International Observatory on End of Life Care

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Blog
Published
Linking the ‘point of care’ with the ‘point of life’: experiences from the MyPal project
Payne, S., Salifu, Y. & Begovic, D., 4/04/2023
Research output: Exhibits, objects and web-based outputs › Blog › peer-review
Published
Compassionate Palliative Services: a new actor in Ghana
Davies, J. & Salifu, Y., 30/03/2023
Research output: Exhibits, objects and web-based outputs › Blog
Published
Beautiful and winding yet unending story….
Salifu, Y., 28/02/2023
Research output: Exhibits, objects and web-based outputs › Blog
Published
Editorial MyPal Autumn Newsletter: Health apps and their use in palliative care
Salifu, Y., 22/09/2021
Research output: Exhibits, objects and web-based outputs › Blog › peer-review
Conference article
Published
Abstracts from the Lancaster Clinical Academic Trainee Symposium 2023
Chowdhury, S., Sharratt, P. & Gadoud, A., 1/07/2023, In: Morecambe Bay Medical Journal. 9, 4, p. 84-88 5 p.
Research output: Contribution to Journal/Magazine › Conference article
Review article
Published
The views and perceptions of training in physical health care amongst mental health nurses, managers of mental health nurses and trainers: A systematically constructed narrative synthesis
Jabbie, L., Walshe, C. & Ahmed, F., 1/04/2024, In: International Journal of Mental Health Nursing. 33, 2, p. 309-323
Research output: Contribution to Journal/Magazine › Review article › peer-review
Published
How clinicians recognise people who are dying: An integrative review
Colquhoun-Flannery, E., Goodwin, D. & Walshe, C., 31/03/2024, In: International Journal of Nursing Studies. 151, 104666.
Research output: Contribution to Journal/Magazine › Review article › peer-review
Published
Online interviews for qualitative health research in Africa: a scoping review
Akyirem, S., Ekpor, E., Aidoo-Frimpong, G. A., Salifu, Y. & Nelson, L. E., 2/01/2024, In: International Health. 16, 1, p. 4-13 10 p.
Research output: Contribution to Journal/Magazine › Review article › peer-review
Published
A Meta-Ethnographic Review of Paid Staff and Volunteers Working together in Palliative Care
Oliver, K., Brown, M., Walshe, C. & Salifu, Y., 1/12/2023, In: Journal of Pain and Symptom Management. 66, 6, p. 656-670 e.11.
Research output: Contribution to Journal/Magazine › Review article › peer-review
Published
The experience of informal caregivers in providing patient care in hospitals in low- and middle-income countries: A qualitative meta-synthesis
Hogan, U., Bingley, A., Morbey, H. & Walshe, C., 31/10/2022, In: Journal of Health Services Research and Policy. 27, 4, p. 321-329 9 p.
Research output: Contribution to Journal/Magazine › Review article › peer-review
Published
Ethical Principles in Digital Palliative Care for Children: The MyPal Project and Experiences Made in Designing a Trustworthy Approach
Garani-Papadatos, T., Natsiavas, P., Meyerheim, M., Hoffmann, S., Karamanidou, C. & Payne, S. A., 18/03/2022, In: Frontiers in Digital Health. 4, 10 p., 730430.
Research output: Contribution to Journal/Magazine › Review article › peer-review
Published
What should we report? Lessons learnt from the development and implementation of serious adverse event reporting procedures in non-pharmacological trials in palliative care
Dunleavy, L., Collingridge Moore, D., Korfage, I. J., Payne, S., Walshe, C. & Preston, N., 20/01/2021, In: BMC Palliative Care. 20, 1, 8 p., 19.
Research output: Contribution to Journal/Magazine › Review article › peer-review
Published
Strategies for the implementation of palliative care education and organizational interventions in long-term care facilities: A scoping review
PACE, 1/05/2020, In: Palliative Medicine. 34, 5, p. 558-570 13 p.
Research output: Contribution to Journal/Magazine › Review article › peer-review
Published
Interventions for the management of malignant pleural effusions: a network meta-analysis
Dipper, A., Jones, H. E., Bhatnagar, R., Preston, N. J., Maskell, N. & Clive, A. O., 21/04/2020, In: Cochrane Database of Systematic Reviews. 4, 310 p., CD010529.
Research output: Contribution to Journal/Magazine › Review article › peer-review
Published
International variations in clinical practice guidelines for palliative sedation: A systematic review
on behalf of EURO IMPACT, 1/09/2017, In: BMJ Supportive and Palliative Care. 7, 3, p. 223-229 7 p.
Research output: Contribution to Journal/Magazine › Review article › peer-review
Other report
Published
Volunteering and end-of-life care: An evidence based toolkit
Walshe, C. E., Preston, N. J., Payne, S. A., Dodd, S. R., Perez Algorta, G. D., Hill, M. & Ockenden, N., 1/10/2018, Lancaster: Lancaster University.
Research output: Book/Report/Proceedings › Other report
Commissioned report
Published
Access to opioid medication in Europe: final report and recommendations to the Ministries of Health
Radbruch, L. (ed.), Jünger, S., Payne, S. A. & Scholten, W., 11/2014, Bonn: Pallia Med Verlag. 156 p.
Research output: Book/Report/Proceedings › Commissioned report
Unpublished
Blog reader survey 2014: feedback on use accessibility and preferences
Morbey, H., Jackson, A., Greenwood, A. & Payne, S., 22/07/2014, (Unpublished) Lancaster: International Observatory on End of Life Care. 37 p.
Research output: Book/Report/Proceedings › Commissioned report
Published
Supporting family carers: report on the evidence of how to work with and support family carers to inform the work of the Commission into the future of hospice care
Payne, S. & Morbey, H., 10/2013, London: Help the Hospices. 36 p.
Research output: Book/Report/Proceedings › Commissioned report
Published
Research in palliative care: can hospices afford not to be involved?
Payne, S. A., Preston, N. J., Turner, J. M. & Rolls, L., 10/2013, Help the Hospices. 42 p.
Research output: Book/Report/Proceedings › Commissioned report
Published
Age UK: Supporting Older Carers of Those Nearing the End of Life: Lancaster University Evaluation of Six Pilot Projects
Morbey, H., Payne, S., Froggatt, K., Milligan, C. & Turner, M., 09/2013, Lancaster: Lancaster University. 69 p.
Research output: Book/Report/Proceedings › Commissioned report
Published
A Study to develop integrated working between primary health care services and care homes. NIHR Service Delivery and Organisation programme.
Goodman, C., Davies, S. L., Dickinson, A., Gage, H., Froggatt, K., Morbey, H., Victor, C., Masey, H., Martin, W. & Iliffe, S., 01/2013, NIHR Service Delivery and Organisation Programme. 276 p.
Research output: Book/Report/Proceedings › Commissioned report
Published
Teenage and young adult palliative and end of life care service evaluation
Grinyer, A. & Barbarachild, Z., 04/2011, London: Teenage Cancer Trust.
Research output: Book/Report/Proceedings › Commissioned report
Book
Published
The European MyPal study: Developing digital health for adults and children with cancer
Payne, S. (ed.), Salifu, Y. (ed.), Begovic, D. (ed.) & Greenwood, A. (ed.), 16/12/2022, My Pal Project. 40 p.
Research output: Book/Report/Proceedings › Book
Published
Handbook of Theory and Methods in Applied Health Research: Questions, Methods and Choices
Walshe, C. (ed.) & Brearley, S. (ed.), 31/07/2020, Cheltenham: Edward Elgar. 367 p.
Research output: Book/Report/Proceedings › Book
Published
Palliative Care Nursing: Principles and Evidence for Practice
Walshe, C. E., Preston, N. J. & Johnston, B., 31/05/2018, 3rd ed. McGraw-Hill / Open University Press. 544 p.
Research output: Book/Report/Proceedings › Book
Published
A post-graduate's guide to doing a literature review in health and social care
Aveyard, H., Payne, S. A. & Preston, N. J., 1/02/2016, Oxford: Oxford University Press. 200 p.
Research output: Book/Report/Proceedings › Book
Unpublished
Older men who care: understanding their support and support needs
Milligan, C. & Morbey, H., 23/12/2013, (Unpublished) Lancaster: Lancaster University Centre for Ageing Research . 38 p.
Research output: Book/Report/Proceedings › Book
Published
Psychology for Nurses and the Caring Professions
Walker, J. (ed.), Payne, S. (ed.), Jarrett, N. (ed.) & Ley, T. (ed.), 05/2012, 4th ed. London: Open University Press. 360 p.
Research output: Book/Report/Proceedings › Book
Published
Palliative and end of life care for children and young people: home, hospice, hospital
Grinyer, A., 02/2012, 2nd ed. ed. Oxford: Blackwell. 184 p.
Research output: Book/Report/Proceedings › Book
Published
Routledge handbook of disability studies
Watson, N. (ed.), Roulstone, A. & Thomas, C. (ed.), 2012, New York: Routledge. 452 p. (Routledge handbooks)
Research output: Book/Report/Proceedings › Book
Published
Death, dying, and social differences
Oliviere, D. (ed.), Monroe, B. (ed.) & Payne, S. (ed.), 2011, 2 ed. Oxford: Oxford University Press. 226 p.
Research output: Book/Report/Proceedings › Book
Published
Narrative methods in supportive and palliative care: an annotated bibliography
Rolls, E., Payne, S. & Brown, J., 2009, Lancaster: Observatory Publications. 130 p.
Research output: Book/Report/Proceedings › Book
Published
Life after cancer in adolescence and young adulthood: the experience of survivorship
Grinyer, A., 2009, London: Routledge. 194 p.
Research output: Book/Report/Proceedings › Book
Published
Family carers in palliative care : a guide for health and social care professionals.
Hudson, P., Payne, S., Hudson, P. (ed.) & Payne, S. (ed.), 2009, Oxford: Oxford University Press. 309 p.
Research output: Book/Report/Proceedings › Book
Published
Understanding care homes : a research and development perspective.
Froggatt, K., Davies, S. & Meyer, J., 2009, London: Jessica Kingsley. 272 p.
Research output: Book/Report/Proceedings › Book
Published
Palliative care nursing : principles and evidence for practice.
Payne, S., Seymour, J. & Ingleton, C., 2008, Maidenhead: McGraw-Hill / Open University Press. 717 p.
Research output: Book/Report/Proceedings › Book
Published
End-of-life care for older people in acute and long-stay settings in Ireland.
O'Shea, E., Murphy, K., Larkin, P., Payne, S., Froggatt, K., Casey, D., Leime, A. & Keys, M., 2008, Dublin: Irish Hospice Foundation and National Council on Ageing and Older People.
Research output: Book/Report/Proceedings › Book
Published
Organ and tissue donation : an evidence base for practice.
Sque, M. & Payne, S., 2007, Maidenhead: Open University Press. 191 p.
Research output: Book/Report/Proceedings › Book
Published
Research methods in palliative care.
Addington-Hall, J., Bruera, E., Higginson, J. & Payne, S., 2007, Oxford: Oxford University Press. 315 p.
Research output: Book/Report/Proceedings › Book
Published
Pyschology for nurses and the caring professions. 3rd ed.
Walker, J., Payne, S., Smith, P. & Jarrett, N., 2007, Maidenhead: Open University Press. 275 p. (Social science for nurses and the caring professions)
Research output: Book/Report/Proceedings › Book
Published
Sociologies of Disability and Illness. Contested ideas in disability studies and medical sociology.
Thomas, C. J., 2007, Palgrave Macmillan. 1 p.
Research output: Book/Report/Proceedings › Book
Published
Bereavement and loss.
Payne, S. & Froggatt, K., 2007, London: Help the Aged.
Research output: Book/Report/Proceedings › Book
Published
Dying : a guide for hospital staff.
Payne, S., Froggatt, K. & Hockley, J., 2007, London: Help the Aged.
Research output: Book/Report/Proceedings › Book
Published
Principy a Praxe Paliativní Péče : Společnost pro odbornou literature. (2nd Czech ed.)
Payne, S., Seymour, J. & Ingleton, C., 2007, Prague: Unknown Publisher.
Research output: Book/Report/Proceedings › Book
Published
EAPC Atlas of Palliative Care in Europe
Centeno, C., Clark, D., Lynch, T., Rocafort, J., Praill, D., DeLima, L., Greenwood, A., Alberto Flores, L., Brasch, S. & Giordano, A., 2007, Milan: International Association for Hospice and Palliative Care.
Research output: Book/Report/Proceedings › Book
Published
Young people living with cancer: implications for policy and practice.
Grinyer, A., 2007, Open University Press. 182 p.
Research output: Book/Report/Proceedings › Book
Published
Living and dying with dementia : dialogues about palliative care.
Small, N., Froggatt, K. & Downs, M., 2007, Oxford: Oxford University Press. 248 p.
Research output: Book/Report/Proceedings › Book
Published
Proceedings of the Bolton research forum in heath and social care 3rd annual conference.
Morris, S. M., 2006, Unknown Publisher.
Research output: Book/Report/Proceedings › Book
Published
Proceedings of the NHS R&D forum : the realities of service user and carer involvement in research.
Morris, S. M., 2006, Unknown Publisher.
Research output: Book/Report/Proceedings › Book
Published
Proceedings of INVOLVE 5th national conference : people in research.
Morris, S. M., Hinder, S. & Britt, D., 2006, Unknown Publisher.
Research output: Book/Report/Proceedings › Book
Published
End-of-life care : promoting comfort, choice and well-being for older people.
Seymour, J., Witherspoon, R., Gott, M., Ross, H., Payne, S. & Owen, T., 2005, Bristol: Policy Press in association with Help the Aged. 74 p.
Research output: Book/Report/Proceedings › Book
Published
Palliative care in care homes for older people.
Froggatt, K., 2004, London: The National Council for Palliative Care.
Research output: Book/Report/Proceedings › Book
Published
Psychology for nurses and the caring profession. 2nd ed.
Walker, J., Payne, S., Smith, P. & Jarrett, N., 2004, Maidenhead: Open University Press. 219 p.
Research output: Book/Report/Proceedings › Book
Published
Palliative care nursing : principles and evidence for practice.
Payne, S., Seymour, J. & Ingleton, C., 2004, Buckingham: Open University Press. 624 p.
Research output: Book/Report/Proceedings › Book
Published
Disabling barriers - enabling environments (2nd ed.)
Thomas, C., Swain, J., Barnes, C. & French, S., 2004, London: Sage. 306 p.
Research output: Book/Report/Proceedings › Book
Published
Place of death in the Morecambe Bay area : patterns and preferences for place of final care and death among terminally ill cancer patients and their carers.
Thomas, C., Morris, S. M. & Gatrell, A. C., 2003, Lancaster: University of Lancaster.
Research output: Book/Report/Proceedings › Book
Published
Cancer in young adults: through parents’ eyes.
Grinyer, A., 2002, Buckingham: Open University Press. 194 p.
Research output: Book/Report/Proceedings › Book
Published
Chronic and terminal illness : new perspectives on caring and carers.
Payne, S. & Ellis-Hill, C., 2001, Oxford: Oxford University Press. 170 p.
Research output: Book/Report/Proceedings › Book
Other
Published
Women and Disability. (Women's Studies Network (UK) Association Newsletter, 36)
Thomas, C., 08/2000, Women's Studies Network (UK) Association, 7 p.
Research output: Working paper › Other
Working paper
Published
Independent evaluation of the Marie Curie Cancer Care 'delivering choice programme' : end evaluation report for Tayside.
Payne, S., Seymour, J., Ingleton, C. & Chatwin, J., 10/2009, Marie Curie Cancer Care.
Research output: Working paper
Published
Evaluation of the Help the Hospices major grants programme for carers of those who are terminally ill : final report.
Payne, S., Ingleton, C., Nolan, M. & O'Brien, T., 07/2009, Help the Hospices.
Research output: Working paper
Published
Supporting relatives : an investigation into obstacles and aids to information exchange within families affected by cancer : interim report.
Foster, C., Scott, I., Sayers, M., Robinson, J., Hopkinson, J., Addington-Hall, J. & Payne, S., 06/2009, Macmillan Cancer Support.
Research output: Working paper
Published
Independent evaluation of the Marie Curie Cancer Care 'Delivering Choice Programme' : end evaluation report for Leeds
Payne, S., Seymour, J., Ingleton, C. & Chatwin, J., 02/2009, Leeds: Marie Curie Cancer Care.
Research output: Working paper
Unpublished
Exploring the impact of user involvement on health and social care services for cancer in the UK.
Attree, P., Morris, S., Clifton, M., Hinder, S. & Vaughan, S., 01/2009, (Unpublished) Lancaster, UK, 92 p.
Research output: Working paper
Published
A pilot study to explore the palliative care needs of older patients with chronic obstructive pulmonary disease (COPD).
Gott, M., Barnes, S., Gardiner, C., Halpin, D., Parker, C., Payne, S., Ruse, C., Seamark, D. & Small, N., 2009.
Research output: Working paper
Published
Exploring the research education needs of hospices : a focus group study conducted in Manchester and London.
Payne, S., Turner, M., Kerr, C., Amir, Z. & Brearley, S., 12/2008, Help the Hospices.
Research output: Working paper
Published
Ethnicity and cancer : examining psychosocial trnasitions for older people : final report.
Payne, S., Chapman, A., Froggatt, K., Gott, M. & Chung, M., 09/2008, Dimbleby Cancer Care.
Research output: Working paper
Published
Cancer Experiences Research Collaborative Annual Progress Report, year 2: May 2007-April 2008.
Addington-Hall, J. & Payne, S., 07/2008, London: NCRI.
Research output: Working paper
Published
Listening to the experts : a summary od 'user involvement in palliative care : a scoping study'
Payne, S., Gott, M., Small, N. & Olivier, D., 05/2008, National Council for Palliative Care.
Research output: Working paper
Published
The role of psychology in end of life care.
Kalus, C., Beloff, H., Brennan, J., McWilliams, E., Payne, S., Royan, L. & Russell, P., 03/2008, London: The Professional Board of the British Psychological Society.
Research output: Working paper
Published
Structured end evaluation report for Lincolnshire, January 2008.
Payne, S., Seymour, J., Ingleton, C., Sargeant, A. & Kidd, H., 02/2008, Marie Curie Cancer Care.
Research output: Working paper
Published
Palliative care in acute stroke : final report.
Payne, S., Addington-Hall, J., Burton, C. R., Jones, A., Hendra, T. & Stevens, T., 02/2008, The Stroke Association.
Research output: Working paper
Published
Report on evaluation of Richard Dimbleby Cancer Information and Support Service.
Payne, S., Hawker, S. & Kerr, C., 02/2008, Dimbleby Cancer Care.
Research output: Working paper
Published
Original revised end evaluation report for Lincolnshire May 2007-October 2007.
Payne, S., Seymour, J., Ingleton, C., Sargeant, A. & Kidd, H., 02/2008, Marie Curie Cancer Care.
Research output: Working paper
Unpublished
Report of the public involvement in peer reviewing workshop.
Morris, S., 2008, (Unpublished) Lancaster UK, 14 p.
Research output: Working paper
Published
Cancer experiences research collaborative annual progress report, year 1 : May 2006-April 2007.
Addington-Hall, J. & Payne, S., 07/2007, London: NCRI.
Research output: Working paper
Published
End-of-life care for old people in acute and long-stay care settings in Ireland : final report.
O'Shea, E., Murphy, K., Larkin, P., Payne, S., Froggatt, K., Casey, D. C., Ni Leime, A. & Keys, M., 2007, National Council on Ageing & Older People and the Irish Hospice Foundation.
Research output: Working paper
Published
End-of-life care for older people in Rotherham : final report
Skilbeck, J., Davis, G., Payne, S. & Reid, D., 09/2006, Rotherham NHS Primary Care Trust.
Research output: Working paper
Published
A multi-centre longitudinal study to identify the palliative care needs of older people with heart failure and their families : executive summary.
Gott, M., Barnes, S., Payne, S., Seamark, D., Parker, C., Gariballa, S. & Small, N., 08/2006, Sheffield: University of Sheffield.
Research output: Working paper
Published
Exploring the end of life decision-making and hospital experiences of families who did not donate organs or tissues for transplant operations : final report.
Sque, M., Allardyce, D., Long, T. & Payne, S., 02/2006, UK Transplant.
Research output: Working paper
Published
Carers of the terminally ill and employment issues : a comprehensive literature review : final report.
Smith, P., Payne, S. & Ramcharan, P., 01/2006, Help the Hospices.
Research output: Working paper
Unpublished
Public involvement in health research in the North West : report of the Success Stories mapping project and conference 2005/6.
Morris, S., 2006, (Unpublished) Lancaster, 30 p.
Research output: Working paper
Unpublished
How can public involvement work in research networks?
Morris, S., 2006, (Unpublished) Lancaster UK, 8 p.
Research output: Working paper
Published
Adult bereavement support in five hospices in England : final report.
Field, D., Reid, D., Payne, S. & Relf, M., 2005.
Research output: Working paper
Published
Evaluating bereavement support provided to older people by hospices : final report.
Payne, S., Field, D., Relf, M. & Reid, D., 2005, Health Foundation.
Research output: Working paper
Published
Improving access to specialist palliative care : developing a screening measure to assess the distress caused by advanced illness that may require referral to specialist palliative care : final report.
Ahmedzai, S. H., Payne, S., Bestall, J. C., Ahmed, N., Dobson, K., Clark, D. & Noble, B., 2005, Elizabeth Clark Charitable Trust.
Research output: Working paper
Published
What are the views of people affected by cancer and other illnesses about end of life issues? professional and patient perspectives.
Clark, D., Thomas, C., McDermott, E., Bingley, A., Payne, S. & Seymour, J., 2005, Macmillan Cancer Relief.
Research output: Working paper
Published
User-involvement in palliative care : a scoping study : final report.
Payne, S., Gott, M., Small, N., Oliviere, D., Thomas, J., Young, E. & Sargeant, A., 2005, St. Christopher's Hospice.
Research output: Working paper
Published
What are the views of people affected by cancer and other illnesses about end of life issues? carer perspectives.
Clark, D., Thomas, C., Lynch, T. & Bingley, A., 2005, Macmillan Cancer Relief.
Research output: Working paper
Published
Exploring and understanding the views of older Chinese people about cancer and end-of-life care : final report.
Payne, S., Seymour, J., Holloway, M. & Chapman, A., 2005.
Research output: Working paper
Published
A survey of the perspectives of specialist palliative care providers in the UK of in-patient respite : final report.
Payne, S., Ingleton, C., Scott, G., Steele, K., Nolan, M. & Carey, I., 2004, Sheffield: University of Sheffield.
Research output: Working paper
Published
Final report of an evaluation of the North Trent Cancer Network District Nurse/Community Nurse education programme in palliative care.
Hughes, P., Payne, S. & Noble, B., 2004, London: Department of Health.
Research output: Working paper
Published
Families who did not donate organs : recruiting potential participants : final report
Sque, M., Long, T. & Payne, S., 2004, British Organ Donor Society and National Lottery Community Fund.
Research output: Working paper
Published
From understanding to implementation : meeting the needs of families and individuals affected by post mortem organ retention : final report.
Sque, M., Long, T. & Payne, S., 2004, London: Department of Health and the Retained Organs Commission.
Research output: Working paper
Published
The provision of palliative care for elderly people in community hospitals : best hope or last hope : final report.
Payne, S., Kerr, C., Hawker, S., Seamark, D., Davis, C., Roberts, H., Jarrett, N., Roderick, P. & Smith, H., 2004, Health Foundation.
Research output: Working paper
Published
Thinking about the future : promoting comfort, choice and well being for older people at the end of their lives.
Seymour, J., Witherspoon, R., Gott, M., Ross, H. & Payne, S., 2004, Help the Aged.
Research output: Working paper
Published
Helping communities develop a childhood bereavement service : final report.
Rolls, L. & Payne, S., 2003, Clara E. Burgess Charity.
Research output: Working paper
Published
Organ and tissue donation : exploring the needs of families : final report.
Sque, M., Long, T. & Payne, S., 2003, British Organ Donor Society and National Lottery Community Fund.
Research output: Working paper
Published
The anonymity of research participants : assumptions, ethics and practicalities.
Grinyer, A., 2002, Surrey: University of Surrey.
Research output: Working paper

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International Observatory on End of Life Care

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