

Bloomer, M. & Walshe, C., 1/05/2020, In: Palliative Medicine. 34, 5, p. 589-604 16 p.

Research output: Contribution to journal › Journal article › peer-review

Strategies for the implementation of palliative care education and organizational interventions in long-term care facilities: A scoping review

PACE, 1/05/2020, In: Palliative Medicine. 34, 5, p. 558-570 13 p.

Research output: Contribution to journal › Review article › peer-review

Digitisation and the Patient-Professional Relationship in Palliative Care

Payne, S., Tanner, M. & Hughes, S., 30/04/2020, In: Palliative Medicine. 34, 4, p. 441-443 3 p.

Research output: Contribution to journal › Editorial › peer-review

Physical restraining of nursing home residents in the last week of life: An epidemiological study in six European countries

PACE consortium, 30/04/2020, In: International Journal of Nursing Studies. 104, 8 p., 103511.

Research output: Contribution to journal › Journal article › peer-review

COVID-19: A personal perspective

Walshe, C., 29/04/2020, (E-pub ahead of print) In: Palliative Medicine. 2 p.

Research output: Contribution to journal › Editorial

Disseminating research findings using a Massive Online Open Course for maximising impact and developing recommendations for practice

Preston, N., Hasselaar, J., Hughes, S., Kaley, A., Linge-Dahl, L., Radvanyi, I., Tubman, P., van Beek, K., Varey, S. & Payne, S., 22/04/2020, In: BMC Palliative Care. 19, 8 p., 54.

Research output: Contribution to journal › Journal article › peer-review

Interventions for the management of malignant pleural effusions: a network meta-analysis

Dipper, A., Jones, H. E., Bhatnagar, R., Preston, N. J., Maskell, N. & Clive, A. O., 21/04/2020, In: Cochrane Database of Systematic Reviews. 4, 310 p., CD010529.

Research output: Contribution to journal › Review article › peer-review

Emergency Palliative Care Planning and Support in a COVID-19 Pandemic

Chidiac, C., Feuer, D., Naismith, J., Flatley, M. & Preston, N., 20/04/2020, (E-pub ahead of print) In: Journal of Palliative Medicine.

Research output: Contribution to journal › Letter › peer-review

Associations between length of stay in long term care facilities and end of life care. Analysis of the pace cross-sectional study

Moore, D. C., Payne, S., Keegan, T., Deliens, L., Smets, T., Gambassi, G., Kylänen, M., Kijowska, V., Onwuteaka-Philipsen, B. & Van den Block, L., 16/04/2020, In: International Journal of Environmental Research and Public Health. 17, 8, 14 p., 2742.

Research output: Contribution to journal › Journal article › peer-review

Do journals contribute to the international publication of research in their field? A bibliometric analysis of palliative care journal data

Walshe, C., Ahmed, F. & Preston, N., 1/04/2020, In: Palliative Medicine. 34, 4, p. 541-546 6 p.

Research output: Contribution to journal › Journal article › peer-review

Medical Aid in Dying, Hastened Death and Suicide: A Qualitative Study of Hospice Professionals' Experiences from Washington State

Gerson, S. M., Preston, N. & Bingley, A., 31/03/2020, In: Journal of Pain and Symptom Management. 59, 3, p. 679-686.e1 8 p.

Research output: Contribution to journal › Journal article › peer-review

Swiss Families' Experiences of Interactions with Providers during Assisted Suicide: A Secondary Data Analysis of an Interview Study

Gamondi, C., Pott, M., Preston, N. & Payne, S., 25/03/2020, In: Journal of Palliative Medicine. 23, 4, p. 506-512 7 p.

Research output: Contribution to journal › Journal article › peer-review

Comfort and clinical events at the end of life of nursing home residents with and without dementia: The six-country epidemiological PACE study

Miranda, R., van der Steen, J. T., Smets, T., Van den Noortgate, N., Deliens, L., Payne, S., Kylänen, M., Szczerbińska, K., Gambassi, G., Van den Block, L. & PACE, O. B. O., 10/03/2020, (E-pub ahead of print) In: International Journal of Geriatric Psychiatry. 9 p.

Research output: Contribution to journal › Journal article › peer-review

Factors Associated with Perception of the Quality of Physicians' End-of-life Communication in Long-Term Care Facilities: PACE Cross-Sectional Study

Barańska, I., Kijowska, V., Engels, Y., Finne-Soveri, H., Froggatt, K., Gambassi, G., Hammar, T., Oosterveld-Vlug, M., Payne, S., Van Den Noortgate, N., Smets, T., Deliens, L., Van den Block, L., Szczerbińska, K., Adang, E., Andreasen, P., Collingridge Moore, D., van Hout, H., Ten Koppel, M., Mammarella, F. & 9 others, Mercuri, M., Onwuteaka-Philipsen, B. D., Pivodic, L., Rossi, P., Sowerby, E., Stodolska, A., Wichmann, A., van der Steen, J. T. & Vernooij-Dassen, M., 1/03/2020, In: Journal of the American Medical Directors Association. 21, 3, p. 439.e1-439.e8 8 p.

Research output: Contribution to journal › Journal article › peer-review

Perception of the Quality of Communication With Physicians Among Relatives of Dying Residents of Long-term Care Facilities in 6 European Countries: PACE Cross-Sectional Study

Baranska, I., Kijowska, V., Engels, Y., Finne-Soveri, H., Froggatt, K., Gambassi, G., Hammar, T., Oosterveld-Vlug, M., Payne, S., Van Den Noortgate, N., Smets, T., Luc, D., Van den Block, L. & Szczerbińska, K., 1/03/2020, In: Journal of the American Medical Directors Association. 21, 3, p. 331-337 7 p.

Research output: Contribution to journal › Journal article › peer-review

European Palliative Sedation Project

Payne, S. A. & Hasselaar, J., 29/02/2020, In: Journal of Palliative Medicine. 23, 2, p. 154-155 2 p.

Research output: Contribution to journal › Editorial › peer-review

Length of stay in long-term care facilities: A comparison of residents in six European countries. Results of the PACE cross-sectional study

Moore, D. C., Payne, S., Keegan, T., Van Den Block, L., Deliens, L., Gambassi, G., Heikkila, R., Kijowska, V., Roeline Pasman, H., Pivodic, L. & Froggatt, K., 29/02/2020, In: BMJ Open. 10, 3, 13 p., e033881.

Research output: Contribution to journal › Journal article › peer-review

International palliative care research priorities: A systematic review

Hasson, F., Nicholson, E., Muldrew, D., Bamidele, O., Payne, S. & McIlfatrick, S., 3/02/2020, In: BMC Palliative Care. 19, 1, 16 p., 16.

Research output: Contribution to journal › Journal article › peer-review

Coping strategies of patients with advanced lung or colorectal cancer in six European countries: Insights from the ACTION Study

Jabbarian, L. J., Korfage, I. J., Červ, B., van Delden, J. J. M., Deliens, L., Miccinesi, G., Payne, S., Thit Johnsen, A., Verkissen, M. N., Wilcock, A., van der Heide, A. & Rietjens, J. A. C., 1/02/2020, In: Psycho-Oncology. 29, 2, p. 347-355 9 p.

Research output: Contribution to journal › Journal article › peer-review

Perspectives of Elders and their Adult Children of Black and Minority Ethnic Heritage on End-of-Life Conversations: A Meta-ethnography

De Souza, J., Froggatt, K., Walshe, C. & Gillett, K., 1/02/2020, In: Palliative Medicine. 34, 2, p. 195-208 14 p.

Research output: Contribution to journal › Journal article › peer-review

A group intervention to improve quality of life for people with advanced dementia living in care homes: the Namaste feasibility cluster RCT

Froggatt, K., Dunleavy, L., Perez Algorta, G., Preston, N. & Walshe, C., 23/01/2020, In: Health Technology Assessment. 24, 6, p. 1-139 139 p.

Research output: Contribution to journal › Journal article › peer-review

Palliative care for non-cancer conditions in primary care: A time trend analysis in the UK (2009-2014)

Gadoud, A., Kane, E., Oliver, S. E., Johnson, M. J., MacLeod, U. & Allgar, V., 13/01/2020, (E-pub ahead of print) In: BMJ Supportive and Palliative Care. 9 p.

Research output: Contribution to journal › Journal article › peer-review

Are the MORECare guidelines on reporting of attrition in palliative care research populations appropriate? A systematic review and meta-analysis of randomised controlled trials

Oriani, A., Dunleavy, L., Sharples, P., Perez Algorta, G. & Preston, N. J., 9/01/2020, In: BMC Palliative Care. 19, 1, p. 6 15 p.

Research output: Contribution to journal › Journal article › peer-review

The perception of barriers concerning opioid medicines: A survey examining differences between policy makers, healthcare professionals and other stakeholders

Vranken, M. J. M., Linge-Dahl, L., Mantel-Teeuwisse, A. K., Radbruch, L., Schutjens, M-HDB., Scholten, W., Payne, S. & Jünger, S., 23/12/2019, (E-pub ahead of print) In: Palliative Medicine. 11 p.

Research output: Contribution to journal › Journal article › peer-review

Evaluating the implementation of the PACE Steps to Success Programme in long-term care facilities in seven countries according to the RE-AIM framework

Oosterveld-Vlug, M., Onwuteaka-Philipsen, B., Ten Koppel, M., Van Hout, H., Smets, T., Pivodic, L., Tanghe, M., Van Den Noortgate, N., Hockley, J., Payne, S., Moore, D. C., Kijowska, V., Szczerbińska, K., Kylänen, M., Leppaäho, S., Mercuri, C., Rossi, P., Mercuri, M., Gambassi, G., Bassal, C. & 5 others, De Paula, E. M., Engels, Y., Deliens, L., Van Den Block, L. & Pasman, H. R., 19/12/2019, In: Implementation Science. 14, 1, 19 p., 107.

Research output: Contribution to journal › Journal article › peer-review

Telehealth in palliative care is being described but not evaluated: A systematic review

Hancock, S., Preston, N., Jones, H. & Gadoud, A., 13/12/2019, In: BMC Palliative Care. 18, 1, 15 p., 114.

Research output: Contribution to journal › Journal article › peer-review

‘A friend in the corner’: supporting people at home in the last year of life via telephone and video consultation—an evaluation

Middleton-Green, L., Gadoud, A., Norris, B., Sargeant, A. R., Nair, S., Wilson, L., Livingstone, H. & Small, N., 1/12/2019, In: BMJ Supportive and Palliative Care. 9, 4, 7 p., e26.

Research output: Contribution to journal › Journal article › peer-review

What are the main symptoms and concerns reported by patients with advanced chronic heart failure? — A secondary analysis of the palliative care outcome scale (POS) and integrated palliative care outcome scale (IPOS)

Oriani, A., Guo, P., Gadoud, A., Dunleavy, L., Kane, P. & Murtagh, F. E. M., 30/11/2019, In: Annals of Palliative Medicine. 8, 5, p. 775-780 6 p.

Research output: Contribution to journal › Journal article › peer-review

Evaluation of a Palliative Care Program for Nursing Homes in 7 Countries: The PACE Cluster-Randomized Clinical Trial

Van Den Block, L., Honinx, E., Pivodic, L., Miranda, R., Onwuteaka-Philipsen, B. D., Van Hout, H., Pasman, H. R. W., Oosterveld-Vlug, M., Ten Koppel, M., Piers, R., Van Den Noortgate, N., Engels, Y., Vernooij-Dassen, M., Hockley, J., Froggatt, K., Payne, S., Szczerbińska, K., Kylänen, M., Gambassi, G., Pautex, S. & 4 others, Bassal, C., De Buysser, S., Deliens, L. & Smets, T., 11/11/2019, In: JAMA Internal Medicine. 180, 2, p. 233-242 10 p.

Research output: Contribution to journal › Journal article › peer-review

Agreement of Nursing Home Staff With Palliative Care Principles: A PACE Cross-sectional Study Among Nurses and Care Assistants in Five European Countries

Honinx, E., Smets, T., Piers, R., Deliens, L., Payne, S., Kylänen, M., Barańska, I., Pasman, H. R. W., Gambassi, G., Van den Block, L., Gatsolaeva, Y., Miranda, R., Pivodic, L., Tanghe, M., van Hout, H., Van Den Noortgate, N., Froggatt, K., Onwuteaka-Philipsen, B., Szczerbińska, K., Oosterveld-Vlug, M. & 21 others, Wichmann, A. B., Engels, Y., Vernooij-Dassen, M., Hockley, J., Leppäaho, S., Pautex, S., Bassal, C., Mammarella, F., Mercuri, M., Rossi, P., Segat, I., Stodolska, A., Adang, E., Andreasen, P., Kuitunen-Kaija, O., Moore, D. C., Pac, A., Kijowska, V., Koppel, M. T., van der Steen, J. T. & Morgan de Paula, E., 1/11/2019, In: Journal of Pain and Symptom Management. 58, 5, p. 824-834 11 p.

Research output: Contribution to journal › Journal article › peer-review

Trained facilitators' experiences with structured advance care planning conversations in oncology: an international focus group study within the ACTION trial

ACTION Consortium, 31/10/2019, In: BMC Cancer. 19, 1, 13 p., 1026.

Research output: Contribution to journal › Journal article › peer-review

A framework for cross-cultural development and implementation of complex interventions to improve palliative care in nursing homes: the PACE steps to success programme

Hockley, J., Froggatt, K., Van den Block, L., Onwuteaka-Philipsen, B., Kylänen, M., Szczerbińska, K., Gambassi, G., Pautex, S. & Payne, S. A., 24/10/2019, In: BMC Health Services Research. 19, 1, 11 p., 745.

Research output: Contribution to journal › Journal article › peer-review

A four-stage process for intervention description and guide development of a practice based intervention: refining the Namaste Care intervention implementation specification for people with advanced dementia prior to a feasibility cluster randomised trial

Walshe, C., Kinley, J., Patel, S., Goodman, C., Bunn, F., Lynch, J., Scott, D., Davidson Lund, A., Stacpoole, M., Preston, N. & Froggatt, K., 21/10/2019, In: BMC Geriatrics. 19, 11 p., 275.

Research output: Contribution to journal › Journal article › peer-review

Palliative care provision in long-term care facilities differs across Europe: Results of a cross-sectional study in six European countries (PACE)

ten Koppel, M., Onwuteaka-Philipsen, B. D., Van den Block, L., Deliens, L., Gambassi, G., Heymans, M. W., Kylänen, M., Oosterveld-Vlug, M. G., Pasman, H. R. W., Payne, S., Smets, T., Szczerbińska, K., Twisk, J. W. R., van der Steen, J. T., De Groote, Z., Mammarella, F., Mercuri, M., Pivodic, L., Pac, A., Rossi, P. & 14 others, Segat, I., Sowerby, E., Stodolska, A., van Hout, H., Wichmann, A., Adang, E., Andreasen, P., Finne-Soveri, H., Collingridge Moore, D., Froggatt, K., Kijowska, V., Van Den Noortgate, N., Vernooij-Dassen, M. & PACE, O. B. O., 1/10/2019, In: Palliative Medicine. 33, 9, p. 1176-1188 13 p.

Research output: Contribution to journal › Journal article › peer-review

Family members' experiences of assisted dying: A systematic literature review with thematic synthesis

Gamondi, C., Fusi-Schmidhauser, T., Oriani, A., Payne, S. & Preston, N., 1/09/2019, In: Palliative Medicine. 33, 8, p. 1091-1105 15 p.

Research output: Contribution to journal › Journal article › peer-review

When is hastened death considered suicide? a systematically conducted literature review about palliative care professionals' experiences where assisted dying is legal

Gerson, S. M., Bingley, A., Preston, N. & Grinyer, A., 31/08/2019, In: BMC Palliative Care. 18, 1, 13 p., 75.

Research output: Contribution to journal › Journal article › peer-review

Dying in long-term care facilities in Europe: The PACE epidemiological study of deceased residents in six countries

Honinx, E., Van Dop, N., Smets, T., Deliens, L., Van Den Noortgate, N., Froggatt, K., Gambassi, G., Kylänen, M., Onwuteaka-Philipsen, B., Szczerbińska, K., Van Den Block, L., Gatsolaeva, Y., Miranda, R., Pivodic, L., Tanghe, M., Van Hout, H., Pasman, R. H. R. W., Oosterveld-Vlug, M., Piers, R., Wichmann, A. B. & 22 others, Engels, Y., Vernooij-Dassen, M., Hockley, J., Payne, S., Leppäaho, S., Barańska, I., Pautex, S., Bassal, C., Mammarella, F., Mercuri, M., Rossi, P., Segat, I., Stodolska, A., Adang, E., Andreasen, P., Kuitunen-Kaija, O., Moore, D. C., Pac, A., Kijowska, V., Ten Koppel, M., Van Der Steen, J. T. & De Paula, E. M., 30/08/2019, In: BMC Public Health. 19, 1, 12 p., 1199.

Research output: Contribution to journal › Journal article › peer-review

Consensus on treatment for residents in long-term care facilities: Perspectives from relatives and care staff in the PACE cross-sectional study in 6 European countries

Ten Koppel, M., Pasman, H. R. W., Van Der Steen, J. T., Van Hout, H. P. J., Kylänen, M., Van Den Block, L., Smets, T., Deliens, L., Gambassi, G., Froggatt, K., Szczerbińska, K., Onwuteaka-Philipsen, B. D., De Groote, Z., Pivodic, L., Mammarella, F., Mercuri, M., Oosterveld-Vlug, M., Pac, A., Rossi, P., Segat, I. & 11 others, Sowerby, E., Stodolska, A., Wichmann, A., Adang, E., Andreasen, P., Finne-Soveri, H., Payne, S., Moore, D. C., Kijowska, V., Van Den Noortgate, N. & Vernooij-Dassen, M., 29/08/2019, In: BMC Palliative Care. 18, 1, 11 p., 73.

Research output: Contribution to journal › Journal article › peer-review

Research, recruitment and observational data collection in care homes: Lessons from the PACE study

Moore, D. C., Payne, S., Van Den Block, L., Ten Koppel, M., Szczerbińska, K., Froggatt, K. & PACE consortium, 14/08/2019, In: BMC Research Notes. 12, 1, 6 p., 508.

Research output: Contribution to journal › Journal article › peer-review

Care home life and identity: A qualitative case study

Paddock, K., Brown Wilson, C., Walshe, C. E. & Todd, C., 1/08/2019, In: The Gerontologist. 59, 4, p. 655-664 10 p.

Research output: Contribution to journal › Journal article › peer-review

A theoretical framework of the factors affecting the end‐of‐life trajectory and provision of end‐of‐life care for people with intellectual disabilities (ID)

Tuffrey-Wijne, I., Todd, S., Hatton, C., Glover, G., Heslop, P., Brearley, S., Hunt, K., Finlay, I. & Hollins, S., 1/07/2019, In: Journal of Intellectual Disability Research. 63, 7, p. 651-651 1 p.

Research output: Contribution to journal › Meeting abstract › peer-review

Forgotten lives, hidden Deaths: people with ID living in and dying in non‐ID care settings

Todd, S., Bernal, J., Hunt, K., Brearley, S. & McCarron, M., 1/07/2019, In: Journal of Intellectual Disability Research. 63, 7, p. 646-646 1 p.

Research output: Contribution to journal › Meeting abstract › peer-review

Communicative constructions of person-centred and non-person-centred caring in nurse-led consultations

Farrell, C., Walshe, C. E., Molassiotis, A. & Siouta, E., 1/06/2019, In: European Journal of Oncology Nursing. 40, p. 10–21 12 p.

Research output: Contribution to journal › Journal article › peer-review

Perceptions of a Good Death in Children with Life-Shortening Conditions: An Integrative Review

Chong, P. H., Walshe, C. & Hughes, S., 1/06/2019, In: Journal of Palliative Medicine. 22, 6, p. 714-723 10 p.

Research output: Contribution to journal › Journal article › peer-review

Physician Visits and Recognition of Residents' Terminal Phase in Long-Term Care Facilities: Findings From the PACE Cross-Sectional Study in 6 EU Countries

PACE, 1/06/2019, In: Journal of the American Medical Directors Association. 20, 6, p. 696-702.e1 7 p.

Research output: Contribution to journal › Journal article › peer-review

Advance directives in European long-term care facilities: A cross-sectional survey

Andreasen, P., Finne-Soveri, U. H., Deliens, L., Van Den Block, L., Payne, S., Gambassi, G., Onwuteaka-Philipsen, B. D., Smets, T., Lilja, E., Kijowska, V. & Szczerbińska, K., 21/05/2019, (E-pub ahead of print) In: BMJ Supportive and Palliative Care. 10 p.

Research output: Contribution to journal › Journal article › peer-review

Responses to assisted suicide requests: an interview study with Swiss palliative care physicians

Gamondi, C., Borasio, G. D., Oliver, P., Preston, N. & Payne, S., 1/03/2019, In: BMJ Supportive and Palliative Care. 9, 1, p. e7 10 p., e7.

Research output: Contribution to journal › Journal article › peer-review

Palliative Care Provision for Patients with Advanced Chronic Obstructive Pulmonary Disease: A Systematic Integrative Literature Review

Fusi-Schmidhauser, T., Riglietti, A., Froggatt, K. & Preston, N., 4/02/2019, In: COPD. 15, 6, p. 600-611 12 p.

Research output: Contribution to journal › Journal article › peer-review

How grandparents experience the death of a grandchild with a life-limiting condition

Tatterton, M. & Walshe, C. E., 1/02/2019, In: Journal of Family Nursing. 25, 1, p. 109-127 19 p.

Research output: Contribution to journal › Journal article › peer-review

Opioid, antipsychotic and hypnotic use in end of life in long-term care facilities in six European countries: results of PACE

Tanghe, M., Van Den Noortgate, N., Pivodic, L., Deliens, L., Onwuteaka-Philipsen, B., Szczerbinska, K., Finne-Soveri, H., Collingridge-Moore, D., Gambassi, G., Van den Block, L. & Piers, R., 1/02/2019, In: European Journal of Public Health. 29, 1, p. 74–79 6 p.

Research output: Contribution to journal › Journal article › peer-review

Case series and practice reviews: Dregs at the bottom of the evidence pile or an essential link between frontline practice and research?

Yardley, S., Pereira, S. M. & Walshe, C., 01/2019, In: Palliative Medicine. 33, 1, p. 3-4 2 p.

Research output: Contribution to journal › Editorial

The experiences of family caregivers of people with advanced dementia living in nursing homes, with a specific focus on spouses: a narrative literature review

Hennings, J. & Froggatt, K. A., 01/2019, In: Dementia. 18, 1, p. 303-322 20 p.

Research output: Contribution to journal › Journal article › peer-review

Improving living and dying for people with advanced dementia living in care homes: a realist review of Namaste Care and other multisensory interventions

Bunn, F., Lynch, J., Sharpe, R., Goodman, C., Walshe, C. E., Preston, N. J. & Froggatt, K. A., 6/12/2018, In: BMC Geriatrics. 18, 303, 15 p., 303.

Research output: Contribution to journal › Journal article › peer-review

"We call it jail craft": the erosion of the protective discourses drawn on by prison officers dealing with ageing and dying prisoners in the neoliberal, carceral system

Peacock, M., Turner, M. & Varey, S., 1/12/2018, In: Sociology. 52, 6, p. 1152-1168 17 p.

Research output: Contribution to journal › Journal article › peer-review

Namaste Care in nursing care homes with people with advanced dementia: protocol for a feasibility randomised controlled trial

Froggatt, K. A., Patel, S., Perez Algorta, G. D., Bunn, F., Burnside, G., Coast, J., Dunleavy, L. J., Hardwick, B., Kinley, J., Preston, N. J. & Walshe, C. E., 25/11/2018, In: BMJ Open. 8, 11 p., 026531.

Research output: Contribution to journal › Journal article › peer-review

Loneliness as a risk factor for care home admission in the English Longitudinal Study of Ageing

Hanratty, B., Stow, D., Collingridge Moore, D., Valtorta, N. K. & Matthews, F., 1/11/2018, In: Age and Ageing. 47, 6, p. 896-900 5 p.

Research output: Contribution to journal › Journal article › peer-review

Quality of life trends in people with and without cancer referred to volunteer provided palliative care services (ELSA): A longitudinal study

Walshe, C. E., Preston, N. J., Payne, S. A., Dodd, S. R. & Perez Algorta, G. D., 11/2018, In: Journal of Pain and Symptom Management. 56, 5, p. 689-698 10 p.

Research output: Contribution to journal › Journal article › peer-review

Clear, simple, precise, meaningful: A quick guide to writing for publication

Walshe, C. E., 15/10/2018, In: Indian Journal of Palliative Care. 24, 4, p. 391-392 2 p.

Research output: Contribution to journal › Editorial

Peer support for people with advanced cancer: a systematically constructed scoping review of quantitative and qualitative evidence

Walshe, C. E. & Roberts, D., 1/09/2018, In: Current Opinion in Supportive and Palliative Care. 12, 3, p. 308-322 15 p.

Research output: Contribution to journal › Journal article › peer-review

Ageing and dying in the contemporary neoliberal prison system: exploring the 'double burden' for older prisoners

Turner, M., Peacock, M., Payne, S. A., Fletcher, A. & Froggatt, K. A., 09/2018, In: Social Science and Medicine. 212, p. 161-167 7 p.

Research output: Contribution to journal › Journal article › peer-review

'Being with' or 'doing for'? How the role of an end-of-life volunteer befriender can impact patient wellbeing: interviews from a multiple qualitative case study (ELSA)

Dodd, S. R., Hill, M., Ockenden, N., Perez Algorta, G. D., Payne, S. A., Preston, N. J. & Walshe, C. E., 09/2018, In: Supportive Care in Cancer. 26, 9, p. 3163-3172 10 p.

Research output: Contribution to journal › Journal article › peer-review

A philosophical critique of the UK’s National Institute for Health and Care Excellence guideline ‘Palliative care for adults: strong opioids for pain relief’

Fearon, D., Hughes, S. & Brearley, S. G., 1/08/2018, In: British Journal of Pain. 12, 3, p. 183-188 6 p.

Research output: Contribution to journal › Journal article › peer-review

Integrated palliative care networks from the perspectives of patients: A cross-sectional explorative study in five European countries

den Herder-van der Eerden, M., Ebenau, A., Payne, S., Preston, N., Radbruch, L., Linge-Dahl, L., Csikos, A., Busa, C., Van Beek, K., Groot, M., Vissers, K. & Hasselaar, J., 1/06/2018, In: Palliative Medicine. 32, 6, p. 1103-1113 11 p.

Research output: Contribution to journal › Journal article › peer-review

The Experience of Adolescents and Young Adults Treated for Cancer in an Adult Setting: A Review of the Literature

Marshall, S., Grinyer, A. & Limmer, M., 1/06/2018, In: Journal of Adolescent and Young Adult Oncology. 7, 3

Research output: Contribution to journal › Journal article › peer-review

Facilitation of an end-of-life care programme into practice within UK nursing care homes: a mixed-methods study

Kinley, J., Froggatt, K. A. & Preston, N. J., 06/2018, In: International Journal of Nursing Studies. 82, p. 1-10 10 p.

Research output: Contribution to journal › Journal article › peer-review

Family carers’ experiences of coping 
with the deaths of adults in home settings: A narrative analysis of carers’ relevant background worries

Thomas, C. J., Turner, M., Payne, S. A., Milligan, C., Brearley, S. G., Seamark, D., Wang, X. & Blake, S., 1/05/2018, In: Palliative Medicine. 32, 5, p. 950-959 10 p.

Research output: Contribution to journal › Journal article › peer-review

Using the 'Social Marketing Mix Framework' to explore recruitment barriers and facilitators in palliative care randomised controlled trials? A narrative synthesis review

Dunleavy, L., Walshe, C., Oriani, A. & Preston, N., 1/05/2018, In: Palliative Medicine. 32, 5, p. 990-1009 20 p.

Research output: Contribution to journal › Journal article › peer-review

Advanced heart failure: setting the research agenda

Taylor, C., Huntley, A., Gadoud, A., Lehman, R., Brice, M., Nicholas, R., Jones, FD., Hobbs, R., Feder, G., Mant, J., R, J. & Alliance, J. L., 05/2018, In: British Journal of Cardiac Nursing . 13, 5, p. 243 1 p.

Research output: Contribution to journal › Journal article

The views of adults with Huntington’s disease on assisted dying: a qualitative exploration

Regan, L., Preston, N. J., Eccles, F. J. R. & Simpson, J., 1/04/2018, In: Palliative Medicine. 32, 4, p. 708-715 8 p.

Research output: Contribution to journal › Journal article › peer-review

Family caregivers' reflections on experiences of assisted suicide in Switzerland: a qualitative interview study

Gamondi, C., Pott, M., Preston, N. & Payne, S., 04/2018, In: Journal of Pain and Symptom Management. 55, 4, p. 1085-1094 10 p.

Research output: Contribution to journal › Journal article › peer-review

Integrating palliative care in long-term care facilities across Europe (PACE): Protocol of a cluster randomized controlled trial of the 'PACE Steps to Success' intervention in seven countries

Smets, T., Onwuteaka-Philipsen, B. D., Miranda, R., Pivodic, L., Tanghe, M., van Hout, H., Pasman, H. R. W., Oosterveld-Vlug, M., Piers, R., Van Den Noortgate, N., B Wichmann, A., Engels, Y., Vernooij-Dassen, M., Hockley, J., Froggatt, K. A., Payne, S. A., Szczerbińska, K., Kylanen, M., Leppaaho, S., Baranska, I. & 5 others, Gambassi, G., Pautex, S., Bassal, C., Deliens, L. & Van den Block, L., 12/03/2018, In: BMC Palliative Care. 17, 11 p., 47.

Research output: Contribution to journal › Journal article › peer-review

“Never at ease” – family carers within integrated palliative care: a multinational, mixed method study

Ateş, G., Ebenau, A., Busa, C., Csikos, A., Hasselaar, J., Jaspers, B., Menten, J., Payne, S., van Beek, K., Varey, S., Groot, M. & Radbruch, L., 1/03/2018, In: BMC Palliative Care. 17, 11 p., 39.

Research output: Contribution to journal › Journal article › peer-review

Developing a study intervention: a realist review and consensus workshops to develop the namaste care intervention for people with advanced dementia prior to a feasibility study using a cluster randomised controlled trial in nursing care homes

Walshe, C. E., Preston, N. J., Patel, S. & Froggatt, K. A., 1/03/2018, In: BMJ Supportive and Palliative Care. 8, p. A27-A28 2 p.

Research output: Contribution to journal › Meeting abstract › peer-review

Effectiveness of advance care planning with family carers in dementia nursing homes: a paired cluster randomized controlled trial

Brazil, K., Carter, G., Cardwell, C. R., Clarke, M., Hudson, P., Froggatt, K. A., McLaughlin, D., Passmore, P. & Kernohan, G., 1/03/2018, In: Palliative Medicine. 32, 3, p. 603-612 10 p.

Research output: Contribution to journal › Journal article › peer-review

How effective and cost effective are innovative combinatorial technologies and practices for supporting older people with long-term conditions to remain well in the community? An evaluation protocol for an NHS Test Bed in North West England

Varey, S. E., Hernandez Huerta, M. A., Palmer, T. M., Mateus, C., Wilkinson, J., Dixon, M. P. & Milligan, C., 28/02/2018, In: BMJ Open. 8, 2, 10 p., e017268.

Research output: Contribution to journal › Journal article › peer-review

Integrated palliative care is about professional networking rather than standardisation of care: A qualitative study with healthcare professionals in 19 integrated palliative care initiatives in five European countries

den Herder-van der Eerden, M., van Wijngaarden, J., Payne, S., Preston, N., Linge-Dahl, L., Radbruch, L., Van Beek, K., Menten, J., Busa, C., Csikos, A., Vissers, K., van Gurp, J. & Hasselaar, J., 13/02/2018, (E-pub ahead of print) In: Palliative Medicine. 12 p.

Research output: Contribution to journal › Journal article › peer-review

A revised model for coping with advanced cancer. Mapping concepts from a longitudinal qualitative study of patients and carers coping with advanced cancer onto Folkman and Greer’s theoretical model of appraisal and coping

Roberts, D., Calman, L., Large, P., Appleton, L., Grande, G., Lloyd-Williams, M. & Walshe, C. E., 01/2018, In: Psycho-Oncology. 27, 1, p. 229-235 7 p.

Research output: Contribution to journal › Journal article › peer-review

Family involvement in timely detection of changes in health of nursing homes residents: a qualitative exploratory study

Powell, C., Blighe, A., Froggatt, K. A., McCormack, B., Woodward-Carlton, B., Young, J., Robinson, L. & Downs, M., 01/2018, In: Journal of Clinical Nursing. 27, 1-2, p. 317-327 11 p.

Research output: Contribution to journal › Journal article › peer-review

Final transitions to place of death: Patients and families wishes

EURO-IMPACT, 1/12/2017, In: Journal of Public Health (United Kingdom). 39, 4, p. e302-e311 10 p.

Research output: Contribution to journal › Journal article › peer-review

How continuity of care is experienced within the context of integrated palliative care: a qualitative study with patients and family caregivers in five European countries

den Herder-van der Eerden, M., Hasselaar, J., Payne, S., Varey, S., Schwabe, S., Radbruch, L., van Beek, K., Menten, J., Busa, C., Csikos, A., Vissers, K. & Groot, M., 1/12/2017, In: Palliative Medicine. 31, 10, p. 946-955 10 p.

Research output: Contribution to journal › Journal article › peer-review

Outcomes, measurement and effectiveness. Lessons from a pragmatic randomised wait-list trial of volunteer support in palliative care (ELSA)

Walshe, C. E., Dodd, S. R., Hill, M., Ockenden, N., Payne, S. A., Preston, N. J. & Perez Algorta, G. D., 1/12/2017, In: Omsorg. The Norwegian Journal of Palliative Medicine. 34, 4, p. 58-60 3 p.

Research output: Contribution to journal › Journal article › peer-review

Looking forwards to 2018 in Palliative Medicine

Walshe, C., 12/2017, In: Palliative Medicine. 31, 10, p. 880-881 2 p.

Research output: Contribution to journal › Editorial

Enhancing integrated palliative care: what models are appropriate? A cross-case analysis

Payne, S. A., Hughes, S., Varey, S. E., Hasselaar, J., Preston, N. J. & Eastham, R. K., 28/11/2017, In: BMC Palliative Care. 16, 64, 10 p.

Research output: Contribution to journal › Journal article › peer-review

Is the content of guidelines/pathways a barrier for the integration of palliative Care in Chronic Heart Failure (CHF) and chronic pulmonary obstructive disease (COPD)? A comparison with the case of cancer in Europe

Siouta, N., Van Beek, K., Payne, S., Radbruch, L., Preston, N., Hasselaar, J., Centeno, C. & Menten, J., 28/11/2017, In: BMC Palliative Care. 16, 1, 8 p., 62.

Research output: Contribution to journal › Journal article › peer-review

The views of adults with neurodegenerative diseases on end-of-life care: a metasynthesis

Regan, L., Preston, N. J., Eccles, F. J. R. & Simpson, J., 6/11/2017, (E-pub ahead of print) In: Aging and Mental Health. 9 p.

Research output: Contribution to journal › Journal article › peer-review

Cancer-related pain management: a review of knowledge and attitudes of healthcare professionals

Kasasbeh, M. A. M., McCabe, C. & Payne, S. A., 11/2017, In: European Journal of Cancer Care. 26, 6, 7 p., e12625.

Research output: Contribution to journal › Journal article › peer-review

Hospice volunteers: bridging the gap to the community?

Morris, S., Payne, S., Ockenden, N. & Hill, M., 11/2017, In: Health and Social Care in the Community. 25, 6, p. 1704-1713 10 p.

Research output: Contribution to journal › Journal article › peer-review

Using the Ecological Framework to identify barriers and enablers to implementing Namaste Care in Canada’s long-term care system

Hunter, P., Kaasalainen, S., Froggatt, K. A., Ploeg, J., Dolovich, L., Simard, J. & Salsali, M., 1/10/2017, In: Annals of Palliative Medicine. 6, 4, p. 340-353 14 p.

Research output: Contribution to journal › Journal article › peer-review

‘Powerlessness’ or ‘doing the right thing’ moral distress amongst nursing home staff caring for residents at the end of life: An interpretive descriptive study

Young, A., Froggatt, K. A. & Brearley, S. G., 10/2017, In: Palliative Medicine. 31, 9, p. 853-860 8 p.

Research output: Contribution to journal › Journal article › peer-review

Guidance on Conducting and REporting DElphi Studies (CREDES) in palliative care: Recommendations based on a methodological systematic review

Jünger, S., Payne, S., Brine, J., Radbruch, L. & Brearley, S., 1/09/2017, In: Palliative Medicine. 31, 8, p. 684-706 23 p.

Research output: Contribution to journal › Journal article › peer-review

International variations in clinical practice guidelines for palliative sedation: A systematic review

on behalf of EURO IMPACT, 1/09/2017, In: BMJ Supportive and Palliative Care. 7, 3, p. 223-229 7 p.

Research output: Contribution to journal › Review article › peer-review

A pilot study of interprofessional palliative care education of medical students in the UK and USA

Gadoud, A., Lu, W-H., Strano-Paul, L., Lane, S. & Boland, J. W., 23/07/2017, In: BMJ Supportive and Palliative Care. 7 p.

Research output: Contribution to journal › Journal article › peer-review

Ward social workers’ views of what facilitates or hinders collaboration with specialist palliative care team social workers: a grounded theory

Firn, J., Preston, N. J. & Walshe, C. E., 14/07/2017, In: BMC Palliative Care. 17, 12 p., 7.

Research output: Contribution to journal › Journal article › peer-review

Palliative care development in European care homes and nursing homes: application of a typology of implementation

Froggatt, K. A., Payne, S. A., Morbey, H., Edwards, M. J., Finne-Soveri, H., Gambassi, G., Pasman, H. R., Szczerbińska, K. & Van den Block, L., 1/06/2017, In: Journal of the American Medical Directors Association. 18, 6, p. 550.e7-550.e14 8 p.

Research output: Contribution to journal › Journal article › peer-review

Are nurse-led chemotherapy clinics really nurse-led? an ethnographic study

Farrell, C., Walshe, C. E. & Molassiotis, A., 04/2017, In: International Journal of Nursing Studies. 69, p. 1-8 8 p.

Research output: Contribution to journal › Journal article › peer-review

The online use of Violence and Journey metaphors by patients with cancer, as compared with health professionals: a mixed methods study

Semino, E., Demjen, Z., Demmen, J., Koller, V., Payne, S., Hardie, A. & Rayson, P., 1/03/2017, In: BMJ Supportive and Palliative Care. 7, 1, p. 60-66 7 p.

Research output: Contribution to journal › Journal article › peer-review

Coping well with advanced cancer: a serial qualitative interview study with patients and family carers

Walshe, C. E., Roberts, D., Appleton, L., Calman, L., Large, P., Lloyd-Williams, M. & Grande, G., 20/01/2017, In: PLoS ONE. 12, 1, 25 p., e0169071.

Research output: Contribution to journal › Journal article › peer-review

Palliative care research: state of play and journal direction

Walshe, C. E., 6/01/2017, In: Palliative Medicine. 31, 1, p. 3-4 2 p.

Research output: Contribution to journal › Editorial

Palliative care in UK prisons: practical and emotional challenges for staff and fellow prisoners

Turner, M. & Peacock, M., 01/2017, In: Journal of Correctional Health Care. 23, 1, p. 56-65 10 p.

Research output: Contribution to journal › Journal article › peer-review

Public health, research and rights: the perspectives of deliberation panels with politically and socially active disabled people

Berghs, M., Atkin, K., Graham, H., Hatton, C. & Thomas, C., 2017, In: Disability and Society. 32, 7, p. 945-965 21 p.

Research output: Contribution to journal › Journal article › peer-review

Erratum to Protocol for the End-of-Life Social Action Study (ELSA): a randomised wait-list controlled trial and embedded qualitative case study evaluation assessing the causal impact of social action befriending services on end of life experience (vol 15, 60, 2016)

Walshe, C., Algorta, G. P., Dodd, S., Papavasiliou, E., Hill, M., Ockenden, N., Payne, S. & Preston, N., 29/12/2016, In: BMC Palliative Care. 15, 1 p., 98.

Research output: Contribution to journal › Journal article › peer-review

How effective are volunteers at supporting people in their last year of life? a pragmatic randomised wait-list trial in palliative care (ELSA)

Walshe, C. E., Dodd, S. R., Hill, M., Ockenden, N., Payne, S. A., Preston, N. J. & Perez Algorta, G. D., 9/12/2016, In: BMC Medicine. 14, 12 p., 203.

Research output: Contribution to journal › Journal article › peer-review

Palliative care interventions in advanced dementia (Review)

Murphy, E., Froggatt, K. A., Connolly, S., O'Shea, E., Sampson, E., Casey, D. & Devane, D., 2/12/2016, In: Cochrane Database of Systematic Reviews. 12, 50 p., CD011513.

Research output: Contribution to journal › Journal article › peer-review

Medical students writing on death, dying and palliative care: a qualitative analysis of reflective essays

Boland, J. W., Dikomitis, L. & Gadoud, A., 1/12/2016, In: BMJ Supportive and Palliative Care. 6, p. 486-492 7 p.

Research output: Contribution to journal › Journal article › peer-review

Language barriers to defining concepts in medicine: the case of palliative sedation

Bakogiannis, A. & Papavasiliou, E., 11/2016, In: American Journal of Hospice and Palliative Medicine. 33, 9, p. 909-910 2 p.

Research output: Contribution to journal › Journal article › peer-review

Cochrane corner: interventions for the management of malignant pleural effusions

Clive, A., Bhatnagar, R., Preston, N. J., Maskell, N. & Jones, H. E., 31/10/2016, In: Thorax. 71, 10, p. 964-966 3 p.

Research output: Contribution to journal › Journal article › peer-review

Online learning in palliative care: does it improve practice?

Hughes, S., Preston, N. J. & Payne, S. A., 09/2016, In: European Journal of Palliative Care. 23, 5, p. 236-239 4 p.

Research output: Contribution to journal › Journal article

Benefits of interventions for respiratory secretion management in adult palliative care patients-a systematic review

Arcuri, J. F., Abarshi, E., Preston, N. J., Brine, J. & Pires Di Lorenzo, V. A., 9/08/2016, In: BMC Palliative Care. 15, 11 p., 74.

Research output: Contribution to journal › Journal article › peer-review

Verwendung der Delphi-Technik zur Entwicklung von Best-Practice-Leitlinien in der Palliativversorgung: eine methodologische systematische Übersichtsarbeit

Jünger, S., Payne, S. A., Brine, J. J., Radbruch, L. & Brearley, S. G., 08/2016, In: Zeitschrift für Palliativmedizin. 17, 5, p. 174 1 p.

Research output: Contribution to journal › Meeting abstract › peer-review

Protocol for the End-of-Life Social Action Study (ELSA): a randomised wait-list controlled trial and embedded qualitative case study evaluation assessing the causal impact of social action befriending services on end of life experience

Walshe, C. E., Perez Algorta, G. D., Dodd, S. R., Hill, M., Ockenden, N., Payne, S. A. & Preston, N. J., 13/07/2016, In: BMC Palliative Care. 15, 9 p., 60.

Research output: Contribution to journal › Journal article › peer-review

Integrated palliative care in Europe: a qualitative systematic literature review of empirically-tested models in cancer and chronic disease

Siouta, N., van Beek, K., van der Eerden, M., Preston, N. J., Hasselaar, J., Hughes, S., Garralda, E., Centeno, C., Csikos, A., Groot, M., Radbruch, L., Payne, S. A. & Menten, J., 8/07/2016, In: BMC Palliative Care. 15, 56, 16 p.

Research output: Contribution to journal › Journal article › peer-review

Comparing palliative care in care homes across Europe (PACE): protocol of a cross-sectional study of deceased residents in six EU countries

Van den Block, L., Smets, T., van Dop, N., Adang, E., Andreasen, P., Collingridge Moore, D., Engels, Y., Finne-Soveri, H., Froggatt, K. A., Payne, S. A. & Sowerby, E., 1/06/2016, In: Journal of the American Medical Directors Association. 17, 6, p. 566.e1-566.e7 7 p.

Research output: Contribution to journal › Journal article › peer-review

ELSA: a randomised wait-list controlled trial and embedded qualitative case study evaluation assessing the causal impact of social action services on end of life experience

Walshe, C. E., Dodd, S. R., Hill, M., Ockenden, N., Perez Algorta, G. D., Payne, S. A. & Preston, N. J., 06/2016, In: Palliative Medicine. 30, 6, 1 p., NP1-NP401.

Research output: Contribution to journal › Meeting abstract

Who accesses befriending services near the end of life? baseline results from a wait-list controlled trial (ELSA) of a volunteer befriending service in the last year of life

Walshe, C. E., Payne, S. A., Preston, N. J., Perez Algorta, G. D., Dodd, S. R., Ockenden, N. & Hill, M., 06/2016, In: Palliative Medicine. 30, 6, 1 p.

Research output: Contribution to journal › Meeting abstract › peer-review

Working with non-clinical staff to deliver research: lessons from running a wait-list controlled trial (ELSA) of a volunteer befriending service towards the end of life

Walshe, C. E., Dodd, S. R., Hill, M., Ockenden, N., Payne, S. A., Perez Algorta, G. D. & Preston, N. J., 06/2016, In: Palliative Medicine. 30, 6, 1 p., NP1-NP401.

Research output: Contribution to journal › Meeting abstract › peer-review

A qualitative exploration of the collaborative working between palliative care and geriatric medicine: barriers and facilitators from a European perspective

EURO-IMPACT, 11/05/2016, In: BMC Palliative Care. 15, 10 p., 47.

Research output: Contribution to journal › Journal article › peer-review

Interventions for the management of malignant pleural effusions: a network meta-analysis

Clive, A. O., Jones, H. E., Bhatnagar, R., Preston, N. J. & Maskell, N., 11/05/2016, In: The Cochrane Library. 5, 244 p.

Research output: Contribution to journal › Journal article › peer-review

Caring for a dying spouse at the end of life: “It’s one of the things you volunteer for when you get married”: a qualitative study of the oldest carers’ experiences

Turner, J. M., King, C., Milligan, C., Thomas, C., Brearley, S. G., Seamark, D., Wang, X., Blake, S. & Payne, S. A., 05/2016, In: Age and Ageing. 45, 3, p. 421-426 6 p.

Research output: Contribution to journal › Journal article › peer-review

Older men and social activity: a scoping review of Men’s Sheds and other gendered interventions

Milligan, C., Neary, D., Payne, S., Hanratty, B., Irwin, P. & Dowrick, C., 05/2016, In: Ageing and Society. 36, 5, p. 895-923 29 p.

Research output: Contribution to journal › Journal article › peer-review

Advance care planning – a multi-centre cluster randomised clinical trial: the research protocol of the ACTION study

Rietjens, J., Dunleavy, L. J., Preston, N. J. & Payne, S. A., 8/04/2016, In: BMC Cancer. 16, 8 p., 264.

Research output: Contribution to journal › Journal article › peer-review

The ageing prison population and increasing prisoner palliative care needs: effects, challenges and conflicts for prisoners and prison staff

Varey, S., Turner, M., Peacock, M., Froggatt, K., Payne, S., Fletcher, A., Gibson, R. & Scott, G., 1/04/2016, In: Palliative Medicine. 30, 4, 1 p., Poster 41.

Research output: Contribution to journal › Meeting abstract › peer-review

To what degree is palliative care integrated in guidelines and pathways for adult cancer patients in Europe: a systematic literature review

van Beek, K., Siouta, N., Preston, N. J., Hasselaar, J., Hughes, S., Payne, S. A., Radbruch, L., Centeno, C., Csikos, A., Garralda, E., van der Eerden, M., Hodiamont, F., Radvanyi, I. & Menten, J., 3/03/2016, In: BMC Palliative Care. 15, 26, 17 p., 26.

Research output: Contribution to journal › Journal article › peer-review

Building a taxonomy of integrated palliative care initiatives: results from a focus group

Ewert, B., Hodiamont, F., van Wijngaarden, J., Payne, S. A., Groot, M., Hasselaar, J., Menten, J. & Radbruch, L., 03/2016, In: BMJ Supportive and Palliative Care. 6, 1, p. 14-20 7 p.

Research output: Contribution to journal › Journal article › peer-review

Improving palliative care for prisoners: the 'both sides of the fence' study

Turner, J. M., 03/2016, In: Prison Service Journal. 224

Research output: Contribution to journal › Journal article

Quality care as ethical care: a poststructural analysis of palliative and supportive district nursing care

Nagington, M., Walshe, C. & Luker, K., 03/2016, In: Nursing Inquiry. 23, 1, p. 12-23 12 p.

Research output: Contribution to journal › Journal article › peer-review

Unpacking the impact of older adults' home death on family care-givers' experiences of home

Milligan, C., Turner, J. M., Blake, S., Brearley, S. G., Seamark, D., Thomas, C. J., Wang, X. & Payne, S. A., 03/2016, In: Health and Place. 38, p. 103-111 9 p.

Research output: Contribution to journal › Journal article › peer-review

What are the views of hospital-based generalist palliative care professionals on what facilitates or hinders collaboration with in-patient specialist palliative care teams? a systematically constructed narrative synthesis

Firn, J., Preston, N. J. & Walshe, C. E., 03/2016, In: Palliative Medicine. 30, 3, p. 240-256 17 p.

Research output: Contribution to journal › Journal article › peer-review

Strategies designed to help healthcare professionals to recruit participants to research studies (Review)

Preston, N. J., Walshe, C. E., Farquhar, M., Stevinson, C., Ewing, G., Calman, L., Burden, S., Brown Wilson, C., Hopkinson, J. & Todd, C., 29/02/2016, In: The Cochrane Library. 2016, p. 1-23 23 p.

Research output: Contribution to journal › Journal article › peer-review

Towards integration of palliative care in patients with chronic heart failure and chronic obstructive pulmonary disease: a systematic literature review of European guidelines and pathways

Siouta, N., van Beek, K., Preston, N. J., Hasselaar, J., Hughes, S., Payne, S. A., Garralda, E., Centeno, C., van der Eerden, M., Groot, M., Hodiamont, F., Radbruch, L., Busa, C., Csikos, A. & Menten, J., 13/02/2016, In: BMC Palliative Care. 15, 18, 12 p.

Research output: Contribution to journal › Journal article › peer-review

Euthanasia, assisted dying, and assisted suicide in palliative care settings: reports from the Netherlands, Switzerland, and Washington State (TH323)

Gerson, S., Lewis, D. & Gamondi, C., 02/2016, In: Journal of Pain and Symptom Management. 51, 2, p. 326-327 2 p.

Research output: Contribution to journal › Journal article › peer-review

A poststructural rethinking of the ethics of technology in relation to the provision of palliative home care by district nurses

Nagington, M., Walshe, C. & Luker, K., 01/2016, In: Nursing Philosophy. 17, 1, p. 59-70 12 p.

Research output: Contribution to journal › Journal article › peer-review

Barriers to access to opioid medicines: a review of national legislation and regulations of 11 central and eastern European countries

Vranken, M. J. M., Lisman, J. A., Mantel-Teeuwisse, A. K., Jünger, S., Scholten, W., Radbruch, L., Payne, S. A. & Schutjens, M-H. D. B., 01/2016, In: Lancet Oncology. 17, 1, p. e13-e22 10 p.

Research output: Contribution to journal › Journal article › peer-review

Parental decision-making on utilisation of out-of-home respite in children's palliative care: findings of qualitative case study research - a proposed new model

Ling, J., Payne, S. A., Connaire, K. & McCarron, M., 01/2016, In: Child: Care, Health and Development. 42, 1, p. 51-59 9 p.

Research output: Contribution to journal › Journal article › peer-review

Social Stories™ to alleviate challenging behaviour and social difficulties exhibited by children with autism spectrum disorder in mainstream schools: design of a manualised training toolkit and feasibility study for a cluster randomised controlled trial with nested qualitative and cost-effectiveness components

Wright, B., Marshall, D., Adamson, J., Ainsworth, H., Ali, S., Allgar, V., Collingridge Moore, D., Cook, E., Dempster, P., Hackney, L., McMillan, D., Trepél, D. & Williams, C., 01/2016, In: Health Technology Assessment. 20, 6, p. 1-258 258 p.

Research output: Contribution to journal › Journal article › peer-review

Orientating disability studies to disablist austerity: applying Fraser’s insights

Dodd, S. R., 2016, In: Disability and Society. 31, 2, p. 149-165 17 p.

Research output: Contribution to journal › Journal article › peer-review

Place of death in the population dying from diseases indicative of palliative care need: a cross-national population-level study in 14 countries

EURO IMPACT, 2016, In: Journal of Epidemiology and Community Health. 70, p. 17-24 8 p.

Research output: Contribution to journal › Journal article › peer-review

A grounded theory approach to physical activity and advanced cancer: a qualitative study protocol

Lowe, S. S., Milligan, C., Watanabe, S. M. & Brearley, S. G., 8/12/2015, In: International Journal of Qualitative Methods. 14, 5, 10 p., 1609406915617161.

Research output: Contribution to journal › Journal article › peer-review

Identification of challenges to the availability and accessibility of opioids in twelve European countries: conclusions from two ATOME six-country workshops

Linge-Dahl, L., Vranken, M. J. M., Jünger, S., North, K., Scholten, W., Payne, S. A. & Radbruch, L., 12/2015, In: Journal of Palliative Medicine. 18, 12, p. 1033-1039 7 p.

Research output: Contribution to journal › Journal article › peer-review

Patient and public involvement in research and the Cancer Experiences Collaborative: benefits and challenges

Froggatt, K., Preston, N., Turner, M. & Kerr, C., 12/2015, In: BMJ Supportive and Palliative Care. 5, 5, p. 518-521 4 p.

Research output: Contribution to journal › Journal article › peer-review