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International Observatory on End of Life Care

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  1. 2021
  2. Published

    MyPal ADULT study protocol: A randomised clinical trial of the MyPal ePRO-based early palliative care system in adult patients with haematological malignancies

    Scarfò, L., Karamanidou, C., Doubek, M., Garani-Papadatos, T., Didi, J., Pontikoglou, C., Ling, J., Payne, C., Papadaki, H. A., Rosenquist, R., Stavroyianni, N., Payne, S., Ghia, P., Natsiavas, P., Maramis, C. & Stamatopoulos, K., 2/11/2021, In: BMJ Open. 11, 11, 10 p., e050256.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  3. Published

    A systematic review with thematic synthesis of the experience of hospitalization in people with advanced chronic obstructive pulmonary disease

    Bakthavatsalu, B., Walshe, C. & Simpson, J., 31/10/2021, In: COPD. 18, 5, p. 576-584 9 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  4. Published

    A Narrative Exploration of the Experiences of Informal Caregivers for People with Moderate to Advanced Dementia within a Domestic Home Setting towards the End of Life

    James, C., Walshe, C. & Swarbrick, C., 6/10/2021.

    Research output: Contribution to conference - Without ISBN/ISSN › Poster

  5. Published

    What are the emotional experiences of being a volunteer in palliative and end-of-life care settings? a systematic review and thematic synthesis

    Coleman, H. & Walshe, C., 30/09/2021, In: Journal of Pain and Symptom Management. 62, 3, p. 232-247 16 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  6. Published

    Editorial MyPal Autumn Newsletter: Health apps and their use in palliative care

    Salifu, Y., 22/09/2021

    Research output: Exhibits, objects and web-based outputs › Blog › peer-review

  7. E-pub ahead of print

    Specialist palliative care services response to ethnic minority groups with COVID-19: equal but inequitable—an observational study

    Bajwah, S., Koffman, J., Hussein, J., Bradshaw, A., Hocaoglu, M., Fraser, L., Oluyase, A., Allwin, C., Dunleavy, L., Preston, N., Cripps, R., Maddocks, M., Sleeman, K., Irene, H., Walshe, C. & Murtagh, F., 12/09/2021, (E-pub ahead of print) In: BMJ Supportive and Palliative Care. 10 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  8. Published

    Smiles behind the masks: A systematic review and narrative synthesis exploring how family members of seriously ill or dying patients are supported during infectious disease outbreaks

    Bloomer, M. & Walshe, C., 1/09/2021, In: Palliative Medicine. 35, 8, p. 1452-1467 16 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  9. Published

    The challenges of caring for people dying from COVID-19: a multinational, observational study (CovPall)

    Oluyase, A., Hocaoglu, M., Cripps, R., Maddocks, M., Walshe, C., Fraser, L., Preston, N., Dunleavy, L., Bradshaw, A., Murtagh, F., Bajwah, S., Sleeman, K. & Irene, H., 1/09/2021, In: Journal of Pain and Symptom Management. 62, 3, p. 460-4470 11 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  10. Published

    Hospitalisation in the last month of life and in-hospital death of nursing home residents: A cross-sectional analysis of six European countries

    Honinx, E., Piers, R. D., Onwuteaka-Philipsen, B. D., Payne, S., Szczerbińska, K., Gambassi, G., Kylänen, M., Deliens, L., Van Den Block, L. & Smets, T., 31/08/2021, In: BMJ Open. 11, 8, 12 p., e047086.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  11. Published

    Large differences in the organization of palliative care in nursing homes in six European countries: findings from the PACE cross-sectional study

    PACE consortium, 25/08/2021, In: BMC Palliative Care. 20, 1, 131.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  12. Published

    Developing and evaluating online COVID-centric advance care planning training and information resources for nursing staff and family members in nursing homes: The Necessary Discussions Study Protocol

    Harding, A., Preston, N., Doherty, J., Cousins, E., Varey, S., McCann, A., Harrison Dening, K., Finucane, A., Carter, G., Mitchell, G. & Brazil, K., 9/08/2021, In: BMC Geriatrics. 21, 8 p., 456.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  13. Published

    Evaluating the online response to a guide to support people who are caring for dying friends and family, the ‘Deathbed Etiquette: an analysis of Twitter and newspaper comments.

    Nwosu, A., Sanders, K., Elverson, J., Doherty, M. & Gadoud, A., 6/08/2021.

    Research output: Contribution to conference - Without ISBN/ISSN › Poster

  14. Published

    Exploring the experience of recurrence with advanced cancer for people who perceived themselves to be cancer free: a grounded theory study

    Economou, D., Walshe, C. & Brearley, S., 31/07/2021, In: Supportive Care in Cancer. 29, 7, p. 3885-3894 10 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  15. Published

    MyPal: Designing and Evaluating Digital Patient-Reported Outcome Systems for Cancer Palliative Care in Europe

    Payne, S. A., Moore, D. C. & Stamatopoulos, K., 31/07/2021, In: Journal of Palliative Medicine. 24, 7, p. 962-964 3 p.

    Research output: Contribution to Journal/Magazine › Editorial › peer-review

  16. Published

    Peer Mentors for People with Advanced Cancer: Lessons Learnt from Recruiting and Training Peer Mentors for a Feasibility Randomized Controlled Trial

    Walshe, C., Roberts, D., Calman, L., Appleton, L., Croft, R., Perez Algorta, G., Skevington, S., Lloyd-Williams, M. & Grande, G., 31/07/2021, In: Journal of Cancer Education. 36, 4, p. 710-718 9 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  17. Published

    Technology in Palliative Care (TIP): the identification of digital priorities for palliative care research using a modified Delphi method

    Nwosu, A., McGlinchey, T., Sanders, J., Stanley, S., Palfrey, J., Lubbers, P., Chapman, L., Finucane, A. & Mason, S., 3/07/2021, In: medRxiv.

    Research output: Contribution to Journal/Magazine › Journal article

  18. Published

    Understanding and addressing challenges for advance care planning in the COVID-19 pandemic: An analysis of the UK CovPall survey data from specialist palliative care services

    Bradshaw, A., Dunleavy, L., Walshe, C., Preston, N., Cripps, R., Hocaoglu, M., Bajwah, S., Maddocks, M., Oluyase, A., Sleeman, K. E., Higginson, I. J., Fraser, L. & Murtagh, F., 1/07/2021, In: Palliative Medicine. 35, 7, p. 1225-1237 13 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  19. Published

    ‘Necessity is the mother of invention’: Specialist palliative care service innovation and practice change in response to COVID-19. Results from a multinational survey (CovPall)

    CovPall Study Team, Dunleavy, L., Preston, N., Bajwah, S., Bradshaw, A., Cripps, R., Fraser, L., Maddocks, M., Hocaoglu, M., Murtagh, F. EM., Oluyase, A., Sleeman, K., Higginson, I. J. & Walshe, C., 31/05/2021, In: Palliative Medicine. 35, 5, p. 814-829 16 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  20. Published

    Constructing a new role for family carers and volunteers providing care towards the end of life: An Action Research approach exploring a new model of hospice care

    Walshe, C., Barnes, H., Turner, M. & Hughes, S., 31/05/2021, In: Health & Social Care in the Community. 29, 3, p. 837-845 9 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  21. E-pub ahead of print

    Women's experiences of advanced breast cancer in a resource-limited Arab context: A Stakian multi-case study

    Fearon, D., Hughes, S. & Brearley, S., 21/05/2021, (E-pub ahead of print) In: Psycho-Oncology.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  22. Published

    Length of stay and palliative care: Understanding long-term care facility residents in Europe

    Collingridge Moore, D., 19/05/2021, Lancaster University. 378 p.

    Research output: Thesis › Doctoral Thesis

  23. Published

    Constructivist Stakian Multicase Study: Methodological Issues Encountered in Cross-Cultural Palliative Care Research

    Fearon, D., Hughes, S. & Brearley, S. G., 6/05/2021, In: International Journal of Qualitative Methods. 20

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  24. Published

    Hearing the voices of children diagnosed with a life-threatening or life-limiting illness and their parents’ accounts in a palliative care setting: A qualitative study

    Ciobanu, E. & Preston, N., 1/05/2021, In: Palliative Medicine. 35, 5, p. 886-892 7 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  25. Published

    Hospital-based social workers’ perceptions of generalist- and specialist-level palliative social work activities

    Firn, J., Preston, N. & Walshe, C., 1/05/2021, In: Journal of Social Work. 21, 3, p. 416-434 19 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  26. Published

    Potentially Inappropriate Treatments at the End of Life in Nursing Home Residents: Findings From the PACE Cross-Sectional Study in Six European Countries

    PACE consortium, 22/04/2021, In: Journal of Pain and Symptom Management. 61, 4, p. 732-742 11 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

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