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International Observatory on End of Life Care

  1. Published

    Bereavement care and hope.

    Payne, S., Lloyd-Williams, M. & Kennedy, V., 2008, Psychosocial issues in palliative care 2nd ed.. Lloyd-Williams, M. (ed.). Oxford: Oxford University Press, p. 207-229 23 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  2. Published

    Bereavement care.

    Payne, S., 2003, Psychosocial issues in palliative care. Lloyd-Williams, M. (ed.). Oxford: Oxford University Press

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  3. Published

    Bereavement research : towards common understanding of methodological and ethical issues.

    Payne, S., Field, D., Reid, D. & Relf, M., 2005, In: European Journal of Palliative Care.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  4. Published

    Bereavement support : something for everyone?

    Payne, S., 2001, In: International Journal of Palliative Nursing. 7, 3, p. 108

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  5. Published

    Bereavement.

    Payne, S., 2009, Oxford handbook of palliative care. Watson, M. S., Lucas, C., Hoy, A. & Black, I. (eds.). Oxford: Oxford University Press, 1035 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  6. Published

    Beyond "beer, fags, egg and chips"? : exploring lay understandings of social inequalities in health.

    Popay, J., Bennett, S., Thomas, C., Williams, G., Gatrell, A. C. & Bostock, L., 01/2003, In: Sociology of Health and Illness. 25, 1, p. 1-23 23 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  7. Published

    Big Data analysis to improve care for people living with serious illness: The potential to use new emerging technology in palliative care

    Nwosu, A., Collins, B. & Mason, S., 14/08/2017, In: Palliative Medicine. 32, 1, p. 164-166 3 p.

    Research output: Contribution to Journal/MagazineLetterpeer-review

  8. Published

    Bioelectrical impedance vector analysis (BIVA) as a method to compare body composition differences according to cancer stage and type

    Nwosu, A., Mayland, C. R., Mason, S., Cox, T. F., Varro, A., Stanley, S. & Ellershaw, J., 19/02/2019, In: Clinical Nutition ESPEN. 30, p. 59-66 8 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  9. Unpublished

    Blog reader survey 2014: feedback on use accessibility and preferences

    Morbey, H., Jackson, A., Greenwood, A. & Payne, S., 22/07/2014, (Unpublished) Lancaster: International Observatory on End of Life Care. 37 p.

    Research output: Book/Report/ProceedingsCommissioned report

  10. Published

    Blood transfusions for anaemia in patients with advanced cancer

    Preston, N. J., Hurlow, A., Brine, J. & Bennett, M. I., 2012, In: Cochrane Database of Systematic Reviews. n/a, 2, 23 p., CD009007.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  11. Published

    Breaching the stalemate on assisted dying: it’s time to move beyond a medicalised approach

    Preston, N., Payne, S. & Ost, S., 30/08/2023, In: BMJ. 382, p. 1968 1 p.

    Research output: Contribution to Journal/MagazineComment/debate

  12. Published

    Breaking bad news sensitively: what is important to patients in their last year of life?

    Hanratty, B., Lowson, E., Holmes, L., Grande, G., Jacoby, A., Payne, S., Seymour, J. & Whitehead, M., 31/01/2012, In: BMJ Supportive and Palliative Care. 2, 1, p. 24-28 5 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  13. Published

    Breathlessness in disease: chronic heart failure

    Gadoud, A., 08/2013, Managing breathlessness in the community . Yorke, J. & Roberts, J. (eds.). M&K Publishing

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  14. Published

    Budapest commitments in China: from desire to action

    Qi, M., Yuan, C., Shukui, Q., Guangru, X., Jiejun, W., Aiguo, L., Jiliang, Y., Hong, Q., Yi, C., Payne, S. & Shiying, Y., 2010, In: European Journal of Palliative Care. 17, 5, p. 246-248 3 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  15. Published

    Building a taxonomy of integrated palliative care initiatives: results from a focus group

    Ewert, B., Hodiamont, F., van Wijngaarden, J., Payne, S. A., Groot, M., Hasselaar, J., Menten, J. & Radbruch, L., 03/2016, In: BMJ Supportive and Palliative Care. 6, 1, p. 14-20 7 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  16. Published

    Burden on family carers and care-related financial strain at the end of life: A cross-national population-based study

    Pivodic, L., Van Den Block, L., Pardon, K., Miccinesi, G., Alonso, T. V., Boffin, N., Donker, G. A., Cancian, M., López-Maside, A., Onwuteaka-Philipsen, B. D., Deliens, L., Zeger, D. G., Brearley, S., Augusto, C., Joachim, C., Anneke, F., Richard, H., Higginson Irene, J., Stein, K., Karen, L., & 3 othersRoeline, P., Sophie, P. & Payne, S., 1/10/2014, In: European Journal of Public Health. 24, 5, p. 819-826 8 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  17. Published

    'Busyness' and the preclusion of quality palliative district nursing care

    Nagington, M., Luker, K. & Walshe, C., 12/2013, In: Nursing Ethics. 20, 8, p. 893-903 10 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  18. Published

    Can multi-disciplinary guidelines improve the palliation of symptoms in the terminal hase of dementia?

    Lloyd-Williams, M. & Payne, S., 2002, In: International Journal of Palliative Nursing. 8, 8, p. 370-375 6 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  19. Published

    Cancer and faith: does it make a difference among cancer patients and their informal carers?

    Soothill, K. L., Morris, S., Harman, J., Thomas, C., Francis, B. J. & McIllmurray, M. B., 09/2002, In: Scandinavian Journal of Caring Sciences. 16, 3, p. 256-263 8 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  20. Unpublished

    Cancer and seeking normality: a longitudinal, qualitative study to explore how patients with advanced cancer and their carers cope and maintain psychological wellbeing

    Roberts, D., Grande, G., Lloyd-Williams, M., Calman, L., Appleton, L., Large, P., Kernaghan, S. & Walshe, C., 2013, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN Posterpeer-review

  21. Published

    Cancer Experiences Collaborative: better research, by better researchers

    Payne, S., 12/2011, In: Palliative Medicine. 25, 8, p. 739-740 2 p.

    Research output: Contribution to Journal/MagazineEditorial

  22. Published

    Cancer experiences research collaborative annual progress report, year 1 : May 2006-April 2007.

    Addington-Hall, J. & Payne, S., 07/2007, London: NCRI.

    Research output: Working paper

  23. Published

    Cancer Experiences Research Collaborative Annual Progress Report, year 2: May 2007-April 2008.

    Addington-Hall, J. & Payne, S., 07/2008, London: NCRI.

    Research output: Working paper

  24. Published

    Cancer in young adults: through parents’ eyes.

    Grinyer, A., 2002, Buckingham: Open University Press. 194 p.

    Research output: Book/Report/ProceedingsBook

  25. Published

    Cancer narratives and methodological uncertainties

    Thomas, C., 2008, In: Qualitative Research. 8, 3, p. 423-433 11 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  26. Published

    Cancer patients' main carers: companions through cancer.

    Thomas, C. & Morris, S. M., 09/2000, Proceedings of the 30th annual conference of the BSA medical sociology group. York

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  27. Published

    Cancer-related pain management: a review of knowledge and attitudes of healthcare professionals

    Kasasbeh, M. A. M., McCabe, C. & Payne, S. A., 11/2017, In: European Journal of Cancer Care. 26, 6, 7 p., e12625.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  28. Unpublished

    Care and Dependency – Contested Disciplinary Terrain. [Invited speaker]

    Thomas, C., 2005, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN Speech

  29. Published

    Care for people in prison

    Turner, M. & Peacock, M., 20/11/2015, Palliative care nursing at a glance. Ingleton, C. & Larkin, P. (eds.). Wiley

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  30. Published

    Care home life and identity: A qualitative case study

    Paddock, K., Brown Wilson, C., Walshe, C. E. & Todd, C., 1/08/2019, In: The Gerontologist. 59, 4, p. 655-664 10 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  31. Published

    Care homes and long-term care for people with dementia.

    Froggatt, K. & Parker, D., 2010, Supportive care for the person with dementia. Hughes, J. C., Lloyd-Williams, M. & Sachs, G. (eds.). Oxford: Oxford University Press, 313 p. (Supportive care series).

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  32. Published

    Care or custody? an evaluation of palliative care in prisons in North West England

    Turner, M., Payne, S. & Barbarachild, Z., 06/2011, In: Palliative Medicine. 25, 4, p. 370-377 8 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  33. Unpublished

    Caregiver views and expectations about the use of artificial hydration in the management of dying people with advanced cancer: a questionnaire study

    Nwosu, A., 13/10/2022, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN Posterpeer-review

  34. Published

    Carers and caregivers.

    Payne, S., 2004, Death, dying and social differences. Oliviere, D. & Monroe, B. (eds.). Oxford: Oxford University Press, p. 181-198 18 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  35. Published

    Carers of the terminally ill and employment issues : a comprehensive literature review : final report.

    Smith, P., Payne, S. & Ramcharan, P., 01/2006, Help the Hospices.

    Research output: Working paper

  36. Published

    Caring for a dying spouse at the end of life: “It’s one of the things you volunteer for when you get married”: a qualitative study of the oldest carers’ experiences

    Turner, J. M., King, C., Milligan, C., Thomas, C., Brearley, S. G., Seamark, D., Wang, X., Blake, S. & Payne, S. A., 05/2016, In: Age and Ageing. 45, 3, p. 421-426 6 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  37. Published

    Caring for a young adult with cancer: The impact on mothers' health.

    Grinyer, A., 07/2006, In: Health and Social Care in the Community. 14, 4, p. 311-318 8 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  38. Published

    Caring for the carers.

    Payne, S., 31/10/2010, Key concepts in palliative care. Baldwin, M. & Woodhouse, J. (eds.). London: Sage, 256 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  39. Published

    Case Report: Implantable cardioverter defibrillator (ICD) deactivation in palliative care - a case involving best interest decisions for someone lacking capacity at the end of life

    Tan, C., Hanchanale, S., Sugrue, E. & Nwosu, A., 21/01/2021, In: AMRC Open Research. 3, 4, p. 1-4 4 p.

    Research output: Contribution to Journal/MagazineJournal article

  40. Published

    Case Report: The use of advanced consent methodology and healthcare professional consultee to facilitate research participation in dying patients

    Stanley, S. & Nwosu, A., 11/01/2021, In: AMRC Open Research. 3, 3, p. 1-7 7 p.

    Research output: Contribution to Journal/MagazineJournal article

  41. Published

    Case series and practice reviews: Dregs at the bottom of the evidence pile or an essential link between frontline practice and research?

    Yardley, S., Pereira, S. M. & Walshe, C., 01/2019, In: Palliative Medicine. 33, 1, p. 3-4 2 p.

    Research output: Contribution to Journal/MagazineEditorial

  42. Published

    Case study research methods in end of life care : reflections on three studies.

    Payne, S., Field, D., Rolls, L., Hawker, S. & Kerr, C., 05/2007, In: Journal of Advanced Nursing. 58, 3, p. 236-245 10 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  43. Published

    Challenges in living alone near the end of life: an international comparison from the InSup-C project

    Hughes, S., Preston, N. J., Payne, S. A., van der Eerden, M., Ewert, B., Kiss, Z., Busa, C., van Beek, K., van Ende, S., Csikos, A. & Groot, M., 10/06/2016.

    Research output: Contribution to conference - Without ISBN/ISSN Conference paperpeer-review

  44. Published

    Challenges of undertaking a systematic review to measure residents’ length of stay in care homes

    Collingridge Moore, D., Payne, S., Keegan, T. & Froggatt, K., 2020.

    Research output: Contribution to conference - Without ISBN/ISSN Posterpeer-review

  45. Published

    Change in activity of palliative care services during the Covid-19 pandemic: a multi-national survey (CovPall)

    Sleeman, K. E., Cripps, R. L., Murtagh, F. E. M., Oluyase, A. O., Hocaoglu, M. B., Maddocks, M., Walshe, C., Preston, N., Dunleavy, L., Bradshaw, A., Bajwah, S., Higginson, I. J. & Fraser, L. K., 31/03/2022, In: Journal of Palliative Medicine. 25, 3, p. 465-471 7 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  46. Published

    Changes in Participant Interactions. Using Focus Group Analysis Methodology to Explore the Impact on Participant Interactions of Face-to-Face Versus Online Video Data Collection Methods

    Souza, J. D., Gillett, K., Salifu, Y. & Walshe, C., 21/03/2024, In: International Journal of Qualitative Methods. 23

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  47. Published

    Changing care practices through staff development : beyond education and training to practice development.

    Froggatt, K., 2002, Palliative care in nursing and residential care homes. Hockley, J. & Clarke, D. (eds.). Buckingham: Open University Press, p. 151-164 14 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  48. Published

    Characteristics and views of family carers in older people with heart failure.

    Barnes, S., Gott, M., Payne, S., Parker, C., Seamark, D., Gariballa, S. & Small, N. A., 25/08/2006, In: International Journal of Palliative Nursing. 12, 8, p. 380-389 10 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  49. Published

    Charitably funded hospices and the challenges associated with the COVID-19 pandemic: A mixed-methods study (CovPall)

    Garner, I., Walshe, C., Dunleavy, L., Bradshaw, A., Preston, N., Fraser, L., Murtagh, F., Oluyase, A. O., Sleeman, K. E., Hocaoglu, M. B., Bajwah, S., Chambers, R., Maddocks, M. & Higginson, IJ., 10/10/2022, In: BMC Palliative Care. 21, 9 p., 176.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  50. Published

    Childhood bereavement services : a survey of UK provision.

    Rolls, L. & Payne, S., 07/2003, In: Palliative Medicine. 17, 5, p. 423-432 10 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

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