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International Observatory on End of Life Care

  1. 2021
  2. Published

    International practice in relation to hastened death and assisted dying

    Gerson, S. M. & Preston, N., 31/03/2021, In: Annals of Palliative Medicine. 10, 3, p. 3524-3527 4 p.

    Research output: Contribution to journalEditorialpeer-review

  3. Published

    Overview of voluntarily stopping eating and drinking to hasten death

    Lowers, J., Hughes, S. & Preston, N., 31/03/2021, In: Annals of Palliative Medicine. 10, 3, p. 3611-3616 6 p.

    Research output: Contribution to journalJournal articlepeer-review

  4. Published

    Prohibit, protect, or adapt? The changing role of volunteers in palliative and hospice care services during the COVID-19 pandemic. A multinational survey (CovPall).

    Walshe, C., Garner, I., Dunleavy, L., Preston, N., Bradshaw, A., Cripps, R., Bajwah, S., Sleeman, K., Hocaoglu, M., Maddocks, M., Murtagh, F., Oluyase, A., Fraser, L. & Irene, H., 29/03/2021, In: medRxiv.

    Research output: Contribution to journalJournal article

  5. Published

    Investigation and management of iron deficiency anaemia in a specialist palliative care setting and the role of intravenous iron: a descriptive analysis of hospice data

    Steele, T., Bonwick, H., Nwosu, A. & Chapman, L., 22/03/2021, In: AMRC Open Research. 3, 6, 19 p.

    Research output: Contribution to journalJournal article

  6. E-pub ahead of print

    Malignant pleural effusions: the patient experience

    Jones, R., Steer, H., Preston, N. & Perkins, P., 11/03/2021, (E-pub ahead of print) In: BMJ Supportive and Palliative Care.

    Research output: Contribution to journalLetter

  7. Published

    No difference in effects of ‘PACE steps to success’ palliative care program for nursing home residents with and without dementia: a pre-planned subgroup analysis of the seven-country PACE trial

    Miranda, R., Smets, T., Van Den Noortgate, N., van der Steen, J. T., Deliens, L., Payne, S., Szczerbińska, K., Pautex, S., Van Humbeeck, L., Gambassi, G., Kylänen, M., Van den Block, L., Gatsolaeva, Y., Pivodic, L., Honinx, E., Tanghe, M., van Hout, H., Froggatt, K., Onwuteaka-Philipsen, B., Pasman, H. R. W. & 24 others, Piers, R., Baranska, I., Oosterveld-Vlug, M., Wichmann, A. B., Engels, Y., Vernooij-Dassen, M., Hockley, J., Leppäaho, S., Bassal, C., Mammarella, F., Mercuri, M., Rossi, P., Segat, I., Stodolska, A., Adang, E., Andreasen, P., Kuitunen-Kaija, O., Hammar, T., Heikkilä, R., Moore, D. C., Kijowska, V., ten Koppel, M., de Paula, E. M. & PACE, O. B. O., 7/03/2021, In: BMC Palliative Care. 20, 1, 10 p., 39.

    Research output: Contribution to journalJournal articlepeer-review

  8. Published

    What it means to be a palliative care volunteer in eight European countries: a qualitative analysis of accounts of volunteering

    Scott, R., Goossensen, A., Payne, S. & Pelttari, L., 1/03/2021, In: Scandinavian Journal of Caring Sciences. 35, 1, p. 170-177 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  9. Published

    What mediates end-of-life care choices?

    Bloomer, M. & Walshe, C., 1/03/2021, In: Lancet Public Health. 6, 3, p. E139-E140 2 p.

    Research output: Contribution to journalEditorial

  10. E-pub ahead of print

    Virtual reality in specialist palliative care: a feasibility study to enable clinical practice adoption

    Nwosu, A., Mills, M., Roughneen, S., Stanley, S., Chapman, L. & Mason, S., 17/02/2021, (E-pub ahead of print) In: BMJ Supportive and Palliative Care. 5 p.

    Research output: Contribution to journalJournal articlepeer-review

  11. Published

    Experience of Caregivers Supporting a Patient through Voluntarily Stopping Eating and Drinking

    Lowers, J., Hughes, S. & Preston, N., 16/02/2021, In: Journal of Palliative Medicine. 24, 3, p. 376-381 6 p.

    Research output: Contribution to journalJournal articlepeer-review

  12. Published

    How to measure the effects and potential adverse events of palliative sedation? An integrative review

    Belar, A., Arantzamendi, M., Payne, S., Preston, N., Lee-Rijpstra, M., Hasselaar, J., Radbruch, L., Vanderelst, M., Ling, J. & Centeno, C., 1/02/2021, In: Palliative Medicine. 35, 2, p. 295-314 20 p.

    Research output: Contribution to journalJournal articlepeer-review

  13. Published

    Perspectives on COVID-19 and palliative care research

    Walshe, C., 31/01/2021, In: Palliative Medicine. 35, 1, p. 4-5 2 p.

    Research output: Contribution to journalEditorial

  14. Published

    Case Report: Implantable cardioverter defibrillator (ICD) deactivation in palliative care - a case involving best interest decisions for someone lacking capacity at the end of life

    Tan, C., Hanchanale, S., Sugrue, E. & Nwosu, A., 21/01/2021, In: AMRC Open Research. 3, 4, p. 1-4 4 p.

    Research output: Contribution to journalJournal article

  15. Published
  16. Published

    Case Report: The use of advanced consent methodology and healthcare professional consultee to facilitate research participation in dying patients

    Stanley, S. & Nwosu, A., 11/01/2021, In: AMRC Open Research. 3, 3, p. 1-7 7 p.

    Research output: Contribution to journalJournal article

  17. Published

    Missing not at random in end of life care studies: multiple imputation and sensitivity analysis on data from the ACTION study

    ACTION Consortium, 9/01/2021, In: BMC Medical Research Methodology. 21, 1, 12 p., 13.

    Research output: Contribution to journalJournal articlepeer-review

  18. Published

    Palliative and end-of-life educational interventions for staff working in long-term care facilities: An integrative review of the literature

    Iida, K., Ryan, A., Hasson, F., Payne, S. & McIlfatrick, S., 1/01/2021, In: International Journal of Older People Nursing. 16, 1, 14 p., e12347.

    Research output: Contribution to journalJournal articlepeer-review

  19. Published

    Palliative care needs-assessment and measurement tools used in patients with heart failure: a systematic mixed-studies review with narrative synthesis

    Remawi, B., Gadoud, A., Murphy, I. M. J. & Preston, N., 1/01/2021, In: Heart Failure Reviews. 26, p. 137-155 19 p.

    Research output: Contribution to journalJournal articlepeer-review

  20. Published
  21. 2020
  22. Published

    How views of Oncologists and Haematologists impacts Palliative Care Referral: A Systematic Review

    Salins, N., Ghoshal, A., Hughes, S. & Preston, N., 23/11/2020, In: BMC Palliative Care. 19, 19 p., 175.

    Research output: Contribution to journalJournal articlepeer-review

  23. Published

    Exploring the psychological impact of life-limiting illness using the Attitude to Health Change scales: A qualitative focus group study in a hospice palliative care setting

    Dunleavy, L., Walshe, C. & Machin, L., 20/11/2020, In: European Journal of Cancer Care. 29, 6, 10 p., e13302.

    Research output: Contribution to journalJournal articlepeer-review

  24. Published

    Advance care planning in patients with advanced cancer: A 6-country, cluster randomised clinical trial

    Korfage, I. J., Dunleavy, L., Payne, S. & Preston, N., 13/11/2020, In: PLoS Medicine. 17, 11, 16 p., e1003422.

    Research output: Contribution to journalJournal articlepeer-review

  25. Published

    The challenges of caring for people dying from COVID-19: a multinational, observational study of palliative and hospice services (CovPall)

    Oluyase, A., Hocaoglu, M., Cripps, R., Maddocks, M., Walshe, C., Fraser, L., Preston, N., Dunleavy, L., Bradshaw, A., Murtagh, F., Bajwah, S., Sleeman, K. & Higginson, I. J., 4/11/2020, In: medRxiv.

    Research output: Contribution to journalJournal article

  26. Published

    Understanding and addressing challenges for Advance Care Planning in the COVID-19 pandemic: An analysis of the UK CovPall survey data from specialist palliative care services.

    Bradshaw, A., Dunleavy, L., Walshe, C., Preston, N., Cripps, R., Hocaoglu, M., Bajwah, S., Oluyase, A., Maddocks, M., Sleeman, K., Higginson, I., Fraser, L. & Murtagh, F., 30/10/2020, In: medRxiv.

    Research output: Contribution to journalJournal article

  27. Published

    Comparison of the experience of caregiving at end of life or in hastened death: A narrative synthesis review

    Lowers, J., Scardaville, M., Hughes, S. & Preston, N., 8/10/2020, In: BMC Palliative Care. 19, 16 p., 154.

    Research output: Contribution to journalJournal articlepeer-review

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