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International Observatory on End of Life Care

  1. 2016
  2. Published

    What are the fears and support needs of those living alone in the last year of life and who responds?

    Hughes, S., Preston, N. J., Varey, S. E., Payne, S. A., van der Eerden, M., Schwabe, S., Busa, C., van Beek, K., Van Ende, S., Csikos, A. & Groot, M., 30/09/2016.

    Research output: Contribution to conference - Without ISBN/ISSN Conference paperpeer-review

  3. Published

    Online learning in palliative care: does it improve practice?

    Hughes, S., Preston, N. J. & Payne, S. A., 09/2016, In: European Journal of Palliative Care. 23, 5, p. 236-239 4 p.

    Research output: Contribution to journalJournal article

  4. Published

    Benefits of interventions for respiratory secretion management in adult palliative care patients-a systematic review

    Arcuri, J. F., Abarshi, E., Preston, N. J., Brine, J. & Pires Di Lorenzo, V. A., 9/08/2016, In: BMC Palliative Care. 15, 11 p., 74.

    Research output: Contribution to journalJournal articlepeer-review

  5. Published

    Verwendung der Delphi-Technik zur Entwicklung von Best-Practice-Leitlinien in der Palliativversorgung: eine methodologische systematische Übersichtsarbeit

    Jünger, S., Payne, S. A., Brine, J. J., Radbruch, L. & Brearley, S. G., 08/2016, In: Zeitschrift für Palliativmedizin. 17, 5, p. 174 1 p.

    Research output: Contribution to journalMeeting abstractpeer-review

  6. Published
  7. Published

    Integrated palliative care in Europe: a qualitative systematic literature review of empirically-tested models in cancer and chronic disease

    Siouta, N., van Beek, K., van der Eerden, M., Preston, N. J., Hasselaar, J., Hughes, S., Garralda, E., Centeno, C., Csikos, A., Groot, M., Radbruch, L., Payne, S. A. & Menten, J., 8/07/2016, In: BMC Palliative Care. 15, 56, 16 p.

    Research output: Contribution to journalJournal articlepeer-review

  8. Published

    Challenges in living alone near the end of life: an international comparison from the InSup-C project

    Hughes, S., Preston, N. J., Payne, S. A., van der Eerden, M., Ewert, B., Kiss, Z., Busa, C., van Beek, K., van Ende, S., Csikos, A. & Groot, M., 10/06/2016.

    Research output: Contribution to conference - Without ISBN/ISSN Conference paperpeer-review

  9. Published

    Engaging nursing homes (NHs) in the PACE study: comparing recruitment in observational and intervention research designs

    Sowerby, E., Collingridge Moore, D., Froggatt, K., Payne, S. & Van den Block, L., 8/06/2016.

    Research output: Contribution to conference - Without ISBN/ISSN Posterpeer-review

  10. Published

    Comparing palliative care in care homes across Europe (PACE): protocol of a cross-sectional study of deceased residents in six EU countries

    Van den Block, L., Smets, T., van Dop, N., Adang, E., Andreasen, P., Collingridge Moore, D., Engels, Y., Finne-Soveri, H., Froggatt, K. A., Payne, S. A. & Sowerby, E., 1/06/2016, In: Journal of the American Medical Directors Association. 17, 6, p. 566.e1-566.e7 7 p.

    Research output: Contribution to journalJournal articlepeer-review

  11. Published
  12. Published
  13. Published

    Working with non-clinical staff to deliver research: lessons from running a wait-list controlled trial (ELSA) of a volunteer befriending service towards the end of life

    Walshe, C. E., Dodd, S. R., Hill, M., Ockenden, N., Payne, S. A., Perez Algorta, G. D. & Preston, N. J., 06/2016, In: Palliative Medicine. 30, 6, 1 p., NP1-NP401.

    Research output: Contribution to journalMeeting abstractpeer-review

  14. Published

    Person-centred palliative care in five European countries: the experiences of patients and family carers

    van der Eerden, M., Hughes, S., Varey, S. E., Ewert, B., Schwabe, S., Busa, C., Kiss, Z., van Beek, K., van Ende, S., Csikos, A., Hasselaar, J. & Groot, M., 24/05/2016.

    Research output: Contribution to conference - Without ISBN/ISSN Conference paperpeer-review

  15. Published

    A qualitative exploration of the collaborative working between palliative care and geriatric medicine: barriers and facilitators from a European perspective

    EURO-IMPACT, 11/05/2016, In: BMC Palliative Care. 15, 10 p., 47.

    Research output: Contribution to journalJournal articlepeer-review

  16. Published

    Interventions for the management of malignant pleural effusions: a network meta-analysis

    Clive, A. O., Jones, H. E., Bhatnagar, R., Preston, N. J. & Maskell, N., 11/05/2016, In: The Cochrane Library. 5, 244 p.

    Research output: Contribution to journalJournal articlepeer-review

  17. Published

    Caring for a dying spouse at the end of life: “It’s one of the things you volunteer for when you get married”: a qualitative study of the oldest carers’ experiences

    Turner, J. M., King, C., Milligan, C., Thomas, C., Brearley, S. G., Seamark, D., Wang, X., Blake, S. & Payne, S. A., 05/2016, In: Age and Ageing. 45, 3, p. 421-426 6 p.

    Research output: Contribution to journalJournal articlepeer-review

  18. Published

    Older men and social activity: a scoping review of Men’s Sheds and other gendered interventions

    Milligan, C., Neary, D., Payne, S., Hanratty, B., Irwin, P. & Dowrick, C., 05/2016, In: Ageing and Society. 36, 5, p. 895-923 29 p.

    Research output: Contribution to journalJournal articlepeer-review

  19. Published

    Benefits of integrated palliative care assessed by European Research consortium

    Varey, S. E. & Payne, S. A., 26/04/2016

    Research output: Other contribution

  20. Published

    Advance care planning – a multi-centre cluster randomised clinical trial: the research protocol of the ACTION study

    Rietjens, J., Dunleavy, L. J., Preston, N. J. & Payne, S. A., 8/04/2016, In: BMC Cancer. 16, 8 p., 264.

    Research output: Contribution to journalJournal articlepeer-review

  21. Published

    The ageing prison population and increasing prisoner palliative care needs: effects, challenges and conflicts for prisoners and prison staff

    Varey, S., Turner, M., Peacock, M., Froggatt, K., Payne, S., Fletcher, A., Gibson, R. & Scott, G., 1/04/2016, In: Palliative Medicine. 30, 4, 1 p., Poster 41.

    Research output: Contribution to journalMeeting abstractpeer-review

  22. Published

    ‘It’s not really our thing’: lessons in engaging care homes in palliative care research

    Collingridge Moore, D., Froggatt, K., Sowerby, E. & Payne, S., 9/03/2016.

    Research output: Contribution to conference - Without ISBN/ISSN Posterpeer-review

  23. Published

    How do grandparents experience the death of a grandchild following a life limiting condition?

    Tatterton, M., Morris, S. M. & Walshe, C. E., 9/03/2016.

    Research output: Contribution to conference - Without ISBN/ISSN Posterpeer-review

  24. Published
  25. Published

    To what degree is palliative care integrated in guidelines and pathways for adult cancer patients in Europe: a systematic literature review

    van Beek, K., Siouta, N., Preston, N. J., Hasselaar, J., Hughes, S., Payne, S. A., Radbruch, L., Centeno, C., Csikos, A., Garralda, E., van der Eerden, M., Hodiamont, F., Radvanyi, I. & Menten, J., 3/03/2016, In: BMC Palliative Care. 15, 26, 17 p., 26.

    Research output: Contribution to journalJournal articlepeer-review

  26. Published

    Building a taxonomy of integrated palliative care initiatives: results from a focus group

    Ewert, B., Hodiamont, F., van Wijngaarden, J., Payne, S. A., Groot, M., Hasselaar, J., Menten, J. & Radbruch, L., 03/2016, In: BMJ Supportive and Palliative Care. 6, 1, p. 14-20 7 p.

    Research output: Contribution to journalJournal articlepeer-review

  27. Published

    Improving palliative care for prisoners: the 'both sides of the fence' study

    Turner, J. M., 03/2016, In: Prison Service Journal. 224

    Research output: Contribution to journalJournal article

  28. Published

    Quality care as ethical care: a poststructural analysis of palliative and supportive district nursing care

    Nagington, M., Walshe, C. & Luker, K., 03/2016, In: Nursing Inquiry. 23, 1, p. 12-23 12 p.

    Research output: Contribution to journalJournal articlepeer-review

  29. Published

    Unpacking the impact of older adults' home death on family care-givers' experiences of home

    Milligan, C., Turner, J. M., Blake, S., Brearley, S. G., Seamark, D., Thomas, C. J., Wang, X. & Payne, S. A., 03/2016, In: Health and Place. 38, p. 103-111 9 p.

    Research output: Contribution to journalJournal articlepeer-review

  30. Published
  31. Published

    Strategies designed to help healthcare professionals to recruit participants to research studies (Review)

    Preston, N. J., Walshe, C. E., Farquhar, M., Stevinson, C., Ewing, G., Calman, L., Burden, S., Brown Wilson, C., Hopkinson, J. & Todd, C., 29/02/2016, In: The Cochrane Library. 2016, p. 1-23 23 p.

    Research output: Contribution to journalJournal articlepeer-review

  32. Published

    Towards integration of palliative care in patients with chronic heart failure and chronic obstructive pulmonary disease: a systematic literature review of European guidelines and pathways

    Siouta, N., van Beek, K., Preston, N. J., Hasselaar, J., Hughes, S., Payne, S. A., Garralda, E., Centeno, C., van der Eerden, M., Groot, M., Hodiamont, F., Radbruch, L., Busa, C., Csikos, A. & Menten, J., 13/02/2016, In: BMC Palliative Care. 15, 18, 12 p.

    Research output: Contribution to journalJournal articlepeer-review

  33. Published

    A post-graduate's guide to doing a literature review in health and social care

    Aveyard, H., Payne, S. A. & Preston, N. J., 1/02/2016, Oxford: Oxford University Press. 200 p.

    Research output: Book/Report/ProceedingsBook

  34. Published

    Euthanasia, assisted dying, and assisted suicide in palliative care settings: reports from the Netherlands, Switzerland, and Washington State (TH323)

    Gerson, S., Lewis, D. & Gamondi, C., 02/2016, In: Journal of Pain and Symptom Management. 51, 2, p. 326-327 2 p.

    Research output: Contribution to journalJournal articlepeer-review

  35. Published

    A poststructural rethinking of the ethics of technology in relation to the provision of palliative home care by district nurses

    Nagington, M., Walshe, C. & Luker, K., 01/2016, In: Nursing Philosophy. 17, 1, p. 59-70 12 p.

    Research output: Contribution to journalJournal articlepeer-review

  36. Published

    Barriers to access to opioid medicines: a review of national legislation and regulations of 11 central and eastern European countries

    Vranken, M. J. M., Lisman, J. A., Mantel-Teeuwisse, A. K., Jünger, S., Scholten, W., Radbruch, L., Payne, S. A. & Schutjens, M-H. D. B., 01/2016, In: Lancet Oncology. 17, 1, p. e13-e22 10 p.

    Research output: Contribution to journalJournal articlepeer-review

  37. Published

    Parental decision-making on utilisation of out-of-home respite in children's palliative care: findings of qualitative case study research - a proposed new model

    Ling, J., Payne, S. A., Connaire, K. & McCarron, M., 01/2016, In: Child: Care, Health and Development. 42, 1, p. 51-59 9 p.

    Research output: Contribution to journalJournal articlepeer-review

  38. Published

    Social Stories™ to alleviate challenging behaviour and social difficulties exhibited by children with autism spectrum disorder in mainstream schools: design of a manualised training toolkit and feasibility study for a cluster randomised controlled trial with nested qualitative and cost-effectiveness components

    Wright, B., Marshall, D., Adamson, J., Ainsworth, H., Ali, S., Allgar, V., Collingridge Moore, D., Cook, E., Dempster, P., Hackney, L., McMillan, D., Trepél, D. & Williams, C., 01/2016, In: Health Technology Assessment. 20, 6, p. 1-258 258 p.

    Research output: Contribution to journalJournal articlepeer-review

  39. Published
  40. Published

    Orientating disability studies to disablist austerity: applying Fraser’s insights

    Dodd, S. R., 2016, In: Disability and Society. 31, 2, p. 149-165 17 p.

    Research output: Contribution to journalJournal articlepeer-review

  41. Published

    Place of death in the population dying from diseases indicative of palliative care need: a cross-national population-level study in 14 countries

    EURO IMPACT, 2016, In: Journal of Epidemiology and Community Health. 70, p. 17-24 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  42. 2015
  43. Published

    A grounded theory approach to physical activity and advanced cancer: a qualitative study protocol

    Lowe, S. S., Milligan, C., Watanabe, S. M. & Brearley, S. G., 8/12/2015, In: International Journal of Qualitative Methods. 14, 5, 10 p., 1609406915617161.

    Research output: Contribution to journalJournal articlepeer-review

  44. Published

    Identification of challenges to the availability and accessibility of opioids in twelve European countries: conclusions from two ATOME six-country workshops

    Linge-Dahl, L., Vranken, M. J. M., Jünger, S., North, K., Scholten, W., Payne, S. A. & Radbruch, L., 12/2015, In: Journal of Palliative Medicine. 18, 12, p. 1033-1039 7 p.

    Research output: Contribution to journalJournal articlepeer-review

  45. Published

    Patient and public involvement in research and the Cancer Experiences Collaborative: benefits and challenges

    Froggatt, K., Preston, N., Turner, M. & Kerr, C., 12/2015, In: BMJ Supportive and Palliative Care. 5, 5, p. 518-521 4 p.

    Research output: Contribution to journalJournal articlepeer-review

  46. Published

    Care for people in prison

    Turner, M. & Peacock, M., 20/11/2015, Palliative care nursing at a glance. Ingleton, C. & Larkin, P. (eds.). Wiley

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  47. Published

    Unaddressed biases in reported prevalence of continuous deep sedation until death

    Papavasiliou, E. & Payne, S., 10/2015, In: Journal of Clinical Epidemiology. 68, 10, p. 1241-1242 2 p., 6.

    Research output: Contribution to journalLetterpeer-review

  48. Published

    Values Associated with Service User and Public Involvement (UPI) in Health and Social Care Research: a Narrative Review

    Gradinger, F., Britten, N., Wyatt, K., Froggatt, K., Gibson, A., Jacoby, A., Lobban, F., Mayes, D., Snape, D., Rawcliffe, T. & Popay, J., 10/2015, In: Health Expectations. 18, 5, p. 661-675 15 p.

    Research output: Contribution to journalJournal articlepeer-review

  49. Published

    Prognosis in advanced heart failure

    Gadoud, A., 21/09/2015, Heart failure and palliative care: a team approach. Johnson, M., Lehman, R. & Hogg, K. J. (eds.). 2nd ed. ed. CRC Press

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  50. Published

    End of life care interventions for people with dementia in care homes: addressing uncertainty within a framework for service delivery and evaluation

    Goodman, C., Froggatt, K. A., Amador, S., Mathie, E. & Mayrhofer, A., 17/09/2015, In: BMC Palliative Care. 14, 9 p., 42.

    Research output: Contribution to journalJournal articlepeer-review

  51. Published

    Palliative Medicine journal: What have we done, where should we be going and why?

    Walshe, C., 09/2015, In: Palliative Medicine. 29, 8, p. 673-674 2 p.

    Research output: Contribution to journalEditorialpeer-review

  52. Published

    A computer-assisted study of the use of violence metaphors for cancer and end of life by patients, family carers and health professionals

    Demmen, J. E., Semino, E., Demjen, Z., Koller, V., Hardie, A., Rayson, P. & Payne, S., 17/08/2015, In: International Journal of Corpus Linguistics. 20, 2, p. 205-231 27 p.

    Research output: Contribution to journalJournal articlepeer-review

  53. Published

    Physical and Psychological Distress Are Related to Dying Peacefully in Residents with Dementia in Long-Term Care Facilities

    EURO IMPACT, 07/2015, In: Journal of Pain and Symptom Management. 50, 1, p. 1-8 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  54. Published

    Family carers providing support to a person dying in the home setting: a narrative literature review

    Morris, S., King, C., Turner, M. & Payne, S., 06/2015, In: Palliative Medicine. 29, 6, p. 487–495 9 p.

    Research output: Contribution to journalJournal articlepeer-review

  55. Published

    How can and should UK society adjust to dementia?

    Thomas, C. & Milligan, C., 06/2015, Joseph Rowntree Viewpoint 24 p.

    Research output: Contribution to specialist publicationFeatured article

  56. Published

    Managing end of life medications at home-accounts of bereaved family carers: a qualitative interview study

    Payne, S., Turner, M., Seamark, D., Thomas, C., Brearley, S., Wang, X., Blake, S. & Milligan, C., 06/2015, In: BMJ Supportive and Palliative Care. 5, 2, p. 181-188 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  57. Published

    Nevasic audio program for the prevention of chemotherapy induced nausea and vomiting: a feasibility study using a randomized controlled trial design

    Moradian, S., Walshe, C., Shahidsales, S., Ghavam Nasiri, M. R., Pilling, M. & Molassiotis, A., 06/2015, In: European Journal of Oncology Nursing. 19, 3, p. 282-291 10 p.

    Research output: Contribution to journalJournal articlepeer-review

  58. Published

    Palliative care information needs in Central and Eastern Europe and the Commonwealth of Independent States

    Juenger, S., Klose, J., Brearley, S., Hegedus, K., Payne, S. & Radbruch, L., 06/2015, In: Journal of Palliative Care. 31, 2, p. 109-117 9 p.

    Research output: Contribution to journalJournal articlepeer-review

  59. Published

    Symptom clusters in people living with HIV attending five palliative care facilities in two sub-Saharan African countries: A hierarchical cluster analysis

    ENCOMPASS & EURO IMPACT, 12/05/2015, In: PLoS ONE. 10, 5, 12 p., e0126554.

    Research output: Contribution to journalJournal articlepeer-review

  60. Published

    Improving online learning in palliative care: a comprehensive review

    Hughes, S., Preston, N. & Payne, S., 8/05/2015.

    Research output: Contribution to conference - Without ISBN/ISSN Posterpeer-review

  61. Published

    Outcomes of an EAPC White Paper on core competencies for palliative care social work in Europe

    Hughes, S., Firth, P. & Oliviere, D., 8/05/2015.

    Research output: Contribution to conference - Without ISBN/ISSN Conference paperpeer-review

  62. Published

    Evaluation of an advance care planning education programme for nursing homes: a longitudinal study

    Baron, K., Hodgson, A. & Walshe, C., 05/2015, In: Nurse Education Today. 35, 5, p. 689-695 7 p.

    Research output: Contribution to journalJournal articlepeer-review

  63. Published

    Patient-reported outcome measures for use in gynaecological oncology: a systematic review

    Preston, N. J., Wilson, N., Wood, N. J., Brine, J., Ferreira Arcuri, J. & Brearley, S. G., 04/2015, In: BJOG: An International Journal of Obstetrics and Gynaecology. 122, 5, p. 615-622 8 p.

    Research output: Contribution to journalLiterature reviewpeer-review

  64. Published

    International palliative care journal club on twitter: experience so far

    Whitburn, T., Walshe, C. & Sleeman, K. E., 03/2015, In: BMJ Supportive and Palliative Care. 5, 1, p. 120 1 p.

    Research output: Contribution to journalMeeting abstractpeer-review

  65. Published

    The study of mental distress and the (re)construction of identities in men and women with experience of long-term mental distress

    Timander, A-C., Grinyer, A. & Möller, A., 03/2015, In: Disability and Society. 30, 3, p. 327-339 13 p.

    Research output: Contribution to journalJournal articlepeer-review

  66. Published

    Self-reported knowledge, attitudes, and behaviour towards hospice care and how are these related to training in palliative care: An online survey among oncologists in the Czech republic and Slovakia

    Loucka, M., Pasman, R. H., Brearley, S. G., Payne, S. A. & Onwuteaka-Philipsen, B., 1/01/2015, In: Progress in Palliative Care. 23, 1, p. 1-8 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  67. Published

    Administering anticipatory medications in end-of-life care: a qualitative study of nursing practice in the community and in nursing homes

    Wilson, E., Morbey, H., Brown, J., Payne, S., Seale, C. & Seymour, J., 01/2015, In: Palliative Medicine. 29, 1, p. 60-70 11 p.

    Research output: Contribution to journalJournal articlepeer-review

  68. Published

    Core competencies for palliative care social work in Europe: an EAPC White Paper - part 2

    Hughes, S., Firth, P. & Oliviere, D., 01/2015, In: European Journal of Palliative Care. 22, 1, p. 38-44 7 p.

    Research output: Contribution to journalJournal article

  69. Published

    Place and wellbeing: shedding light on activity interventions for older men

    Milligan, C., Payne, S., Bingley, A. & Cockshott, Z., 01/2015, In: Ageing and Society. 35, 1, p. 124-149 26 p.

    Research output: Contribution to journalJournal articlepeer-review

  70. Published

    (Re)creating the home: the morality of technology in the home in relation to district nursing palliative care

    Nagington, M., Luker, K. & Walshe, C., 2015.

    Research output: Contribution to conference - Without ISBN/ISSN Conference paperpeer-review

  71. Published

    Clinical psychology and disability studies: bridging the disciplinary divide on mental health and disability

    Simpson, J. & Thomas, C., 2015, In: Disability and Rehabilitation. 37, 14, p. 1299-1304 6 p.

    Research output: Contribution to journalJournal articlepeer-review

  72. Published

    Disability

    Thomas, C. J., 2015, The Routledge International Handbook of Diversity Studies. Vertovec, S. (ed.). 1st ed. London: Routledge, p. 43-51 9 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  73. Published
  74. 2014
  75. Published

    The study protocol of: 'Initiating end of life care in stroke: Clinical decision-making around prognosis

    Burton, C., Payne, S., Turner, M., Bucknall, T., Rycroft-Malone, J., Tyrrell, P., Horne, M., Ntambwe, L. I., Tyson, S., Mitchell, H., Williams, S. & Elghenzai, S., 5/12/2014, In: BMC Palliative Care. 13, 8 p., 55.

    Research output: Contribution to journalJournal articlepeer-review

  76. Published

    Dying at home: a qualitative study of family carers' views of support provided by GPs community staff

    Seamark, D., Blake, S., Brearley, S. G., Milligan, C., Thomas, C., Turner, M., Wang, X. & Payne, S., 1/12/2014, In: British Journal of General Practice. 64, 629, p. e796-803 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  77. Published

    Palliative care among heart failure patients in primary care: a comparison to cancer patients using English family practice data

    Gadoud, A., Kane, E., Macleod, U., Ansell, P., Oliver, S. & Johnson, M., 25/11/2014, In: PLoS ONE. 9, 11, 11 p., e113188.

    Research output: Contribution to journalJournal articlepeer-review

  78. Published

    Core competencies for palliative care social work in Europe: an EAPC White Paper - part 1

    Hughes, S., Firth, P. & Oliviere, D., 7/11/2014, In: European Journal of Palliative Care. 21, 6, p. 300-305 6 p.

    Research output: Contribution to journalJournal article

  79. Published

    Access to opioid medication in Europe: final report and recommendations to the Ministries of Health

    Radbruch, L. (ed.), Jünger, S., Payne, S. A. & Scholten, W., 11/2014, Bonn: Pallia Med Verlag. 156 p.

    Research output: Book/Report/ProceedingsCommissioned report

  80. Published

    Translation and psychometric assessment of the Persian version of the Rhodes Index of Nausea, Vomiting and Retching (INVR) scale for the assessment of chemotherapy-induced nausea and vomiting

    Moradian, S., Shahidsales, S., Ghavam Nasiri, M. R., Pilling, M., Molassiotis, A. & Walshe, C., 11/2014, In: European Journal of Cancer Care. 23, 6, p. 811-818 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  81. Published

    Thoracic Epidural analgesia versus Rectus Sheath Catheters for open midline incisions in major abdominal surgery within an enhanced recovery programme (TERSC): study protocol for a randomised controlled trial

    Wilkinson, K. M., Krige, A., Brearley, S. G., Lane, S., Scott, M., Gordon, A. C. & Carlson, G. L., 21/10/2014, In: Trials. 15, 1, 12 p., 400.

    Research output: Contribution to journalJournal articlepeer-review

  82. Published

    Burden on family carers and care-related financial strain at the end of life: A cross-national population-based study

    Pivodic, L., Van Den Block, L., Pardon, K., Miccinesi, G., Alonso, T. V., Boffin, N., Donker, G. A., Cancian, M., López-Maside, A., Onwuteaka-Philipsen, B. D., Deliens, L., Zeger, D. G., Brearley, S., Augusto, C., Joachim, C., Anneke, F., Richard, H., Higginson Irene, J., Stein, K., Karen, L. & 3 others, Roeline, P., Sophie, P. & Payne, S., 1/10/2014, In: European Journal of Public Health. 24, 5, p. 819-826 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  83. Published

    Weighted blankets and sleep in autistic children - a randomised controlled trial

    Gringras, P., Green, D., Wright, B., Rush, C., Sparrowhawk, M., Pratt, K., Allgar, V., Hooke, N., Moore, D., Zaiwalla, Z. & Wiggs, L., 8/09/2014, In: Journal of Sleep Research. 23, Suppl. 1, p. 320-320 1 p.

    Research output: Contribution to journalMeeting abstractpeer-review

  84. Published

    Current debates on end-of-life sedation: an international expert elicitation study

    Papavasiliou, E., Payne, S. & Brearley, S., 1/08/2014, In: Supportive Care in Cancer. 22, 8, p. 2141-2149 9 p., 5.

    Research output: Contribution to journalJournal articlepeer-review

  85. Published

    Validation of the Consensus-Definition for Cancer Cachexia and evaluation of a classification model-a study based on data from an international multicentre project (EPCRC-CSA)

    Blum, D., Stene, G. B., Solheim, T. S., Fayers, P., Hjermstad, M. J., Baracos, V. E., Fearon, K., Strasser, F., Kaasa, S., Lieve, V. D. B., Koen, M., Brearley, S., Augusto, C., Joachim, C., Massimo, C., Anneke, F., Richard, H., Higginson, I. J., Stein, K., Karen, L. & 7 others, Guido, M., Bregje, O. P., Koen, P., Roeline, P., Sophie, P., Payne, S. & Luc, D., 1/08/2014, In: Annals of Oncology. 25, 8, p. 1635-1642 8 p., mdu086.

    Research output: Contribution to journalJournal articlepeer-review

  86. Unpublished

    Blog reader survey 2014: feedback on use accessibility and preferences

    Morbey, H., Jackson, A., Greenwood, A. & Payne, S., 22/07/2014, (Unpublished) Lancaster: International Observatory on End of Life Care. 37 p.

    Research output: Book/Report/ProceedingsCommissioned report

  87. Published

    Legalisation of assisted suicide: a safeguard to euthanasia?

    Gamondi, C., Borasio, G. D., Limoni, C., Preston, N. & Payne, S., 12/07/2014, In: Lancet. 384, 9938, p. 127

    Research output: Contribution to journalJournal articlepeer-review

  88. Published

    Autism Spectrum Social Stories In Schools Trial (ASSSIST): study protocol for a feasibility randomised controlled trial analysing clinical and cost-effectiveness of Social Stories in mainstream schools

    Wright, B., Marshall, D., Collingridge Moore, D., Ainsworth, H., Hackney, L., Adamson, J., Ali, S., Allgar, V., Cook, L., Dyson, L., Littlewood, E., Hargate, R., McLaren, A., McMillan, D., Trépel, D., Whitehead, J. & Williams, C., 9/07/2014, In: BMJ Open. 4, 7, 7 p., e005952.

    Research output: Contribution to journalJournal articlepeer-review

  89. Published

    End-of-life care in general practice: a cross-sectional, retrospective survey of 'cancer', 'organ failure' and 'old-age/dementia' patients

    Evans, N., Pasman, H. R. W., Donker, G. A., Deliens, L., Van den Block, L., Onwuteaka-Philipsen, B., on behalf of EUROIMPACT & Brearley, S., 07/2014, In: Palliative Medicine. 28, 7, p. 965-975 11 p.

    Research output: Contribution to journalJournal articlepeer-review

  90. Published

    Supporting family carers: national evidence based recommendations for hospices in the UK

    Morbey, H. & Payne, S., 6/06/2014.

    Research output: Contribution to conference - Without ISBN/ISSN Posterpeer-review

  91. Published

    Deliberative panels: developing recommendations for supporting stakeholder and user involvement

    Brearley, S. G., Blake, S., Milligan, C., Seamark, D., Thomas, C., Turner, M., Wang, X. & Payne, S. A., 06/2014, In: Palliative Medicine. 28, 6, p. 641-642 2 p.

    Research output: Contribution to journalMeeting abstractpeer-review

  92. Published

    How does the environment of a UK hospice impact on the social wellbeing of older inpatients? an ethnographic study

    Rigby, J., Milligan, C. & Payne, S., 06/2014, In: Palliative Medicine. 28, 6, p. 788-788 1 p.

    Research output: Contribution to journalMeeting abstractpeer-review

  93. Published

    How does the environment of a UK hospice impact on the social wellbeing of older inpatients? an ethnographic study

    Rigby, J., Milligan, C. & Payne, S. A., 06/2014, In: Palliative Medicine. 28, 6, 1 p.

    Research output: Contribution to journalMeeting abstractpeer-review

  94. Published

    Humour in healthcare interactions: a risk worth taking?

    McCreaddie, M. & Payne, S., 06/2014, In: Health Expectations. 17, 3, p. 332-344 13 p.

    Research output: Contribution to journalJournal articlepeer-review

  95. Published

    Maintaining and regaining psychological wellbeing in advanced cancer: a qualitative longitudinal study exploring patients' and carers' own coping strategies

    Roberts, D., Grande, G., Lloyd-Williams, M., Calman, L., Appleton, L., Large, P. & Walshe, C., 06/2014, In: Palliative Medicine. 28, 6, p. 538 1 p.

    Research output: Contribution to journalMeeting abstractpeer-review

  96. Published

    Online learning: a scoping of the literature for a study in integrated palliative care

    Hughes, S., Preston, N. & Payne, S., 06/2014, In: Palliative Medicine. 28, 6, p. 831-832 2 p.

    Research output: Contribution to journalMeeting abstractpeer-review

  97. Published

    Overcoming barriers to research in palliative care: results from a consensus exercise

    Preston, N., Dunleavy, L., Rigby, J., Griggs, A., Salt, S., Parr, A. & Payne, S., 06/2014, In: Palliative Medicine. 28, 6, p. 745-745 1 p.

    Research output: Contribution to journalMeeting abstractpeer-review

  98. Published

    Physician-reported practices in continuous deep sedation until death: a descriptive and comparative study

    EURO IMPACT, 06/2014, In: Palliative Medicine. 28, 6, p. 491-500 10 p.

    Research output: Contribution to journalJournal articlepeer-review

  99. Published

    Response : What tools are available to identify patients with palliative care needs in primary care: A systematic literature review and survey of European practice?

    Gadoud, A. C. & Johnson, M. J., 06/2014, In: BMJ Supportive and Palliative Care. 4, 2, p. 130 1 p.

    Research output: Contribution to journalLetterpeer-review

  100. Published

    The complexity of nurses' attitudes and practice of sedation at the end of life: a systematic literature review

    Abarshi, E. A., Papavasiliou, E., Preston, N., Brown, J., Payne, S. & EURO IMPACT, 05/2014, In: Journal of Pain and Symptom Management. 47, 5, p. 915-925 11 p.

    Research output: Contribution to journalJournal articlepeer-review

  101. Published

    60 seconds with Catherine Walshe

    Walshe, C., 24/04/2014, In: Nursing Times. 110, 9, p. 28

    Research output: Contribution to journalJournal article

  102. Published

    Place of death in the Czech Republic and Slovakia: a population based comparative study using death certificates data

    Loucka, M., Payne, S. A. & Brearley, S. G., 20/03/2014, In: BMC Palliative Care. 13, 1, 13 p., 13.

    Research output: Contribution to journalJournal articlepeer-review

  103. Published

    A palliative care approach for people with advanced heart failure: recognition of need, transitions in care, and effect on patients, family carers, and clinicians

    Gadoud, A., 26/02/2014, In: The Lancet. 383, Suppl. 1, p. S50 1 p.

    Research output: Contribution to journalMeeting abstractpeer-review

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