International Observatory on End of Life Care

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Published
End-of-life care for old people in acute and long-stay care settings in Ireland : final report.
O'Shea, E., Murphy, K., Larkin, P., Payne, S., Froggatt, K., Casey, D. C., Ni Leime, A. & Keys, M., 2007, National Council on Ageing & Older People and the Irish Hospice Foundation.
Research output: Working paper
Published
End-of-life care for older people in acute and long-stay settings in Ireland.
O'Shea, E., Murphy, K., Larkin, P., Payne, S., Froggatt, K., Casey, D., Leime, A. & Keys, M., 2008, Dublin: Irish Hospice Foundation and National Council on Ageing and Older People.
Research output: Book/Report/Proceedings › Book
Published
End-of-life care for older people in Rotherham : final report
Skilbeck, J., Davis, G., Payne, S. & Reid, D., 09/2006, Rotherham NHS Primary Care Trust.
Research output: Working paper
Published
End-of-life care in general practice: a cross-sectional, retrospective survey of 'cancer', 'organ failure' and 'old-age/dementia' patients
Evans, N., Pasman, H. R. W., Donker, G. A., Deliens, L., Van den Block, L., Onwuteaka-Philipsen, B., on behalf of EUROIMPACT & Brearley, S., 07/2014, In: Palliative Medicine. 28, 7, p. 965-975 11 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
End-of-life care in long-term care settings for older people : a literature review.
Froggatt, K. A., Wilson, D., Justice, C., Macadam, M., Leibovici, K., Kinch, J., Thomas, R. & Choi, J., 03/2006, In: International Journal of Older People Nursing. 1, 1, p. 45-50 6 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
End-of-life decisions: a cross-national study of treatment preference discussions and surrogate decision-maker appointments
Evans, N., Pasman, H. R., Vega Alonso, T., Van den Block, L., Miccinesi, G., Van Casteren, V., Donker, G., Bertolissi, S., Zurriaga, O., Deliens, L., Onwuteaka-Philipsen, B., EUROIMPACT & Brearley, S., 03/2013, In: PLoS ONE. 8, 3, 12 p., e57965.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
End-of-life issues in acute stroke care : a qualitative study of the experiences and preferences of patients and families.
Payne, S., Burton, C., Addington-Hall, J. & Jones, A., 03/2010, In: Palliative Medicine. 24, 2, p. 146-153 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
End-of-life issues in long term care : implications for practice.
Froggatt, K., McCormack, B. & Reed, J., 2006, In: International Journal of Palliative Nursing. 12, 1, p. 1-44 44 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
End-of-life-care in acute and long-stay care settings in Ireland: communication, quality of care and “a good death”
Ni Leime, A., O'Shea, E., Murphy, K., Larkin, P., Casey, D., Payne, S. & Froggatt, K., 2010, In: Irish Journal of Anthropology. 13, 2, p. 22-27 6 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Engaging nursing homes (NHs) in the PACE study: comparing recruitment in observational and intervention research designs
Sowerby, E., Collingridge Moore, D., Froggatt, K., Payne, S. & Van den Block, L., 8/06/2016.
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Published
Enhancing integrated palliative care: what models are appropriate? A cross-case analysis
Payne, S. A., Hughes, S., Varey, S. E., Hasselaar, J., Preston, N. J. & Eastham, R. K., 28/11/2017, In: BMC Palliative Care. 16, 64, 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Ensnared by positivity: a constructivist perspective on 'being positive' in cancer care
McCreaddie, M., Payne, S. & Froggatt, K., 09/2010, In: European Journal of Oncology Nursing. 14, 4, p. 283-290 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Erratum to Protocol for the End-of-Life Social Action Study (ELSA): a randomised wait-list controlled trial and embedded qualitative case study evaluation assessing the causal impact of social action befriending services on end of life experience (vol 15, 60, 2016)
Walshe, C., Algorta, G. P., Dodd, S., Papavasiliou, E., Hill, M., Ockenden, N., Payne, S. & Preston, N., 29/12/2016, In: BMC Palliative Care. 15, 1 p., 98.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Ethical and methodological issues in palliative care studies : the experiences of a research group.
Seymour, J., Payne, S., Reid, D., Sargeant, A., Skilbeck, J. & Smith, P., 03/2005, In: Journal of Research in Nursing. 10, 2, p. 169-188 20 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Ethical and research governance approval across Europe: Experiences from three European palliative care studies
Preston, N., van Delden, J. J. M., Ingravallo, F., Hughes, S., Hasselaar, J., van der Heide, A., Van den Block, L., Dunleavy, L., Groot, M., Csikos, A. & Payne, S., 1/06/2020, In: Palliative Medicine. 34, 6, p. 817-821 5 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Ethical conundrums roundtable – The ethical implications of AI in digital legacy and managing grief.
Nwosu, A., 6/11/2023.
Research output: Contribution to conference - Without ISBN/ISSN › Other
Published
Ethical dilemmas in non-clinical health research.
Grinyer, A., 03/2001, In: Nursing Ethics. 8, 2, p. 123-132 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Ethical Principles in Digital Palliative Care for Children: The MyPal Project and Experiences Made in Designing a Trustworthy Approach
Garani-Papadatos, T., Natsiavas, P., Meyerheim, M., Hoffmann, S., Karamanidou, C. & Payne, S. A., 18/03/2022, In: Frontiers in Digital Health. 4, 10 p., 730430.
Research output: Contribution to Journal/Magazine › Review article › peer-review
Published
Ethnicity and cancer : examining psychosocial trnasitions for older people : final report.
Payne, S., Chapman, A., Froggatt, K., Gott, M. & Chung, M., 09/2008, Dimbleby Cancer Care.
Research output: Working paper
Published
European Palliative Sedation Project
Payne, S. A. & Hasselaar, J., 29/02/2020, In: Journal of Palliative Medicine. 23, 2, p. 154-155 2 p.
Research output: Contribution to Journal/Magazine › Editorial › peer-review
Published
European standards and norms for palliative care : key areas, common definitions and consensus on basic requirements.
Junger, S., Payne, S. & Radbruch, L., 2009, In: European Journal of Palliative Care. 16, p. 119-119 1 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Euthanasia requests and cancer types in the Netherlands: is there a relationship?
Abarshi, E., Onwuteaka-Philipsen, B. D. & van der Wal, G., 02/2009, In: Health Policy. 89, 2, p. 168-173 6 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Euthanasia, assisted dying, and assisted suicide in palliative care settings: reports from the Netherlands, Switzerland, and Washington State (TH323)
Gerson, S., Lewis, D. & Gamondi, C., 02/2016, In: Journal of Pain and Symptom Management. 51, 2, p. 326-327 2 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Evaluating a palliative care education project in nursing homes.
Froggatt, K., 2000, In: International Journal of Palliative Nursing. 6, 3, p. 140-146 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Evaluating adult bereavement support services in hospices.
Payne, S., 11/2005, In: Hospice Information Bulletin. p. 11-12 2 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Evaluating an education programme in general palliative care for community nurses.
Hughes, P. M., Noble, B., Payne, S., Ingleton, C. & Parker, C., 2006, In: International Journal of Palliative Nursing. 12, 3, p. 123-131 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Evaluating bereavement support provided to older people by hospices : final report.
Payne, S., Field, D., Relf, M. & Reid, D., 2005, Health Foundation.
Research output: Working paper
Published
Evaluating bereavement support provided to older people by hospices.
Payne, S., Field, D., Relf, M. & Reid, D., 2003, In: READ (Research Endeavours and Dissemination), School of Nursing & Midwifery, University of Sheffield.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Evaluating bereavement support to older people by hospices : an update.
Reid, D., Payne, S., Field, D. & Relf, M., 2004, In: READ (Research Endeavours and Dissemination), School of Nursing & Midwifery, University of Sheffield.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Evaluating community nurses' knowledge of palliative care : use of the palliative care quiz for nursing before and after an education programme.
Hughes, P. M., Payne, S., Ingleton, C. & Noble, T. W., 03/2004, In: Palliative Medicine. 18, 2, p. 156-157 2 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Evaluating complex interventions in end of life care: the MORECare statement on good practice generated by a synthesis of transparent expert consultations and systematic reviews
Higginson, I. J., Evans, C. J., Grande, G., Preston, N., Morgan, M., McCrone, P., Lewis, P., Fayers, P., Harding, R., Hotopf, M., Murray, S. A., Benalia, H., Gysels, M., Farquhar, M., Todd, C. & MORECare, 23/04/2013, In: BMC Pulmonary Medicine. 11, 11 p., 111.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Evaluating the implementation of the PACE Steps to Success Programme in long-term care facilities in seven countries according to the RE-AIM framework
Oosterveld-Vlug, M., Onwuteaka-Philipsen, B., Ten Koppel, M., Van Hout, H., Smets, T., Pivodic, L., Tanghe, M., Van Den Noortgate, N., Hockley, J., Payne, S., Moore, D. C., Kijowska, V., Szczerbińska, K., Kylänen, M., Leppaäho, S., Mercuri, C., Rossi, P., Mercuri, M., Gambassi, G., Bassal, C., & 5 othersDe Paula, E. M., Engels, Y., Deliens, L., Van Den Block, L. & Pasman, H. R., 19/12/2019, In: Implementation Science. 14, 1, 19 p., 107.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Evaluating the online response to a guide to support people who are caring for dying friends and family, the ‘Deathbed Etiquette: an analysis of Twitter and newspaper comments.
Nwosu, A., Sanders, K., Elverson, J., Doherty, M. & Gadoud, A., 6/08/2021.
Research output: Contribution to conference - Without ISBN/ISSN › Poster
Published
Evaluating the use of video communication technology in a hospital specialist palliative care team during the COVID-19 pandemic
Crosby, B., Hanchanale, S., Stanley, S. & Nwosu, A., 31/03/2021, In: AMRC Open Research. 3, 5
Research output: Contribution to Journal/Magazine › Journal article
Published
Evaluation of a Palliative Care Program for Nursing Homes in 7 Countries: The PACE Cluster-Randomized Clinical Trial
Van Den Block, L., Honinx, E., Pivodic, L., Miranda, R., Onwuteaka-Philipsen, B. D., Van Hout, H., Pasman, H. R. W., Oosterveld-Vlug, M., Ten Koppel, M., Piers, R., Van Den Noortgate, N., Engels, Y., Vernooij-Dassen, M., Hockley, J., Froggatt, K., Payne, S., Szczerbińska, K., Kylänen, M., Gambassi, G., Pautex, S., & 4 othersBassal, C., De Buysser, S., Deliens, L. & Smets, T., 11/11/2019, In: JAMA Internal Medicine. 180, 2, p. 233-242 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Evaluation of an advance care planning education programme for nursing homes: a longitudinal study
Baron, K., Hodgson, A. & Walshe, C., 05/2015, In: Nurse Education Today. 35, 5, p. 689-695 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Evaluation of the Help the Hospices major grants programme for carers of those who are terminally ill : final report.
Payne, S., Ingleton, C., Nolan, M. & O'Brien, T., 07/2009, Help the Hospices.
Research output: Working paper
Published
Evolving grounded theory methodology : towards a discursive approach.
McCreaddie, M. & Payne, S., 06/2010, In: International Journal of Nursing Studies. 47, 6, p. 781-793 13 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Examining the profound effects of COVID19 on mental health: A comprehensive systematic review on anxiety and depression
Salifu, Y., Maurer, P., Oprina, E., Alloh, F., Bardi, J. N. & Shivji, N., 1/06/2023, In: Psychreg Journal of Psychology. 7, 2, p. 45-81 37 p.
Research output: Contribution to Journal/Magazine › Literature review › peer-review
Published
Exercise therapy for low back pain : a pragmatic controlled trial of a psychological approach to promote adherence and outcome.
Dean, S., Weinman, J. & Payne, S., 2004, 5th Interdisciplinary World Congress on Low Back and Pelvic Pain. Melbourne, p. 332-335 4 p.
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
Experience of Caregivers Supporting a Patient through Voluntarily Stopping Eating and Drinking
Lowers, J., Hughes, S. & Preston, N., 16/02/2021, In: Journal of Palliative Medicine. 24, 3, p. 376-381 6 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Experiences and perceptions of men following breast cancer diagnosis: A Mixed Method Systematic Review
Abboah-Offei, M., Bayou, J., Salifu, Y., Ayobami Afolabi, O. & Akudjedu, T., 6/02/2024, In: BMC Cancer. 24, 1, p. 179 1 p., 179.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Experiences of end-of-life care in community hospitals.
Payne, S. A., Hawker, S., Kerr, C., Seamark, D., Roberts, H., Jarratt, N. & Smith, H., 09/2007, In: Health and Social Care in the Community. 15, 5, p. 494-501 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Experiences of spouses of people with dementia in long-term care
Mullin, J., Simpson, J. & Froggatt, K., 03/2013, In: Dementia. 12, 2, p. 177-191 15 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Experiences of staff providing specialist palliative care during COVID-19: A multiple qualitative case study
Bradshaw, A., Dunleavy, L., Garner, I., Preston, N., Bajwah, S., Cripps, R., Fraser, L., Maddocks, M., Hocaoglu, M., Murtagh, F. E. M., Oluyase, A., Sleeman, K. E., Higginson, IJ. & Walshe, C., 20/11/2021, In: medRxiv.
Research output: Contribution to Journal/Magazine › Journal article
Published
Experiences of staff providing specialist palliative care during COVID-19: A multiple qualitative case study
Bradshaw, A., Dunleavy, L., Garner, I., Preston, N., Bajwah, S., Cripps, R., Fraser, L., Maddocks, M., Hocaoglu, M., Murtagh, F. E. M., Oluyase, A., Sleeman, K. E., Higginson, I. J. & Walshe, C., 30/06/2022, In: Journal of the Royal Society of Medicine. 115, 6, p. 220-230 11 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Explanatory models of dementia : links to end-of-life care.
Froggatt, K. A., Downs, M. & Small, N. A., 2006, In: International Journal of Palliative Nursing. 12, 5, p. 209-213 5 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Exploration of the experiences of informal caregivers for people with a moderate to advanced dementia within a domestic home setting
James, C., Walshe, C. & Swarbrick, C., 1/10/2020.
Research output: Contribution to conference - Without ISBN/ISSN › Other
Published
Exploring a New Model of End-of-Life Care for Older People that Operates in the Space Between the Life World and the Healthcare System: A Qualitative Case Study
Dodd, S., Preston, N., Payne, S. & Walshe, C., 1/08/2020, In: International Journal of Health Policy and Management. 9, 8, p. 344-351 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Exploring and understanding the views of older Chinese people about cancer and end-of-life care : final report.
Payne, S., Seymour, J., Holloway, M. & Chapman, A., 2005.
Research output: Working paper

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