International Observatory on End of Life Care

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Conference contribution/Paper
Published
Systematic literature review of prognostic variables associated with being in the last year of life in patients with heart failure (10th International Congress on Coronary Artery Disease (ICCAD). Florence, Italy, October 13–16, 2013)
Gadoud, A., Macleod, U. & Johnson, M., 1/10/2013, 10th International Congress on Coronary Artery Disease (ICCAD). Florence, Italy, October 13–16, 2013: Abstracts. Suppl. 2 ed. Vol. 126. p. 501 (Cardiology).
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Conference contribution/Paper › peer-review
Published
Training for consumer participants in research
Morris, S. & Twelvetree, T., 2003, The third dimension: a report on the proceedings of a seminar. London: RCGP Research Group, p. 10-12 3 p.
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Conference contribution/Paper › peer-review
Other chapter contribution
Published
Psychological and social issues
Payne, S. A., van den Block, L., Hudson, P., Guldin, M-B., Keegan, O., Guo, Q. & Hughes, S., 1/05/2017, Building Integrated Palliative Care Programs and Services. Gómez-Batiste, X. & Connor, S. (eds.). p. 299-316 18 p.
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Other chapter contribution
Conference paper
Published
Researching an innovative Cottage Hospice model of care: An academic and hospice partnership
Hughes, S., Barnes, H. E., Turner, M., Yardley, J. & Walshe, C. E., 23/11/2017.
Research output: Contribution to conference - Without ISBN/ISSN › Conference paper › peer-review
Published
What Difference Does an End-of-Life-Care Strategy Make: Analysis of Contemporaneously Collected National Data Comparing Recognition of the Need for Palliative Care for Cancer and Non-cancer Conditions
Gadoud, A., Kane, E., Allgar, V., Macleod, U., Oliver, S. & Johnson, M., 1/03/2017.
Research output: Contribution to conference - Without ISBN/ISSN › Conference paper › peer-review
Published
What are the fears and support needs of those living alone in the last year of life and who responds?
Hughes, S., Preston, N. J., Varey, S. E., Payne, S. A., van der Eerden, M., Schwabe, S., Busa, C., van Beek, K., Van Ende, S., Csikos, A. & Groot, M., 30/09/2016.
Research output: Contribution to conference - Without ISBN/ISSN › Conference paper › peer-review
Published
Challenges in living alone near the end of life: an international comparison from the InSup-C project
Hughes, S., Preston, N. J., Payne, S. A., van der Eerden, M., Ewert, B., Kiss, Z., Busa, C., van Beek, K., van Ende, S., Csikos, A. & Groot, M., 10/06/2016.
Research output: Contribution to conference - Without ISBN/ISSN › Conference paper › peer-review
Published
Person-centred palliative care in five European countries: the experiences of patients and family carers
van der Eerden, M., Hughes, S., Varey, S. E., Ewert, B., Schwabe, S., Busa, C., Kiss, Z., van Beek, K., van Ende, S., Csikos, A., Hasselaar, J. & Groot, M., 24/05/2016.
Research output: Contribution to conference - Without ISBN/ISSN › Conference paper › peer-review
Published
Outcomes of an EAPC White Paper on core competencies for palliative care social work in Europe
Hughes, S., Firth, P. & Oliviere, D., 8/05/2015.
Research output: Contribution to conference - Without ISBN/ISSN › Conference paper › peer-review
Published
(Re)creating the home: the morality of technology in the home in relation to district nursing palliative care
Nagington, M., Luker, K. & Walshe, C., 2015.
Research output: Contribution to conference - Without ISBN/ISSN › Conference paper › peer-review
Published
Balancing acts of work in the third sector: older volunteers’ experience in woodland conservation
Bingley, A., Collins, A., Varey, S. & Oaks, R., 2014.
Research output: Contribution to conference - Without ISBN/ISSN › Conference paper › peer-review
Unpublished
The impact of the transition to a care home on residents’ sense of identity: a longitudinal qualitative case study approach
Paddock, K., Walshe, C., Todd, C. & Brown Wilson, C., 2014, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Conference paper › peer-review
Unpublished
Narrative Research Methods in Palliative Care Contexts. [Invited plenary paper]
Thomas, C., 2008, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Conference paper
Unpublished
What can qualitative data add to knowledge about place of cancer deaths?
Thomas, C., 2007, (Unpublished). 0 p.
Research output: Contribution to conference - Without ISBN/ISSN › Conference paper
Published
Key ‘narrative’ questions to pose in the analysis of cancer interview data.
Thomas, C., 2007.
Research output: Contribution to conference - Without ISBN/ISSN › Conference paper
Published
Rejecting Care? The disability studies critique.
Thomas, C., 2007.
Research output: Contribution to conference - Without ISBN/ISSN › Conference paper
Published
Palliative care services: How do they help patients and families, Bereavement support in hospices, Bereavement and loss: social and cultural dimension.
Feldman, L. & Payne, S., 05/2006.
Research output: Contribution to conference - Without ISBN/ISSN › Conference paper › peer-review
Published
Exploring Experience: perspectives in disability studies and medical sociology.
Thomas, C., 2006.
Research output: Contribution to conference - Without ISBN/ISSN › Conference paper
Published
Problems and Solutions: perspectives in ‘care’ for people living with disability and chronic illness in medical sociology and disability studies.
Thomas, C., 2005.
Research output: Contribution to conference - Without ISBN/ISSN › Conference paper
Published
Sociologies of Disability: how is disability understood?
Thomas, C., 2004.
Research output: Contribution to conference - Without ISBN/ISSN › Conference paper
Published
The need to know: informal carers and information.
Morris, S. M. & Thomas, C., 2002.
Research output: Contribution to conference - Without ISBN/ISSN › Conference paper
Published
Informal Carers in Cancer Contexts.
Thomas, C. & Morris, S. M., 2002.
Research output: Contribution to conference - Without ISBN/ISSN › Conference paper
Published
The care given by informal carers in cancer contexts.
Thomas, C., 15/10/2001.
Research output: Contribution to conference - Without ISBN/ISSN › Conference paper
Published
Informal carers in cancer contexts: their activities and needs.
Thomas, C., Morris, S. M., Harman, J. C. & Mclllmurray, M. B., 2001.
Research output: Contribution to conference - Without ISBN/ISSN › Conference paper
Published
Area influences: the experience of place.
Thomas, C., 2000.
Research output: Contribution to conference - Without ISBN/ISSN › Conference paper
Unpublished
The psycho-emotional dimensions of disability. [Guest lecture]
Thomas, C., 2000, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Conference paper
Published
Disabled women and the gendered nature of disability: examples from health care.
Thomas, C., 2000.
Research output: Contribution to conference - Without ISBN/ISSN › Conference paper
Published
Congruence and tension between the women’s movement and the disability Movement.
Thomas, C., 2000.
Research output: Contribution to conference - Without ISBN/ISSN › Conference paper
Published
Companions through Cancer: the care given by informal carers in cancer contexts.
Thomas, C. & Morris, S. M., 2000.
Research output: Contribution to conference - Without ISBN/ISSN › Conference paper
Poster
Published
Developing a ward based research hub in a hospice; improving researcher engagement with staff in the hospice environment to promote research engagement and activity
Stanley, S., Nwosu, A. & Chapman, L., 6/11/2023.
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Published
Digital legacy and palliative care: Using technology, design and healthcare partnerships to research how digital information is managed after death
Nwosu, A., Stanley, S., Norris, J. & Taubert, M., 6/11/2023.
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Unpublished
Caregiver views and expectations about the use of artificial hydration in the management of dying people with advanced cancer: a questionnaire study
Nwosu, A., 13/10/2022, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Published
How can technology be used to support communication in palliative care beyond the COVID-19 pandemic?
Stanley, S. & Nwosu, A., 13/10/2022.
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Published
Developing a process to support the wellbeing of children facing the death of a parent
Werner, K., Mayne-Semple, D., Lynch, J. & Nwosu, A., 13/10/2022.
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Published
Development of ‘use-cases’ for a digital palliative care bereavement service
Nwosu, A., Stanley, S., Mulcahy, M-C., Mason, S., Fayoumi, A. & Chapman, L., 18/05/2022.
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Published
How can technology be used to support communication in palliative care beyond the COVID-19 pandemic?
Stanley, S., Nwosu, A. & Chapman, L., 18/05/2022.
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Published
How can technology be used to support communication in palliative care beyond the COVID-19 pandemic?
Stanley, S. & Nwosu, A., 24/03/2022.
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Published
A Narrative Exploration of the Experiences of Informal Caregivers for People with Moderate to Advanced Dementia within a Domestic Home Setting towards the End of Life
James, C., Walshe, C. & Swarbrick, C., 6/10/2021.
Research output: Contribution to conference - Without ISBN/ISSN › Poster
Published
Evaluating the online response to a guide to support people who are caring for dying friends and family, the ‘Deathbed Etiquette: an analysis of Twitter and newspaper comments.
Nwosu, A., Sanders, K., Elverson, J., Doherty, M. & Gadoud, A., 6/08/2021.
Research output: Contribution to conference - Without ISBN/ISSN › Poster
Published
Challenges of undertaking a systematic review to measure residents’ length of stay in care homes
Collingridge Moore, D., Payne, S., Keegan, T. & Froggatt, K., 2020.
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Published
Understanding implementation strategies to support the delivery of palliative care in long term care facilities (LTCFs): a scoping review from the PACE study.
Collingridge Moore, D., Payne, S., Ling, J., Van den Block, L. & Froggatt, K., 2019.
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Published
Using Participatory Action Research in the Development of an Innovative Cottage Hospice Model of Care in the United Kingdom
Hughes, S., Barnes, H. E., Yardley, J., Turner, M. & Walshe, C. E., 2/10/2018.
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Published
Perceptions and Experiences of Patients and Informal Caregivers in Advanced Chronic Obstructive Pulmonary Disease: An Exploratory Study
Fusi-Schmidhauser, T., Froggatt, K. A. & Preston, N. J., 24/05/2018.
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Published
Family Members’ Experiences and Needs When Witnessing Diminishing Drinking of a Dying Relative: A Systematic Literature Review
Pettifer, A., Froggatt, K. A. & Hughes, S., 24/05/2018.
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Published
Predictors of length of stay in nursing homes a comparison of residents in 322 nursing homes in six European countries. Results of the EU FP7 PACE study.
Collingridge Moore, D., Payne, S., Keegan, T., Van den Block, L., Deliens, L., Gambassi, G., Heikkilä, R., Kijowska, V., Pasman, R., Pivodic, L. & Froggatt, K., 2018.
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Published
Length of Stay in Nursing Homes, a Survival Analysis of six European Countries: Results of the EU FP7 PACE Study.
Collingridge Moore, D., Payne, S., Keegan, T., Van den Block, L., Deliens, L., Gambassi, G., Heikkilä, R., Kijowska, V., Pasman, R. H., Pivodic, L. & Froggatt, K., 2018.
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Published
Frontline direct care workers experiences of providing domiciliary care towards the end of life: a systematic literature review and narrative synthesis
Hughes, S., Holt, V. L. & Preston, N. J., 19/05/2017.
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Published
Predictors of length of stay before death in nursing homes a systematic review
Collingridge Moore, D., Froggatt, K., Payne, S. & Van den Block, L., 2017.
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Published
Engaging nursing homes (NHs) in the PACE study: comparing recruitment in observational and intervention research designs
Sowerby, E., Collingridge Moore, D., Froggatt, K., Payne, S. & Van den Block, L., 8/06/2016.
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Published
‘It’s not really our thing’: lessons in engaging care homes in palliative care research
Collingridge Moore, D., Froggatt, K., Sowerby, E. & Payne, S., 9/03/2016.
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Published
'To wait or not to wait': lessons from running a wait-list controlled trial (ELSA) of a volunteer befriending service at the end of life within NHS, hospice and voluntary sectors
Walshe, C. E., Preston, N. J., Payne, S. A., Perez Algorta, G. D., Dodd, S. R., Hill, M. & Ockenden, N., 9/03/2016.
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Published
How do grandparents experience the death of a grandchild following a life limiting condition?
Tatterton, M., Morris, S. M. & Walshe, C. E., 9/03/2016.
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Published
Improving online learning in palliative care: a comprehensive review
Hughes, S., Preston, N. & Payne, S., 8/05/2015.
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Published
Supporting family carers: national evidence based recommendations for hospices in the UK
Morbey, H. & Payne, S., 6/06/2014.
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Unpublished
Cancer and seeking normality: a longitudinal, qualitative study to explore how patients with advanced cancer and their carers cope and maintain psychological wellbeing
Roberts, D., Grande, G., Lloyd-Williams, M., Calman, L., Appleton, L., Large, P., Kernaghan, S. & Walshe, C., 2013, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Published
Improving Hospice Environments for Older People in England: A Documentary Analysis
Rigby, J., Payne, S. & Milligan, C., 2012. 0 p.
Research output: Contribution to conference - Without ISBN/ISSN › Poster
Unpublished
The physical environment of care for older in-patients at the end of life
Rigby, J., 5/04/2011, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Poster
Unpublished
What evidence is there about the specific environmental needs of older people who are near the end of life and are cared for in hospices or similar institutions: a literature review
Rigby, J., 7/05/2009, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Poster
Published
It’s amazing how safe and secure I felt within that building. [Posters]
Cockshott, Z. J., Payne, S. A., Thomas, C. & Fyfe, D., 2009.
Research output: Contribution to conference - Without ISBN/ISSN › Poster
Published
Recruiting older people with heart failure into a study exploring palliative care needs.
Barnes, S., Gott, M. & Payne, S., 2005.
Research output: Contribution to conference - Without ISBN/ISSN › Poster
Published
Preferences for place of death among cancer patients and their carers [Poster and presentation]
Thomas, C., 2004.
Research output: Contribution to conference - Without ISBN/ISSN › Poster
Unpublished
Young adults with cancer: how their life stage affects parents and Families. [Poster]
Grinyer, A. & Thomas, C., 2001, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Poster
Abstract
Published
Talk about talking: 'Safe' and 'challenging' therapeutic talk in a UK Independent Cancer Support Service
Cockshott, Z., Payne, S. & Thomas, C., 05/2011, p. 151-152.
Research output: Contribution to conference - Without ISBN/ISSN › Abstract
Other
Published
Ethical conundrums roundtable – The ethical implications of AI in digital legacy and managing grief.
Nwosu, A., 6/11/2023.
Research output: Contribution to conference - Without ISBN/ISSN › Other
Published
Exploration of the experiences of informal caregivers for people with a moderate to advanced dementia within a domestic home setting
James, C., Walshe, C. & Swarbrick, C., 1/10/2020.
Research output: Contribution to conference - Without ISBN/ISSN › Other
Speech
Published
Grandparents’ experience of the death of a grandchild from a life-limiting condition: an interpretative phenomenological analysis
Tatterton, M., Morris, S. M. & Walshe, C. E., 2016.
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Unpublished
The physical environment of care for older in-patients at the end of life
Rigby, J., 6/04/2011, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Unpublished
My Experience as a CECo Scholar
Rigby, J., 10/05/2009, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Unpublished
Improving the Physical Environment for Older In-Patients at the End of Life
Rigby, J., 21/04/2009, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Unpublished
The Social Model of Disability and the Rights Discourse: one and the same? [Invited speaker]
Thomas, C., 2009, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Unpublished
Narratives of living and dying with cancer. [Invited speaker]
Thomas, C., 2007, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Unpublished
Exploring Experience – disciplinary perspectives. [Invited speaker]
Thomas, C., 2006, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Unpublished
Patient Choice and Place of Death. [Keynote address]
Thomas, C., 2005, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Unpublished
Disability and Gender. [Invited speaker]
Thomas, C., 2005, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Unpublished
Care and Dependency – Contested Disciplinary Terrain. [Invited speaker]
Thomas, C., 2005, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Unpublished
Theoretical reflections on Care and Dependency.
Thomas, C., 2005, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Unpublished
Gender and Disability. [Plenary speaker]
Thomas, C., 2005, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Unpublished
Methodological issues arising from a randomized controlled trial for malignant ascites in palliative care (Oral presentation)
Preston, N., 2004, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Unpublished
A survey of practice in malignant ascites discussed in relation to findings from a systematic review of the literature (Oral presentation)
Preston, N. & Seers, A., 2004, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Unpublished
Methodological issues arising from a randomized controlled trial for malignant ascites in palliative care (Oral presentation)
Preston, N., 2004, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Unpublished
Choosing the Place of Final Care. [Plenary speaker]
Thomas, C. & Morris, S. M., 2003, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Unpublished
Defining a Theoretical Agenda for Disability Studies. [Plenary speaker]
Thomas, C., 2003, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Unpublished
The development of a nursing strategy for managing malignant ascites (Oral presentation / Plenary)
Preston, N., 2002, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Unpublished
The role of the research nurse (Oral presentation / Plenary)
Preston, N., 2002, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Unpublished
The Social Care Needs of Cancer Patients and Their Carers. [Keynote speaker]
Thomas, C., 2002, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Unpublished
Companions Through Cancer. [Plenary speakers]
Thomas, C. & Grinyer, A., 2002, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Unpublished
Disability Research, Theory and Practice. [Plenary speaker]
Thomas, C., 2002, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Unpublished
Developing the social relational in the social model of disability: a theoretical agenda. [Invited speaker]
Thomas, C., 2002, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Unpublished
Young adults and life-stage issues; the effects on parents and Families. [Plenary speakers]
Thomas, C. & Grinyer, A., 2001, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Unpublished
Disability and Gender: Opening Up the Psycho-emotional Dimensions of Disability. [Keynote speaker]
Thomas, C., 2001, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Unpublished
The psychosocial needs of cancer patients and their main carers. [Keynote speaker]
Thomas, C., 2000, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Unpublished
Women, Disability and Maternity Services. [Invited speaker]
Thomas, C., 2000, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Unpublished
Understanding Health Inequalities: people, time and place.[Invited speaker]
Thomas, C., 2000, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Article
Published
A systematic review of the resource use of a palliative care approach in adult non-cancer patients with a life-limiting illness
Gavini, S., Janke, K., Gadoud, A. & Salifu, Y., 14/08/2020, PROSPERO International prospective register of systematic reviews.
Research output: Contribution to specialist publication › Article
Published
Anticipatory prescribing in end-of-life care
Wilson, E., Seymour, J., Morbey, H., Payne, S., Brown, J. & Seale, C., 29/10/2014, Nursing Times, 110, 44, p. 16-17 2 p.
Research output: Contribution to specialist publication › Article
Featured article
Published
How can and should UK society adjust to dementia?
Thomas, C. & Milligan, C., 06/2015, Joseph Rowntree Viewpoint 24 p.
Research output: Contribution to specialist publication › Featured article
Digital or Visual Products
Published
The Namaste Care Guide Video
Walshe, C., 7/06/2022
Research output: Exhibits, objects and web-based outputs › Digital or Visual Products
Doctoral Thesis
Published
The experiences of families who support a patient who dies from assisted suicide in Switzerland
Gamondi, C., 4/07/2022, Lancaster University. 201 p.
Research output: Thesis › Doctoral Thesis
Published
Length of stay and palliative care: Understanding long-term care facility residents in Europe
Collingridge Moore, D., 19/05/2021, Lancaster University. 378 p.
Research output: Thesis › Doctoral Thesis
Published
Health care professional recruitment of patients and family carers to palliative care randomised controlled trials: A qualitative multiple case study
Dunleavy, L., 2021, Lancaster University. 352 p.
Research output: Thesis › Doctoral Thesis

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