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International Observatory on End of Life Care

  1. Published

    Using Participatory Action Research in the Development of an Innovative Cottage Hospice Model of Care in the United Kingdom

    Hughes, S., Barnes, H. E., Yardley, J., Turner, M. & Walshe, C. E., 2/10/2018.

    Research output: Contribution to conference - Without ISBN/ISSN Posterpeer-review

  2. Published

    Using stroke to explore the Life Thread Model : an alternative approach to understanding rehabilitation following an acquired disability.

    Ellis-Hill, C., Payne, S. & Ward, C., 2008, In: Disability and Rehabilitation. 30, 2, p. 150-159 10 p.

    Research output: Contribution to journalJournal articlepeer-review

  3. Published

    Using the Ecological Framework to identify barriers and enablers to implementing Namaste Care in Canada’s long-term care system

    Hunter, P., Kaasalainen, S., Froggatt, K. A., Ploeg, J., Dolovich, L., Simard, J. & Salsali, M., 1/10/2017, In: Annals of Palliative Medicine. 6, 4, p. 340-353 14 p.

    Research output: Contribution to journalJournal articlepeer-review

  4. Published

    Using the 'Social Marketing Mix Framework' to explore recruitment barriers and facilitators in palliative care randomised controlled trials? A narrative synthesis review

    Dunleavy, L., Walshe, C., Oriani, A. & Preston, N., 1/05/2018, In: Palliative Medicine. 32, 5, p. 990-1009 20 p.

    Research output: Contribution to journalJournal articlepeer-review

  5. Published

    Validation of the Consensus-Definition for Cancer Cachexia and evaluation of a classification model-a study based on data from an international multicentre project (EPCRC-CSA)

    Blum, D., Stene, G. B., Solheim, T. S., Fayers, P., Hjermstad, M. J., Baracos, V. E., Fearon, K., Strasser, F., Kaasa, S., Lieve, V. D. B., Koen, M., Brearley, S., Augusto, C., Joachim, C., Massimo, C., Anneke, F., Richard, H., Higginson, I. J., Stein, K., Karen, L. & 7 others, Guido, M., Bregje, O. P., Koen, P., Roeline, P., Sophie, P., Payne, S. & Luc, D., 1/08/2014, In: Annals of Oncology. 25, 8, p. 1635-1642 8 p., mdu086.

    Research output: Contribution to journalJournal articlepeer-review

  6. Published

    Values Associated with Service User and Public Involvement (UPI) in Health and Social Care Research: a Narrative Review

    Gradinger, F., Britten, N., Wyatt, K., Froggatt, K., Gibson, A., Jacoby, A., Lobban, F., Mayes, D., Snape, D., Rawcliffe, T. & Popay, J., 10/2015, In: Health Expectations. 18, 5, p. 661-675 15 p.

    Research output: Contribution to journalJournal articlepeer-review

  7. Published

    Verwendung der Delphi-Technik zur Entwicklung von Best-Practice-Leitlinien in der Palliativversorgung: eine methodologische systematische Übersichtsarbeit

    Jünger, S., Payne, S. A., Brine, J. J., Radbruch, L. & Brearley, S. G., 08/2016, In: Zeitschrift für Palliativmedizin. 17, 5, p. 174 1 p.

    Research output: Contribution to journalMeeting abstractpeer-review

  8. Published

    Viewing patient need through professional writings: a systematic 'ethnographic' review of palliative care professionals' experiences of caring for people with cancer. at the end of life.

    McDermott, E., Bingley, A. F., Thomas, C., Payne, S., Seymour, J. & Clark, D., 01/2006, In: Progress in Palliative Care. 14, 1, p. 9-18 10 p.

    Research output: Contribution to journalJournal articlepeer-review

  9. Published

    Views about the use of traditional Chinese medicine in the UK.

    Chapman, A., Payne, S., Seymour, J. & Holloway, M., 04/2006, In: Palliative Medicine. 20, 3, p. 253 Abstract number: 94.

    Research output: Contribution to journalJournal articlepeer-review

  10. E-pub ahead of print

    Virtual reality in specialist palliative care: a feasibility study to enable clinical practice adoption

    Nwosu, A., Mills, M., Roughneen, S., Stanley, S., Chapman, L. & Mason, S., 17/02/2021, (E-pub ahead of print) In: BMJ Supportive and Palliative Care. 5 p.

    Research output: Contribution to journalJournal articlepeer-review

  11. Published

    Voices in a Knowledge Conversation: an exploration of two narrative representations of Adult Literacy Learners

    Varey, S., 2013, Lancaster: Lancaster University. 409 p.

    Research output: ThesisDoctoral Thesis

  12. Published

    Volunteering and community

    Sallnow, L. & Richardson, H., 26/04/2018, The Changing Face of Volunteering in Hospice and Palliative Care: An International Perspective . Scott, R. & Howlett, S. (eds.). Oxford: Oxford University Press, p. 185-196 12 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  13. Published

    Volunteering and end-of-life care: An evidence based toolkit

    Walshe, C. E., Preston, N. J., Payne, S. A., Dodd, S. R., Perez Algorta, G. D., Hill, M. & Ockenden, N., 1/10/2018, Lancaster: Lancaster University.

    Research output: Book/Report/ProceedingsOther report

  14. Published

    Ward social workers’ views of what facilitates or hinders collaboration with specialist palliative care team social workers: a grounded theory

    Firn, J., Preston, N. J. & Walshe, C. E., 14/07/2017, In: BMC Palliative Care. 17, 12 p., 7.

    Research output: Contribution to journalJournal articlepeer-review

  15. Published

    Weighted blankets and sleep in autistic children - a randomised controlled trial

    Gringras, P., Green, D., Wright, B., Rush, C., Sparrowhawk, M., Pratt, K., Allgar, V., Hooke, N., Moore, D., Zaiwalla, Z. & Wiggs, L., 8/09/2014, In: Journal of Sleep Research. 23, Suppl. 1, p. 320-320 1 p.

    Research output: Contribution to journalMeeting abstractpeer-review

  16. Published

    What are the emotional experiences of being a volunteer in palliative and end-of-life care settings? a systematic review and thematic synthesis

    Coleman, H. & Walshe, C., 30/09/2021, In: Journal of Pain and Symptom Management. 62, 3, p. 232-247 16 p.

    Research output: Contribution to journalJournal articlepeer-review

  17. Published

    What are the fears and support needs of those living alone in the last year of life and who responds?

    Hughes, S., Preston, N. J., Varey, S. E., Payne, S. A., van der Eerden, M., Schwabe, S., Busa, C., van Beek, K., Van Ende, S., Csikos, A. & Groot, M., 30/09/2016.

    Research output: Contribution to conference - Without ISBN/ISSN Conference paperpeer-review

  18. Published

    What are the key issues identified by Heart Failure Nurses in the UK working with patients at the end of life?

    Sargeant, A., Payne, S., Seymour, J. & Ingleton, C., 2007, Hospice: the heart of end-of-life care. London, p. 50-50 1 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  19. Published

    What are the key issues identified by Heart Failure Nurses in the UK working with patients at the end of life?

    Sargeant, A., Payne, S., Seymour, J., Ingleton, C. & Ward, S., 2007, In: European Journal of Palliative Care. 10th C, p. 125-125 1 p.

    Research output: Contribution to journalJournal articlepeer-review

  20. Published

    What are the main symptoms and concerns reported by patients with advanced chronic heart failure? — A secondary analysis of the palliative care outcome scale (POS) and integrated palliative care outcome scale (IPOS)

    Oriani, A., Guo, P., Gadoud, A., Dunleavy, L., Kane, P. & Murtagh, F. E. M., 30/11/2019, In: Annals of Palliative Medicine. 8, 5, p. 775-780 6 p.

    Research output: Contribution to journalJournal articlepeer-review

  21. Published
  22. Published
  23. Published
  24. Unpublished

    What can qualitative data add to knowledge about place of cancer deaths?

    Thomas, C., 2007, (Unpublished). 0 p.

    Research output: Contribution to conference - Without ISBN/ISSN Conference paper

  25. Published

    What counts as evidence? The communication of information about older people between health and social care practitioners.

    Powell, J., Hardey, M., Kerr, C., Hawker, C. & Payne, S., 2003, In: Research Policy and Planning. 21, 1, p. 1-11 11 p.

    Research output: Contribution to journalJournal articlepeer-review

  26. Published

    What do you mean by respite?

    Scott, G., Steele, K., Payne, S., Ingleton, C., Nolan, M. & Carey, I., 03/2004, In: Palliative Medicine. 18, 2, p. 170-170 1 p.

    Research output: Contribution to journalJournal articlepeer-review

  27. Published

    What does "disability" mean for medical students? An exploration of the words medical students associate with the term "disability"

    Byron, M., Cockshott, Z., Brownett, H. & Ramkalawan, T., 02/2005, In: Medical Education. 39, 2, p. 176-183 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  28. Unpublished
  29. Published
  30. Published

    What is 'hospice'?

    Payne, S., 2007, In: European Journal of Palliative Care. 10th C, p. 99-99 1 p.

    Research output: Contribution to journalJournal articlepeer-review

  31. Published
  32. Published

    What is the evidence for the use of acupuncture as an intervention for symptom management in cancer supportive and palliative care: an integrative overview of reviews

    Towler, P., Molassiotis, A. & Brearley, S. G., 10/2013, In: Supportive Care in Cancer. 21, 10, p. 2913-2923 11 p.

    Research output: Contribution to journalJournal articlepeer-review

  33. Published

    What is the evidence for the use of mindfulness-based interventions in cancer care? a review

    Shennan, C., Payne, S. & Fenlon, D., 07/2011, In: Psycho-Oncology. 20, 7, p. 681-697 17 p.

    Research output: Contribution to journalJournal articlepeer-review

  34. Published

    What is the meaning of palliative care in the Asia-Pacific region?

    O'Connor, M., O'Brien, A. P., Griffiths, D., Poon, E., Chin, J., Payne, S. & Nordin, R., 09/2010, In: Asia-Pacific Journal of Clinical Oncology. 6, 3, p. 197-202 6 p.

    Research output: Contribution to journalJournal article

  35. Published

    What it means to be a palliative care volunteer in eight European countries: a qualitative analysis of accounts of volunteering

    Scott, R., Goossensen, A., Payne, S. & Pelttari, L., 1/03/2021, In: Scandinavian Journal of Caring Sciences. 35, 1, p. 170-177 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  36. Published

    What mediates end-of-life care choices?

    Bloomer, M. & Walshe, C., 1/03/2021, In: Lancet Public Health. 6, 3, p. E139-E140 2 p.

    Research output: Contribution to journalEditorial

  37. Published

    What palliative care clinicians need to know about heart failure?

    Gadoud, A. & Johnson, M., 02/2014, In: Progress in Palliative Care. 22, 1, p. 26-31 6 p.

    Research output: Contribution to journalJournal articlepeer-review

  38. Published

    What research evidence is there for the use of art therapy in the management of symptoms in adults with cancer? : a systematic review.

    Wood, M. J. M., Molassiotis, A. & Payne, S., 02/2011, In: Psycho-Oncology. 20, 2, p. 135-145 11 p.

    Research output: Contribution to journalJournal articlepeer-review

  39. Published
  40. Published

    What went wrong with the Liverpool Care Pathway and how can we avoid making the same mistakes again?

    Hughes, S., Preston, N. & Payne, S., 23/08/2013, In: International Journal of Palliative Nursing. 19, 8, p. 372-373 2 p.

    Research output: Contribution to journalJournal articlepeer-review

  41. Published

    When a hospice in not a haven: case report

    Swarbrick, P., Grinyer, A. & Payne, S., 01/2011, In: Progress in Palliative Care. 19, 1, p. 22-24 3 p.

    Research output: Contribution to journalJournal article

  42. Published

    When is hastened death considered suicide? a systematically conducted literature review about palliative care professionals' experiences where assisted dying is legal

    Gerson, S. M., Bingley, A., Preston, N. & Grinyer, A., 31/08/2019, In: BMC Palliative Care. 18, 1, 13 p., 75.

    Research output: Contribution to journalJournal articlepeer-review

  43. Published

    Where do people not want to die? A representative survey of views of general population and health care professionals in the Czech Republic

    Loucka, M., Payne, S. A., Brearley, S. G., Slama, O. & Spinkova, M., 2014, In: Progress in Palliative Care. 22, 5, p. 264-271 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  44. Published

    White paper on standards and norms for hospice and palliative care in Europe : part 1.

    Radbruch, L. & Payne, S., 2009, In: European Journal of Palliative Care. 16, 6, p. 278-289 12 p.

    Research output: Contribution to journalJournal articlepeer-review

  45. Published

    White Paper on standards and norms for hospice and palliative care in Europe : part 2.

    Radbruch, L. & Payne, S., 2010, In: European Journal of Palliative Care. 17, 1, p. 22-33 12 p.

    Research output: Contribution to journalJournal articlepeer-review

  46. Published
  47. Published

    Why bereaved relatives decline organ and tissue donation.

    Sque, M., Long, T. & Payne, S., 2007, Organ transplantation : ethical, legal and psychosocial aspects - towards a common European policy. Weimar, W., Bos, M. A. & Busschbach, J. J. (eds.). Lengerich, Germany: PABST Science Publishers, p. 471-481 11 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  48. Published

    Why do family carers in end of life care decline support interventions?

    O'Brien, T., Payne, S., Ingleton, C. & Nolan, M., 2009, In: European Journal of Palliative Care. 16, p. 168-168 1 p.

    Research output: Contribution to journalJournal articlepeer-review

  49. Published

    Why do older Chinese people choose hospital as their preferred place to die.

    Chapman, A., Payne, S. & Holloway, M., 03/2006, In: Palliative Medicine. 20, 2, p. 143-144 2 p.

    Research output: Contribution to journalJournal articlepeer-review

  50. Published

    Why relatives do not donate organs for transplant : 'sacrifice' or 'gift of life'?

    Sque, M., Long, T., Payne, S. & Allardyce, D., 01/2008, In: Journal of Advanced Nursing. 61, 2, p. 134-144 11 p.

    Research output: Contribution to journalJournal articlepeer-review

  51. Published

    Women and Disability. (Women's Studies Network (UK) Association Newsletter, 36)

    Thomas, C., 08/2000, Women's Studies Network (UK) Association, 7 p.

    Research output: Working paperOther

  52. Unpublished

    Women, Disability and Maternity Services. [Invited speaker]

    Thomas, C., 2000, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN Speech

  53. E-pub ahead of print

    Women's experiences of advanced breast cancer in a resource-limited Arab context: A Stakian multi-case study

    Fearon, D., Hughes, S. & Brearley, S., 21/05/2021, (E-pub ahead of print) In: Psycho-Oncology.

    Research output: Contribution to journalJournal articlepeer-review

  54. Published

    Women's health in Europe : beyond epidemiology?

    Thomas, C. & Rigby, J., 2001, Geographies of women's health. McLafferty, S., Dyke, I. & Davis Lewis, N. (eds.). London: Routledge, p. 23-40 18 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  55. Published

    Working at the coalface: using action research to study ‘integrative medicine’ in the NHS

    Welch, P., Thomas, C. & Bingley, A., 02/2013, In: European Journal of Integrative Medicine. 5, 1, p. 75-82 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  56. Published

    Working with non-clinical staff to deliver research: lessons from running a wait-list controlled trial (ELSA) of a volunteer befriending service towards the end of life

    Walshe, C. E., Dodd, S. R., Hill, M., Ockenden, N., Payne, S. A., Perez Algorta, G. D. & Preston, N. J., 06/2016, In: Palliative Medicine. 30, 6, 1 p., NP1-NP401.

    Research output: Contribution to journalMeeting abstractpeer-review

  57. Published

    Written information given to patients and families by palliative care units : a national survey.

    Payne, S., Large, S., Jarrett, N. & Turner, P., 20/05/2000, In: The Lancet. 355, 9217, p. 1792

    Research output: Contribution to journalJournal articlepeer-review

  58. Unpublished

    Young adults and life-stage issues; the effects on parents and Families. [Plenary speakers]

    Thomas, C. & Grinyer, A., 2001, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN Speech

  59. Published

    Young adults with cancer : the effects of the illness on parents and families.

    Grinyer, A. & Thomas, C., 04/2001, In: International Journal of Palliative Nursing. 7, 4, p. 162-170 9 p.

    Research output: Contribution to journalJournal articlepeer-review

  60. Unpublished

    Young adults with cancer: how their life stage affects parents and Families. [Poster]

    Grinyer, A. & Thomas, C., 2001, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN Poster

  61. Published

    Young adults with cancer: parents' interaction with health professionals.

    Grinyer, A., 03/2004, In: European Journal of Cancer Care. 13, 1, p. 88-95 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  62. Published

    Young people living with cancer: implications for policy and practice.

    Grinyer, A., 2007, Open University Press. 182 p.

    Research output: Book/Report/ProceedingsBook

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