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International Observatory on End of Life Care

  1. 2015
  2. Published

    Patient and public involvement in research and the Cancer Experiences Collaborative: benefits and challenges

    Froggatt, K., Preston, N., Turner, M. & Kerr, C., 12/2015, In: BMJ Supportive and Palliative Care. 5, 5, p. 518-521 4 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  3. Published

    Care for people in prison

    Turner, M. & Peacock, M., 20/11/2015, Palliative care nursing at a glance. Ingleton, C. & Larkin, P. (eds.). Wiley

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  4. Published

    Unaddressed biases in reported prevalence of continuous deep sedation until death

    Papavasiliou, E. & Payne, S., 10/2015, In: Journal of Clinical Epidemiology. 68, 10, p. 1241-1242 2 p., 6.

    Research output: Contribution to Journal/MagazineLetterpeer-review

  5. Published

    Values Associated with Service User and Public Involvement (UPI) in Health and Social Care Research: a Narrative Review

    Gradinger, F., Britten, N., Wyatt, K., Froggatt, K., Gibson, A., Jacoby, A., Lobban, F., Mayes, D., Snape, D., Rawcliffe, T. & Popay, J., 10/2015, In: Health Expectations. 18, 5, p. 661-675 15 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  6. Published

    Prognosis in advanced heart failure

    Gadoud, A., 21/09/2015, Heart failure and palliative care: a team approach. Johnson, M., Lehman, R. & Hogg, K. J. (eds.). 2nd ed. ed. CRC Press

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  7. Published

    End of life care interventions for people with dementia in care homes: addressing uncertainty within a framework for service delivery and evaluation

    Goodman, C., Froggatt, K. A., Amador, S., Mathie, E. & Mayrhofer, A., 17/09/2015, In: BMC Palliative Care. 14, 9 p., 42.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  8. Published

    Palliative Medicine journal: What have we done, where should we be going and why?

    Walshe, C., 09/2015, In: Palliative Medicine. 29, 8, p. 673-674 2 p.

    Research output: Contribution to Journal/MagazineEditorialpeer-review

  9. Published

    A computer-assisted study of the use of violence metaphors for cancer and end of life by patients, family carers and health professionals

    Demmen, J. E., Semino, E., Demjen, Z., Koller, V., Hardie, A., Rayson, P. & Payne, S., 17/08/2015, In: International Journal of Corpus Linguistics. 20, 2, p. 205-231 27 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  10. Published

    Physical and Psychological Distress Are Related to Dying Peacefully in Residents with Dementia in Long-Term Care Facilities

    EURO IMPACT, 07/2015, In: Journal of Pain and Symptom Management. 50, 1, p. 1-8 8 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  11. Published

    Family carers providing support to a person dying in the home setting: a narrative literature review

    Morris, S., King, C., Turner, M. & Payne, S., 06/2015, In: Palliative Medicine. 29, 6, p. 487–495 9 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  12. Published

    How can and should UK society adjust to dementia?

    Thomas, C. & Milligan, C., 06/2015, Joseph Rowntree Viewpoint 24 p.

    Research output: Contribution to specialist publicationFeatured article

  13. Published

    Managing end of life medications at home-accounts of bereaved family carers: a qualitative interview study

    Payne, S., Turner, M., Seamark, D., Thomas, C., Brearley, S., Wang, X., Blake, S. & Milligan, C., 06/2015, In: BMJ Supportive and Palliative Care. 5, 2, p. 181-188 8 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  14. Published

    Nevasic audio program for the prevention of chemotherapy induced nausea and vomiting: a feasibility study using a randomized controlled trial design

    Moradian, S., Walshe, C., Shahidsales, S., Ghavam Nasiri, M. R., Pilling, M. & Molassiotis, A., 06/2015, In: European Journal of Oncology Nursing. 19, 3, p. 282-291 10 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  15. Published

    Palliative care information needs in Central and Eastern Europe and the Commonwealth of Independent States

    Juenger, S., Klose, J., Brearley, S., Hegedus, K., Payne, S. & Radbruch, L., 06/2015, In: Journal of Palliative Care. 31, 2, p. 109-117 9 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  16. Published

    Symptom clusters in people living with HIV attending five palliative care facilities in two sub-Saharan African countries: A hierarchical cluster analysis

    ENCOMPASS & EURO IMPACT, 12/05/2015, In: PLoS ONE. 10, 5, 12 p., e0126554.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  17. Published

    Improving online learning in palliative care: a comprehensive review

    Hughes, S., Preston, N. & Payne, S., 8/05/2015.

    Research output: Contribution to conference - Without ISBN/ISSN Posterpeer-review

  18. Published

    Outcomes of an EAPC White Paper on core competencies for palliative care social work in Europe

    Hughes, S., Firth, P. & Oliviere, D., 8/05/2015.

    Research output: Contribution to conference - Without ISBN/ISSN Conference paperpeer-review

  19. Published

    Evaluation of an advance care planning education programme for nursing homes: a longitudinal study

    Baron, K., Hodgson, A. & Walshe, C., 05/2015, In: Nurse Education Today. 35, 5, p. 689-695 7 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  20. Published

    Patient-reported outcome measures for use in gynaecological oncology: a systematic review

    Preston, N. J., Wilson, N., Wood, N. J., Brine, J., Ferreira Arcuri, J. & Brearley, S. G., 04/2015, In: BJOG: An International Journal of Obstetrics and Gynaecology. 122, 5, p. 615-622 8 p.

    Research output: Contribution to Journal/MagazineLiterature reviewpeer-review

  21. Published

    International palliative care journal club on twitter: experience so far

    Whitburn, T., Walshe, C. & Sleeman, K. E., 03/2015, In: BMJ Supportive and Palliative Care. 5, 1, p. 120 1 p.

    Research output: Contribution to Journal/MagazineMeeting abstractpeer-review

  22. Published

    The study of mental distress and the (re)construction of identities in men and women with experience of long-term mental distress

    Timander, A-C., Grinyer, A. & Möller, A., 03/2015, In: Disability and Society. 30, 3, p. 327-339 13 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  23. Published

    Self-reported knowledge, attitudes, and behaviour towards hospice care and how are these related to training in palliative care: An online survey among oncologists in the Czech republic and Slovakia

    Loucka, M., Pasman, R. H., Brearley, S. G., Payne, S. A. & Onwuteaka-Philipsen, B., 1/01/2015, In: Progress in Palliative Care. 23, 1, p. 1-8 8 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  24. Published

    Administering anticipatory medications in end-of-life care: a qualitative study of nursing practice in the community and in nursing homes

    Wilson, E., Morbey, H., Brown, J., Payne, S., Seale, C. & Seymour, J., 01/2015, In: Palliative Medicine. 29, 1, p. 60-70 11 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  25. Published

    Core competencies for palliative care social work in Europe: an EAPC White Paper - part 2

    Hughes, S., Firth, P. & Oliviere, D., 01/2015, In: European Journal of Palliative Care. 22, 1, p. 38-44 7 p.

    Research output: Contribution to Journal/MagazineJournal article

  26. Published

    Place and wellbeing: shedding light on activity interventions for older men

    Milligan, C., Payne, S., Bingley, A. & Cockshott, Z., 01/2015, In: Ageing and Society. 35, 1, p. 124-149 26 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  27. Published

    (Re)creating the home: the morality of technology in the home in relation to district nursing palliative care

    Nagington, M., Luker, K. & Walshe, C., 2015.

    Research output: Contribution to conference - Without ISBN/ISSN Conference paperpeer-review

  28. Published

    Clinical psychology and disability studies: bridging the disciplinary divide on mental health and disability

    Simpson, J. & Thomas, C., 2015, In: Disability and Rehabilitation. 37, 14, p. 1299-1304 6 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  29. Published

    Disability

    Thomas, C. J., 2015, The Routledge International Handbook of Diversity Studies. Vertovec, S. (ed.). 1st ed. London: Routledge, p. 43-51 9 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  30. Published
  31. 2014
  32. Published

    The study protocol of: 'Initiating end of life care in stroke: Clinical decision-making around prognosis

    Burton, C., Payne, S., Turner, M., Bucknall, T., Rycroft-Malone, J., Tyrrell, P., Horne, M., Ntambwe, L. I., Tyson, S., Mitchell, H., Williams, S. & Elghenzai, S., 5/12/2014, In: BMC Palliative Care. 13, 8 p., 55.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  33. Published

    Dying at home: a qualitative study of family carers' views of support provided by GPs community staff

    Seamark, D., Blake, S., Brearley, S. G., Milligan, C., Thomas, C., Turner, M., Wang, X. & Payne, S., 1/12/2014, In: British Journal of General Practice. 64, 629, p. e796-803 8 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  34. Published

    Palliative care among heart failure patients in primary care: a comparison to cancer patients using English family practice data

    Gadoud, A., Kane, E., Macleod, U., Ansell, P., Oliver, S. & Johnson, M., 25/11/2014, In: PLoS ONE. 9, 11, 11 p., e113188.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  35. Published

    Core competencies for palliative care social work in Europe: an EAPC White Paper - part 1

    Hughes, S., Firth, P. & Oliviere, D., 7/11/2014, In: European Journal of Palliative Care. 21, 6, p. 300-305 6 p.

    Research output: Contribution to Journal/MagazineJournal article

  36. Published

    Access to opioid medication in Europe: final report and recommendations to the Ministries of Health

    Radbruch, L. (ed.), Jünger, S., Payne, S. A. & Scholten, W., 11/2014, Bonn: Pallia Med Verlag. 156 p.

    Research output: Book/Report/ProceedingsCommissioned report

  37. Published

    Translation and psychometric assessment of the Persian version of the Rhodes Index of Nausea, Vomiting and Retching (INVR) scale for the assessment of chemotherapy-induced nausea and vomiting

    Moradian, S., Shahidsales, S., Ghavam Nasiri, M. R., Pilling, M., Molassiotis, A. & Walshe, C., 11/2014, In: European Journal of Cancer Care. 23, 6, p. 811-818 8 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  38. Published

    Anticipatory prescribing in end-of-life care

    Wilson, E., Seymour, J., Morbey, H., Payne, S., Brown, J. & Seale, C., 29/10/2014, Nursing Times, 110, 44, p. 16-17 2 p.

    Research output: Contribution to specialist publicationArticle

  39. Published

    Thoracic Epidural analgesia versus Rectus Sheath Catheters for open midline incisions in major abdominal surgery within an enhanced recovery programme (TERSC): study protocol for a randomised controlled trial

    Wilkinson, K. M., Krige, A., Brearley, S. G., Lane, S., Scott, M., Gordon, A. C. & Carlson, G. L., 21/10/2014, In: Trials. 15, 1, 12 p., 400.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  40. Published

    Burden on family carers and care-related financial strain at the end of life: A cross-national population-based study

    Pivodic, L., Van Den Block, L., Pardon, K., Miccinesi, G., Alonso, T. V., Boffin, N., Donker, G. A., Cancian, M., López-Maside, A., Onwuteaka-Philipsen, B. D., Deliens, L., Zeger, D. G., Brearley, S., Augusto, C., Joachim, C., Anneke, F., Richard, H., Higginson Irene, J., Stein, K., Karen, L., & 3 othersRoeline, P., Sophie, P. & Payne, S., 1/10/2014, In: European Journal of Public Health. 24, 5, p. 819-826 8 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  41. Published

    Weighted blankets and sleep in autistic children - a randomised controlled trial

    Gringras, P., Green, D., Wright, B., Rush, C., Sparrowhawk, M., Pratt, K., Allgar, V., Hooke, N., Moore, D., Zaiwalla, Z. & Wiggs, L., 8/09/2014, In: Journal of Sleep Research. 23, Suppl. 1, p. 320-320 1 p.

    Research output: Contribution to Journal/MagazineMeeting abstractpeer-review

  42. Published

    Social media and palliative medicine: a retrospective 2-year analysis of global Twitter data to evaluate the use of technology to communicate about issues at the end of life

    Nwosu, A., Debattista, M., Rooney, C. & Mason, S., 2/09/2014, In: BMJ Supportive and Palliative Care. 5, 2, p. 207-212 6 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  43. Published

    Current debates on end-of-life sedation: an international expert elicitation study

    Papavasiliou, E., Payne, S. & Brearley, S., 1/08/2014, In: Supportive Care in Cancer. 22, 8, p. 2141-2149 9 p., 5.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  44. Published

    Validation of the Consensus-Definition for Cancer Cachexia and evaluation of a classification model-a study based on data from an international multicentre project (EPCRC-CSA)

    Blum, D., Stene, G. B., Solheim, T. S., Fayers, P., Hjermstad, M. J., Baracos, V. E., Fearon, K., Strasser, F., Kaasa, S., Lieve, V. D. B., Koen, M., Brearley, S., Augusto, C., Joachim, C., Massimo, C., Anneke, F., Richard, H., Higginson, I. J., Stein, K., Karen, L., & 7 othersGuido, M., Bregje, O. P., Koen, P., Roeline, P., Sophie, P., Payne, S. & Luc, D., 1/08/2014, In: Annals of Oncology. 25, 8, p. 1635-1642 8 p., mdu086.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  45. Unpublished

    Blog reader survey 2014: feedback on use accessibility and preferences

    Morbey, H., Jackson, A., Greenwood, A. & Payne, S., 22/07/2014, (Unpublished) Lancaster: International Observatory on End of Life Care. 37 p.

    Research output: Book/Report/ProceedingsCommissioned report

  46. Published

    Legalisation of assisted suicide: a safeguard to euthanasia?

    Gamondi, C., Borasio, G. D., Limoni, C., Preston, N. & Payne, S., 12/07/2014, In: Lancet. 384, 9938, p. 127

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  47. Published

    Autism Spectrum Social Stories In Schools Trial (ASSSIST): study protocol for a feasibility randomised controlled trial analysing clinical and cost-effectiveness of Social Stories in mainstream schools

    Wright, B., Marshall, D., Collingridge Moore, D., Ainsworth, H., Hackney, L., Adamson, J., Ali, S., Allgar, V., Cook, L., Dyson, L., Littlewood, E., Hargate, R., McLaren, A., McMillan, D., Trépel, D., Whitehead, J. & Williams, C., 9/07/2014, In: BMJ Open. 4, 7, 7 p., e005952.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  48. Published

    End-of-life care in general practice: a cross-sectional, retrospective survey of 'cancer', 'organ failure' and 'old-age/dementia' patients

    Evans, N., Pasman, H. R. W., Donker, G. A., Deliens, L., Van den Block, L., Onwuteaka-Philipsen, B., on behalf of EUROIMPACT & Brearley, S., 07/2014, In: Palliative Medicine. 28, 7, p. 965-975 11 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  49. Published

    Supporting family carers: national evidence based recommendations for hospices in the UK

    Morbey, H. & Payne, S., 6/06/2014.

    Research output: Contribution to conference - Without ISBN/ISSN Posterpeer-review

  50. Published

    Deliberative panels: developing recommendations for supporting stakeholder and user involvement

    Brearley, S. G., Blake, S., Milligan, C., Seamark, D., Thomas, C., Turner, M., Wang, X. & Payne, S. A., 06/2014, In: Palliative Medicine. 28, 6, p. 641-642 2 p.

    Research output: Contribution to Journal/MagazineMeeting abstractpeer-review

  51. Published

    How does the environment of a UK hospice impact on the social wellbeing of older inpatients? an ethnographic study

    Rigby, J., Milligan, C. & Payne, S., 06/2014, In: Palliative Medicine. 28, 6, p. 788-788 1 p.

    Research output: Contribution to Journal/MagazineMeeting abstractpeer-review

  52. Published

    How does the environment of a UK hospice impact on the social wellbeing of older inpatients? an ethnographic study

    Rigby, J., Milligan, C. & Payne, S. A., 06/2014, In: Palliative Medicine. 28, 6, 1 p.

    Research output: Contribution to Journal/MagazineMeeting abstractpeer-review

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