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International Observatory on End of Life Care

  1. Journal article
  2. Forthcoming

    Prohibit, protect, or adapt? The changing role of volunteers in palliative and hospice care services during the COVID-19 pandemic. A multinational survey (CovPall).

    Walshe, C., Garner, I., Dunleavy, L., Preston, N., Bradshaw, A., Cripps, R., Bajwah, S., Sleeman, K., Hocaoglu, M., Murtagh, F., Oluyase, A., Fraser, L. & Irene, H., 6/09/2021, (Accepted/In press) In: International Journal of Health Policy and Management.

    Research output: Contribution to journalJournal articlepeer-review

  3. Published

    Smiles behind the masks: A systematic review and narrative synthesis exploring how family members of seriously ill or dying patients are supported during infectious disease outbreaks

    Bloomer, M. & Walshe, C., 1/09/2021, In: Palliative Medicine. 35, 8, p. 1452-1467 16 p.

    Research output: Contribution to journalJournal articlepeer-review

  4. Published

    The challenges of caring for people dying from COVID-19: a multinational, observational study (CovPall)

    Oluyase, A., Hocaoglu, M., Cripps, R., Maddocks, M., Walshe, C., Fraser, L., Preston, N., Dunleavy, L., Bradshaw, A., Murtagh, F., Bajwah, S., Sleeman, K. & Irene, H., 1/09/2021, In: Journal of Pain and Symptom Management. 62, 3, p. 460-4470 11 p.

    Research output: Contribution to journalJournal articlepeer-review

  5. Published

    Hospitalisation in the last month of life and in-hospital death of nursing home residents: A cross-sectional analysis of six European countries

    Honinx, E., Piers, R. D., Onwuteaka-Philipsen, B. D., Payne, S., Szczerbińska, K., Gambassi, G., Kylänen, M., Deliens, L., Van Den Block, L. & Smets, T., 31/08/2021, In: BMJ Open. 11, 8, 12 p., e047086.

    Research output: Contribution to journalJournal articlepeer-review

  6. Published

    Large differences in the organization of palliative care in nursing homes in six European countries: findings from the PACE cross-sectional study

    PACE consortium, 25/08/2021, In: BMC Palliative Care. 20, 1, 131.

    Research output: Contribution to journalJournal articlepeer-review

  7. E-pub ahead of print

    Prevalence vs impact: a mixed methods study of survivorship issues in colorectal cancer

    Drury, A., Payne, S. & Brady, A-M., 21/08/2021, In: Quality of Life Research. 18 p.

    Research output: Contribution to journalJournal articlepeer-review

  8. Forthcoming

    Equal but inequitable: response of specialist palliative care and hospice services to people from ethnic minority groups with COVID-19- an observational study (CovPall)

    Bajwah, S., Koffman, J., Hussein, J., Bradshaw, A., Hocaoglu, M., Fraser, L., Oluyase, A., Allwin, C., Dunleavy, L., Preston, N., Cripps, R., Maddocks, M., Sleeman, K., Irene, H., Walshe, C. & Murtagh, F., 17/08/2021, (Accepted/In press) In: BMJ Supportive and Palliative Care.

    Research output: Contribution to journalJournal articlepeer-review

  9. Forthcoming

    A systematic review with thematic synthesis of the experience of hospitalization in people with advanced chronic obstructive pulmonary disease

    Bakthavatsalu, B., Walshe, C. & Simpson, J., 16/08/2021, (Accepted/In press) In: COPD.

    Research output: Contribution to journalJournal articlepeer-review

  10. Published

    Developing and evaluating online COVID-centric advance care planning training and information resources for nursing staff and family members in nursing homes: The Necessary Discussions Study Protocol

    Harding, A., Preston, N., Doherty, J., Cousins, E., Varey, S., McCann, A., Harrison Dening, K., Finucane, A., Carter, G., Mitchell, G. & Brazil, K., 9/08/2021, In: BMC Geriatrics. 21, 8 p., 456.

    Research output: Contribution to journalJournal articlepeer-review

  11. Published

    Exploring the experience of recurrence with advanced cancer for people who perceived themselves to be cancer free: a grounded theory study

    Economou, D., Walshe, C. & Brearley, S., 31/07/2021, In: Supportive Care in Cancer. 29, 7, p. 3885-3894 10 p.

    Research output: Contribution to journalJournal articlepeer-review

  12. Published

    Peer Mentors for People with Advanced Cancer: Lessons Learnt from Recruiting and Training Peer Mentors for a Feasibility Randomized Controlled Trial

    Walshe, C., Roberts, D., Calman, L., Appleton, L., Croft, R., Perez Algorta, G., Skevington, S., Lloyd-Williams, M. & Grande, G., 31/07/2021, In: Journal of Cancer Education. 36, 4, p. 710-718 9 p.

    Research output: Contribution to journalJournal articlepeer-review

  13. Forthcoming

    Developing country specific questions about end-of-life care for nursing home residents with advanced dementia using the nominal group technique with family caregivers.

    Bavelaar, L., Nicula, M., Morris, S., Kaasalainen, S., Achterberg, W., Loucka, M., Vickova, K., Thompson, G., Cornally, N., Hartigan, I., Harding, A., Preston, N., Walshe, C., Cousins, E., Harrison Dening, K., De Vries, K., Brazil, K. & van der Steen, J. T., 20/07/2021, (Accepted/In press) In: Patient Education and Counseling.

    Research output: Contribution to journalJournal articlepeer-review

  14. E-pub ahead of print

    A good death in the child with life shortening illness: A qualitative multiple-case study

    Chong, P. H., Walshe, C. & Hughes, S., 5/07/2021, In: Palliative Medicine. 11 p.

    Research output: Contribution to journalJournal articlepeer-review

  15. Published

    Technology in Palliative Care (TIP): the identification of digital priorities for palliative care research using a modified Delphi method

    Nwosu, A., McGlinchey, T., Sanders, J., Stanley, S., Palfrey, J., Lubbers, P., Chapman, L., Finucane, A. & Mason, S., 3/07/2021, In: medRxiv.

    Research output: Contribution to journalJournal article

  16. E-pub ahead of print

    Exploring the experiences of living with Lewy body dementia: An integrative review

    Bentley, A., Salifu, Y. & Walshe, C., 19/06/2021, In: Journal of Advanced Nursing.

    Research output: Contribution to journalJournal articlepeer-review

  17. Published

    Constructing a new role for family carers and volunteers providing care towards the end of life: An Action Research approach exploring a new model of hospice care

    Walshe, C., Barnes, H., Turner, M. & Hughes, S., 31/05/2021, In: Health & Social Care in the Community. 29, 3, p. 837-845 9 p.

    Research output: Contribution to journalJournal articlepeer-review

  18. Published

    ‘Necessity is the mother of invention’: Specialist palliative care service innovation and practice change in response to COVID-19. Results from a multinational survey (CovPall)

    CovPall Study Team, Dunleavy, L., Preston, N., Bajwah, S., Bradshaw, A., Cripps, R., Fraser, L., Maddocks, M., Hocaoglu, M., Murtagh, F. EM., Oluyase, A., Sleeman, K., Higginson, I. J. & Walshe, C., 31/05/2021, In: Palliative Medicine. 35, 5, p. 814-829 16 p.

    Research output: Contribution to journalJournal articlepeer-review

  19. E-pub ahead of print

    Women's experiences of advanced breast cancer in a resource-limited Arab context: A Stakian multi-case study

    Fearon, D., Hughes, S. & Brearley, S., 21/05/2021, In: Psycho-Oncology.

    Research output: Contribution to journalJournal articlepeer-review

  20. E-pub ahead of print

    Constructivist Stakian Multicase Study: Methodological Issues Encountered in Cross-Cultural Palliative Care Research

    Fearon, D., Hughes, S. & Brearley, S. G., 6/05/2021, In: International Journal of Qualitative Methods. 20

    Research output: Contribution to journalJournal articlepeer-review

  21. Published

    Hearing the voices of children diagnosed with a life-threatening or life-limiting illness and their parents’ accounts in a palliative care setting: A qualitative study

    Ciobanu, E. & Preston, N., 1/05/2021, In: Palliative Medicine. 35, 5, p. 886-892 7 p.

    Research output: Contribution to journalJournal articlepeer-review

  22. Published

    Hospital-based social workers’ perceptions of generalist- and specialist-level palliative social work activities

    Firn, J., Preston, N. & Walshe, C., 1/05/2021, In: Journal of Social Work. 21, 3, p. 416-434 19 p.

    Research output: Contribution to journalJournal articlepeer-review

  23. Forthcoming

    Understanding and addressing challenges for advance care planning in the COVID-19 pandemic: An analysis of the UK CovPall survey data from specialist palliative care services

    Bradshaw, A., Dunleavy, L., Walshe, C., Preston, N., Cripps, R., Hocaoglu, M., Bajwah, S., Maddocks, M., Oluyase, A., Sleeman, K. E., Higginson, I. J., Fraser, L. & Murtagh, F., 23/04/2021, (Accepted/In press) In: Palliative Medicine.

    Research output: Contribution to journalJournal articlepeer-review

  24. Published

    Potentially Inappropriate Treatments at the End of Life in Nursing Home Residents: Findings From the PACE Cross-Sectional Study in Six European Countries

    PACE consortium, 22/04/2021, In: Journal of Pain and Symptom Management. 61, 4, p. 732-742 11 p.

    Research output: Contribution to journalJournal articlepeer-review

  25. Forthcoming

    Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data

    Bayly, J., Bradshaw, A., Fettes, L., Omarjee, M., Talbot-Rice, H., Walshe, C., Sleeman, K., Bajwah, S., Dunleavy, L., Hocaoglu, M., Oluyase, A., Garner, I., Cripps, R., Preston, N., Fraser, L., Murtagh, F., Irene, H. & Maddocks, M., 19/04/2021, (Accepted/In press) In: medRxiv.

    Research output: Contribution to journalJournal article

  26. Published

    MyPal-Child study protocol: An observational prospective clinical feasibility study of the MyPal ePRO-based early palliative care digital system in paediatric oncology patients

    Meyerheim, M., Karamanidou, C., Payne, S., Garani-Papadatos, T., Sander, A., Downing, J., Stamatopoulos, K., Ling, J., Payne, C., Scarfò, L., Lokaj, P., Maramis, C. & Graf, N., 13/04/2021, In: BMJ Open. 11, 4, 9 p., e045226.

    Research output: Contribution to journalJournal articlepeer-review

  27. Published

    Clinical Aspects of Palliative Sedation in Prospective Studies: A Systematic Review

    Arantzamendi, M., Belar, A., Payne, S., Rijpstra, M., Preston, N., Menten, J., Van der Elst, M., Radbruch, L., Hasselaar, J. & Centeno, C., 1/04/2021, In: Journal of Pain and Symptom Management. 61, 4, p. 831-844 14 p.

    Research output: Contribution to journalJournal articlepeer-review

  28. Published

    Evaluating the use of video communication technology in a hospital specialist palliative care team during the COVID-19 pandemic

    Crosby, B., Hanchanale, S., Stanley, S. & Nwosu, A., 31/03/2021, In: AMRC Open Research. 3, 5

    Research output: Contribution to journalJournal article

  29. Published

    Overview of voluntarily stopping eating and drinking to hasten death

    Lowers, J., Hughes, S. & Preston, N., 31/03/2021, In: Annals of Palliative Medicine. 10, 3, p. 3611-3616 6 p.

    Research output: Contribution to journalJournal articlepeer-review

  30. Published

    Prohibit, protect, or adapt? The changing role of volunteers in palliative and hospice care services during the COVID-19 pandemic. A multinational survey (CovPall).

    Walshe, C., Garner, I., Dunleavy, L., Preston, N., Bradshaw, A., Cripps, R., Bajwah, S., Sleeman, K., Hocaoglu, M., Maddocks, M., Murtagh, F., Oluyase, A., Fraser, L. & Irene, H., 29/03/2021, In: medRxiv.

    Research output: Contribution to journalJournal article

  31. Published

    Investigation and management of iron deficiency anaemia in a specialist palliative care setting and the role of intravenous iron: a descriptive analysis of hospice data

    Steele, T., Bonwick, H., Nwosu, A. & Chapman, L., 22/03/2021, In: AMRC Open Research. 3, 6, 19 p.

    Research output: Contribution to journalJournal article

  32. Published

    No difference in effects of ‘PACE steps to success’ palliative care program for nursing home residents with and without dementia: a pre-planned subgroup analysis of the seven-country PACE trial

    Miranda, R., Smets, T., Van Den Noortgate, N., van der Steen, J. T., Deliens, L., Payne, S., Szczerbińska, K., Pautex, S., Van Humbeeck, L., Gambassi, G., Kylänen, M., Van den Block, L., Gatsolaeva, Y., Pivodic, L., Honinx, E., Tanghe, M., van Hout, H., Froggatt, K., Onwuteaka-Philipsen, B., Pasman, H. R. W. & 24 others, Piers, R., Baranska, I., Oosterveld-Vlug, M., Wichmann, A. B., Engels, Y., Vernooij-Dassen, M., Hockley, J., Leppäaho, S., Bassal, C., Mammarella, F., Mercuri, M., Rossi, P., Segat, I., Stodolska, A., Adang, E., Andreasen, P., Kuitunen-Kaija, O., Hammar, T., Heikkilä, R., Moore, D. C., Kijowska, V., ten Koppel, M., de Paula, E. M. & PACE, O. B. O., 7/03/2021, In: BMC Palliative Care. 20, 1, 10 p., 39.

    Research output: Contribution to journalJournal articlepeer-review

  33. Published

    What it means to be a palliative care volunteer in eight European countries: a qualitative analysis of accounts of volunteering

    Scott, R., Goossensen, A., Payne, S. & Pelttari, L., 1/03/2021, In: Scandinavian Journal of Caring Sciences. 35, 1, p. 170-177 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  34. E-pub ahead of print

    Virtual reality in specialist palliative care: a feasibility study to enable clinical practice adoption

    Nwosu, A., Mills, M., Roughneen, S., Stanley, S., Chapman, L. & Mason, S., 17/02/2021, In: BMJ Supportive and Palliative Care. 5 p.

    Research output: Contribution to journalJournal articlepeer-review

  35. Published

    Experience of Caregivers Supporting a Patient through Voluntarily Stopping Eating and Drinking

    Lowers, J., Hughes, S. & Preston, N., 16/02/2021, In: Journal of Palliative Medicine. 24, 3, p. 376-381 6 p.

    Research output: Contribution to journalJournal articlepeer-review

  36. Published

    How to measure the effects and potential adverse events of palliative sedation? An integrative review

    Belar, A., Arantzamendi, M., Payne, S., Preston, N., Lee-Rijpstra, M., Hasselaar, J., Radbruch, L., Vanderelst, M., Ling, J. & Centeno, C., 1/02/2021, In: Palliative Medicine. 35, 2, p. 295-314 20 p.

    Research output: Contribution to journalJournal articlepeer-review

  37. Published

    Case Report: Implantable cardioverter defibrillator (ICD) deactivation in palliative care - a case involving best interest decisions for someone lacking capacity at the end of life

    Tan, C., Hanchanale, S., Sugrue, E. & Nwosu, A., 21/01/2021, In: AMRC Open Research. 3, 4, p. 1-4 4 p.

    Research output: Contribution to journalJournal article

  38. Published
  39. Published

    Case Report: The use of advanced consent methodology and healthcare professional consultee to facilitate research participation in dying patients

    Stanley, S. & Nwosu, A., 11/01/2021, In: AMRC Open Research. 3, 3, p. 1-7 7 p.

    Research output: Contribution to journalJournal article

  40. Published

    Missing not at random in end of life care studies: multiple imputation and sensitivity analysis on data from the ACTION study

    ACTION Consortium, 9/01/2021, In: BMC Medical Research Methodology. 21, 1, 12 p., 13.

    Research output: Contribution to journalJournal articlepeer-review

  41. Published

    Palliative and end-of-life educational interventions for staff working in long-term care facilities: An integrative review of the literature

    Iida, K., Ryan, A., Hasson, F., Payne, S. & McIlfatrick, S., 1/01/2021, In: International Journal of Older People Nursing. 16, 1, 14 p., e12347.

    Research output: Contribution to journalJournal articlepeer-review

  42. Published

    Palliative care needs-assessment and measurement tools used in patients with heart failure: a systematic mixed-studies review with narrative synthesis

    Remawi, B., Gadoud, A., Murphy, I. M. J. & Preston, N., 1/01/2021, In: Heart Failure Reviews. 26, p. 137-155 19 p.

    Research output: Contribution to journalJournal articlepeer-review

  43. Published

    How views of Oncologists and Haematologists impacts Palliative Care Referral: A Systematic Review

    Salins, N., Ghoshal, A., Hughes, S. & Preston, N., 23/11/2020, In: BMC Palliative Care. 19, 19 p., 175.

    Research output: Contribution to journalJournal articlepeer-review

  44. Published

    Exploring the psychological impact of life-limiting illness using the Attitude to Health Change scales: A qualitative focus group study in a hospice palliative care setting

    Dunleavy, L., Walshe, C. & Machin, L., 20/11/2020, In: European Journal of Cancer Care. 29, 6, 10 p., e13302.

    Research output: Contribution to journalJournal articlepeer-review

  45. Published

    Advance care planning in patients with advanced cancer: A 6-country, cluster randomised clinical trial

    Korfage, I. J., Dunleavy, L., Payne, S. & Preston, N., 13/11/2020, In: PLoS Medicine. 17, 11, 16 p., e1003422.

    Research output: Contribution to journalJournal articlepeer-review

  46. Published

    The challenges of caring for people dying from COVID-19: a multinational, observational study of palliative and hospice services (CovPall)

    Oluyase, A., Hocaoglu, M., Cripps, R., Maddocks, M., Walshe, C., Fraser, L., Preston, N., Dunleavy, L., Bradshaw, A., Murtagh, F., Bajwah, S., Sleeman, K. & Higginson, I. J., 4/11/2020, In: medRxiv.

    Research output: Contribution to journalJournal article

  47. Published

    Understanding and addressing challenges for Advance Care Planning in the COVID-19 pandemic: An analysis of the UK CovPall survey data from specialist palliative care services.

    Bradshaw, A., Dunleavy, L., Walshe, C., Preston, N., Cripps, R., Hocaoglu, M., Bajwah, S., Oluyase, A., Maddocks, M., Sleeman, K., Higginson, I., Fraser, L. & Murtagh, F., 30/10/2020, In: medRxiv.

    Research output: Contribution to journalJournal article

  48. Published

    Comparison of the experience of caregiving at end of life or in hastened death: A narrative synthesis review

    Lowers, J., Scardaville, M., Hughes, S. & Preston, N., 8/10/2020, In: BMC Palliative Care. 19, 16 p., 154.

    Research output: Contribution to journalJournal articlepeer-review

  49. Published

    The need for early referral to palliative care especially for Black, Asian and minority ethnic groups in a COVID-19 pandemic: Findings from a service evaluation

    Chidiac, C., Feuer, D., Flatley, M., Rodgerson, A., Grayson, K. & Preston, N., 1/10/2020, In: Palliative Medicine. 34, 9, p. 1241-1248 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  50. Published

    Nonparametric Time Series Summary Statistics for High-Frequency Accelerometry Data from Individuals with Advanced Dementia

    Suibkitwanchai, K., Sykulski, A., Perez Algorta, G., Waller, D. & Walshe, C., 25/09/2020, In: PLoS ONE. 15, 9, 23 p., e0239368.

    Research output: Contribution to journalJournal articlepeer-review

  51. Published

    Decreased costs and retained QoL due to the 'PACE Steps to Success' intervention in LTCFs: cost-effectiveness analysis of a randomized controlled trial

    Wichmann, A. B., Adang, E. M. M., Vissers, K. C. P., Szczerbińska, K., Kylänen, M., Payne, S., Gambassi, G., Onwuteaka-Philipsen, B. D., Smets, T., Van den Block, L., Deliens, L., Vernooij-Dassen, M. J. F. J., Engels, Y. & group, PACE. T., 22/09/2020, In: BMC Medicine. 18, 1, 9 p., 258.

    Research output: Contribution to journalJournal articlepeer-review

  52. E-pub ahead of print

    Exploring the barriers and gateways to intersubjectivity in dementia care: A meta-ethnography

    Hodge, G., Froggatt, K., Limmer, M. & Bingley, A., 20/08/2020, In: Journal of Clinical Nursing.

    Research output: Contribution to journalJournal article

  53. Published

    Peer support to maintain psychological wellbeing in people with advanced cancer: Findings from a feasibility study for a Randomised Controlled Trial

    Walshe, C., Roberts, D., Calman, L., Appleton, L., Croft, R., Skevington, S., Lloyd-Williams, M., Grande, G. & Perez Algorta, G., 17/08/2020, In: BMC Palliative Care. 19, 13 p., 129.

    Research output: Contribution to journalJournal articlepeer-review

  54. Published

    Supporting adults bereaved through COVID-19: a rapid review of the impact of previous pandemics on grief and bereavement

    Mayland, C. R., Harding, A., Preston, N. & Payne, S., 1/08/2020, In: Journal of Pain and Symptom Management. 60, 2, p. e33-e39 7 p.

    Research output: Contribution to journalJournal articlepeer-review

  55. Published

    Communication patterns in nurse-led chemotherapy clinics: A mixed-method study

    Farrell, C., Chan, E. A., Siouta, E., Walshe, C. & Molassiotis, A., 1/08/2020, In: Patient Education and Counseling. 103, 8, p. 1538-1545 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  56. Published

    Palliative Care Implementation in Long-Term Care Facilities: European Association for Palliative Care White Paper

    Froggatt, K., Moore, D. C., Van den Block, L., Ling, J., Payne, S. A., Kylanen, M. & PACE consortium, 1/08/2020, In: Journal of the American Medical Directors Association. 21, 8, p. 1051-1057 7 p.

    Research output: Contribution to journalJournal articlepeer-review

  57. Published

    Understanding the Outcomes of Supplementary Support Services in Palliative Care for Older People: A Scoping Review and Mapping Exercise

    Dodd, S., Payne, S., Preston, N. & Walshe, C., 1/08/2020, In: Journal of Pain and Symptom Management. 60, 2, p. 449-459 11 p.

    Research output: Contribution to journalJournal articlepeer-review

  58. Published

    Exploring a New Model of End-of-Life Care for Older People that Operates in the Space Between the Life World and the Healthcare System: A Qualitative Case Study

    Dodd, S., Preston, N., Payne, S. & Walshe, C., 1/08/2020, In: International Journal of Health Policy and Management. 9, 8, p. 344-351 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  59. Published

    Living with Advanced Chronic Obstructive Pulmonary Disease: A Qualitative Interview Study with Patients and Informal Carers

    Fusi-Schmidhauser, T., Froggatt, K. & Preston, N., 3/07/2020, In: COPD. 17, 4, p. 410-418 9 p.

    Research output: Contribution to journalJournal articlepeer-review

  60. Published
  61. Published

    Conservative Management of COVID-19 Patients—Emergency Palliative Care in Action

    Fusi-Schmidhauser, T., Preston, N. J., Keller, N. & Gamondi, C., 1/07/2020, In: Journal of Pain and Symptom Management. 60, 1, p. e27-e30 4 p.

    Research output: Contribution to journalJournal articlepeer-review

  62. Published

    Research priorities in advanced heart failure: James Lind alliance priority setting partnership

    Taylor, C., Huntley, A. L., Burden, J., Gadoud, A., Gronlund, T., Jones, N. R., Wicks, E., McKelvie, S., Byatt, K., Lehman, R., King, A., Mumford, B., Feder, G., Mant, J., Hobbs, R. & Johnson, R., 30/06/2020, In: BMJ Open Heart . 7, 1, 9 p., e001258.

    Research output: Contribution to journalJournal articlepeer-review

  63. Published
  64. E-pub ahead of print

    Refractory angina is a growing challenge for palliative medicine: a systematic review of non-invasive interventions

    Murphy, I., Sivashankar, A. & Gadoud, A., 4/06/2020, In: BMJ Supportive and Palliative Care.

    Research output: Contribution to journalJournal articlepeer-review

  65. Published

    Aims, actions and advance care planning by district nurses providing palliative care: an ethnographic observational study

    Walshe, C., 2/06/2020, In: British Journal of Community Nursing. 25, 6, p. 276-286 11 p.

    Research output: Contribution to journalJournal articlepeer-review

  66. Published

    Ethical and research governance approval across Europe: Experiences from three European palliative care studies

    Preston, N., van Delden, J. J. M., Ingravallo, F., Hughes, S., Hasselaar, J., van der Heide, A., Van den Block, L., Dunleavy, L., Groot, M., Csikos, A. & Payne, S., 1/06/2020, In: Palliative Medicine. 34, 6, p. 817-821 5 p.

    Research output: Contribution to journalJournal articlepeer-review

  67. Published

    It’s not what they were expecting: a systematic review and narrative synthesis of the role and experience of the hospital palliative care volunteer

    Bloomer, M. & Walshe, C., 1/05/2020, In: Palliative Medicine. 34, 5, p. 589-604 16 p.

    Research output: Contribution to journalJournal articlepeer-review

  68. Published

    Physical restraining of nursing home residents in the last week of life: An epidemiological study in six European countries

    PACE consortium, 30/04/2020, In: International Journal of Nursing Studies. 104, 8 p., 103511.

    Research output: Contribution to journalJournal articlepeer-review

  69. Published

    Disseminating research findings using a Massive Online Open Course for maximising impact and developing recommendations for practice

    Preston, N., Hasselaar, J., Hughes, S., Kaley, A., Linge-Dahl, L., Radvanyi, I., Tubman, P., van Beek, K., Varey, S. & Payne, S., 22/04/2020, In: BMC Palliative Care. 19, 8 p., 54.

    Research output: Contribution to journalJournal articlepeer-review

  70. Published

    Associations between length of stay in long term care facilities and end of life care. Analysis of the pace cross-sectional study

    Moore, D. C., Payne, S., Keegan, T., Deliens, L., Smets, T., Gambassi, G., Kylänen, M., Kijowska, V., Onwuteaka-Philipsen, B. & Van den Block, L., 16/04/2020, In: International Journal of Environmental Research and Public Health. 17, 8, 14 p., 2742.

    Research output: Contribution to journalJournal articlepeer-review

  71. Published

    Do journals contribute to the international publication of research in their field? A bibliometric analysis of palliative care journal data

    Walshe, C., Ahmed, F. & Preston, N., 1/04/2020, In: Palliative Medicine. 34, 4, p. 541-546 6 p.

    Research output: Contribution to journalJournal articlepeer-review

  72. Published

    Medical Aid in Dying, Hastened Death and Suicide: A Qualitative Study of Hospice Professionals' Experiences from Washington State

    Gerson, S. M., Preston, N. & Bingley, A., 31/03/2020, In: Journal of Pain and Symptom Management. 59, 3, p. 679-686.e1 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  73. Published

    Swiss Families' Experiences of Interactions with Providers during Assisted Suicide: A Secondary Data Analysis of an Interview Study

    Gamondi, C., Pott, M., Preston, N. & Payne, S., 25/03/2020, In: Journal of Palliative Medicine. 23, 4, p. 506-512 7 p.

    Research output: Contribution to journalJournal articlepeer-review

  74. E-pub ahead of print

    Comfort and clinical events at the end of life of nursing home residents with and without dementia: The six-country epidemiological PACE study

    Miranda, R., van der Steen, J. T., Smets, T., Van den Noortgate, N., Deliens, L., Payne, S., Kylänen, M., Szczerbińska, K., Gambassi, G., Van den Block, L. & PACE, O. B. O., 10/03/2020, In: International Journal of Geriatric Psychiatry. 9 p.

    Research output: Contribution to journalJournal articlepeer-review

  75. Published

    Factors Associated with Perception of the Quality of Physicians' End-of-life Communication in Long-Term Care Facilities: PACE Cross-Sectional Study

    Barańska, I., Kijowska, V., Engels, Y., Finne-Soveri, H., Froggatt, K., Gambassi, G., Hammar, T., Oosterveld-Vlug, M., Payne, S., Van Den Noortgate, N., Smets, T., Deliens, L., Van den Block, L., Szczerbińska, K., Adang, E., Andreasen, P., Collingridge Moore, D., van Hout, H., Ten Koppel, M., Mammarella, F. & 9 others, Mercuri, M., Onwuteaka-Philipsen, B. D., Pivodic, L., Rossi, P., Sowerby, E., Stodolska, A., Wichmann, A., van der Steen, J. T. & Vernooij-Dassen, M., 1/03/2020, In: Journal of the American Medical Directors Association. 21, 3, p. 439.e1-439.e8 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  76. Published

    Perception of the Quality of Communication With Physicians Among Relatives of Dying Residents of Long-term Care Facilities in 6 European Countries: PACE Cross-Sectional Study

    Baranska, I., Kijowska, V., Engels, Y., Finne-Soveri, H., Froggatt, K., Gambassi, G., Hammar, T., Oosterveld-Vlug, M., Payne, S., Van Den Noortgate, N., Smets, T., Luc, D., Van den Block, L. & Szczerbińska, K., 1/03/2020, In: Journal of the American Medical Directors Association. 21, 3, p. 331-337 7 p.

    Research output: Contribution to journalJournal articlepeer-review

  77. Published

    Length of stay in long-term care facilities: A comparison of residents in six European countries. Results of the PACE cross-sectional study

    Moore, D. C., Payne, S., Keegan, T., Van Den Block, L., Deliens, L., Gambassi, G., Heikkila, R., Kijowska, V., Roeline Pasman, H., Pivodic, L. & Froggatt, K., 29/02/2020, In: BMJ Open. 10, 3, 13 p., e033881.

    Research output: Contribution to journalJournal articlepeer-review

  78. Published

    International palliative care research priorities: A systematic review

    Hasson, F., Nicholson, E., Muldrew, D., Bamidele, O., Payne, S. & McIlfatrick, S., 3/02/2020, In: BMC Palliative Care. 19, 1, 16 p., 16.

    Research output: Contribution to journalJournal articlepeer-review

  79. Published

    Perspectives of Elders and their Adult Children of Black and Minority Ethnic Heritage on End-of-Life Conversations: A Meta-ethnography

    De Souza, J., Froggatt, K., Walshe, C. & Gillett, K., 1/02/2020, In: Palliative Medicine. 34, 2, p. 195-208 14 p.

    Research output: Contribution to journalJournal articlepeer-review

  80. Published

    Coping strategies of patients with advanced lung or colorectal cancer in six European countries: Insights from the ACTION Study

    Jabbarian, L. J., Korfage, I. J., Červ, B., van Delden, J. J. M., Deliens, L., Miccinesi, G., Payne, S., Thit Johnsen, A., Verkissen, M. N., Wilcock, A., van der Heide, A. & Rietjens, J. A. C., 1/02/2020, In: Psycho-Oncology. 29, 2, p. 347-355 9 p.

    Research output: Contribution to journalJournal articlepeer-review

  81. Published

    A group intervention to improve quality of life for people with advanced dementia living in care homes: the Namaste feasibility cluster RCT

    Froggatt, K., Dunleavy, L., Perez Algorta, G., Preston, N. & Walshe, C., 23/01/2020, In: Health Technology Assessment. 24, 6, p. 1-139 139 p.

    Research output: Contribution to journalJournal articlepeer-review

  82. E-pub ahead of print

    Palliative care for non-cancer conditions in primary care: A time trend analysis in the UK (2009-2014)

    Gadoud, A., Kane, E., Oliver, S. E., Johnson, M. J., MacLeod, U. & Allgar, V., 13/01/2020, In: BMJ Supportive and Palliative Care. 9 p.

    Research output: Contribution to journalJournal articlepeer-review

  83. Published
  84. E-pub ahead of print

    The perception of barriers concerning opioid medicines: A survey examining differences between policy makers, healthcare professionals and other stakeholders

    Vranken, M. J. M., Linge-Dahl, L., Mantel-Teeuwisse, A. K., Radbruch, L., Schutjens, M-HDB., Scholten, W., Payne, S. & Jünger, S., 23/12/2019, In: Palliative Medicine. 11 p.

    Research output: Contribution to journalJournal articlepeer-review

  85. Published

    Evaluating the implementation of the PACE Steps to Success Programme in long-term care facilities in seven countries according to the RE-AIM framework

    Oosterveld-Vlug, M., Onwuteaka-Philipsen, B., Ten Koppel, M., Van Hout, H., Smets, T., Pivodic, L., Tanghe, M., Van Den Noortgate, N., Hockley, J., Payne, S., Moore, D. C., Kijowska, V., Szczerbińska, K., Kylänen, M., Leppaäho, S., Mercuri, C., Rossi, P., Mercuri, M., Gambassi, G., Bassal, C. & 5 others, De Paula, E. M., Engels, Y., Deliens, L., Van Den Block, L. & Pasman, H. R., 19/12/2019, In: Implementation Science. 14, 1, 19 p., 107.

    Research output: Contribution to journalJournal articlepeer-review

  86. Published

    Telehealth in palliative care is being described but not evaluated: A systematic review

    Hancock, S., Preston, N., Jones, H. & Gadoud, A., 13/12/2019, In: BMC Palliative Care. 18, 1, 15 p., 114.

    Research output: Contribution to journalJournal articlepeer-review

  87. Published

    ‘A friend in the corner’: supporting people at home in the last year of life via telephone and video consultation—an evaluation

    Middleton-Green, L., Gadoud, A., Norris, B., Sargeant, A. R., Nair, S., Wilson, L., Livingstone, H. & Small, N., 1/12/2019, In: BMJ Supportive and Palliative Care. 9, 4, 7 p., e26.

    Research output: Contribution to journalJournal articlepeer-review

  88. Published

    What are the main symptoms and concerns reported by patients with advanced chronic heart failure? — A secondary analysis of the palliative care outcome scale (POS) and integrated palliative care outcome scale (IPOS)

    Oriani, A., Guo, P., Gadoud, A., Dunleavy, L., Kane, P. & Murtagh, F. E. M., 30/11/2019, In: Annals of Palliative Medicine. 8, 5, p. 775-780 6 p.

    Research output: Contribution to journalJournal articlepeer-review

  89. Published

    Evaluation of a Palliative Care Program for Nursing Homes in 7 Countries: The PACE Cluster-Randomized Clinical Trial

    Van Den Block, L., Honinx, E., Pivodic, L., Miranda, R., Onwuteaka-Philipsen, B. D., Van Hout, H., Pasman, H. R. W., Oosterveld-Vlug, M., Ten Koppel, M., Piers, R., Van Den Noortgate, N., Engels, Y., Vernooij-Dassen, M., Hockley, J., Froggatt, K., Payne, S., Szczerbińska, K., Kylänen, M., Gambassi, G., Pautex, S. & 4 others, Bassal, C., De Buysser, S., Deliens, L. & Smets, T., 11/11/2019, In: JAMA Internal Medicine. 180, 2, p. 233-242 10 p.

    Research output: Contribution to journalJournal articlepeer-review

  90. Published

    Agreement of Nursing Home Staff With Palliative Care Principles: A PACE Cross-sectional Study Among Nurses and Care Assistants in Five European Countries

    Honinx, E., Smets, T., Piers, R., Deliens, L., Payne, S., Kylänen, M., Barańska, I., Pasman, H. R. W., Gambassi, G., Van den Block, L., Gatsolaeva, Y., Miranda, R., Pivodic, L., Tanghe, M., van Hout, H., Van Den Noortgate, N., Froggatt, K., Onwuteaka-Philipsen, B., Szczerbińska, K., Oosterveld-Vlug, M. & 21 others, Wichmann, A. B., Engels, Y., Vernooij-Dassen, M., Hockley, J., Leppäaho, S., Pautex, S., Bassal, C., Mammarella, F., Mercuri, M., Rossi, P., Segat, I., Stodolska, A., Adang, E., Andreasen, P., Kuitunen-Kaija, O., Moore, D. C., Pac, A., Kijowska, V., Koppel, M. T., van der Steen, J. T. & Morgan de Paula, E., 1/11/2019, In: Journal of Pain and Symptom Management. 58, 5, p. 824-834 11 p.

    Research output: Contribution to journalJournal articlepeer-review

  91. Published

    Trained facilitators' experiences with structured advance care planning conversations in oncology: an international focus group study within the ACTION trial

    ACTION Consortium, 31/10/2019, In: BMC Cancer. 19, 1, 13 p., 1026.

    Research output: Contribution to journalJournal articlepeer-review

  92. Published

    A framework for cross-cultural development and implementation of complex interventions to improve palliative care in nursing homes: the PACE steps to success programme

    Hockley, J., Froggatt, K., Van den Block, L., Onwuteaka-Philipsen, B., Kylänen, M., Szczerbińska, K., Gambassi, G., Pautex, S. & Payne, S. A., 24/10/2019, In: BMC Health Services Research. 19, 1, 11 p., 745.

    Research output: Contribution to journalJournal articlepeer-review

  93. Published

    A four-stage process for intervention description and guide development of a practice based intervention: refining the Namaste Care intervention implementation specification for people with advanced dementia prior to a feasibility cluster randomised trial

    Walshe, C., Kinley, J., Patel, S., Goodman, C., Bunn, F., Lynch, J., Scott, D., Davidson Lund, A., Stacpoole, M., Preston, N. & Froggatt, K., 21/10/2019, In: BMC Geriatrics. 19, 11 p., 275.

    Research output: Contribution to journalJournal articlepeer-review

  94. Published

    Palliative care provision in long-term care facilities differs across Europe: Results of a cross-sectional study in six European countries (PACE)

    ten Koppel, M., Onwuteaka-Philipsen, B. D., Van den Block, L., Deliens, L., Gambassi, G., Heymans, M. W., Kylänen, M., Oosterveld-Vlug, M. G., Pasman, H. R. W., Payne, S., Smets, T., Szczerbińska, K., Twisk, J. W. R., van der Steen, J. T., De Groote, Z., Mammarella, F., Mercuri, M., Pivodic, L., Pac, A., Rossi, P. & 14 others, Segat, I., Sowerby, E., Stodolska, A., van Hout, H., Wichmann, A., Adang, E., Andreasen, P., Finne-Soveri, H., Collingridge Moore, D., Froggatt, K., Kijowska, V., Van Den Noortgate, N., Vernooij-Dassen, M. & PACE, O. B. O., 1/10/2019, In: Palliative Medicine. 33, 9, p. 1176-1188 13 p.

    Research output: Contribution to journalJournal articlepeer-review

  95. Published

    Family members' experiences of assisted dying: A systematic literature review with thematic synthesis

    Gamondi, C., Fusi-Schmidhauser, T., Oriani, A., Payne, S. & Preston, N., 1/09/2019, In: Palliative Medicine. 33, 8, p. 1091-1105 15 p.

    Research output: Contribution to journalJournal articlepeer-review

  96. Published

    When is hastened death considered suicide? a systematically conducted literature review about palliative care professionals' experiences where assisted dying is legal

    Gerson, S. M., Bingley, A., Preston, N. & Grinyer, A., 31/08/2019, In: BMC Palliative Care. 18, 1, 13 p., 75.

    Research output: Contribution to journalJournal articlepeer-review

  97. Published

    Dying in long-term care facilities in Europe: The PACE epidemiological study of deceased residents in six countries

    Honinx, E., Van Dop, N., Smets, T., Deliens, L., Van Den Noortgate, N., Froggatt, K., Gambassi, G., Kylänen, M., Onwuteaka-Philipsen, B., Szczerbińska, K., Van Den Block, L., Gatsolaeva, Y., Miranda, R., Pivodic, L., Tanghe, M., Van Hout, H., Pasman, R. H. R. W., Oosterveld-Vlug, M., Piers, R., Wichmann, A. B. & 22 others, Engels, Y., Vernooij-Dassen, M., Hockley, J., Payne, S., Leppäaho, S., Barańska, I., Pautex, S., Bassal, C., Mammarella, F., Mercuri, M., Rossi, P., Segat, I., Stodolska, A., Adang, E., Andreasen, P., Kuitunen-Kaija, O., Moore, D. C., Pac, A., Kijowska, V., Ten Koppel, M., Van Der Steen, J. T. & De Paula, E. M., 30/08/2019, In: BMC Public Health. 19, 1, 12 p., 1199.

    Research output: Contribution to journalJournal articlepeer-review

  98. Published

    Consensus on treatment for residents in long-term care facilities: Perspectives from relatives and care staff in the PACE cross-sectional study in 6 European countries

    Ten Koppel, M., Pasman, H. R. W., Van Der Steen, J. T., Van Hout, H. P. J., Kylänen, M., Van Den Block, L., Smets, T., Deliens, L., Gambassi, G., Froggatt, K., Szczerbińska, K., Onwuteaka-Philipsen, B. D., De Groote, Z., Pivodic, L., Mammarella, F., Mercuri, M., Oosterveld-Vlug, M., Pac, A., Rossi, P., Segat, I. & 11 others, Sowerby, E., Stodolska, A., Wichmann, A., Adang, E., Andreasen, P., Finne-Soveri, H., Payne, S., Moore, D. C., Kijowska, V., Van Den Noortgate, N. & Vernooij-Dassen, M., 29/08/2019, In: BMC Palliative Care. 18, 1, 11 p., 73.

    Research output: Contribution to journalJournal articlepeer-review

  99. Published

    Research, recruitment and observational data collection in care homes: Lessons from the PACE study

    Moore, D. C., Payne, S., Van Den Block, L., Ten Koppel, M., Szczerbińska, K., Froggatt, K. & PACE consortium, 14/08/2019, In: BMC Research Notes. 12, 1, 6 p., 508.

    Research output: Contribution to journalJournal articlepeer-review

  100. Published

    Care home life and identity: A qualitative case study

    Paddock, K., Brown Wilson, C., Walshe, C. E. & Todd, C., 1/08/2019, In: The Gerontologist. 59, 4, p. 655-664 10 p.

    Research output: Contribution to journalJournal articlepeer-review

  101. Published

    Communicative constructions of person-centred and non-person-centred caring in nurse-led consultations

    Farrell, C., Walshe, C. E., Molassiotis, A. & Siouta, E., 1/06/2019, In: European Journal of Oncology Nursing. 40, p. 10–21 12 p.

    Research output: Contribution to journalJournal articlepeer-review

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