International Observatory on End of Life Care

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Published
Theorising disability and chronic illness: where next for perspectives in medical sociology?
Thomas, C., 2012, In: Social Theory and Health. 10, 3, p. 209-228 20 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Theorising inequalities in health : the place of lay knowledge.
Popay, J., Williams, G., Thomas, C. & Gatrell, A. C., 2003, Health and Social Justice : politics, ideology, and inequality in the distribution of disease. Hofrichter, R. (ed.). San Francisco: Jossey-Bass/Wiley, p. 385-409 25 p.
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
'They've got to learn': a qualitative study exploring the views of patients and staff regarding medical student teaching in a hospice
Arolker, M., Barnes, J., Gadoud, A., Jones, L., Barnes, L. & Johnson, M. J., 06/2010, In: Palliative Medicine. 24, 4, p. 419-426 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Thinking about the future : promoting comfort, choice and well being for older people at the end of their lives.
Seymour, J., Witherspoon, R., Gott, M., Ross, H. & Payne, S., 2004, Help the Aged.
Research output: Working paper
Published
'This huge feeling as if arms are going around you to protect you and comfort you' - A sense of sanctuary deriving from the ethos and atmosphere of a cancer support service
Cockshott, Z., Thomas, C., Payne, S. & Fyfe, D., 3/06/2010, In: Palliative Medicine. 24, 4 Suppl. , p. S184 1 p., 565.
Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review
Published
Thoracic Epidural analgesia versus Rectus Sheath Catheters for open midline incisions in major abdominal surgery within an enhanced recovery programme (TERSC): study protocol for a randomised controlled trial
Wilkinson, K. M., Krige, A., Brearley, S. G., Lane, S., Scott, M., Gordon, A. C. & Carlson, G. L., 21/10/2014, In: Trials. 15, 1, 12 p., 400.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Time to reflect: the value of a longitudinal interview methodology in exploring coping strategies of patients with advanced cancer and their carers
Roberts, D., Grande, G., Lloyd-Williams, M., Calman, L., Appleton, L., Large, P. & Walshe, C., 2014, In: BMJ Supportive and Palliative Care. 4, Supplement 1, p. A40 1 p.
Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review
Published
'To wait or not to wait': lessons from running a wait-list controlled trial (ELSA) of a volunteer befriending service at the end of life within NHS, hospice and voluntary sectors
Walshe, C. E., Preston, N. J., Payne, S. A., Perez Algorta, G. D., Dodd, S. R., Hill, M. & Ockenden, N., 9/03/2016.
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Published
To what degree is palliative care integrated in guidelines and pathways for adult cancer patients in Europe: a systematic literature review
van Beek, K., Siouta, N., Preston, N. J., Hasselaar, J., Hughes, S., Payne, S. A., Radbruch, L., Centeno, C., Csikos, A., Garralda, E., van der Eerden, M., Hodiamont, F., Radvanyi, I. & Menten, J., 3/03/2016, In: BMC Palliative Care. 15, 26, 17 p., 26.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Towards a re-conceptualisation of the management of distress in palliative care patients : the self-integrity model.
Reeve, J., Lloyd-Williams, M., Payne, S. & Dowrick, C., 04/2009, In: Progress in Palliative Care. 17, 2, p. 51-60 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Towards integration of palliative care in patients with chronic heart failure and chronic obstructive pulmonary disease: a systematic literature review of European guidelines and pathways
Siouta, N., van Beek, K., Preston, N. J., Hasselaar, J., Hughes, S., Payne, S. A., Garralda, E., Centeno, C., van der Eerden, M., Groot, M., Hodiamont, F., Radbruch, L., Busa, C., Csikos, A. & Menten, J., 13/02/2016, In: BMC Palliative Care. 15, 18, 12 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Trained facilitators' experiences with structured advance care planning conversations in oncology: an international focus group study within the ACTION trial
ACTION Consortium, 31/10/2019, In: BMC Cancer. 19, 1, 13 p., 1026.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Training for consumer participants in research
Morris, S. & Twelvetree, T., 2003, The third dimension: a report on the proceedings of a seminar. London: RCGP Research Group, p. 10-12 3 p.
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Conference contribution/Paper › peer-review
Published
Transfer and transitioning between palliative care settings
Salifu, Y. & Bayou, J., 28/10/2022, In: Annals of Palliative Medicine. 11, 10, p. 3035-3039 5 p.
Research output: Contribution to Journal/Magazine › Editorial
Published
Transitions between care settings at the end of life in the Netherlands: results from a nationwide study
Abarshi, E., Echteld, M., Van den Block, L., Donker, G., Deliens, L. & Onwuteaka-Philipsen, B., 03/2010, In: Palliative Medicine. 24, 2, p. 166-174 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Translation and psychometric assessment of the Persian version of the Rhodes Index of Nausea, Vomiting and Retching (INVR) scale for the assessment of chemotherapy-induced nausea and vomiting
Moradian, S., Shahidsales, S., Ghavam Nasiri, M. R., Pilling, M., Molassiotis, A. & Walshe, C., 11/2014, In: European Journal of Cancer Care. 23, 6, p. 811-818 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Trying to be sociological : our experience of conducting a three year research project on 'The psychosocial needs of cancer patients and their main carers'.
Thomas, C., 12/2001, Proceedings of the Sociology of Cancer Group conference : what is the sociology of cancer?. Leicester: University of Leicester
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
Unaddressed biases in reported prevalence of continuous deep sedation until death
Papavasiliou, E. & Payne, S., 10/2015, In: Journal of Clinical Epidemiology. 68, 10, p. 1241-1242 2 p., 6.
Research output: Contribution to Journal/Magazine › Letter › peer-review
Published
Uncovering the hidden volunteers in palliative care: a survey of hospice trustees in the United Kingdom
Turner, M. & Payne, S., 12/2008, In: Palliative Medicine. 22, 8, p. 973-974 2 p.
Research output: Contribution to Journal/Magazine › Journal article
Published
Understanding and addressing challenges for advance care planning in the COVID-19 pandemic: An analysis of the UK CovPall survey data from specialist palliative care services
Bradshaw, A., Dunleavy, L., Walshe, C., Preston, N., Cripps, R., Hocaoglu, M., Bajwah, S., Maddocks, M., Oluyase, A., Sleeman, K. E., Higginson, I. J., Fraser, L. & Murtagh, F., 1/07/2021, In: Palliative Medicine. 35, 7, p. 1225-1237 13 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Understanding and addressing challenges for Advance Care Planning in the COVID-19 pandemic: An analysis of the UK CovPall survey data from specialist palliative care services.
Bradshaw, A., Dunleavy, L., Walshe, C., Preston, N., Cripps, R., Hocaoglu, M., Bajwah, S., Oluyase, A., Maddocks, M., Sleeman, K., Higginson, I., Fraser, L. & Murtagh, F., 30/10/2020, In: medRxiv.
Research output: Contribution to Journal/Magazine › Journal article
Published
Understanding care homes : a research and development perspective.
Froggatt, K., Davies, S. & Meyer, J., 2009, London: Jessica Kingsley. 272 p.
Research output: Book/Report/Proceedings › Book
Published
Understanding health inequalities: Locating people in geographical and social spaces
Gatrell, A. C., Thomas, C., Bennett, S., Bostock, L., Popay, J., Williams, G. & Shahtahmasebi, S., 2000, Understanding health inequalities. Graham, H. (ed.). Buckingham: Open University Press, p. 156-169 14 p.
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Unpublished
Understanding Health Inequalities: people, time and place.[Invited speaker]
Thomas, C., 2000, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Published
Understanding implementation strategies to support the delivery of palliative care in long term care facilities (LTCFs): a scoping review from the PACE study.
Collingridge Moore, D., Payne, S., Ling, J., Van den Block, L. & Froggatt, K., 2019.
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Published
Understanding nurses' roles in nurse-led chemotherapy clinics: a two phase study using survey and ethnographic observational methods
Farrell, C., Walshe, C. & Molassiotis, A., 09/2013, In: European Journal of Cancer. 49, Supplement 3, p. S370-S370 1 p.
Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review
E-pub ahead of print
Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data
Bayly, J., Bradshaw, A., Fettes, L., Omarjee, M., Talbot-Rice, H., Walshe, C., Sleeman, K. E., Bajwah, S., Dunleavy, L., Hocaoglu, M., Oluyase, A., Garner, I., Cripps, R., Preston, N., Fraser, L. K., Murtagh, F. EM., Higginson, I. J. & Maddocks, M., 29/12/2021, (E-pub ahead of print) In: Palliative Medicine. 13 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data
Bayly, J., Bradshaw, A., Fettes, L., Omarjee, M., Talbot-Rice, H., Walshe, C., Sleeman, K., Bajwah, S., Dunleavy, L., Hocaoglu, M., Oluyase, A., Garner, I., Cripps, R., Preston, N., Fraser, L., Murtagh, F., Irene, H. & Maddocks, M., 28/02/2022, In: Palliative Medicine. 36, 2, p. 216-218 3 p.
Research output: Contribution to Journal/Magazine › Journal article
Published
Understanding the Outcomes of Supplementary Support Services in Palliative Care for Older People: A Scoping Review and Mapping Exercise
Dodd, S., Payne, S., Preston, N. & Walshe, C., 1/08/2020, In: Journal of Pain and Symptom Management. 60, 2, p. 449-459 11 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Understanding the role and deployment of volunteers within specialist palliative care services and organisations as they have adjusted to the COVID-19 pandemic. A multi-national EAPC volunteer taskforce survey
Walshe, C., Pawłowski, L., Shedel, S., Vanderstichelen, S., Bloomer, M., Goossensen, A., Limonero, J., Sangild Stoelen, K., Caraffa, C., Pelttari, L. & Scott, R., 28/02/2023, In: Palliative Medicine. 37, 2, p. 203-214 12 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Understanding the Symptom Experience of Patients with Gastrointestinal Cancers in the First Year Following Diagnosis: Findings from a Qualitative Longitudinal Study
Ellis, J., Brearley, S. G., Craven, O. & Molassiotis, A., 03/2013, In: Journal of Gastrointestinal Cancer. 44, 1, p. 60-67 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Undertaking bereavement research : sensitivities and sensibilities.
Payne, S. & Field, D., 2004, In: Grief Matters : Australian Journal of Bereavement. 7, 3, p. 52-56 5 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Undertaking Research Using Online Nominal Group Technique: Lessons from an International Study (RESPACC)
Mason, S., Ling, J., Mosoiu, D., Arantzamendi, M., Tserkezoglou, A. J., Predoiu, O. & Payne, S., 17/11/2021, In: Journal of Palliative Medicine. 24, 12, p. 1867-1871 5 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
'Unpacking the home' - a social science approach to researching dying at home
Turner, M., Seamark, D., Milligan, C., Brearley, S., Wang, X., Blake, S. & Payne, S., 1/06/2012, In: BMJ Supportive and Palliative Care. 2, 2, 1 p.
Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review
Published
Unpacking the impact of older adults' home death on family care-givers' experiences of home
Milligan, C., Turner, J. M., Blake, S., Brearley, S. G., Seamark, D., Thomas, C. J., Wang, X. & Payne, S. A., 03/2016, In: Health and Place. 38, p. 103-111 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Unpacking the Politics of Evaluation: A Dramaturgical Analysis
O'Brien, T., Payne, S., Nolan, M. & Ingleton, C., 10/2010, In: Evaluation. 16, 4, p. 431-444 14 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Use of antiemetics in the management of chemotherapy-related nausea and vomiting in current UK practice
Molassiotis, A., Brearley, S. G. & Stamataki, Z., 2011, In: Supportive Care in Cancer. 19, 7, p. 949-956 8 p.
Research output: Contribution to Journal/Magazine › Journal article
Published
Use of palliative care services and general practitioner visits at the end of life in The Netherlands and Belgium
Abarshi, E., Echteld, M. A., Van den Block, L., Donker, G., Bossuyt, N., Meeussen, K., Bilsen, J., Onwuteaka-Philipsen, B. & Deliens, L., 02/2011, In: Journal of Pain and Symptom Management. 41, 2, p. 436-448 13 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Use of podcast technology to facilitate education, communication and dissemination in palliative care: the development of the AmiPal podcast
Nwosu, A., Monnery, D., Reid, V. & Chapman, L., 31/08/2016, In: BMJ Supportive and Palliative Care. 7, 2, p. 212-217 6 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Use of UK voluntary sector cancer support services
Cockshott, Z., Thomas, C., Payne, S. & Fyfe, D., 2009, In: European Journal of Palliative Care. 16, p. 99-99 1 p.
Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review
Published
User involvement in palliative care : a scoping exercise.
Sargeant, A. & Payne, S., 2004, In: READ (Research Endeavours and Dissemination), School of Nursing & Midwifery, University of Sheffield. 2, p. 4-5 2 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
User involvement in palliative care : motivational factors for service users and professionals.
Sargeant, A., Payne, S., Gott, M., Small, N. & Oliviere, D., 06/2007, In: Progress in Palliative Care. 15, 3, p. 126-132 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
User-involvement in palliative care : a scoping study : final report.
Payne, S., Gott, M., Small, N., Oliviere, D., Thomas, J., Young, E. & Sargeant, A., 2005, St. Christopher's Hospice.
Research output: Working paper
Published
Using a prediction of death in the next 12 months as a prompt for referral to palliative care acts to the detriment of patients with Heart Failure and Chronic Obstructive Pulmonary Disease (COPD)
Small, N., Gardiner, C., Barnes, S., Gott, M., Payne, S., Seamark, D. & Halpin, D., 10/2010, In: Palliative Medicine. 24, 7, p. 740-741 2 p.
Research output: Contribution to Journal/Magazine › Letter › peer-review
Published
Using computers in the analysis of qualitative data.
Froggatt, K., 09/2001, In: Palliative Medicine. 15, 6, p. 517-520 4 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Using Participatory Action Research in the Development of an Innovative Cottage Hospice Model of Care in the United Kingdom
Hughes, S., Barnes, H. E., Yardley, J., Turner, M. & Walshe, C. E., 2/10/2018.
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Published
Using stroke to explore the Life Thread Model : an alternative approach to understanding rehabilitation following an acquired disability.
Ellis-Hill, C., Payne, S. & Ward, C., 2008, In: Disability and Rehabilitation. 30, 2, p. 150-159 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Using the Ecological Framework to identify barriers and enablers to implementing Namaste Care in Canada’s long-term care system
Hunter, P., Kaasalainen, S., Froggatt, K. A., Ploeg, J., Dolovich, L., Simard, J. & Salsali, M., 1/10/2017, In: Annals of Palliative Medicine. 6, 4, p. 340-353 14 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Using the 'Social Marketing Mix Framework' to explore recruitment barriers and facilitators in palliative care randomised controlled trials? A narrative synthesis review
Dunleavy, L., Walshe, C., Oriani, A. & Preston, N., 1/05/2018, In: Palliative Medicine. 32, 5, p. 990-1009 20 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Validation of the Consensus-Definition for Cancer Cachexia and evaluation of a classification model-a study based on data from an international multicentre project (EPCRC-CSA)
Blum, D., Stene, G. B., Solheim, T. S., Fayers, P., Hjermstad, M. J., Baracos, V. E., Fearon, K., Strasser, F., Kaasa, S., Lieve, V. D. B., Koen, M., Brearley, S., Augusto, C., Joachim, C., Massimo, C., Anneke, F., Richard, H., Higginson, I. J., Stein, K., Karen, L., & 7 othersGuido, M., Bregje, O. P., Koen, P., Roeline, P., Sophie, P., Payne, S. & Luc, D., 1/08/2014, In: Annals of Oncology. 25, 8, p. 1635-1642 8 p., mdu086.
Research output: Contribution to Journal/Magazine › Journal article › peer-review

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