International Observatory on End of Life Care

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2022
Published
Implementing and evaluating online advance care planning training in UK nursing homes during COVID-19: findings from the Necessary Discussions multi-site case study project
Cousins, E., Preston, N., Doherty, J., Varey, S., Harding, A., Adrienne, M., Harrison Dening, K., Finucane, A., Carter, G., Mitchell, G. & Brazil, K., 13/05/2022, In: BMC Geriatrics. 22, 419.
Research output: Contribution to journal › Journal article › peer-review
Published
Developing country specific questions about end-of-life care for nursing home residents with advanced dementia using the nominal group technique with family caregivers.
Bavelaar, L., Nicula, M., Morris, S., Kaasalainen, S., Achterberg, W., Loucka, M., Vickova, K., Thompson, G., Cornally, N., Hartigan, I., Harding, A., Preston, N., Walshe, C., Cousins, E., Harrison Dening, K., De Vries, K., Brazil, K. & van der Steen, J. T., 30/04/2022, In: Patient Education and Counseling. 105, 4, p. 965-973 9 p.
Research output: Contribution to journal › Journal article › peer-review
Published
Prevalence vs impact: a mixed methods study of survivorship issues in colorectal cancer
Drury, A., Payne, S. & Brady, A-M., 30/04/2022, In: Quality of Life Research. 31, 4, p. 1117-1134 18 p.
Research output: Contribution to journal › Journal article › peer-review
Forthcoming
The experience of informal caregivers in providing patient care in hospitals in low- and middle-income countries: A qualitative meta-synthesis
Hogan, U., Bingley, A., Morbey, H. & Walshe, C., 13/04/2022, (Accepted/In press) In: Journal of Health Services Research and Policy.
Research output: Contribution to journal › Journal article › peer-review
Published
Revised recommendations on standards and norms for palliative care in Europe from the European Association for Palliative Care (EAPC): A Delphi study
Payne, S., Harding, A., Williams, T., Ling, J. & Ostgathe, C., 1/04/2022, In: Palliative Medicine. 36, 4, p. 680-697 18 p.
Research output: Contribution to journal › Journal article › peer-review
Published
The impact on emotional well-being of being a palliative care volunteer: An interpretative phenomenological analysis
Coleman, H., Sanderson-Thomas, A. & Walshe, C., 1/04/2022, In: Palliative Medicine. 36, 4, p. 671-679 9 p.
Research output: Contribution to journal › Journal article › peer-review
Published
Change in Activity of Palliative Care Services during the Covid-19 Pandemic: A Multinational Survey (CovPall)
Sleeman, K. E., Cripps, R. L., Murtagh, F. E. M., Oluyase, A. O., Hocaoglu, M. B., Maddocks, M., Walshe, C., Preston, N., Dunleavy, L., Bradshaw, A., Bajwah, S., Higginson, I. J. & Fraser, L. K., 31/03/2022, In: Journal of Palliative Medicine. 25, 3, p. 465-471 7 p.
Research output: Contribution to journal › Journal article › peer-review
Published
Identification of Digital Health Priorities for Palliative Care Research: Modified Delphi Study
Nwosu, A., McGlinchey, T., Sanders, J., Stanley, S., Palfrey, J., Lubbers, P., Chapman, L., Finucane, A. & Mason, S., 21/03/2022, In: JMIR Aging. 5, 1, 15 p., e32075.
Research output: Contribution to journal › Journal article › peer-review
Published
Ethical Principles in Digital Palliative Care for Children: The MyPal Project and Experiences Made in Designing a Trustworthy Approach
Garani-Papadatos, T., Natsiavas, P., Meyerheim, M., Hoffmann, S., Karamanidou, C. & Payne, S. A., 18/03/2022, In: Frontiers in Digital Health. 4, 10 p., 730430.
Research output: Contribution to journal › Review article › peer-review
E-pub ahead of print
Experiences of staff providing specialist palliative care during COVID-19: A multiple qualitative case study
Bradshaw, A., Dunleavy, L., Garner, I., Preston, N., Bajwah, S., Cripps, R., Fraser, L., Maddocks, M., Hocaoglu, M., Murtagh, F. E. M., Oluyase, A., Sleeman, K. E., Higginson, I. J. & Walshe, C., 8/02/2022, (E-pub ahead of print) In: Journal of the Royal Society of Medicine.
Research output: Contribution to journal › Journal article › peer-review
E-pub ahead of print
The experience of hospitalization in people with advanced chronic obstructive pulmonary disease: A qualitative, phenomenological study
Bakthavatsalu, B., Walshe, C. & Simpson, J., 4/02/2022, (E-pub ahead of print) In: Chronic Illness. 15 p.
Research output: Contribution to journal › Journal article › peer-review
Published
Development of guidelines to reduce, handle and report missing data in palliative care trials: A multi-stakeholder modified nominal group technique
Hussain, J. A., White, I. R., Johnson, M. J., Byrne, A., Preston, N. J., Haines, A., Seddon, K. & Peters, T. J., 17/01/2022, In: Palliative Medicine. 36, 1, p. 59-70 12 p.
Research output: Contribution to journal › Journal article › peer-review
Published
The Decision-Making Process for Palliative Sedation for Patients with Advanced Cancer—Analysis from a Systematic Review of Prospective Studies
Belar, A., Arantzamendi, M., Menten, J., Payne, S., Hasselaar, J. & Centeno, C., 8/01/2022, In: Cancers. 14, 2, 301.
Research output: Contribution to journal › Journal article › peer-review
2021
Published
Applying an Analytical Process to Longitudinal Narrative Interviews With Couples Living and Dying With Lewy Body Dementia
Bentley, A., Walshe, C. & Salifu, Y., 31/12/2021, In: International Journal of Qualitative Methods. 20, 8 p.
Research output: Contribution to journal › Journal article › peer-review
Published
Exploring the experiences of living with Lewy body dementia: An integrative review
Bentley, A., Salifu, Y. & Walshe, C., 31/12/2021, In: Journal of Advanced Nursing. 77, 12, p. 4632-4645 14 p.
Research output: Contribution to journal › Journal article › peer-review
E-pub ahead of print
Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data
Bayly, J., Bradshaw, A., Fettes, L., Omarjee, M., Talbot-Rice, H., Walshe, C., Sleeman, K. E., Bajwah, S., Dunleavy, L., Hocaoglu, M., Oluyase, A., Garner, I., Cripps, R., Preston, N., Fraser, L. K., Murtagh, F. EM., Higginson, I. J. & Maddocks, M., 29/12/2021, (E-pub ahead of print) In: Palliative Medicine. 13 p.
Research output: Contribution to journal › Journal article › peer-review
E-pub ahead of print
Exploring specialist palliative care practitioner perspectives on the face validity of the Attitude to Health Change scales in assessing the impact of life-limiting illness on patients and carers
Machin, L., Walshe, C. & Dunleavy, L., 13/12/2021, (E-pub ahead of print) In: Journal of Palliative Care.
Research output: Contribution to journal › Journal article › peer-review
Published
A good death in the child with life shortening illness: A qualitative multiple-case study
Chong, P. H., Walshe, C. & Hughes, S., 1/12/2021, In: Palliative Medicine. 35, 10, p. 1878-1888 11 p.
Research output: Contribution to journal › Journal article › peer-review
Published
Palliative care integration for patients with advanced chronic obstructive pulmonary disease (COPD): Identifying essential components using participatory action research
Fusi-Schmidhauser, T., Froggatt, K. & Preston, N., 1/12/2021, In: Palliative Medicine. 35, 10, p. 1933-1940 8 p.
Research output: Contribution to journal › Journal article › peer-review
Published
Experiences of staff providing specialist palliative care during COVID-19: A multiple qualitative case study
Bradshaw, A., Dunleavy, L., Garner, I., Preston, N., Bajwah, S., Cripps, R., Fraser, L., Maddocks, M., Hocaoglu, M., Murtagh, F. E. M., Oluyase, A., Sleeman, K. E., Higginson, IJ. & Walshe, C., 20/11/2021, In: medRxiv.
Research output: Contribution to journal › Journal article
Forthcoming
Change in activity of palliative care services during the Covid-19 pandemic: a multi-national survey (CovPall)
Dunleavy, L., Preston, N. & Walshe, C., 17/11/2021, (Accepted/In press) In: Journal of Palliative Medicine.
Research output: Contribution to journal › Journal article › peer-review
Published
Undertaking Research Using Online Nominal Group Technique: Lessons from an International Study (RESPACC)
Mason, S., Ling, J., Mosoiu, D., Arantzamendi, M., Tserkezoglou, A. J., Predoiu, O. & Payne, S., 17/11/2021, In: Journal of Palliative Medicine. 24, 12, p. 1867-1871 5 p.
Research output: Contribution to journal › Journal article › peer-review
Published
MyPal ADULT study protocol: A randomised clinical trial of the MyPal ePRO-based early palliative care system in adult patients with haematological malignancies
Scarfò, L., Karamanidou, C., Doubek, M., Garani-Papadatos, T., Didi, J., Pontikoglou, C., Ling, J., Payne, C., Papadaki, H. A., Rosenquist, R., Stavroyianni, N., Payne, S., Ghia, P., Natsiavas, P., Maramis, C. & Stamatopoulos, K., 2/11/2021, In: BMJ Open. 11, 11, 10 p., e050256.
Research output: Contribution to journal › Journal article › peer-review
E-pub ahead of print
“Resuscitate and Push”: End-of-Life Care Experiences of Healthcare Staff in the Emergency Department – A Hermeneutic Phenomenological Study
Bayuo, J., Anago, E. K., Agyei, F. B., Salifu, Y., Kyei Baffour, P. & Atta Poku, C., 29/10/2021, (E-pub ahead of print) In: Journal of Palliative Care.
Research output: Contribution to journal › Journal article › peer-review
Published
What are the emotional experiences of being a volunteer in palliative and end-of-life care settings? a systematic review and thematic synthesis
Coleman, H. & Walshe, C., 30/09/2021, In: Journal of Pain and Symptom Management. 62, 3, p. 232-247 16 p.
Research output: Contribution to journal › Journal article › peer-review
E-pub ahead of print
Prohibit, protect, or adapt? The changing role of volunteers in palliative and hospice care services during the COVID-19 pandemic. A multinational survey (CovPall).
Walshe, C., Garner, I., Dunleavy, L., Preston, N., Bradshaw, A., Cripps, R., Bajwah, S., Sleeman, K., Hocaoglu, M., Murtagh, F., Oluyase, A., Fraser, L. & Irene, H., 8/09/2021, (E-pub ahead of print) In: International Journal of Health Policy and Management.
Research output: Contribution to journal › Journal article › peer-review
Published
Smiles behind the masks: A systematic review and narrative synthesis exploring how family members of seriously ill or dying patients are supported during infectious disease outbreaks
Bloomer, M. & Walshe, C., 1/09/2021, In: Palliative Medicine. 35, 8, p. 1452-1467 16 p.
Research output: Contribution to journal › Journal article › peer-review
Published
The challenges of caring for people dying from COVID-19: a multinational, observational study (CovPall)
Oluyase, A., Hocaoglu, M., Cripps, R., Maddocks, M., Walshe, C., Fraser, L., Preston, N., Dunleavy, L., Bradshaw, A., Murtagh, F., Bajwah, S., Sleeman, K. & Irene, H., 1/09/2021, In: Journal of Pain and Symptom Management. 62, 3, p. 460-4470 11 p.
Research output: Contribution to journal › Journal article › peer-review
Published
Hospitalisation in the last month of life and in-hospital death of nursing home residents: A cross-sectional analysis of six European countries
Honinx, E., Piers, R. D., Onwuteaka-Philipsen, B. D., Payne, S., Szczerbińska, K., Gambassi, G., Kylänen, M., Deliens, L., Van Den Block, L. & Smets, T., 31/08/2021, In: BMJ Open. 11, 8, 12 p., e047086.
Research output: Contribution to journal › Journal article › peer-review
Published
Large differences in the organization of palliative care in nursing homes in six European countries: findings from the PACE cross-sectional study
PACE consortium, 25/08/2021, In: BMC Palliative Care. 20, 1, 131.
Research output: Contribution to journal › Journal article › peer-review
Forthcoming
Equal but inequitable: response of specialist palliative care and hospice services to people from ethnic minority groups with COVID-19- an observational study (CovPall)
Bajwah, S., Koffman, J., Hussein, J., Bradshaw, A., Hocaoglu, M., Fraser, L., Oluyase, A., Allwin, C., Dunleavy, L., Preston, N., Cripps, R., Maddocks, M., Sleeman, K., Irene, H., Walshe, C. & Murtagh, F., 17/08/2021, (Accepted/In press) In: BMJ Supportive and Palliative Care.
Research output: Contribution to journal › Journal article › peer-review
Forthcoming
A systematic review with thematic synthesis of the experience of hospitalization in people with advanced chronic obstructive pulmonary disease
Bakthavatsalu, B., Walshe, C. & Simpson, J., 16/08/2021, (Accepted/In press) In: COPD.
Research output: Contribution to journal › Journal article › peer-review
Published
Developing and evaluating online COVID-centric advance care planning training and information resources for nursing staff and family members in nursing homes: The Necessary Discussions Study Protocol
Harding, A., Preston, N., Doherty, J., Cousins, E., Varey, S., McCann, A., Harrison Dening, K., Finucane, A., Carter, G., Mitchell, G. & Brazil, K., 9/08/2021, In: BMC Geriatrics. 21, 8 p., 456.
Research output: Contribution to journal › Journal article › peer-review
Published
Exploring the experience of recurrence with advanced cancer for people who perceived themselves to be cancer free: a grounded theory study
Economou, D., Walshe, C. & Brearley, S., 31/07/2021, In: Supportive Care in Cancer. 29, 7, p. 3885-3894 10 p.
Research output: Contribution to journal › Journal article › peer-review
Published
MyPal: Designing and Evaluating Digital Patient-Reported Outcome Systems for Cancer Palliative Care in Europe
Payne, S. A., Moore, D. C. & Stamatopoulos, K., 31/07/2021, In: Journal of Palliative Medicine. 24, 7, p. 962-964 3 p.
Research output: Contribution to journal › Editorial › peer-review
Published
Peer Mentors for People with Advanced Cancer: Lessons Learnt from Recruiting and Training Peer Mentors for a Feasibility Randomized Controlled Trial
Walshe, C., Roberts, D., Calman, L., Appleton, L., Croft, R., Perez Algorta, G., Skevington, S., Lloyd-Williams, M. & Grande, G., 31/07/2021, In: Journal of Cancer Education. 36, 4, p. 710-718 9 p.
Research output: Contribution to journal › Journal article › peer-review
Published
Technology in Palliative Care (TIP): the identification of digital priorities for palliative care research using a modified Delphi method
Nwosu, A., McGlinchey, T., Sanders, J., Stanley, S., Palfrey, J., Lubbers, P., Chapman, L., Finucane, A. & Mason, S., 3/07/2021, In: medRxiv.
Research output: Contribution to journal › Journal article
Published
Understanding and addressing challenges for advance care planning in the COVID-19 pandemic: An analysis of the UK CovPall survey data from specialist palliative care services
Bradshaw, A., Dunleavy, L., Walshe, C., Preston, N., Cripps, R., Hocaoglu, M., Bajwah, S., Maddocks, M., Oluyase, A., Sleeman, K. E., Higginson, I. J., Fraser, L. & Murtagh, F., 1/07/2021, In: Palliative Medicine. 35, 7, p. 1225-1237 13 p.
Research output: Contribution to journal › Journal article › peer-review
Published
‘Necessity is the mother of invention’: Specialist palliative care service innovation and practice change in response to COVID-19. Results from a multinational survey (CovPall)
CovPall Study Team, Dunleavy, L., Preston, N., Bajwah, S., Bradshaw, A., Cripps, R., Fraser, L., Maddocks, M., Hocaoglu, M., Murtagh, F. EM., Oluyase, A., Sleeman, K., Higginson, I. J. & Walshe, C., 31/05/2021, In: Palliative Medicine. 35, 5, p. 814-829 16 p.
Research output: Contribution to journal › Journal article › peer-review
Published
Constructing a new role for family carers and volunteers providing care towards the end of life: An Action Research approach exploring a new model of hospice care
Walshe, C., Barnes, H., Turner, M. & Hughes, S., 31/05/2021, In: Health & Social Care in the Community. 29, 3, p. 837-845 9 p.
Research output: Contribution to journal › Journal article › peer-review
E-pub ahead of print
Women's experiences of advanced breast cancer in a resource-limited Arab context: A Stakian multi-case study
Fearon, D., Hughes, S. & Brearley, S., 21/05/2021, (E-pub ahead of print) In: Psycho-Oncology.
Research output: Contribution to journal › Journal article › peer-review
Published
Length of stay and palliative care: Understanding long-term care facility residents in Europe
Collingridge Moore, D., 19/05/2021, Lancaster University. 378 p.
Research output: Thesis › Doctoral Thesis
Published
Constructivist Stakian Multicase Study: Methodological Issues Encountered in Cross-Cultural Palliative Care Research
Fearon, D., Hughes, S. & Brearley, S. G., 6/05/2021, In: International Journal of Qualitative Methods. 20
Research output: Contribution to journal › Journal article › peer-review
Published
Hearing the voices of children diagnosed with a life-threatening or life-limiting illness and their parents’ accounts in a palliative care setting: A qualitative study
Ciobanu, E. & Preston, N., 1/05/2021, In: Palliative Medicine. 35, 5, p. 886-892 7 p.
Research output: Contribution to journal › Journal article › peer-review
Published
Hospital-based social workers’ perceptions of generalist- and specialist-level palliative social work activities
Firn, J., Preston, N. & Walshe, C., 1/05/2021, In: Journal of Social Work. 21, 3, p. 416-434 19 p.
Research output: Contribution to journal › Journal article › peer-review
Published
Potentially Inappropriate Treatments at the End of Life in Nursing Home Residents: Findings From the PACE Cross-Sectional Study in Six European Countries
PACE consortium, 22/04/2021, In: Journal of Pain and Symptom Management. 61, 4, p. 732-742 11 p.
Research output: Contribution to journal › Journal article › peer-review
Forthcoming
Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data
Bayly, J., Bradshaw, A., Fettes, L., Omarjee, M., Talbot-Rice, H., Walshe, C., Sleeman, K., Bajwah, S., Dunleavy, L., Hocaoglu, M., Oluyase, A., Garner, I., Cripps, R., Preston, N., Fraser, L., Murtagh, F., Irene, H. & Maddocks, M., 19/04/2021, (Accepted/In press) In: medRxiv.
Research output: Contribution to journal › Journal article
Published
MyPal-Child study protocol: An observational prospective clinical feasibility study of the MyPal ePRO-based early palliative care digital system in paediatric oncology patients
Meyerheim, M., Karamanidou, C., Payne, S., Garani-Papadatos, T., Sander, A., Downing, J., Stamatopoulos, K., Ling, J., Payne, C., Scarfò, L., Lokaj, P., Maramis, C. & Graf, N., 13/04/2021, In: BMJ Open. 11, 4, 9 p., e045226.
Research output: Contribution to journal › Journal article › peer-review
Published
Clinical Aspects of Palliative Sedation in Prospective Studies: A Systematic Review
Arantzamendi, M., Belar, A., Payne, S., Rijpstra, M., Preston, N., Menten, J., Van der Elst, M., Radbruch, L., Hasselaar, J. & Centeno, C., 1/04/2021, In: Journal of Pain and Symptom Management. 61, 4, p. 831-844 14 p.
Research output: Contribution to journal › Journal article › peer-review
Published
Evaluating the use of video communication technology in a hospital specialist palliative care team during the COVID-19 pandemic
Crosby, B., Hanchanale, S., Stanley, S. & Nwosu, A., 31/03/2021, In: AMRC Open Research. 3, 5
Research output: Contribution to journal › Journal article

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International Observatory on End of Life Care

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