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International Observatory on End of Life Care

  1. Journal article
  2. Published

    Physician Visits and Recognition of Residents' Terminal Phase in Long-Term Care Facilities: Findings From the PACE Cross-Sectional Study in 6 EU Countries

    PACE, 1/06/2019, In: Journal of the American Medical Directors Association. 20, 6, p. 696-702.e1 7 p.

    Research output: Contribution to journalJournal articlepeer-review

  3. Published

    Communicative constructions of person-centred and non-person-centred caring in nurse-led consultations

    Farrell, C., Walshe, C. E., Molassiotis, A. & Siouta, E., 1/06/2019, In: European Journal of Oncology Nursing. 40, p. 10–21 12 p.

    Research output: Contribution to journalJournal articlepeer-review

  4. Published

    Perceptions of a Good Death in Children with Life-Shortening Conditions: An Integrative Review

    Chong, P. H., Walshe, C. & Hughes, S., 1/06/2019, In: Journal of Palliative Medicine. 22, 6, p. 714-723 10 p.

    Research output: Contribution to journalJournal articlepeer-review

  5. E-pub ahead of print

    Advance directives in European long-term care facilities: A cross-sectional survey

    Andreasen, P., Finne-Soveri, U. H., Deliens, L., Van Den Block, L., Payne, S., Gambassi, G., Onwuteaka-Philipsen, B. D., Smets, T., Lilja, E., Kijowska, V. & Szczerbińska, K., 21/05/2019, In: BMJ Supportive and Palliative Care. 10 p.

    Research output: Contribution to journalJournal articlepeer-review

  6. Published

    Responses to assisted suicide requests: an interview study with Swiss palliative care physicians

    Gamondi, C., Borasio, G. D., Oliver, P., Preston, N. & Payne, S., 1/03/2019, In: BMJ Supportive and Palliative Care. 9, 1, p. e7 10 p., e7.

    Research output: Contribution to journalJournal articlepeer-review

  7. Published

    Palliative Care Provision for Patients with Advanced Chronic Obstructive Pulmonary Disease: A Systematic Integrative Literature Review

    Fusi-Schmidhauser, T., Riglietti, A., Froggatt, K. & Preston, N., 4/02/2019, In: COPD. 15, 6, p. 600-611 12 p.

    Research output: Contribution to journalJournal articlepeer-review

  8. Published

    Opioid, antipsychotic and hypnotic use in end of life in long-term care facilities in six European countries: results of PACE

    Tanghe, M., Van Den Noortgate, N., Pivodic, L., Deliens, L., Onwuteaka-Philipsen, B., Szczerbinska, K., Finne-Soveri, H., Collingridge-Moore, D., Gambassi, G., Van den Block, L. & Piers, R., 1/02/2019, In: European Journal of Public Health. 29, 1, p. 74–79 6 p.

    Research output: Contribution to journalJournal articlepeer-review

  9. Published

    How grandparents experience the death of a grandchild with a life-limiting condition

    Tatterton, M. & Walshe, C. E., 1/02/2019, In: Journal of Family Nursing. 25, 1, p. 109-127 19 p.

    Research output: Contribution to journalJournal articlepeer-review

  10. Published

    The experiences of family caregivers of people with advanced dementia living in nursing homes, with a specific focus on spouses: a narrative literature review

    Hennings, J. & Froggatt, K. A., 01/2019, In: Dementia. 18, 1, p. 303-322 20 p.

    Research output: Contribution to journalJournal articlepeer-review

  11. Published

    Improving living and dying for people with advanced dementia living in care homes: a realist review of Namaste Care and other multisensory interventions

    Bunn, F., Lynch, J., Sharpe, R., Goodman, C., Walshe, C. E., Preston, N. J. & Froggatt, K. A., 6/12/2018, In: BMC Geriatrics. 18, 303, 15 p., 303.

    Research output: Contribution to journalJournal articlepeer-review

  12. Published

    "We call it jail craft": the erosion of the protective discourses drawn on by prison officers dealing with ageing and dying prisoners in the neoliberal, carceral system

    Peacock, M., Turner, M. & Varey, S., 1/12/2018, In: Sociology. 52, 6, p. 1152-1168 17 p.

    Research output: Contribution to journalJournal articlepeer-review

  13. Published

    Namaste Care in nursing care homes with people with advanced dementia: protocol for a feasibility randomised controlled trial

    Froggatt, K. A., Patel, S., Perez Algorta, G. D., Bunn, F., Burnside, G., Coast, J., Dunleavy, L. J., Hardwick, B., Kinley, J., Preston, N. J. & Walshe, C. E., 25/11/2018, In: BMJ Open. 8, 11 p., 026531.

    Research output: Contribution to journalJournal articlepeer-review

  14. Published

    Loneliness as a risk factor for care home admission in the English Longitudinal Study of Ageing

    Hanratty, B., Stow, D., Collingridge Moore, D., Valtorta, N. K. & Matthews, F., 1/11/2018, In: Age and Ageing. 47, 6, p. 896-900 5 p.

    Research output: Contribution to journalJournal articlepeer-review

  15. Published

    Quality of life trends in people with and without cancer referred to volunteer provided palliative care services (ELSA): A longitudinal study

    Walshe, C. E., Preston, N. J., Payne, S. A., Dodd, S. R. & Perez Algorta, G. D., 11/2018, In: Journal of Pain and Symptom Management. 56, 5, p. 689-698 10 p.

    Research output: Contribution to journalJournal articlepeer-review

  16. Published

    Peer support for people with advanced cancer: a systematically constructed scoping review of quantitative and qualitative evidence

    Walshe, C. E. & Roberts, D., 1/09/2018, In: Current Opinion in Supportive and Palliative Care. 12, 3, p. 308-322 15 p.

    Research output: Contribution to journalJournal articlepeer-review

  17. Published

    Ageing and dying in the contemporary neoliberal prison system: exploring the 'double burden' for older prisoners

    Turner, M., Peacock, M., Payne, S. A., Fletcher, A. & Froggatt, K. A., 09/2018, In: Social Science and Medicine. 212, p. 161-167 7 p.

    Research output: Contribution to journalJournal articlepeer-review

  18. Published

    'Being with' or 'doing for'? How the role of an end-of-life volunteer befriender can impact patient wellbeing: interviews from a multiple qualitative case study (ELSA)

    Dodd, S. R., Hill, M., Ockenden, N., Perez Algorta, G. D., Payne, S. A., Preston, N. J. & Walshe, C. E., 09/2018, In: Supportive Care in Cancer. 26, 9, p. 3163-3172 10 p.

    Research output: Contribution to journalJournal articlepeer-review

  19. Published

    A philosophical critique of the UK’s National Institute for Health and Care Excellence guideline ‘Palliative care for adults: strong opioids for pain relief’

    Fearon, D., Hughes, S. & Brearley, S. G., 1/08/2018, In: British Journal of Pain. 12, 3, p. 183-188 6 p.

    Research output: Contribution to journalJournal articlepeer-review

  20. Published

    The Experience of Adolescents and Young Adults Treated for Cancer in an Adult Setting: A Review of the Literature

    Marshall, S., Grinyer, A. & Limmer, M., 1/06/2018, In: Journal of Adolescent and Young Adult Oncology. 7, 3

    Research output: Contribution to journalJournal articlepeer-review

  21. Published

    Integrated palliative care networks from the perspectives of patients: A cross-sectional explorative study in five European countries

    den Herder-van der Eerden, M., Ebenau, A., Payne, S., Preston, N., Radbruch, L., Linge-Dahl, L., Csikos, A., Busa, C., Van Beek, K., Groot, M., Vissers, K. & Hasselaar, J., 1/06/2018, In: Palliative Medicine. 32, 6, p. 1103-1113 11 p.

    Research output: Contribution to journalJournal articlepeer-review

  22. Published

    Facilitation of an end-of-life care programme into practice within UK nursing care homes: a mixed-methods study

    Kinley, J., Froggatt, K. A. & Preston, N. J., 06/2018, In: International Journal of Nursing Studies. 82, p. 1-10 10 p.

    Research output: Contribution to journalJournal articlepeer-review

  23. Published

    Using the 'Social Marketing Mix Framework' to explore recruitment barriers and facilitators in palliative care randomised controlled trials? A narrative synthesis review

    Dunleavy, L., Walshe, C., Oriani, A. & Preston, N., 1/05/2018, In: Palliative Medicine. 32, 5, p. 990-1009 20 p.

    Research output: Contribution to journalJournal articlepeer-review

  24. Published

    Family carers’ experiences of coping 
with the deaths of adults in home settings: A narrative analysis of carers’ relevant background worries

    Thomas, C. J., Turner, M., Payne, S. A., Milligan, C., Brearley, S. G., Seamark, D., Wang, X. & Blake, S., 1/05/2018, In: Palliative Medicine. 32, 5, p. 950-959 10 p.

    Research output: Contribution to journalJournal articlepeer-review

  25. Published

    Advanced heart failure: setting the research agenda

    Taylor, C., Huntley, A., Gadoud, A., Lehman, R., Brice, M., Nicholas, R., Jones, FD., Hobbs, R., Feder, G., Mant, J., R, J. & Alliance, J. L., 05/2018, In: British Journal of Cardiac Nursing . 13, 5, p. 243 1 p.

    Research output: Contribution to journalJournal article

  26. Published

    The views of adults with Huntington’s disease on assisted dying: a qualitative exploration

    Regan, L., Preston, N. J., Eccles, F. J. R. & Simpson, J., 1/04/2018, In: Palliative Medicine. 32, 4, p. 708-715 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  27. Published

    Family caregivers' reflections on experiences of assisted suicide in Switzerland: a qualitative interview study

    Gamondi, C., Pott, M., Preston, N. & Payne, S., 04/2018, In: Journal of Pain and Symptom Management. 55, 4, p. 1085-1094 10 p.

    Research output: Contribution to journalJournal articlepeer-review

  28. Published

    Integrating palliative care in long-term care facilities across Europe (PACE): Protocol of a cluster randomized controlled trial of the 'PACE Steps to Success' intervention in seven countries

    Smets, T., Onwuteaka-Philipsen, B. D., Miranda, R., Pivodic, L., Tanghe, M., van Hout, H., Pasman, H. R. W., Oosterveld-Vlug, M., Piers, R., Van Den Noortgate, N., B Wichmann, A., Engels, Y., Vernooij-Dassen, M., Hockley, J., Froggatt, K. A., Payne, S. A., Szczerbińska, K., Kylanen, M., Leppaaho, S., Baranska, I. & 5 others, Gambassi, G., Pautex, S., Bassal, C., Deliens, L. & Van den Block, L., 12/03/2018, In: BMC Palliative Care. 17, 11 p., 47.

    Research output: Contribution to journalJournal articlepeer-review

  29. Published

    Effectiveness of advance care planning with family carers in dementia nursing homes: a paired cluster randomized controlled trial

    Brazil, K., Carter, G., Cardwell, C. R., Clarke, M., Hudson, P., Froggatt, K. A., McLaughlin, D., Passmore, P. & Kernohan, G., 1/03/2018, In: Palliative Medicine. 32, 3, p. 603-612 10 p.

    Research output: Contribution to journalJournal articlepeer-review

  30. Published

    “Never at ease” – family carers within integrated palliative care: a multinational, mixed method study

    Ateş, G., Ebenau, A., Busa, C., Csikos, A., Hasselaar, J., Jaspers, B., Menten, J., Payne, S., van Beek, K., Varey, S., Groot, M. & Radbruch, L., 1/03/2018, In: BMC Palliative Care. 17, 11 p., 39.

    Research output: Contribution to journalJournal articlepeer-review

  31. Published
  32. E-pub ahead of print

    Integrated palliative care is about professional networking rather than standardisation of care: A qualitative study with healthcare professionals in 19 integrated palliative care initiatives in five European countries

    den Herder-van der Eerden, M., van Wijngaarden, J., Payne, S., Preston, N., Linge-Dahl, L., Radbruch, L., Van Beek, K., Menten, J., Busa, C., Csikos, A., Vissers, K., van Gurp, J. & Hasselaar, J., 13/02/2018, In: Palliative Medicine. 12 p.

    Research output: Contribution to journalJournal articlepeer-review

  33. Published

    Family involvement in timely detection of changes in health of nursing homes residents: a qualitative exploratory study

    Powell, C., Blighe, A., Froggatt, K. A., McCormack, B., Woodward-Carlton, B., Young, J., Robinson, L. & Downs, M., 01/2018, In: Journal of Clinical Nursing. 27, 1-2, p. 317-327 11 p.

    Research output: Contribution to journalJournal articlepeer-review

  34. Published

    A revised model for coping with advanced cancer. Mapping concepts from a longitudinal qualitative study of patients and carers coping with advanced cancer onto Folkman and Greer’s theoretical model of appraisal and coping

    Roberts, D., Calman, L., Large, P., Appleton, L., Grande, G., Lloyd-Williams, M. & Walshe, C. E., 01/2018, In: Psycho-Oncology. 27, 1, p. 229-235 7 p.

    Research output: Contribution to journalJournal articlepeer-review

  35. Published

    Outcomes, measurement and effectiveness. Lessons from a pragmatic randomised wait-list trial of volunteer support in palliative care (ELSA)

    Walshe, C. E., Dodd, S. R., Hill, M., Ockenden, N., Payne, S. A., Preston, N. J. & Perez Algorta, G. D., 1/12/2017, In: Omsorg. The Norwegian Journal of Palliative Medicine. 34, 4, p. 58-60 3 p.

    Research output: Contribution to journalJournal articlepeer-review

  36. Published

    Final transitions to place of death: Patients and families wishes

    EURO-IMPACT, 1/12/2017, In: Journal of Public Health (United Kingdom). 39, 4, p. e302-e311 10 p.

    Research output: Contribution to journalJournal articlepeer-review

  37. Published

    How continuity of care is experienced within the context of integrated palliative care: a qualitative study with patients and family caregivers in five European countries

    den Herder-van der Eerden, M., Hasselaar, J., Payne, S., Varey, S., Schwabe, S., Radbruch, L., van Beek, K., Menten, J., Busa, C., Csikos, A., Vissers, K. & Groot, M., 1/12/2017, In: Palliative Medicine. 31, 10, p. 946-955 10 p.

    Research output: Contribution to journalJournal articlepeer-review

  38. Published

    Enhancing integrated palliative care: what models are appropriate? A cross-case analysis

    Payne, S. A., Hughes, S., Varey, S. E., Hasselaar, J., Preston, N. J. & Eastham, R. K., 28/11/2017, In: BMC Palliative Care. 16, 64, 10 p.

    Research output: Contribution to journalJournal articlepeer-review

  39. Published

    Is the content of guidelines/pathways a barrier for the integration of palliative Care in Chronic Heart Failure (CHF) and chronic pulmonary obstructive disease (COPD)? A comparison with the case of cancer in Europe

    Siouta, N., Van Beek, K., Payne, S., Radbruch, L., Preston, N., Hasselaar, J., Centeno, C. & Menten, J., 28/11/2017, In: BMC Palliative Care. 16, 1, 8 p., 62.

    Research output: Contribution to journalJournal articlepeer-review

  40. E-pub ahead of print

    The views of adults with neurodegenerative diseases on end-of-life care: a metasynthesis

    Regan, L., Preston, N. J., Eccles, F. J. R. & Simpson, J., 6/11/2017, In: Aging and Mental Health. 9 p.

    Research output: Contribution to journalJournal articlepeer-review

  41. Published

    Cancer-related pain management: a review of knowledge and attitudes of healthcare professionals

    Kasasbeh, M. A. M., McCabe, C. & Payne, S. A., 11/2017, In: European Journal of Cancer Care. 26, 6, 7 p., e12625.

    Research output: Contribution to journalJournal articlepeer-review

  42. Published

    Hospice volunteers: bridging the gap to the community?

    Morris, S., Payne, S., Ockenden, N. & Hill, M., 11/2017, In: Health and Social Care in the Community. 25, 6, p. 1704-1713 10 p.

    Research output: Contribution to journalJournal articlepeer-review

  43. Published

    Using the Ecological Framework to identify barriers and enablers to implementing Namaste Care in Canada’s long-term care system

    Hunter, P., Kaasalainen, S., Froggatt, K. A., Ploeg, J., Dolovich, L., Simard, J. & Salsali, M., 1/10/2017, In: Annals of Palliative Medicine. 6, 4, p. 340-353 14 p.

    Research output: Contribution to journalJournal articlepeer-review

  44. Published

    ‘Powerlessness’ or ‘doing the right thing’ moral distress amongst nursing home staff caring for residents at the end of life: An interpretive descriptive study

    Young, A., Froggatt, K. A. & Brearley, S. G., 10/2017, In: Palliative Medicine. 31, 9, p. 853-860 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  45. Published

    Guidance on Conducting and REporting DElphi Studies (CREDES) in palliative care: Recommendations based on a methodological systematic review

    Jünger, S., Payne, S., Brine, J., Radbruch, L. & Brearley, S., 1/09/2017, In: Palliative Medicine. 31, 8, p. 684-706 23 p.

    Research output: Contribution to journalJournal articlepeer-review

  46. Published

    A pilot study of interprofessional palliative care education of medical students in the UK and USA

    Gadoud, A., Lu, W-H., Strano-Paul, L., Lane, S. & Boland, J. W., 23/07/2017, In: BMJ Supportive and Palliative Care. 7 p.

    Research output: Contribution to journalJournal articlepeer-review

  47. Published

    Ward social workers’ views of what facilitates or hinders collaboration with specialist palliative care team social workers: a grounded theory

    Firn, J., Preston, N. J. & Walshe, C. E., 14/07/2017, In: BMC Palliative Care. 17, 12 p., 7.

    Research output: Contribution to journalJournal articlepeer-review

  48. Published

    Palliative care development in European care homes and nursing homes: application of a typology of implementation

    Froggatt, K. A., Payne, S. A., Morbey, H., Edwards, M. J., Finne-Soveri, H., Gambassi, G., Pasman, H. R., Szczerbińska, K. & Van den Block, L., 1/06/2017, In: Journal of the American Medical Directors Association. 18, 6, p. 550.e7-550.e14 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  49. Published

    Are nurse-led chemotherapy clinics really nurse-led? an ethnographic study

    Farrell, C., Walshe, C. E. & Molassiotis, A., 04/2017, In: International Journal of Nursing Studies. 69, p. 1-8 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  50. Published

    The online use of Violence and Journey metaphors by patients with cancer, as compared with health professionals: a mixed methods study

    Semino, E., Demjen, Z., Demmen, J., Koller, V., Payne, S., Hardie, A. & Rayson, P., 1/03/2017, In: BMJ Supportive and Palliative Care. 7, 1, p. 60-66 7 p.

    Research output: Contribution to journalJournal articlepeer-review

  51. Published

    Coping well with advanced cancer: a serial qualitative interview study with patients and family carers

    Walshe, C. E., Roberts, D., Appleton, L., Calman, L., Large, P., Lloyd-Williams, M. & Grande, G., 20/01/2017, In: PLoS ONE. 12, 1, 25 p., e0169071.

    Research output: Contribution to journalJournal articlepeer-review

  52. Published

    Palliative care in UK prisons: practical and emotional challenges for staff and fellow prisoners

    Turner, M. & Peacock, M., 01/2017, In: Journal of Correctional Health Care. 23, 1, p. 56-65 10 p.

    Research output: Contribution to journalJournal articlepeer-review

  53. Published

    Public health, research and rights: the perspectives of deliberation panels with politically and socially active disabled people

    Berghs, M., Atkin, K., Graham, H., Hatton, C. & Thomas, C., 2017, In: Disability and Society. 32, 7, p. 945-965 21 p.

    Research output: Contribution to journalJournal articlepeer-review

  54. Published
  55. Published

    How effective are volunteers at supporting people in their last year of life? a pragmatic randomised wait-list trial in palliative care (ELSA)

    Walshe, C. E., Dodd, S. R., Hill, M., Ockenden, N., Payne, S. A., Preston, N. J. & Perez Algorta, G. D., 9/12/2016, In: BMC Medicine. 14, 12 p., 203.

    Research output: Contribution to journalJournal articlepeer-review

  56. Published

    Palliative care interventions in advanced dementia (Review)

    Murphy, E., Froggatt, K. A., Connolly, S., O'Shea, E., Sampson, E., Casey, D. & Devane, D., 2/12/2016, In: Cochrane Database of Systematic Reviews. 12, 50 p., CD011513.

    Research output: Contribution to journalJournal articlepeer-review

  57. Published

    Medical students writing on death, dying and palliative care: a qualitative analysis of reflective essays

    Boland, J. W., Dikomitis, L. & Gadoud, A., 1/12/2016, In: BMJ Supportive and Palliative Care. 6, p. 486-492 7 p.

    Research output: Contribution to journalJournal articlepeer-review

  58. Published

    Language barriers to defining concepts in medicine: the case of palliative sedation

    Bakogiannis, A. & Papavasiliou, E., 11/2016, In: American Journal of Hospice and Palliative Medicine. 33, 9, p. 909-910 2 p.

    Research output: Contribution to journalJournal articlepeer-review

  59. Published

    Cochrane corner: interventions for the management of malignant pleural effusions

    Clive, A., Bhatnagar, R., Preston, N. J., Maskell, N. & Jones, H. E., 31/10/2016, In: Thorax. 71, 10, p. 964-966 3 p.

    Research output: Contribution to journalJournal articlepeer-review

  60. Published

    Online learning in palliative care: does it improve practice?

    Hughes, S., Preston, N. J. & Payne, S. A., 09/2016, In: European Journal of Palliative Care. 23, 5, p. 236-239 4 p.

    Research output: Contribution to journalJournal article

  61. Published

    Benefits of interventions for respiratory secretion management in adult palliative care patients-a systematic review

    Arcuri, J. F., Abarshi, E., Preston, N. J., Brine, J. & Pires Di Lorenzo, V. A., 9/08/2016, In: BMC Palliative Care. 15, 11 p., 74.

    Research output: Contribution to journalJournal articlepeer-review

  62. Published
  63. Published

    Integrated palliative care in Europe: a qualitative systematic literature review of empirically-tested models in cancer and chronic disease

    Siouta, N., van Beek, K., van der Eerden, M., Preston, N. J., Hasselaar, J., Hughes, S., Garralda, E., Centeno, C., Csikos, A., Groot, M., Radbruch, L., Payne, S. A. & Menten, J., 8/07/2016, In: BMC Palliative Care. 15, 56, 16 p.

    Research output: Contribution to journalJournal articlepeer-review

  64. Published

    Comparing palliative care in care homes across Europe (PACE): protocol of a cross-sectional study of deceased residents in six EU countries

    Van den Block, L., Smets, T., van Dop, N., Adang, E., Andreasen, P., Collingridge Moore, D., Engels, Y., Finne-Soveri, H., Froggatt, K. A., Payne, S. A. & Sowerby, E., 1/06/2016, In: Journal of the American Medical Directors Association. 17, 6, p. 566.e1-566.e7 7 p.

    Research output: Contribution to journalJournal articlepeer-review

  65. Published

    Interventions for the management of malignant pleural effusions: a network meta-analysis

    Clive, A. O., Jones, H. E., Bhatnagar, R., Preston, N. J. & Maskell, N., 11/05/2016, In: The Cochrane Library. 5, 244 p.

    Research output: Contribution to journalJournal articlepeer-review

  66. Published

    A qualitative exploration of the collaborative working between palliative care and geriatric medicine: barriers and facilitators from a European perspective

    EURO-IMPACT, 11/05/2016, In: BMC Palliative Care. 15, 10 p., 47.

    Research output: Contribution to journalJournal articlepeer-review

  67. Published

    Caring for a dying spouse at the end of life: “It’s one of the things you volunteer for when you get married”: a qualitative study of the oldest carers’ experiences

    Turner, J. M., King, C., Milligan, C., Thomas, C., Brearley, S. G., Seamark, D., Wang, X., Blake, S. & Payne, S. A., 05/2016, In: Age and Ageing. 45, 3, p. 421-426 6 p.

    Research output: Contribution to journalJournal articlepeer-review

  68. Published

    Older men and social activity: a scoping review of Men’s Sheds and other gendered interventions

    Milligan, C., Neary, D., Payne, S., Hanratty, B., Irwin, P. & Dowrick, C., 05/2016, In: Ageing and Society. 36, 5, p. 895-923 29 p.

    Research output: Contribution to journalJournal articlepeer-review

  69. Published

    Advance care planning – a multi-centre cluster randomised clinical trial: the research protocol of the ACTION study

    Rietjens, J., Dunleavy, L. J., Preston, N. J. & Payne, S. A., 8/04/2016, In: BMC Cancer. 16, 8 p., 264.

    Research output: Contribution to journalJournal articlepeer-review

  70. Published

    To what degree is palliative care integrated in guidelines and pathways for adult cancer patients in Europe: a systematic literature review

    van Beek, K., Siouta, N., Preston, N. J., Hasselaar, J., Hughes, S., Payne, S. A., Radbruch, L., Centeno, C., Csikos, A., Garralda, E., van der Eerden, M., Hodiamont, F., Radvanyi, I. & Menten, J., 3/03/2016, In: BMC Palliative Care. 15, 26, 17 p., 26.

    Research output: Contribution to journalJournal articlepeer-review

  71. Published

    Building a taxonomy of integrated palliative care initiatives: results from a focus group

    Ewert, B., Hodiamont, F., van Wijngaarden, J., Payne, S. A., Groot, M., Hasselaar, J., Menten, J. & Radbruch, L., 03/2016, In: BMJ Supportive and Palliative Care. 6, 1, p. 14-20 7 p.

    Research output: Contribution to journalJournal articlepeer-review

  72. Published

    Improving palliative care for prisoners: the 'both sides of the fence' study

    Turner, J. M., 03/2016, In: Prison Service Journal. 224

    Research output: Contribution to journalJournal article

  73. Published

    Unpacking the impact of older adults' home death on family care-givers' experiences of home

    Milligan, C., Turner, J. M., Blake, S., Brearley, S. G., Seamark, D., Thomas, C. J., Wang, X. & Payne, S. A., 03/2016, In: Health and Place. 38, p. 103-111 9 p.

    Research output: Contribution to journalJournal articlepeer-review

  74. Published

    Quality care as ethical care: a poststructural analysis of palliative and supportive district nursing care

    Nagington, M., Walshe, C. & Luker, K., 03/2016, In: Nursing Inquiry. 23, 1, p. 12-23 12 p.

    Research output: Contribution to journalJournal articlepeer-review

  75. Published
  76. Published

    Strategies designed to help healthcare professionals to recruit participants to research studies (Review)

    Preston, N. J., Walshe, C. E., Farquhar, M., Stevinson, C., Ewing, G., Calman, L., Burden, S., Brown Wilson, C., Hopkinson, J. & Todd, C., 29/02/2016, In: The Cochrane Library. 2016, p. 1-23 23 p.

    Research output: Contribution to journalJournal articlepeer-review

  77. Published

    Towards integration of palliative care in patients with chronic heart failure and chronic obstructive pulmonary disease: a systematic literature review of European guidelines and pathways

    Siouta, N., van Beek, K., Preston, N. J., Hasselaar, J., Hughes, S., Payne, S. A., Garralda, E., Centeno, C., van der Eerden, M., Groot, M., Hodiamont, F., Radbruch, L., Busa, C., Csikos, A. & Menten, J., 13/02/2016, In: BMC Palliative Care. 15, 18, 12 p.

    Research output: Contribution to journalJournal articlepeer-review

  78. Published

    Euthanasia, assisted dying, and assisted suicide in palliative care settings: reports from the Netherlands, Switzerland, and Washington State (TH323)

    Gerson, S., Lewis, D. & Gamondi, C., 02/2016, In: Journal of Pain and Symptom Management. 51, 2, p. 326-327 2 p.

    Research output: Contribution to journalJournal articlepeer-review

  79. Published

    Barriers to access to opioid medicines: a review of national legislation and regulations of 11 central and eastern European countries

    Vranken, M. J. M., Lisman, J. A., Mantel-Teeuwisse, A. K., Jünger, S., Scholten, W., Radbruch, L., Payne, S. A. & Schutjens, M-H. D. B., 01/2016, In: Lancet Oncology. 17, 1, p. e13-e22 10 p.

    Research output: Contribution to journalJournal articlepeer-review

  80. Published

    Parental decision-making on utilisation of out-of-home respite in children's palliative care: findings of qualitative case study research - a proposed new model

    Ling, J., Payne, S. A., Connaire, K. & McCarron, M., 01/2016, In: Child: Care, Health and Development. 42, 1, p. 51-59 9 p.

    Research output: Contribution to journalJournal articlepeer-review

  81. Published

    Social Stories™ to alleviate challenging behaviour and social difficulties exhibited by children with autism spectrum disorder in mainstream schools: design of a manualised training toolkit and feasibility study for a cluster randomised controlled trial with nested qualitative and cost-effectiveness components

    Wright, B., Marshall, D., Adamson, J., Ainsworth, H., Ali, S., Allgar, V., Collingridge Moore, D., Cook, E., Dempster, P., Hackney, L., McMillan, D., Trepél, D. & Williams, C., 01/2016, In: Health Technology Assessment. 20, 6, p. 1-258 258 p.

    Research output: Contribution to journalJournal articlepeer-review

  82. Published

    A poststructural rethinking of the ethics of technology in relation to the provision of palliative home care by district nurses

    Nagington, M., Walshe, C. & Luker, K., 01/2016, In: Nursing Philosophy. 17, 1, p. 59-70 12 p.

    Research output: Contribution to journalJournal articlepeer-review

  83. Published

    Orientating disability studies to disablist austerity: applying Fraser’s insights

    Dodd, S. R., 2016, In: Disability and Society. 31, 2, p. 149-165 17 p.

    Research output: Contribution to journalJournal articlepeer-review

  84. Published

    Place of death in the population dying from diseases indicative of palliative care need: a cross-national population-level study in 14 countries

    EURO IMPACT, 2016, In: Journal of Epidemiology and Community Health. 70, p. 17-24 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  85. Published

    A grounded theory approach to physical activity and advanced cancer: a qualitative study protocol

    Lowe, S. S., Milligan, C., Watanabe, S. M. & Brearley, S. G., 8/12/2015, In: International Journal of Qualitative Methods. 14, 5, 10 p., 1609406915617161.

    Research output: Contribution to journalJournal articlepeer-review

  86. Published

    Patient and public involvement in research and the Cancer Experiences Collaborative: benefits and challenges

    Froggatt, K., Preston, N., Turner, M. & Kerr, C., 12/2015, In: BMJ Supportive and Palliative Care. 5, 5, p. 518-521 4 p.

    Research output: Contribution to journalJournal articlepeer-review

  87. Published

    Identification of challenges to the availability and accessibility of opioids in twelve European countries: conclusions from two ATOME six-country workshops

    Linge-Dahl, L., Vranken, M. J. M., Jünger, S., North, K., Scholten, W., Payne, S. A. & Radbruch, L., 12/2015, In: Journal of Palliative Medicine. 18, 12, p. 1033-1039 7 p.

    Research output: Contribution to journalJournal articlepeer-review

  88. Published

    Values Associated with Service User and Public Involvement (UPI) in Health and Social Care Research: a Narrative Review

    Gradinger, F., Britten, N., Wyatt, K., Froggatt, K., Gibson, A., Jacoby, A., Lobban, F., Mayes, D., Snape, D., Rawcliffe, T. & Popay, J., 10/2015, In: Health Expectations. 18, 5, p. 661-675 15 p.

    Research output: Contribution to journalJournal articlepeer-review

  89. Published

    End of life care interventions for people with dementia in care homes: addressing uncertainty within a framework for service delivery and evaluation

    Goodman, C., Froggatt, K. A., Amador, S., Mathie, E. & Mayrhofer, A., 17/09/2015, In: BMC Palliative Care. 14, 9 p., 42.

    Research output: Contribution to journalJournal articlepeer-review

  90. Published

    A computer-assisted study of the use of violence metaphors for cancer and end of life by patients, family carers and health professionals

    Demmen, J. E., Semino, E., Demjen, Z., Koller, V., Hardie, A., Rayson, P. & Payne, S., 17/08/2015, In: International Journal of Corpus Linguistics. 20, 2, p. 205-231 27 p.

    Research output: Contribution to journalJournal articlepeer-review

  91. Published

    Physical and Psychological Distress Are Related to Dying Peacefully in Residents with Dementia in Long-Term Care Facilities

    EURO IMPACT, 07/2015, In: Journal of Pain and Symptom Management. 50, 1, p. 1-8 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  92. Published

    Managing end of life medications at home-accounts of bereaved family carers: a qualitative interview study

    Payne, S., Turner, M., Seamark, D., Thomas, C., Brearley, S., Wang, X., Blake, S. & Milligan, C., 06/2015, In: BMJ Supportive and Palliative Care. 5, 2, p. 181-188 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  93. Published

    Nevasic audio program for the prevention of chemotherapy induced nausea and vomiting: a feasibility study using a randomized controlled trial design

    Moradian, S., Walshe, C., Shahidsales, S., Ghavam Nasiri, M. R., Pilling, M. & Molassiotis, A., 06/2015, In: European Journal of Oncology Nursing. 19, 3, p. 282-291 10 p.

    Research output: Contribution to journalJournal articlepeer-review

  94. Published

    Palliative care information needs in Central and Eastern Europe and the Commonwealth of Independent States

    Juenger, S., Klose, J., Brearley, S., Hegedus, K., Payne, S. & Radbruch, L., 06/2015, In: Journal of Palliative Care. 31, 2, p. 109-117 9 p.

    Research output: Contribution to journalJournal articlepeer-review

  95. Published

    Family carers providing support to a person dying in the home setting: a narrative literature review

    Morris, S., King, C., Turner, M. & Payne, S., 06/2015, In: Palliative Medicine. 29, 6, p. 487–495 9 p.

    Research output: Contribution to journalJournal articlepeer-review

  96. Published

    Symptom clusters in people living with HIV attending five palliative care facilities in two sub-Saharan African countries: A hierarchical cluster analysis

    ENCOMPASS & EURO IMPACT, 12/05/2015, In: PLoS ONE. 10, 5, 12 p., e0126554.

    Research output: Contribution to journalJournal articlepeer-review

  97. Published

    Evaluation of an advance care planning education programme for nursing homes: a longitudinal study

    Baron, K., Hodgson, A. & Walshe, C., 05/2015, In: Nurse Education Today. 35, 5, p. 689-695 7 p.

    Research output: Contribution to journalJournal articlepeer-review

  98. Published

    The study of mental distress and the (re)construction of identities in men and women with experience of long-term mental distress

    Timander, A-C., Grinyer, A. & Möller, A., 03/2015, In: Disability and Society. 30, 3, p. 327-339 13 p.

    Research output: Contribution to journalJournal articlepeer-review

  99. Published

    Self-reported knowledge, attitudes, and behaviour towards hospice care and how are these related to training in palliative care: An online survey among oncologists in the Czech republic and Slovakia

    Loucka, M., Pasman, R. H., Brearley, S. G., Payne, S. A. & Onwuteaka-Philipsen, B., 1/01/2015, In: Progress in Palliative Care. 23, 1, p. 1-8 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  100. Published

    Administering anticipatory medications in end-of-life care: a qualitative study of nursing practice in the community and in nursing homes

    Wilson, E., Morbey, H., Brown, J., Payne, S., Seale, C. & Seymour, J., 01/2015, In: Palliative Medicine. 29, 1, p. 60-70 11 p.

    Research output: Contribution to journalJournal articlepeer-review

  101. Published

    Core competencies for palliative care social work in Europe: an EAPC White Paper - part 2

    Hughes, S., Firth, P. & Oliviere, D., 01/2015, In: European Journal of Palliative Care. 22, 1, p. 38-44 7 p.

    Research output: Contribution to journalJournal article

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